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pending loss of our beloved dog and my DH forgets she is terminal
We received painful news yesterday that our beloved fur baby has an inoperable large mass involving a kidney and adrenal gland. She could have 2 months or much less. My DH was present to hear this and we discussed home euthanasia when the time in near. When I talked to DH today, he was shocked and terribly sad all over…
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sundowning, yes; moon-downing?
I'm aware of sundowning, and DW does exhibit that sometimes. Last night, though, she was further off-kilter than usual, and I note it's a new moon. Have there been studies of correlation between moon phases and delusions? In the past few days, DW seems to have entered a new level. She's started insisting that her husband…
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Any experience with olanzapine and gabapentin?
DH was discharged from hospital with these olanzapine/zyprexa and gabapentin replacing alprazolam and risperidone. He seems calmer, in some ways more lucid. Doesn’t smile as much tho. Delusions and paranoia are still there especially at end of day. And there are issues where anger and agitation are still quite problematic…
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It's time and I don't know where to start
I know it's time for memory care. I always thought it would be because I couldn't handle him physically any longer, but it's the emotional, mental issues that are becoming too much. Our PCP and several family members are telling me I can't go on this way. The physical danger is increasing, he doesn't recognize me as the…
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Dealing with nonstop silliness
My DH has moderate to severe dementia. A few days ago he started speaking fluently in gibberish and he has kept at it for several days. He uses very little normal language and spends his waking hours with nonsense words and rhyme. It was kind of humorous at first and now it has become somewhere between annoying and…
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Your loved one needs you
You have dinner to make. You have to straighten up the house. You have to pay bills. And so many other things. But your loved one just fell, and it will be about 1/2 hour before an ambulance gets here to help. I have a feeling you would stay with your loved one until the ambulance gets here. No matter what else you had to…
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A new perspective on my situation
I have been longing for a tomorrow where I have freedom to come and go, not have the constant pressure and fear, and I am not constantly thinking about when the next shoe will drop and if I will be able to deal with it. A book I just read offered several profound statements that were "ah ha" moments for me. Maybe these…
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New Here, sort of:)
This is my first time posting but have used this platform for information and sometimes guidance. I thought it was time I posted as well. My DH was formally diagnosed in 2021 but had been diagnosed with MCI in 2014. I think he is around stage 4. Unfortunately, as a result of the diagnosis in 2021 he had to retire earlier…
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Shelf life feelings
As I leave his facility it feels as if he is left and just sitting on a shelf. He is not orientated to time or place or recalling what just transpired. When addressed he speaks in proper British etiquette, a gift of early imprinted Victorian social grace bestowed upon him by his upper class English mother whom he dearly…
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WAY, WAY off topic
The epitome of low class (in my opinion). We recently lost a long time resident, and the funeral home handling the service is asking people who buy flowers or other things from their "store" to leave a tip (18% default). Let's face it. If you buy from a funeral home, you will pay much more than you would for the same thing…
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Stopped Aricept
So, last week my DH stopped taking his Aricept. He had been on it since July and it made such a difference for him. He got it in his head he wanted to stop it, he does not want to try anything else. So I am dreading the slide backward. With Aricept, the repetive questions stopped, his short term memory improved along with…
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Early onset
Hello, this is my second post. My DW has been dx with alzheimer's at the age of 53. Her mom died of this at 59. She is a candidate for Leqembi and we are waiting on insurance approval. I have DPA and going to have her make a Will and I will be getting healthcare PA soon. Does anyone have advice on what we can do with her…
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Just wondering if anyone else has experienced this
For some time now, I've been having trouble remembering a certain word that I use every so often. That word is "subjective". When I can't think of that word, it bothers me, and I might dwell on it for a day or a week before it finally pops in my head again. Sometimes when I can't think of it I might say "That's a matter of…
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New to group - Early Onset Alzheimer's
I'm new to this group, and am looking to connect with others that have a similar situation. I get the impression that most of the members are caring for someone in an advanced stage of the disease, and for that I am so sorry for what you are going through. Is there anyone that is dealing with a new diagnosis, and their…
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Has anyone shared with the local Police about pwd
I was wondering if anyone has shared information about there LO with their local police or 911 In case thier lo wandered off. I have been thinking about it and was looking for the feedback from this group. We are small town nothing is online. I talked with the sheriff without a lot of detail and he gave me the number of…
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My beautiful wife!
