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If you're interested in free streaming.....
Gotta pass on the good stuff. I didn't look at everything, but I did find a lot of Carol Burnett episodes, as well as other things. Those were on chickensoupTV. But there are a lot more too. https://cordcuttersnews.com/top-5-free-streaming-services-every-cord-cutter-should-try-but-most-have-never-heard-of/
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I Can Enjoy Myself Without Having to Remember Much
That was a particularly moving comment from a previous commenter on my remarks. I thank Iris for those words and all the others that have come from wise folk. Thank you. There is so much to learn…and, particularly, to understand. Here’s a insight… After listening to Teepa Snow and Care Blazer’s, it occurred to me that…
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Dreams
Every now and then I have a dream that reminds me that Freud had some things right, and last night was one of them. Preface: out of our circle of friends, there is one couple who have been stalwart through this journey and continue to visit my partner in MC every week. Up until now she has always recognized them in person,…
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Being a Caregiver
I follow Mary Millben on Social Media. Recently she posted this and it really hit home. "To most of you, you see the Mary onstage singing for U.S. Presidents, Prime Ministers, people across the world. But the real Mary, offstage, is a full-time caregiver. I am a caregiver to my precious mother. Caring for my mother,…
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Husband with Dementia
This is my first post. My husband was never good at names or driving places, so it was only about 4 years ago that I noticed his problem was greater. I have been told that he does not have ALZ but instead dementia. He was a very outgoing, likeable. charismatic person who had his own business. After it became obvious that…
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Nowhere is moving
Update: I sold my home in May and bought a new home 2500 miles away in June with my belongings in storage that home is empty and waiting. While my husband has been on memory care waiting lists, I’ve been preparing to move. Two weeks ago the call came that he was accepted into a memory care nursing home just ten minutes…
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For the newbies - about UTIs
I know there are a lot of people who have no idea what a UTI can do. If you belong on this site, you should know. Often, a PWD can have a "silent UTI". This just means there are no typical symptoms accompanying it. But they can really cause havoc for us with otherwise wild symptoms, and if left untreated, could lead to…
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I Did Exactly What I Shouldn’t Do
The most productive thing out of my mouth, after dinner, last night was not for my DH, it was for me. But it triggered him into a juvenile stance. I told him I wanted him to know how much pain I am in. You can imagine the downward spiral this caused. It was like I was desperately trying to hold on to something or create…
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New Diagnosis questions/thoughts
I suspected one day I would be in this community, I just didn’t think it would be this soon. DH and I went to neurologist today. He would not say DH had Alzheimer’s. He only offered that it could be early in a diagnosis based upon my notes. I’ve done this dance before as a caregiver to my father who passed away in his 50’s…
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I’m back
Hi everyone, Just thought I would update everyone on what is happening here in Canada with my husband. I have had to select five more homes for my husband as he is still in the hospital. This morning I had a conference call with the doctors and they are trying to control his behaviour as he acts out when they wash him,…
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His old self for a short time
Can anyone explain this. I have heard people say it happens, but wow. Today my DH was talking to me, and I realized he wasn’t searching for words, his sentences were complete and he was talking about relevant things. I sat at the able across from him and we started talking to each other, interactive. We discussed his…
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New routine
Well the upside of the final stage of FTD dementia is the routine went from herding elephants type effort to herding mice type effort. The routine is she wakes up naturally about 7 ish. I give her her crushed meds in about 2 tablespoons of ice cream. She still gets noticeably excited when I say "ice cream". Then I give her…
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An off topic feel good story
A family member had his car hit while he was in a parking lot. Damage was pretty minor. He went to get two estimates locally. First estimate was $927. Second was $855. He also had a few very minor paint scrapes on his car along with a few minor scratches, both in a different area that had been there for a while. He asked…
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MC question
I'm musing about ways to help my partner be more social (there may not be any). But one thing that strikes me--even though she now has one foot in stage 6, she can clearly distinguish who has dementia and who does not. She gravitates to the staff and avoids the other residents, as if she's afraid of them--and some who are…
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Update on Peewee
Peewee is now on hospice. He is no longer eating or drinking, and is sleeping most of his time. I don't know how long this is going to last. He is not suffering and is not in any pain. He still has his sense of humor when he is awake. He wants me next to him all the time now. He still goes to the bathroom by himself with…
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MC choices
DW was diagnosed with EOAD at 52, now 59 at around stage 6b - still physically very active but many cognitive challenges. Knowing what is inevitably next, I am getting close to placing her in MC, it is the hardest decision I ever had to make. The question is where. We have three primary choices: 1) Near our main home in…
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New website shock
Hello to my friends who are still here AND new friends. Wow, I see in my profile I have earned the 10 year badge, and sadly, I don't know where those years of posts went. I know I haven't posted since? Lol, on the old website. After DH passed away in June 2019, I stayed active in the Facebook Christian caregiver support…
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So Many Questions.....
