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From the NYT: Hospice Is a Profitable Business, but Nonprofits Mostly Do a Better Job
https://www.nytimes.com/2023/06/10/health/hospice-profits.html?unlocked_article_code=8H_NrKKGVq1y27D6uN_0Pd_x3T5c-NcJSFV_g2jMczDSmdI6gOWEBVOesUDra2_8K-2o7I4M18PtOEOuUJCSCPADR7f6DTDFoE_pmqOKyFV97x3MS8s4gLjXYkVKwblCLhffGsafVwCgpKFRNMGTqNDXNGhQ6L_mQ9IH8Hy4IkWCpGukeXE1Lw8kYm1R1aTq6C4W9wJU7xGUQmLYqVj6MylXoi3nA3IDCOG8D5-UHnoFOcv2…
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Stage 5 clothing issues
Hi, everybody. I am wondering if others have dealt with an issue that is driving me crazy and has been going on for a while now. The issue is what my DH will wear when he is at home. When we go out, he is fine dressing as he always has -- t-shirt, cargo pants, fleece jacket on top for warmth. At home is a different story.…
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Hearing Loss
My husband who is in the latter stage of Alzheimer's is having a hard time hearing me. I can't decide if he is just exerting his will and not opening his eyes when I try to wake him for lunch or if he is not hearing me. Any ideas?
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Dealing with anger outbursts/taking car keys
Hello - My FIL has Alzheimers and is in his 80’s. My MIL cares for him. He can do basic tasks such as dressing, bathing, but often times looks disheveled. Yesterday, I get a call from my MIL who says my FIL (while at a coffee shop), suddenly took the car keys from her from the ignition when they arrived. He refused to give…
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How to not be a nag about brushing teeth
I'm new to this wonderful community and have a "nagging" problem I need advice on. Most every evening, I have to remind/tell DH to brush his teeth and he usually responds with either "no, I don't need to brush every day" or rolls his eyes, gets mad and does it. It's becoming a once a day stress right before bed. I don't…
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confused about the different categories of care facilities
Hello, Although Ive been following a lot of posts I am still not clear on the different kinds of facilities. Assisted Living, Memory Care, Nursing Home, et al. Also, a lot of people who have placed someone still seem to be giving showers, and lots of other personal care. Can anyone break this down so i can save the…
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My Child Helps Pay My Bills. Do I Need to Tell Medicaid? (From elder law answers)
I'm applying to Medicaid. I am over the income limit but have household expenses that exceed my income. My daughter also contributes so that I can make ends meet. Does Medicaid consider the money my daughter provides for support additional income? Or, does Medicaid view the money from others as a demonstration of need? I'm…
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By White Crane: "I can't be an adult."
That was what my husband said to me yesterday morning. He was upset and said it several times. When I asked him what he meant, he said, "I can't drive a car anymore. I can't ride a bike. I can't go for a walk by myself; I might get lost. I can't stay by myself. I need someone with me. I can't go to a store and buy…
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3 episodes with high blood pressure
My DH is mid stage dementia they think is vascular. They can't do an MRI. Over the last several months he has had 3 episodes of very high blood pressure, dizziness, sweating, nausea & vomiting. All 3 related to his high blood pressure. The rest of the time his blood pressure is within normal range. The last time we went to…
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Blogging
I read about anticipatory grief on this site, and decided to check it out. I only found mpird written by young people dying of cancer. They did not meet my needs, so I started writing my own journal about the grief that I already experience with my husband, as his losses accumulate. I shared some pages with my daughters…
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How to make the decision
I would appreciate hearing from others how and when you decided it was time for your LO to go to a Memory Care Facility. Or if you are still considering it ..... how are you processing?
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Bible Verse to Lift You Up 6/15/23
GOD’S LOVE AND CARE BIBLE REFLECTION Romans 8:31-32 (GNT) “…If God is for us, who can be against us? Certainly not God, who did not even keep back his own Son, but offered him for us all! He gave us his Son—will he not also freely give us all things?” What comfort do you find in the above verse? MEDITATION God was always…
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I am feeling like the caged bird today
I have much to be grateful for but today but I am longing for the ability to do what I want to do without upsetting my husband, to be with my girlfriends to just not have to take care of anyone. I am sharing this famous poem for all of those for whom it resonates. I know this feeling will pass but today it is a struggle.…
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Pay-for classes are typically too expensive for many
But I received an email from Dr. Natalie Edmonds, about her upcoming 3 day course. I'll just say that I took a 5 day course from her, and I thought it was great! I have no ties to her in any way. The 3 day course is $27.00, so probably affordable to most. Here is a link:…
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How do we handle everything & not feel free to do nothing
sometimes I feel like I don't have a life. Always going from one thing to another. Take care of him but also have to keep our busines going along with house chores & follow up with repairmen. How to gandle?
