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DH thinks he should get a job
This afternoon DH turned to me and said “I need to get a job.” I asked him why he felt that was necessary, and he said he needs to keep busy and we need the income. It’s certainly true that he likes to stay busy, but we don’t need any extra income—we retired 15 years ago from the federal government and each have a…
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Just catching up
I went with my 2 daughters their husbands and 5 grandchildren to the beach for a week. We had a fabulous time . My 4 year old granddaughter with a disability stunned us all by swimming across a pool and back. I could not do that at 4!!!I had my own condo and they shared a large one. As my heritage is northern Irish and…
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I need help
I dearly want to travel and visit my new grandbaby in California. I had given up traveling with my husband, who is probably stage six with Alzheimer’s, because it was so very disruptive to him. But he’s in a different stage now. He no longer shadows me everywhere I go, and he no longer has the intense anxiety/delusions…
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What to do?
My wife was diagnosed with early onset 8 years ago. I have been caring for her and have been retired for 4 years. The issues are plenty, but it comes down to what seems to be total dependence on me and doing all she can to alienate my family and friends and to interfere with any hobbies or pastimes I enjoy. She wakes from…
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What a day!
DH hasn’t driven in six weeks (since his first cataract surgery). His car needed inspection this month. It’s 19 years old and not in the best shape, so I thought this was the perfect time to get rid of it. I made arrangements with the mechanic who services our car for him to call DH and say the car did not pass. perfect…
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Veterans Website for Geriatrics & Extended Care Resources
Found this link today and it's very helpful if you have a Veteran who has memory loss. It also has some educational videos for caregivers. I read a report by the NIH that Veterans exposed to Agent Orange have a 50% more chance of having Alzheimer's or Dementia. Although it's not on the presumptive list, you can file a…
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Public restrooms
DH has mixed dementia with FTD being his main diagnosis. Up until very recently, he has been able to perform his bathrooming needs on his own. This weekend we made the 4 hour trip to visit our daughter, which involves at least 2 or 3 stops to use the restroom. I can no longer pull up to the rest area and assume he can run…
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lack of interest in travel, activities, old hobbies
My husband stopped wanting to travel several years ago. Now, he doesn't even want to go to a cabin we built in the mountains. How do others cope with this? I feel like I'm destined for a life that is not really living anymore.
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Sandy's Anniversary
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Hung out with my new friend depression for a day.
My wife's symptoms are escalating faster than my tiny brain can keep up with. I have also realized this is going to go on and on for a long , long time. It won't be over any time soon. Every morning I wrestle with keeping depression at bay. I use discipline, work, meditation, exercise, golf, and stoic thoughts to keep the…
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"the body might be slowing down"
My DW was diagnosed with mixed dementia and Alzheimer's six years ago. The neurological PA currently says she is in "late moderate " stage. This diagnosis has held for a while. In the most recent visit the PA said some people "linger" especially in moderate stage. This morning at the podiatrist, I had the doc look at my DW…
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Language Skills Improving?
Has anyone felt their LO was showing improvement? My husband has been steadily declining in his language and social skills (increased disinhibition), object, people, and place naming since January of this year. Looking back, he's had symptoms since 2019, but it was in January of this year that I realized something was…
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Need some objectivity, I am too close.
Hi gang. Haven't been here for a while. My beloved was admitted to a long term facility a year ago and there were a few bumps to work out. I desperately need some advice and have nowhere else to turn. I asked my spouse be moved to a private room for a variety of reasons that I feel are valid. They accomodated me in this,…
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2nd Attempt....
Tried to start a new discussion earlier this morning - no joy. So here's 2nd attempt. I have a 'discussion' listed on my profile but can't access...not sure what I'm doing wrong here.
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I have the memories
A few days ago, one of my daughters found a video camera that had a cartridge in it from our 50th anniversary party, almost 16 years ago. The camera had been put away before anyone saw the video, and now she found it. What happy memories!! It was great to see all the kids who were there, and now some of them are in the…
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Funny thing my DH with aphasia said to me today..
