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Quick Journey for us - 18 months with FTD
Hi everyone, I just wanted to check back in with this group and let you know that my husband passed three weeks ago. It's been a quick journey (comparatively) for us, with only 18 months from onset to passing. Over the past 6 months, he quickly became mute, and the difficulty swallowing became increasingly problematic.…
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DH Punched Staff in the Head
It finally happened. Sh*t hit the fan. DH punched staff in the head and staff is in the ER. I don't know why the facility didn't call 911 to take DH away. I don't know what to do. I'm beyond devastated. The last thing I want is for someone to get hurt. And now it's become a reality.
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suggestions needed.
My DH has gotten to the point with his Alzheimer’s I am afraid of him and I have made the hardest decision ever to put him in a group home. What do I do to make this easier on him and me? He won't understand or remember if I try to explain why I am taking him or why I am leaving him there. How do I do this? I will be going…
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Home aide
Hello all Ive been preparing for the day I may have to put hubby in memory care. Hope I never do which has me thinking about homecare. We have long term insurance which covers home care and if I only used homecare he’s covered for 5 years. Of course along the way might need to switch to memory care but if he can stay home…
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Disagreement with the hospice nurse
What do you do if you disagree with the hospice nurse? DH is currently on Haldol and Clonazepam. He's starting to have some issues with swallowing, but only occasionally. The hospice nurse took him off soft foods 3 weeks ago and has me only giving him ice chips and popsicles. Now she wants to take him off his meds and put…
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DW with EO
Forgive me for starting a new discussion. I am so thankful that there is a community of supporters helping us all through these life challenges. In short my DW was genetically tested for EOAD because her sweet mother carried the gene, and passed away in June of 2008 at age 52. We are currently going through the same thing…
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Planning for placing EOD LO
My DH has neurocognitive disorder caused by an autoimmune disease. He also has a myriad of other health issues ranging from pretty severe heart disease, difficulty ambulating due to neuropathy, adrenal insufficiency, and more. He is in his late 50's and was diagnosed with dementia 15 months ago but has had cognitive issues…
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SHEETS FOR HOSPITAL BED
Hello, My DH is going into a hospital bed this weekend. It will be long enough to accomodate his height 6'2". Do I use xtra long twin size fitted sheets? Are there other options? What about mattress padding? Any tips would be welcome. He literally went from walking with assistance up and down our long driveway, to bed…
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is this incontinence
Last night my husband had a small accident before he got out of bed to pee. Then he peed all over the toilet. He was upset I was trying to stay calm and said it was ok just an accident. I cleaned up, changed the sheets had him wash up. I suggested today that he wear depends at night, just in case. He seems to be ok with it…
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An older post, but still relevant - It just doesn't matter
https://alzconnected.org/discussion/61198/it-just-doesnt-matter#latest
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Post MC Placement New kind of ugly
I placed my H on 9/1. Some time to catch up around the house. Took my trip home and back on 9/30. Placement was "because I had to work" though he is going to be staying. Weekdays there are more activities and he rarely called. Weekends he had more down time and would call to see when he is coming home several times a day.…
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I have just joined today!