Newbie here. Not sure if this is the right place for me or not. My husband is retired military (four tours in Afghanistan). He has PTSD and for the last 14 months we have been dealing with memory loss, confusion, anger and high anxiety. He has seen a "brain neurologist" when this first started, was sent to psychiatry and…
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Anniversary?
So, our anniversary is in a few days and I'm considering not celebrating it. I just went all out for his birthday which was a lot of work. My DH often gets depressed because he can't buy me anything. (I guess Disability money isn't 'real money' that comes from a job and besides, I control all of the money, anyway.) Also,…
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VA question: re the term "catastrophically disabled"
Hello, Ive been following some of the threads regarding VA benefits, and am making slow progress. Does the "catastrophically disabled" benefit only apply to a vet with a service connected disability? Any guidance from the community would be much appreciated. Thanks, Maureen
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DH
Hello my dh has EO. 20 plus years ago we partied a lot, but has been sober for a very long time. The last few days he has been asking me if I got money out of the bank to buy drugs. I know I'm not suppose to correct or confront but it takes me aback. I need suggestions on how to change the subject and maybe get him to be…
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Primary (spouse) starting to sound impatient with me (secondary)
Hi Spouses, Secondary caregiver/daughter here with questions about some new family discord that's forming between me and my father, who's the primary for my mother who has moderate/severe dementia ("probably" Alzheimers) as well as recently diagnosed giant cell arteritis. Recently Dad has started sounding impatient with…
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Hello
Just signed up today. My DH has ALZ, FTD and VD. I’m too overwhelmed to talk about it, but just wanted to say hello and thanks for being here. I’ll be lurking and absorbing your advice until I’m ready to talk. 😆 God bless you all.
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How a good visit feels/goes
We still have our ups and downs, but it will be four months next week since my partner moved to a new memory care facility after a year in the other place. Life has improved so dramatically, it's hard to express. Whereas she was so unhappy and claustrophobic at the other facility I could not visit without enraging her…
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ER with two with dementia
MC called and said I need to take my mom to ER. Room is crowded and DW has been acting out emotionally a lot. All is calm now but underlying stress as the longer we are here the worse things might become. Lord have mercy!! Santa Maria Madre de Dios!
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Jekyll and Hyde
Today was a tough one; my beloved was sweet one minute and mean the next all day long. Couldn't remember the code to get in the house-even when I told it to him he had to ask twice more so he could put it on the whiteboard. Told me the strawberries he was eating were really good-they were blueberries. I said yes they…
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In and Out of Debilitating Self-pity
I could always eat a little something but this pit in my stomach is constant and interfering with my appetite. The good news is those nagging five pounds are gone! My heart is also racing. I can feel it pounding in my chest, especially when I start thinking about all that needs to happen, CELA, a will for me (I know AND…
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If and how to tell others about the dementia
Need some advice about telling others about my DH's dementia. We play pickleball and while he can play pretty well, he forgets (and will never remember) some of the basic rules. The other players at the facility are just acquaintances or sometimes strangers if we have not played with them before. With pickleball you're…
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So scared
New here. DH diagnosis of dementia possibly Alzheimer’s. I’m 62 he is 67. My mind is all over with worry. Grief and anger. I know it’s not his fault but I’m so sad I feel every emotion and am having a hard time getting thru the day without crying. I have to work because now I carry our insurance. I hate leaving him and I…
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Now We Add Cancer To The Mix
DW has EOAD and is a type 1 diabetic. A few weeks ago I brought some concerns to her doctor who referred her to a an OB/GYN. A biopsy was done and resulted in a diagnosis of cervical cancer. We are scheduled for the initial appointment with the Oncologist tomorrow. I expect to have to make some difficult decisions about…