My DH, 78 was diagnosed 2 years ago with dementia. He has aphasia and is now struggling finding words for objects. Today we had a cooler sitting in the living room getting read for Hurricane Idalia and he asked me if "it" was OK where he put it. I said put what. He said the thing. I said what thing honey? He said the…
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OT: Bob Barker tribute
Bob Barker of "The Price is Right" fame will be honored tonight with a prime-time tribute special. It will show at 8 pm Eastern time and Pacific time. It will repeat on Monday morning, Labor Day.
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Dizziness and shaking
DH was at a get together with a few people around dinner time. He began to shake and felt dizzy. I got a call saying he was doing better but they were bringing him home. He appeared ok when he arrived no shaking a bit lightheaded. Made him some dinner and all ok. The dizziness has happened before , not the shaking and…
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Anyone found a way to clean...?
Now that I am now doing all my beloved's laundry, including bedding, from the nursing home she's in, I can appreciate why their linen still smelled bad when returned to the clean laundry cart. I've washed a set of my DW's bedding 3 times and it still smells like a backed up septic tank. Is any product or technique you have…
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Behaviour
My husband who has dementia lost his license in May so I hid his keys . He has recently insisted to be retested and got it back much to my surprise. We are waiting for the ministry of transportation to contact us to give him the go ahead to drive. Every day he forgets about the process and insists that he get his keys back…
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SDianeL Fellow RV traveler
SDianeL, I have paid close attention to your posts as I also saw great similarities in our dementia world. Particularly, the RV life. I was in the medical field for decades and my experiences included geriatric nursing and pharmacy so I had some knowledge as to what to expect. It was certainly way more complex than I…
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Newly Suspect Alz in my Husband
New Here. Husband's Mom and several aunts/great aunts have/had Alz. Husband is showing signs: Mood Swings, distrust, making up stories in his mind about issues that cannot be true. I need to talk to someone about the earliest detectable stages, and wondering if anyone on this site is willing to help me understand if I see…
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Web site that may be of use
Hello everyone. I've been lurking for the past couple of years. I'm not one to join in much, but every post has helped me some how. I found this website today (see below) & its a fountain of information. It may been mentioned here at one time or another. If so please forgive the duplication. Maybe it can help some of the…
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Another update on Peewee.
It is with a heavy heart that I have to inform you all that Peewee's Journey have come to a end. Peewee got his wings early this morning around 3:30. I will forever Miss my Peewee. I was sitting by his side and holding his hand and telling him how much I loved him when he took his last breath. My Journey is over now, and…
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My wonderful sweet Baboo
This is myself and my hubby Jon when things were good and this shitty disease had not yet happened.
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Documenting decline
my DH was formally diagnosed Jan 2023 with MCI, “with a toe into dementia”. I guess they just weren’t able to call it what it was/is. I document as days go by as I feel I am sometimes to close to see the changes. I know they have happened. He now searches for words, sometimes he finds them, sometimes not. I handle his meds…
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Recent changes with DH
For the past week or so I've been noticing increased confusion, anxiety, and agitation with my husband (64, FTD, stage 5). Some depression too, I think. He has been confabulating more. He's been much more emotional (including a couple of instances where he was very maudlin and talking about dying). More instances where…
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New thread from Walter0617 concerning Medicaid
I just joined this forum and am already relieved to see I'm not alone in some of the issues I'm dealing with. My DW was diagnosed with Alzheimer's about 5 years ago. She was early onset and is now 69 years old. Her doctors tell me she is about 18 months from late stage. I still have her at home but am beginning to consider…
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A question about the Amount of Sleep in Stage 7
In a recent post I noted that my DW is being discharged from hospice which she has been on for six months. They state that they cannot assess her as dying in the next six months. I am entitled to appeal this decision and of course seek an assessment from a different hospice agency. So I want to ask those of you in Stage 8…
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Still in hospital
Hi everyone. just got back from visiting my husband in the hospital. He really is somewhere in Narnia but did hold my hand for awhile, which felt nice. I spoke with him but he didn’t answer. I can barely hold it together when I visit, maybe I am in some kind of denial. I can’t believe he is like this but it is what it is.…