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By White Crane: Re 56th Wedding Anniversary
The day came and went quietly. It ended up being a very pleasant and peaceful time together. DH never did really comprehend that it was our anniversary but like Josey and some others said...I knew. Whenever I told him about it, he looked surprised and said, "But I'm not that old." That made me smile. I gave him lots of…
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When do I stop bringing DH along …
I so enjoy when im asked to take care of my grandchildren! Love being with them, love knowing I can help my kids I want to be there whenever they need me! Lately I’ve been feeling badly leaving DH home when I watch the grands, but when I ask him to join me he is inappropriate in his comments to the kids, often and…
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He breaks my heart
My DH was sitting watching TV while I was getting lunch ready. I looked up and he was crying. When I asked what was wrong he told me "I keep losing people. I can't always remember them. And I'm so tired." I just held him and cried with him. How do you even respond to this? I feel like it would somehow be better if he…
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MCI caregiver and already stressed.
My DH is diagnosed with MCI, not dementia yet so I’m told. He is still very functional and can take care of himself and drives and can run errands. Why should I be whining? It’s the lack of memory and the stress on me, I’ve dealt with anxiety and depression all my life and I fear I’m not handling caregiver very well. I do…
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Help
My dh was diagnosed with early onset Alzheimer’s after the doctor was convinced it was CJD. Although The Alzheimer’s diagnosis is devastating, I’m thankful that it’s not CJD. I’m 51 years old and he 62. His decline started about two years ago. He is a business owner and we are about to lose the business. He hasn’t earned a…
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From A. Marie: Entering Stage 8, and thanks to you all
I've only ever commented here occasionally, and this is my first (and possibly last) post on the new site. But I just wanted to let you know that my DH (age 74) died on Sunday 6/4, after struggling with Alzheimer's since 2011 (as I've realized in hindsight), getting as close to a formal diagnosis as possible in 2018, and…
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Frozen in Time
My dear wife is going through a very long period of stability in her current stage of vascular dementia: Late Stage 6. I have been a caregiver for seven years and eight months now. Long, stable periods of seemingly non-progression of dementia is generally a good thing, in that it gives a caregiver plenty of time to adjust…
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Tramadol and memory lane by Stewart
Well my dw is still complaining of pain and this does seem to be playing into her not being able to sit. Today we were walking and she started to cry, I asked what was the matter and she said it hurt and pointed to her lower hip area. It has been xrayed before. This has been a constant and for many years.I had seen her…
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New diagnosis - scared and looking for support
My husband has been having dementia-like moments for the last few years, but has gotten significantly worse this past year. We recently discovered brain atrophy and other abnormalities. We have an appointment with the neuro next month. Meantime, should I share my fears with my spouse? He complains that he doesn't know why…
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When your skin gets thick
When you finally get thick skin just to protect your heart When you just shake your head instead of crying tears. When you realize rational dialogue is gone When you are so alone but always with someone When you are hyper alert and can never let your guard down even when your sleeping When each day is a ground hog day only…
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Incontinence?
My 63 year old husband is in the middle stages of Alzheimers. Although he is not exactly incontinent, there is definitely an issue with bowel movements. He goes to the bathroom, however, much of the feces does not end up in the toilet. It ends up on the floor, the toilet rim, and definitely on his hands. The hands are a…
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Citalopram ?
Has anyone had their LO on Citalopram (Celexa) for anxiety? If so what results have you seen good or bad? My wife has started having mild to moderate anxiety through out the day. She was on Seroquel for hallucinations, but now I'm able to redirect them and she has been off Seroquel for over 6 months. When she was on…
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DW starting to not recognize me
DW age 58, diagnosed about 6 years ago and entering stage 6 is reaching the point where she does not always recognize me or our relationship. This can happen at the most inconvenient times, like just before going to bed in the evening. She wants me to "go home" to some other place because this is "her house" and I should…
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Ground hog day
I watched ground hog day last night. Soo many on the forum reference it. If i watched it before I don't remember it. I get why caregivers for pwd " people with Dementia " relate to this movie! The reference to everything that is the same day afterday, afterday, but as the movie progresses Bill Murray the one who remembers!…
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so interesting--but sad
I was at MC yesterday when the occupational therapist came to do a 30-day assessment on my partner. Really nice woman, I'd like her when I met her before. Interesting to watch her work. My partner did really well on motor strength tests--she always was physically strong--but had difficulty following directions to take off…