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Trying to learn how to navigate these discussions
Hi all, It's wonderful being here, and feeling the love and respect you all have for each other. I hope to become better conversant in the language and acronyms used in discussion threads so I can more easily understand. We just started this journey in October 2023. Found out in November 2023 that my DH's primary care doc…
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Seroquel
If there was a bridge close by, I would be jumping off!! DH ALZ 6 years now, on Seroquel since last Dec. He is currently taking 1 25mg morning, 1 50mg afternoon, 1 50mg evening. Four days ago his delusions were getting worse. He thinks our house is not our house & wants to leave. This has been going on four days in a row.…
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Just need to talk to my friends ,(193)
Morning, I thought it might be a good time to begin #193 since we're into a new year. There were so many good discussions and recipes in 192 sort of hated to do it but we can go back and find them if need be. It's cold here today but supposed to warm up to 50 tomorrow. We've been spoiled here in Oklahoma during December…
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Suggestions please
Hey everybody, 1st time posting. I noticed hubby having memory loss and confusion over a year ago, he is 52. Last July, he ended up in the hospital for a week, and scans confirmed something was going on in the area of his memory and emotions. Bad short-term memory loss, can't remember places he went the same day, says he…
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Pets and PWD - To get one, or not
This thread is made for the opinion of others, so please post your opinions. It is really in response to another thread. @LaneyG Denise makes the point that if you have never had a dog, it is not a good idea to get one now. While her point may be valid, I think it is very possible to successfully bring one into your…
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DW keeps trying to leave the house and walk away
DW has advance dementia. Lately she has opened the doors of our home and walked up the street toward the main road. When I follow here she won't return of even talk to me except to say No every time I talk to her. Twice now, I've had to call me son to come over and talk to her and he has been able, with much effort, to…
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Increased short term memory loss?
The past month has been yet another eye opener! DH short term memory is getting worse, to the point where he doesn’t remember a conversation we had 3 minutes ago! What does this mean? I know this awful dementia is progressing but I don’t know what stage he’s in! So far he can take care of his daily and personal needs…
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Smart911
I attended a neighborhood watch meeting the other day and found out something I didn't know was out there so I thought I'd share. It's called Smart911 and provides additional information to 911 so they can help you faster in an emergency. You go to smart911.com and follow the steps. Besides your address and directions to…
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Anyone heard from Jo C.?
It is been about a month since she posted. Does anyone have personal contact with her? Am concerned for her health and that of her son.
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signing off
My DH passed away 2 weeks ago after over 10 years of the illness and the last 9 months in memory care after his delusions created an unsafe situation for both of us. I never missed a day visiting him. There was very little staff turnover, so I got to feel like family at the small memory home. His passing was long and hard…
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DH having severe headaches
DH is stage six and has been complaining of headaches above his eyes snd the side of his head I gave him Tylenol but still in pain Has anyone else experienced this with their LO ? I appreciate your experience
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Just like the old days, more or less
DW Kathleen has been in hospice for almost a year. She’s declining gracefully but apparently not ready to leave her Toad just yet. She really doesn’t recognize me anymore. She looks puzzled for awhile whenever she sees me, but then graces me with her somewhat diminished, but still very potent smile. That’s about as much as…
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should I tell my daughter?
My wife has in recent weeks started to tell me that our 32 year old daughter has been stealing things whenever she cannot lay her hands on something. And I am not talking about the family heirlooms. It could be a tweezer, a plastic straw, etc. My daughter is somewhat aware of this but does not know the extent of it. She is…
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Trust is gone..
I'm just kind of thinking about our relationship because it's Valentine's Day. After his outbursts of screaming and throwing objects last week, as well as telling me he's going to "leave me" I'm not sure what to believe. This week is a whole different ball game with multiple requests that I forgive him. I do forgive him…
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Respiratory Help needed - no mist from the nebulizer mask
Forum mates, I am giving DH breathing treatments (nebulizer) around the clock these days *for his asthma*, as often as every 4 hours. Stage 7a is throwing us a curve ball today as he is wheezing mightily, and coughing / choking, then OK to sleep for a while. I can't get the breathing treatment to work well enough today.…
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Just joined and new here
Hello...my name is Carolyn, and I have been contemplating joining this forum for a few months now, but have been too numb and grief-stricken to do so. But I thought I would give it a try. My husband (2nd marriage for both of us...he has two grown daughters, and I have no children) was diagnosed with FTD yesterday. He was…
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What specialist does he need?