I know we don't share many photos but I wanted to share this of us about 15 years ago. One of my favorite pics of us. We were watching TV tonight and a song came on she was moving to the music and looked so happy and beautiful. These are the times that make placement so hard.
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An Old Question With Many Answers
When I took care of both my parents at home, I certainly did not always make the right decisions for them and for myself. I understand everyone here must find their own way and no one should criticize. I tried to do my best and certainly there are many here who are doing the same. I often write about and admire loving,…
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Organizing files, anyone?
I am working to revamp and organize our files...employment history, car title, birth/death/marriage certificates, house....etc. I'm wondering if someone might have a filing system they would share? Alphabetical? By Subject Matter? I think I get overwhelmed just looking at the stacks and old files! Suggestions welcomed!
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young onset
My 55 year old husband was diagnosed with Alzheimer's 11/2023. We have will be married 31 years this April with 3 children and 7 grandchildren. Previous we had were separated for 2 years due to him checking out of life with everyone. We got back together last March 2023 for one last try. His behaviors were more bizarre,…
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Man, so much trouble getting a urine sample.
My DW most likely has a UTI and I've tried for weeks to get a good clean specimen for the lab. Each time something goes wrong. I place a bucket in the toilet bowl to catch a sample because there's no way to get the urine cup between her legs as she sits so closed legged and freaks out when I try. She never puts the TP in…
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For the eagle watchers
I know some of you like to view the bald eagle couple in Big Bear via camera. Ms Jackie and Mr Shadow now are nesting two eggs. The gestation period is about 38 days. I don't have a link but the camera can be found on YouTube. Iris
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Cocked the hammer on placement. . .
but haven't pulled the trigger yet. I am putting a 2800.00 deposit to hold a small private room for my DW but I have 30 days to change my mind and get a complet refund of the deposit. Move in date is Feb 1, 5800.00 per for higest level of care. Seems like good place with staff that know what they are doing. There goes our…
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Need to vent after DH Neurologist appointment
My DH had his 2nd appointment today and a waste of time. After nine months, my DH memory has worsen. I listed things I see that have changed. While he still has some good things going for himself, he is showing some decline. The neurologist again diagnosed him with MCI. I requested a pet scan. The neurologist said he sees…
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New symptom - at least for me snd DH
I was wondering if anyone experienced this. In the middle of the night DH started fighting “someone” and unintentionally hit me. He did not hurt me at all. I woke him up snd said he had a very strange experience and told me he was truly sorry. DH is stage 6. Is he acting out a dream? I am not afraid bout it would help me…
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"Blank" Episode
My DH was diagnosed with MCI concerning Alzheimer's in May of 2021. Everything leans to Alzheimer's (familial history, temporal and parietal lobe atrophy, etc). I would guess he was early to mid stage 4. Yesterday, he had an episode where he said he was "blank" for what seemed about 5 minutes. He said he wasn't dizzy or…
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Frustrated with both VA and private insurance
Sorry if this is long, but this is mostly a vent. DH was diagnosed 18 months ago by the VA. The VA neuropsych never put his test results into their system and no one can retrieve it. Multiple doctors within the VA system have requested the test results from the doctor and these requests have all been ignored. He did get a…
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meds
Please chat with your pharmacist and go online to a site like drug.com before giving your loved one anything. When you check for interactions be certain to include all supplements.
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Thank you for caring.
CAREGIVERS WHO REALLY CARE tend to be the best people among us, and they never regret their sacrifice of love and care. Thank you!
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Newly diagnosed DH
I'm not sure what resources are available to me. I know that there is so much that I need to do, but don't know where to begin.
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Embarrassed, hurting, angry, sad
We’ve been married for 55 1/2 years now. And every one of those years my DH has had a sex addiction. I didn’t know it until many years into the marriage. We had two small girls when it all came to the surface. For a lot of reasons that would take a lifetime to tell you, I chose to stay in the relationship. So here we are…