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Veterans Website for Geriatrics & Extended Care Resources
Found this link today and it's very helpful if you have a Veteran who has memory loss. It also has some educational videos for caregivers. I read a report by the NIH that Veterans exposed to Agent Orange have a 50% more chance of having Alzheimer's or Dementia. Although it's not on the presumptive list, you can file a…
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Public restrooms
DH has mixed dementia with FTD being his main diagnosis. Up until very recently, he has been able to perform his bathrooming needs on his own. This weekend we made the 4 hour trip to visit our daughter, which involves at least 2 or 3 stops to use the restroom. I can no longer pull up to the rest area and assume he can run…
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lack of interest in travel, activities, old hobbies
My husband stopped wanting to travel several years ago. Now, he doesn't even want to go to a cabin we built in the mountains. How do others cope with this? I feel like I'm destined for a life that is not really living anymore.
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Sandy's Anniversary
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Hung out with my new friend depression for a day.
My wife's symptoms are escalating faster than my tiny brain can keep up with. I have also realized this is going to go on and on for a long , long time. It won't be over any time soon. Every morning I wrestle with keeping depression at bay. I use discipline, work, meditation, exercise, golf, and stoic thoughts to keep the…
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"the body might be slowing down"
My DW was diagnosed with mixed dementia and Alzheimer's six years ago. The neurological PA currently says she is in "late moderate " stage. This diagnosis has held for a while. In the most recent visit the PA said some people "linger" especially in moderate stage. This morning at the podiatrist, I had the doc look at my DW…
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Language Skills Improving?
Has anyone felt their LO was showing improvement? My husband has been steadily declining in his language and social skills (increased disinhibition), object, people, and place naming since January of this year. Looking back, he's had symptoms since 2019, but it was in January of this year that I realized something was…
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Need some objectivity, I am too close.
Hi gang. Haven't been here for a while. My beloved was admitted to a long term facility a year ago and there were a few bumps to work out. I desperately need some advice and have nowhere else to turn. I asked my spouse be moved to a private room for a variety of reasons that I feel are valid. They accomodated me in this,…
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2nd Attempt....
Tried to start a new discussion earlier this morning - no joy. So here's 2nd attempt. I have a 'discussion' listed on my profile but can't access...not sure what I'm doing wrong here.
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I have the memories
A few days ago, one of my daughters found a video camera that had a cartridge in it from our 50th anniversary party, almost 16 years ago. The camera had been put away before anyone saw the video, and now she found it. What happy memories!! It was great to see all the kids who were there, and now some of them are in the…
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Funny thing my DH with aphasia said to me today..
My DH, 78 was diagnosed 2 years ago with dementia. He has aphasia and is now struggling finding words for objects. Today we had a cooler sitting in the living room getting read for Hurricane Idalia and he asked me if "it" was OK where he put it. I said put what. He said the thing. I said what thing honey? He said the…
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OT: Bob Barker tribute
Bob Barker of "The Price is Right" fame will be honored tonight with a prime-time tribute special. It will show at 8 pm Eastern time and Pacific time. It will repeat on Monday morning, Labor Day.
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Dizziness and shaking
DH was at a get together with a few people around dinner time. He began to shake and felt dizzy. I got a call saying he was doing better but they were bringing him home. He appeared ok when he arrived no shaking a bit lightheaded. Made him some dinner and all ok. The dizziness has happened before , not the shaking and…
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Anyone found a way to clean...?
Now that I am now doing all my beloved's laundry, including bedding, from the nursing home she's in, I can appreciate why their linen still smelled bad when returned to the clean laundry cart. I've washed a set of my DW's bedding 3 times and it still smells like a backed up septic tank. Is any product or technique you have…
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Behaviour
My husband who has dementia lost his license in May so I hid his keys . He has recently insisted to be retested and got it back much to my surprise. We are waiting for the ministry of transportation to contact us to give him the go ahead to drive. Every day he forgets about the process and insists that he get his keys back…
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SDianeL Fellow RV traveler
SDianeL, I have paid close attention to your posts as I also saw great similarities in our dementia world. Particularly, the RV life. I was in the medical field for decades and my experiences included geriatric nursing and pharmacy so I had some knowledge as to what to expect. It was certainly way more complex than I…
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Newly Suspect Alz in my Husband
New Here. Husband's Mom and several aunts/great aunts have/had Alz. Husband is showing signs: Mood Swings, distrust, making up stories in his mind about issues that cannot be true. I need to talk to someone about the earliest detectable stages, and wondering if anyone on this site is willing to help me understand if I see…
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Web site that may be of use
Hello everyone. I've been lurking for the past couple of years. I'm not one to join in much, but every post has helped me some how. I found this website today (see below) & its a fountain of information. It may been mentioned here at one time or another. If so please forgive the duplication. Maybe it can help some of the…
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Another update on Peewee.
