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Ouch
The holidays sure have a way. I know I’m lucky to still have my DW, but … She asked me to take her to go Christmas shopping the last month, so I did. She got presents for everyone in her family…except for me. Put that there in the things that hurt category.
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Diaper Disposal Pail
Has anybody found a diaper disposal pail that works with adult diapers and prevents odors? I have seen several on line, but most seem to be for baby diapers, so looking for suggestions. Thank you!
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The coming new year....
In my therapy session this past week, I told my therapist that I have nothing to look forward to this year. She said I needed to find something to look forward to. I have no ideas… DH's progression? Placement? A health crisis? But seriously, do you all have any ideas? Thank you in advance!
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Just venting
From ohio. We received 10in of snow. Can't get out of driveway. Dh has 2 sons that live no more than 10mins away. They have not called to check on us. My sons live 30mins away and are coming tonight after work to dig us out. Just peves me off! They never check on him or see if he needs anything. Just peeves me off. Ok I'm…
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Clinical Trial?
Just received a phone call about two clinical trials. Apparently (will call neurologist tomorrow- office closed now) his neurologist gave his name as a candidate for the trial. He had done a previous clinical trial that only involved him giving blood so I guess that indicated a willingness to be part of a trial. First— a…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Police called update
I previously posted about my guy hearing music and calling the police. Many of you advised I needed to end the relationship. Updates on the current situation. He continues to hear music and has called police at least fifteen times. Police have called me 4 times. They are considering have paramedics check him out and take…
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New Years Eve
How excited was I when we received an invitation to a NYE party from our Sailability Coordinator. I thought this will be great, they understand, we haven’t been out to a party for the last 4 years. When we arrived I noticed the table set for 6 that meant us, the hosts and another couple. We had perfectly cooked medium rare…
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Poem for my friends written by me
I can’t help you to remember. I can’t help you to remember, I truly wish I could. You think I’m someone else, not a creature in my nature. With sweet magic I wish I would. You wander from room to room looking for treasures along the way. Putting them in safe places and forgetting where they lay. I can’t help you to…
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Just need to talk to my friends(201)
Sorry this took so long, tablets are acting up. Will post more later
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Update: Possibly FTD?
There hasn't been much to report since my DH was released from the hospital last Fall after needing surgery for a severe cellulitis infection due to being immune compromised and refusing to shower. In November he had his fourth round of multi-hour neuropsychic testing (we are on year 8 of trying to figure out what is wrong…
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Caring for spouse
Wishing all a Happy New Year…..I am new to the group & desperately in need of a support group! My DH is 83 & up until 4 to 5 years ago doctors would tell me his behavior was just “normal aging” until finally he was diagnosed with “moderate dementia.” Initially, some of the family questioned how he got to moderate & not…
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The bizarre way the dementia mind works!
This would have almost been funny if it hadn't been my DH talking to me! My DH has accused me of infidelity with a particular individual on more than one occasion. I have learned not to over-react after I got really angry the first time and then realized it made no difference. Last night he accused me again, but this time…
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I can’t !!!!
Warning … rant coming! I am literally going to scream and there is nothing I can do to make this situation better! I have no privacy no space to call my own. DH is always sitting in our small kitchen almost in the middle of it all the time! I have to walk around him constantly to do anything in there. And he watches me go…
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It's my Birthday today and I have never been more miserable
Today is my birthday (76) and so far the day has been absolutely horrible…like most days. Of course DH doesn't remember and has done nothing but complain since he woke up. He lectured for almost 3 hrs about the collapse of the US dollar and then went on with his favorite one about how selfish I am because I sequester…
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Stage 8, Hospice & End of Life...
Sadly, I'm in Stage 8. My husband & soulmate Lonny passed August 12th after a rapid decline. One of the many questions asked on this forum is when to know it's time to call hospice & how do you know when someone in Stage 7 is moving to Stage 8. I recently saw a video on Facebook that I wish I had seen 2 years ago. It's by…
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Rexulti
My DH 78 yrs old stage 6 some toes in 7 has been on Seraquel worked for awhile no longer. Next week will try Rexulti anyone have used that med and better results? Also very expensive.
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Small Blessings
Well, I lost the young woman who has been cleaning our house. Big bummer. She gave me an entire day at work knowing my DW had eyes on her while that gal cleaned, did laundry and stacked wood for me. I will miss her help, no question. But, them's the breaks and I know that's how it goes with any type of extra help. I used…
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Bible Verse to Lift You Up 1/1/25
When Enthusiasm Is Gone Isaiah 40:30-31New International Version 30 "Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." me: When my enthusiasm…
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Lewy Body
Hi ..my guy has Alzheimer's along with Lewy Body disease and he's struggling with the "people" who are in his head but he thinks are here. He thinks they're putting cigarettes in his drinks and stealing his things. Plus he thinks I'm on heroin and sleeping around with all these imaginary people, who some actually are based…
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Hopeless
Happy New Year. This actually is my first post. My DH just turned 60 and seems to be in moderate point in his battle (been dealing for 4 yrs). Someone said how guilty they feel having happiness while their DH is going through this. I also feel guilty. I have a full time job and am exhausted. I hate to say this but I feel…
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EO Long Island long term care
I believe is my first time posting. My loved one will be 60 in April. He was diagnosed five years ago, but of course symptoms were prior to that. I have MS and really can no longer care for him at home. I’m having difficulties even leaving the house to go to work Because he follows me all the time. I’ve looked into Memory…
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Highly Recommend Citicoline Supplement
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Why Stay?
I hate the life I am living now. Why do I stay? I love DH but not his behavior. He is not his behavior but much more. He does not choose to behave this way. This disease chose him. Fifty two years ago I vowed “in sickness and in health”. I keep my promises. This disease may rob me of him but not of our pre-ALZ life we…
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Electric Razor
My husband has been diagnosed with ALZ for 5 years now. The progression has been slow, thankfully. I notice that he is having a hard time shaving. Can someone recommend an electric razor for me to buy that is very simple and basic. Thank you
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Apologies...
I came here today to apologize to this community. I belonged to 3 other groups in addition to this forum. I was asked by the moderator of one of those groups to no longer use the words "terrifying" or "heartbreaking" when I refer to Alzheimer's. The reasoning is that everyone progresses differently and some don't have the…
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New for me
Hi all, DH was finally diagnosed with early onset ALZ (he is 66, I had struggled to get him to get evaluated for the last few years, so the doctors say he is the end of early stage, beginning of middle stage - although I still don't know what all the terms mean). He was able to pass a driving test so has a conditional…
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PTSD with an ALZ diagnosis
New here. My DH (diagnosed at 55 now 57) previously struggled with PTSD. We still have a teenager I want to do the best for her as well as him. Does anyone have experience they can share - what helped navigate it? what didn't?
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Dizziness
Good morning all. We are in this journey now for about 10 years. My DW is in stage 4.5-5 or so. Two days ago she got very dizzy at the physical therapist and while it’s gotten better she continues to complain of being dizzy. At the PT a paramedic assessed her for the emergent problems of dizziness. Before we head to Urgent…
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Depends
How do you get them to wear deoends? My BF 45yo EOAsoils himself everyday. He has peed on my side of the bed several times and today on his side of the bed. I. Am. Over. It. He is convinced it's not him and yells at me that it's not. I tell him I'm not even home and that I'm potty trained. The caregiver wants him to wear…