-
HBO's The Alzheimer's Project
Does anyone remember The Alzheimer's Project? It was produced by HBO and was available online for a time. There was good information there. Iris
-
Some good news to share
I've been working with our CELA on longterm Medicaid. After pulling docs, rearranging things, and managing the "spend down" we finally were approved yesterday. Still work to do. I need to schedule time with the social worker and hire an agency, but we're approved for in home care. I cannot express the relief I feel. Please…
-
A Good Thing
Some may remember how upset I’ve been about my how SOs “super close, best family ever” just disappeared from her life when they heard she had dementia. Poof. No contact. I finally talked to my therapist about it. We agreed her family just didn’t have the emotional capacity to deal, so the only real thing I could do to give…
-
Hallucinations
My wife who is mild /moderate accuses me of having affairs with other women. Up till now I’ve been ok with dealing with everything. How do I answer or calm this delusion. It really hurts me
-
4 years without a working brain
It has been over four years now since DW recognized me or anyone else. Or said a word or responded to a command. She could walk until a year ago. She still eats what you put in her mouth. She likes ice cream. $12,000 a month buys the best of care in the Washington suburbs. I go on cruises and to conferences and vacations…
-
Troubles in public places
I am just beginning to wonder if it is time to limit my DH going to public places. In the last few weeks he seems to be getting worse in terms of his behavior when out and about. For instance, he yelled at me in a grocery store because he no longer has a car key and wanted to go wait in the car, despite it having only been…
-
An answer for hiya about my DW's forgetting who I was
In another thread 'hiya' asked me to expand on a comment I made. I thought it best to respond in a new post. In that post I noted that earlier in my DW's dementia she began to fail to recognize who exactly I was. Specifically the request was: "Can you explain more about how the forgetting process took place? Stage?…
-
How do I handle the passing of my ADLO's sister from the same disease?
My wife's sister, Jennie, lives 2 hours away and has been in a memory care unit for three years. Her husband visited her every day. She has just been put in palliative/hospice care and will pass away soon. My wife Linda has ES, still fully physically functional, can play mahjong and solitaire, but can't remember what took…
-
Guidance for Keeping My DH at Home
Good morning my dear fellow travelers, I need your experience and wisdom about the feasibility of caring for my DH at home. I see him declining more each day. My heart wants to keep him home. My biggest concern is if I can physically handle the anticipated mobility challenges (getting up out of a chair, bed, toilet or any…
-
DH in hospital again
Just can't catch a break. DH has been admitted to the hospital today, again, due to having cellulitis. Third time in less than 6 months that he has had an infection that required IV antibiotics. The last time they sent him home after less than 12 hours. Tomorrow a geriatric care manager is doing an emergency assessment on…
-
Thinks Parents are still alive and wants to go home
My DH of 53 years thinks his parents are still alive, they passed over 20 years ago. He often asks where his Mom or Dad went, telling me they were just here. The evenings are the worst as he insists on going home to his Mom. I've come up with several stalls, like they have Covid and are isolating, or they have out of town…
-
Completely confused after a hospital stay
My DW, stage 3 or maybe early stage 4, was in the hospital for DVT (blood clot in her arm which was caught just in time). She went in last Monday and I brought her home last night (Thursday). When we got home she was completely confused as to which day she entered the hospital and how long she was there. She was given a…
-
Tips for the Phone
My DH, loves his phone. He uses the timer when he's watering the lawn so he knows when to move the sprinkler. He calls our son and daughter frequently. It has a tracker on it that gives me some comfort. If a text appears on his phone, he runs to me to deal with it. He's excited to share it with me and doesn't know what to…
-
I find it hard to get my head around this!!
im Married 54 1/2 yrs , you live most of your life with your mate and know everything about them. You know there moods likes and dislikes then this terrible illness hits someone close and you slowly see a different person emerging , very sad to watch it’s like an illness that surly makes the other suffer in a different…
-
Tips on tone of voice
I’m finding it hard at times when my wife says or does things that really aren’t her. I understand it’s part of illness but maybe someone has a tip on how not to speak or try not to sound frustrated. I’m sure someone know what I’m trying to say. Thank you this is not an easy illness to deal with I’m seeing now. Wife in…
-
How to prevent those nasty UTI’s
My DH is taking antibiotics for yet another UTI. This is the 6th one this year. He never had one before becoming urinary incontinent. He wears incontinence underwear along with a pad around the clock. He goes into the bathroom on his own or I take him but he’s usually already wet. I don’t think he can tell when he has to…
-
How to respond?
