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I have just joined today!
Hi everyone, My name is Barbara, and my husband was diagnosed with ALZ 6 years ago. He is 74 years old, I am 72 years old, and we have been married for 52 years. I met him when I was 14 yrs old. One of the main reasons our marriage has lasted so long is her is the funniest person I've ever met. He's also very stubborn and…
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Declining MoCA Score
My DH was diagnosed with MCI in April. In July, after all the tests including an MRI, I was told he has ALZ and VD mixed. In July his MoCa score was 28; yesterday it was 19. This seems like an awfully fast progression to me; is it? I see so many changes constantly. I would say that executive functioning has seriously…
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Tip
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Caregiver Feelings
My DH with VD (diagnosed 1 year ago) is doing pretty well, I think. He seems to be in Stage 4 dipping into 5. He is independent with showers, dressing, cooking basic foods. However, he is irritated by anything - a car pulls out too slowly, people may not respond to him as soon as he hits "send", I park in the wrong spot…
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How will I get through this
Hubby 78 diagnosed in august with amnestic mild cognitive impairment. Memory not good with paying bills or remembering what day it is. Asks all day long what’s today. He still drives and driving is fine. Goes to gym every day. Reads. Doesn’t follow tv shows so good and irritable. So irritating I want to leave. Im still…
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adult son vs DH
Hi- new here :-( My adult son is living with us, and with DH's diagnosis in August 2023, had been so supportive. Against all advice DH travelled to the UK on his own, and son and I went from LA to retrieve him... at the behest of friends and family there. After witnessing DH's hostility toward me, son is now making snarky…
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I am not sure where to start
It feels abusive, manipulative, but I know it is TBI and some type of dementia progression but there is a blindness to there around that anything is wrong.
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Knowing what you know NOW, what would you have done THEN
My DW was diagnosed with MCI early 2021, less than a year ago. We have met with an Elder Lawyer and are setting up the necessary financial things,I have also read other prep artiles, I have taken over her meds, help her shecule, and am learning how to commnicae with her to not stress her. but I am looking for the out of…
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Jealousy, shadowing, and needy for constant attention all day.
My DH was diagnosed this last Spring with MCI. The neurologist prescribed Donepezil and doesn’t want to see us for 9 months…Feb.1. From what I read and learn from others I am certain he is early stage. He knows something is wrong but won’t accept it. Things can be fine for days then one day he blows up because the tone of…
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My Story
I've been reading for more that 4 years but very seldom speak up and never personally. I'm ready to tell me story. My husband of almost 54 years was diagnosed in August 2019 with mixed dementia (vascular and Alzheimer's). I have taken care of him and he has been relatively easy to care for in comparing your stories. But…
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To talk or not to talk !
I’m feeling like I don’t want to have conversations with DH. I know it sounds terrible and I feel awful. The last few weeks I’ve seen a change in his short term memory. I will talk to him about something and a few minutes later will refer back to it and I’d have to repeat again. I find myself getting agitated and feel it…
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DOES ANY ONE PUT THEIR LO IN THE BACK SEAT WHILE DRIVING?
Hello, Well its just one thing after the other. I had to pick up rx at the pharmacy and took DH with me as he cannot be left alone. We usually usually have peaceful, musical rides, but today he tried to grab the gear shift while i was driving, and began trying to manipulate the radio etc. All the while, he was very…
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Just an update
Well it's been awhile since I posted about my dw. She continues her decline, more falls thank God no major injuries , incontinence is setting in, she can hardly walk and now eating is something she doesn't seem too interested in and she is starting to sleep more, not wanting to get up. I can touch her with my cold hands…
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M1
Just wondering if things are getting a little better for you personally.
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Bad day...maybe this is the new normal?
Time to vent...over the last few days my DH is getting more and more difficult, getting upset more often than before. We've been playing pickleball which has been a good distraction, but today he got upset over something that he perceived wrong and, of course, I couldn't convince him that there was nothing different than…
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About Hiring PT In Home Assistance
We're nearing the point where I need to look for someone to come in part time (maybe 10-20 hrs/week) to help care for DW (hygiene, simple meals, companionship etc). For those of you who've hired part time help, what do you know now you wish you'd known at the start? Thanks.