I am trying to line up an Alzheimer's specialist to evaluate my husband and prescribe/monitor medications. I'm at a loss as to what specialty I should be looking at. Neurologist? Psychologist? Psychiatrist? Neuro-pharmacologist? Is that even a thing? He had a psychiatrist while he was hospitalized, but now it's just his…
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New Behavior
My DH has been declining over the last month after he had an episode that could have been a seizure. I wasn't here at the time but he described it as a blankness for about 5 minutes. Since then, he has started openly discussing his dementia/Alzheimers. He said he couldn't remember very much and told me he was scared. I…
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Food Obsession
Have noticed that my husband is obsessed with food and meals. He constantly wants to eat and go out for a meal. He hoovers over family members while they eat making everyone uncomfortable. Always hungry. Thoughts?
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DH took a nosedive this week.
Thanks to everyone for ideas. DW has lost so much ground this week cognitively and physically. He now cannot walk without assistance. Right now he is laying in bed with soiled clothes and refuses to get up to allow me to change his clothes before bedtime. I have tried everything ! He will not sit up to take his meds either…
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DW Assaulted by MCF Employee
Has anyone on here experienced the physical assault and battery of their LO by a MCF employee? My LO was assaulted by an employee resulting in a serious injury and hospitalization. The assault was caught on security cameras. When police reviewed the video evidence the employee was arrested. I'm heartbroken and angry and…
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Respite
So my MIL is going to spend the next 5 day in mc so we can rest. I honestly don't think she'll make it. She's so withdrawn not sure she'll know she's in a different place but it's gotta happen. Thankful hospice could help with this much needed respite. We need to rest our backs.
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Super charged backlash
I'm caring for my DH at home. He is mobile but I don't trust him to walk without losing his balance so I do assist him. For the most part, I move him out of his chair for meals and bedtime. I can get him to the car so I am able to attend to chores while he stays in the car. All of that is fine on most days. However, at…
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O.T. - the history of dogs
Since I know there are a lot of dog lovers here, this is an interesting article. https://www.scientificamerican.com/article/how-wolf-became-dog/#Close%20encounters
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Update on dementia friendly movies
I previously posted about the successful pilot program here in little Saline MI called a Friendly Day at the Movies. It’s for persons living with dementia, their caregivers, family and friends. We show classic movies (Singing In The Rain, Mamma Mia, Easter Parade) with soft light and sound and no hard rules—we encourage…
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The Long Goodbye
I have been keeping a journal, at the suggestion of my doctor. She also suggested that I share some or all of my journal entries to anybody I think might benefit or gain some insight into my experience. So I thought I would share today's journal entry with all of you. I feel that you will definitely relate. MARCH 8,…
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2 Years in MC
Hi my friends. I've been away for a while, reading here now and again, but trying to find a way to continue through this life. Sometimes being here is just overwhelming. Sometimes it's just what I need. Yesterday DH "celebrated" 2 years in his MC facility, just a few weeks after he turned 60. He no long has any awareness…
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New here
Hi, my name is Debbie and my husband, Bill, was diagnosed with Alzheimer's in 2019.The signs were there sooner but I didn't recognize it. His mom died with Alzheimer's at age74. We've only been married for 10 years. This a second marriage for both of us after being single for over 20 years. Bill is 81 and me 70 in April.…
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DH placed this week-ups and downs
My DH went to memory care on Monday-my daughter and I brought him in. He was fairly confused about what was happening when we left, but seemed okay. Monday night the memory care staff called me, and said he was agitated and had barricaded the door to the kitchen. I got on the phone with him and was able to calm him down.…
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PET results
I’d love input on my DH PET results. My DH is 53 and we’ve been trying to figure out what is going on with him for more than a year. We finally got an appt at the Mayo Clinic in Jacksonville last month, which was great. The doc had him do an MRI, ECG, EEG, extensive blood panels, and a PET MRI. I haven’t been able to get a…