Hi everyone, My name is Barbara, and my husband was diagnosed with ALZ 6 years ago. He is 74 years old, I am 72 years old, and we have been married for 52 years. I met him when I was 14 yrs old. One of the main reasons our marriage has lasted so long is her is the funniest person I've ever met. He's also very stubborn and…
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Declining MoCA Score
My DH was diagnosed with MCI in April. In July, after all the tests including an MRI, I was told he has ALZ and VD mixed. In July his MoCa score was 28; yesterday it was 19. This seems like an awfully fast progression to me; is it? I see so many changes constantly. I would say that executive functioning has seriously…
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Tip
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Caregiver Feelings
My DH with VD (diagnosed 1 year ago) is doing pretty well, I think. He seems to be in Stage 4 dipping into 5. He is independent with showers, dressing, cooking basic foods. However, he is irritated by anything - a car pulls out too slowly, people may not respond to him as soon as he hits "send", I park in the wrong spot…
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How will I get through this
Hubby 78 diagnosed in august with amnestic mild cognitive impairment. Memory not good with paying bills or remembering what day it is. Asks all day long what’s today. He still drives and driving is fine. Goes to gym every day. Reads. Doesn’t follow tv shows so good and irritable. So irritating I want to leave. Im still…
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adult son vs DH
Hi- new here :-( My adult son is living with us, and with DH's diagnosis in August 2023, had been so supportive. Against all advice DH travelled to the UK on his own, and son and I went from LA to retrieve him... at the behest of friends and family there. After witnessing DH's hostility toward me, son is now making snarky…
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I am not sure where to start
It feels abusive, manipulative, but I know it is TBI and some type of dementia progression but there is a blindness to there around that anything is wrong.
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Knowing what you know NOW, what would you have done THEN
My DW was diagnosed with MCI early 2021, less than a year ago. We have met with an Elder Lawyer and are setting up the necessary financial things,I have also read other prep artiles, I have taken over her meds, help her shecule, and am learning how to commnicae with her to not stress her. but I am looking for the out of…
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Jealousy, shadowing, and needy for constant attention all day.
My DH was diagnosed this last Spring with MCI. The neurologist prescribed Donepezil and doesn’t want to see us for 9 months…Feb.1. From what I read and learn from others I am certain he is early stage. He knows something is wrong but won’t accept it. Things can be fine for days then one day he blows up because the tone of…
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My Story
I've been reading for more that 4 years but very seldom speak up and never personally. I'm ready to tell me story. My husband of almost 54 years was diagnosed in August 2019 with mixed dementia (vascular and Alzheimer's). I have taken care of him and he has been relatively easy to care for in comparing your stories. But…
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To talk or not to talk !
I’m feeling like I don’t want to have conversations with DH. I know it sounds terrible and I feel awful. The last few weeks I’ve seen a change in his short term memory. I will talk to him about something and a few minutes later will refer back to it and I’d have to repeat again. I find myself getting agitated and feel it…
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DOES ANY ONE PUT THEIR LO IN THE BACK SEAT WHILE DRIVING?
Hello, Well its just one thing after the other. I had to pick up rx at the pharmacy and took DH with me as he cannot be left alone. We usually usually have peaceful, musical rides, but today he tried to grab the gear shift while i was driving, and began trying to manipulate the radio etc. All the while, he was very…
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Just an update
Well it's been awhile since I posted about my dw. She continues her decline, more falls thank God no major injuries , incontinence is setting in, she can hardly walk and now eating is something she doesn't seem too interested in and she is starting to sleep more, not wanting to get up. I can touch her with my cold hands…
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M1
Just wondering if things are getting a little better for you personally.
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Bad day...maybe this is the new normal?
Time to vent...over the last few days my DH is getting more and more difficult, getting upset more often than before. We've been playing pickleball which has been a good distraction, but today he got upset over something that he perceived wrong and, of course, I couldn't convince him that there was nothing different than…
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About Hiring PT In Home Assistance
We're nearing the point where I need to look for someone to come in part time (maybe 10-20 hrs/week) to help care for DW (hygiene, simple meals, companionship etc). For those of you who've hired part time help, what do you know now you wish you'd known at the start? Thanks.
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A lucid moment...anyone else experience this?
The most unbelievable thing just happened. DH had a moment of lucidity in which he seemed to realize that his behavior had been unpredictable and unusual. He seemed to recall that two or three days ago he had made little balls of wet toilet paper and placed them all around the bathroom. He wondered aloud if there were…
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National Emergency Alert System Test October 04
May be upsetting for our Loved Ones with dementia: ALERT: For those who are unaware, tomorrow, Wednesday, October 04, there will be a massive testing of the National Emergency Alert System on cell phones, radio stations and TV stations across the entire U.S. The cell phone sound should be rather loud or vibrating or both.…