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A lucid moment...anyone else experience this?
The most unbelievable thing just happened. DH had a moment of lucidity in which he seemed to realize that his behavior had been unpredictable and unusual. He seemed to recall that two or three days ago he had made little balls of wet toilet paper and placed them all around the bathroom. He wondered aloud if there were…
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National Emergency Alert System Test October 04
May be upsetting for our Loved Ones with dementia: ALERT: For those who are unaware, tomorrow, Wednesday, October 04, there will be a massive testing of the National Emergency Alert System on cell phones, radio stations and TV stations across the entire U.S. The cell phone sound should be rather loud or vibrating or both.…
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Feelings after stage 8, no my DW isn't there yet.
I was looking at my DW last night as she fell asleep on the couch while we were watching TV and thinking to myself how heartbreaking it is to see how she's changed as a person with this disease and how far removed she is now from who she used to be. I felt such empathy for her but at the same time glad she doesn't realize…
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The end of my story
My Husband Clarence passed last night. He went peacefully. He no longer knew any of us and he wouldn't have wanted to be that way. He was a proud retired Navy veteran who served in two wars. We had two sons and 2 grand daughters and 2 honorary grand children. He was so proud of the adults they had become. I will be OK…
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Looking for a bit of help
My husband is so confused. We have the same conversations every day-many about the pills he is taking. He will just randomly stop taking a drug (he's on 10 drugs to keep him alive for heart problems). I work with his doctors and try to find solutions. I think we have a good regimen now. It's just so soul sucking and time…
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No filter (for a laugh)
My husband lacks the ability to sugarcoat things now. Not mean, just overly honest. Tonight in response to my asking how his dinner was: "it wasn't horrendous." LOL. In all fairness it was just roast chicken and steamed vegetables. I'll take it as a win.
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DW gets Covid
Having avoided covid for three years DW was infected last week Using paxlovid and she seems to be ok
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Lonely
For some reason, today I feel/felt very lonely. My DH along with ALZ, has a traumatic brain injury and 24/7 care. Family is not at all supportive - my sister just looked at me this weekend and told me I have my hands full. They ask no questions, but sure can pass judgement in a flash! My older (bossy sister) who is an RN…
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privacy
I forgot to think about privacy when I started posting on this forum. Hopefully, I will be able to appear with a different name if my editing is working. Just wanted to let all of you wonderful people know.
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my husband hit me and now he is telling everyone that he did not do it- I am enraged.
partner keeps telling everyone that he was trying to grab my arm and he accidentally hit me. This is a blatant lie. He hit me with the palm of his hand on my back. I was willing to move on but this is unacceptable. He keeps telling the inaccurate story about grabbing my arm and people seem to be buying his story. They're…
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Help with daycare and personal therapist
Been looking to no avail for a memory cafe or daycare that my DH would actually be interested in going to. He’s not into chair balloon volleyball or painting classes or such! There doesn’t seem to be anything in my area for those with mid stage dementia to participate in! Something that would stimulate his mind. He loves…
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MCI and sleeping
Hi everyone, My spouse was diagnosed with MCI awhile back and things are not improving, but my concern at this point is his sleeping. As of a few months ago he was still diagnosed with MCI, not alzheimers. He will sleep all day until 7p.m., get up for a bit then go back to bed and sleep all night. I don't understand the…
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Just checking in
It will be a year on the 27th that she passed, next week if things go right we will be spreading her ashes on the places she loved. I miss her every day but I'm glad she passed. That was no way to live as Alzheimers' took over . Thanks again for all your help. I am slowly adjusting to it all. I've gave the information to…
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Any experience with Depakote?
Hello , Well, we are still trying to get DH on a regimen that has him sleeping through the night. He still takes seraquel, and his doseage has been doubled as of Sunday. This he seems to tolerate, and it does modify some of his erratic behaviors as of late. Last night i gave him melatonin, and it seemed to work, but not…