Hi all. My wonderful Hubs has Alz at 66 years old. I'm wondering how others might suggest I respond when he says things like, "Well you never told me that!" or "I never knew that." Of course, he's been told of schedules, plans, etc. I even write them on his calendar now. But how do you respond? I don't want to snap at him,…
-
Daycare for EOD PWD
Yesterday while talking to an attorney I mentioned that our local adult day care will not accept anyone under the age of 60. She had a suggestion for a non-governmental program that would probably accept DH. Ever since he retired over 2 1/2 years ago he has sat in front of a computer playing games and watching youtube…
-
Long ago and far away
Today marks 6 months since DH passed and today this popped up on FB “memories” from 9 years ago. So bittersweet. It’s hard to believe that things went South so fast. . I miss him every day, but reminders like this are comforting.
-
Finding an Elder Law Attorney
I feel like I should know how to do this, but I'm struggling to find an Elder Law attorney and also am afraid that I should have done this a lot earlier. My DH of 45 years was diagnosed almost a year ago, with moderate dementia and with the shock of that diagnosis, I'm now trying to get this sorted out. We do have a great…
-
Big Changes Lately
My DW is 69 years old and is stage 6. Not sure exactly where in that stage. Her neurologist says maybe a year to eighteen months till late stage. I've managed her fairly well at home but she seems to be progressing. I have dealt with her illusions for the last couple of years but they seem to be getting worse. She doesn't…
-
vision test
My DH has deteriorated since his last eye exam. At this point, I'm not sure he can identify the letters on the eye chart. Has anyone experienced this?
-
Further discussion with DH Mild Cognitive Impairment
A few weeks ago, I posted my DH was showing jealousy, anger, shadowy me, some sexual remarks. Within that time I wrote a note to Neurologist asking him what to do. My DH is on Donepezil 5 mg. We don’t see neurologist again until Feb. 1st and he has been no help whatsoever. I thought he would call me to discuss, but…
-
Help
Why is it so difficult to receive respite help. I'm the only caregiver for my husband. He is blind, disabled and in middle/late stage Alzheimer. I feel so alone and exhausted. He does not sleep well at night which adds to my exhaustion. I have reached out to the county and Alzheimer association.
-
Macular Degeneration and Alz
Took DH to specialist today to check on his macular degeneration, he is several years into it. Doctor was concerned about increasing blurriness in DH's vision, checking for stroke and considering other tests and reasons. I mentioned to doctor the Alz was progressing, doctor had forgotten that and said, "Oh, that explains…
-
Is this progression?
Yesterday after doing some errands we stopped at this small restaurant for lunch. It was about 2 so it wasn’t too busy. My husband wanted chicken fried steak so that’s what I ordered for him. I was watching him eat and just had to stop and look at him closer. He had his knife in his left hand and fork in right hand trying…
-
New and frightened
My beautiful wife was diagnosed with dementia, likely Alzheimer's last week, she is 69 and I am 71. Two and a half years ago she didn't do well on a MOCA and we were told it was likely dementia but didn't do any additional testing other than the MRI and other blood work. She finally did some comprehensive testing and the…
-
Telling others when diagnosis is FTD
My husband has some type of FTD. It has been around 6 years, looking back, that his symptoms started. His primary doctor is aware and did the initial test 2 years ago after I sent her a message I was worried he had dementia. He was unaware I did it. He did pretty good on the memory test and was upset she did it, flatly…
-
DH Meltdown over TV this morning
Just need to vent. Another gut punch today. 😪 My DH, diagnosed 2 years ago recently changed to ALZ-Posterior Cortical Atrophy sat down in his recliner to watch TV this morning at 10:30 and became very angry & agitated because he couldn't watch Wonder Woman ☺️ which didn't start until 11am. So that's the latest smack in the…
-
Name calling, accusations,
I know this has probably been discussed before, but my partner continues to accuse me of having a guy friend (or 26 guy friends). Accuses me of undressing in front of guys. Accused me of having sex with the wait staff at one of our favorite restaurants. Accused me of having sex with the plumber in our basement. Tells me to…