It is with a heavy heart that I have to inform you all that Peewee's Journey have come to a end. Peewee got his wings early this morning around 3:30. I will forever Miss my Peewee. I was sitting by his side and holding his hand and telling him how much I loved him when he took his last breath. My Journey is over now, and…
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My wonderful sweet Baboo
This is myself and my hubby Jon when things were good and this shitty disease had not yet happened.
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Documenting decline
my DH was formally diagnosed Jan 2023 with MCI, “with a toe into dementia”. I guess they just weren’t able to call it what it was/is. I document as days go by as I feel I am sometimes to close to see the changes. I know they have happened. He now searches for words, sometimes he finds them, sometimes not. I handle his meds…
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Recent changes with DH
For the past week or so I've been noticing increased confusion, anxiety, and agitation with my husband (64, FTD, stage 5). Some depression too, I think. He has been confabulating more. He's been much more emotional (including a couple of instances where he was very maudlin and talking about dying). More instances where…
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New thread from Walter0617 concerning Medicaid
I just joined this forum and am already relieved to see I'm not alone in some of the issues I'm dealing with. My DW was diagnosed with Alzheimer's about 5 years ago. She was early onset and is now 69 years old. Her doctors tell me she is about 18 months from late stage. I still have her at home but am beginning to consider…
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A question about the Amount of Sleep in Stage 7
In a recent post I noted that my DW is being discharged from hospice which she has been on for six months. They state that they cannot assess her as dying in the next six months. I am entitled to appeal this decision and of course seek an assessment from a different hospice agency. So I want to ask those of you in Stage 8…
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Still in hospital
Hi everyone. just got back from visiting my husband in the hospital. He really is somewhere in Narnia but did hold my hand for awhile, which felt nice. I spoke with him but he didn’t answer. I can barely hold it together when I visit, maybe I am in some kind of denial. I can’t believe he is like this but it is what it is.…
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Losing my DH of 58 years
My DH departed this earth and the chains of Alzheimer’s on August 5. Even though I know he would not have wanted to stay longer in his condition I miss my partner of a lifetime. I was his caregiver for the last 6 years. He was in MC for 10 months and was going to have to be moved to a SNF soon. I was with him one evening…
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Bringing in a caregiver
Hello everyone- this is my first post. My DW (age 76) is in stage 4. I am 67 and still working. Although she can get by during the day on her own while I am at work, she is spending increasing amounts of time watching TV and often forgets to eat. She also calls me regularly because she forgets how to operate the remote…
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Each time a new symptom appears it's a jolt to my system
We've been on this journey for two years and I've seen many symptoms of my DH's cognitive decline show up during this time. Each time one appears, it's a jolt to my system, even tho I know to expect more, it's just that each one arrives dressed up differently that expected! One example: We've rocked along for awhile with…
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LATEST "Diagnosis" ALZ - PCA not good news
UPDATE! I JUST WENT BACK IN HIS MEDICAL RECORDS FROM THE VA. BEFORE HIS HEART SURGERY IN 2014 THEY DID A CT SCAN BECAUSE HE SAID HE WAS HAVING HEADACHES. IN THEIR REPORT IT NOTED WHITE MATTER DISEASE & VOLUME LOSS AND VASCULAR CALCIFICATIONS. BACK THEN I WASN'T HIS CAREGIVER AND IF THEY TOLD HIM THAT HE PROBABLY WOULD HAVE…
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Caught in the crack
My 1st time to be here. My almost 70 yo husband was finally dx'd with AD about 2 months ago although we had started the process 3 years ago. I had a bout with colon cancer last year that put his problems on hold. Btw I'm cancer free. So I don't even know where to begin. He had to stop working a month ago and it's really…