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Lost
I am new to this forum. My DW for the last 5 years has been losing her memory. I am her full time caregiver. The doctor says she is in the late stages of dementia. My wife doesn't know my daughter or son. She doesn't know my name either. She doesn't speak and no conversations. I have done everything known to mankind to…
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For M1 and everyone: A chuckle for the day
M1 talked about a new resident in the MCF that barked like a dog. I posted that my DH used to hoot like an owl but had stopped doing that since his Alzheimer's has progressed. Well, a couple of nights ago, I called him to supper. Instead of answering with the usual "supper?", I hear, "Bark Bark!" What!! I asked him what he…
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OT to Ed
This is in regards to your son, who is looking for his own apt. I saw online about an opportunity to invest in a group home for adults who need a sheltered living space. The rent is paid by the government since they are disabled. I had considered this years ago but decided against it. Could this be an opportunity for you,…
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O.T. - A different kind of question
Sometime today I will be going to the place where one of my daughters goes for kidney dialysis, and I need to speak with the person who has responsibility for how things are run there (the top boss). But I'm unsure of what the title of that person would be. Would it be "administrator"? Or something else? I want to make…
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Should I forgo getting a new pet?
My DH is Stage 5 and I struggle to keep him occupied, as there are not many things he wants to do or can do. I try to think of places to go, things to do, or errands to run but it's still difficult to fill up the many hours of many days. I had been thinking about getting a cat (we've never had a pet but talked about this a…
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How can I get Doctors at VA listen to me
My husband had behavior changes since years this is what I’m dealing with I have to go to bed when he goes Obsessive behavior with blood sugar Searching internet Slurs his feet when walking Severe insomnia Rampage Living out dreams Dream that he could not remember anything everything is an argument he does not listen there…
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Another freebie class
Careblazers From: natali@careblazers.com To: Ed Mon, Aug 7 at 10:45 AM Careblazer, Tomorrow, I'm teaching my first LIVE, FREE class of the year. We'll be focusing on how you can change difficult dementia behaviors by using my Formula For Change. If you are facing any challenging situation in caregiving such as your loved…
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GETTING LOST WHEN DRIVING
My husband still drives. He drives around town, frequenting the same places. He does well with the driving process. He has been "lost" twice (ventured out of town). I have a tracker in his truck and knew where he was at all times. Both times, I directed 911 operators in whatever county he was in as to where he was until…
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Any experiences with Aduhelm?
My DH did not react well to Donepezil. We are seriously considering trying Aduhelm infusions. Since it is so new, there is not a lot out there about experiences with it. I know that we don't know what it will do long term, but does anyone have any short term experience with it? Our insurance has denied it, so it will be…
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absolutely lost it yesterday
Was so happy to go see my partner after not going Monday and Tuesday. But it was a disaster. I should have known better--I have been sick with grandkid crud since the first of June (can't shake it and yes, I've been to the doctor), and have a new herniated disc in my back that is killing me, waiting on getting approval for…
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Anger and agression
Does every PWD end up with aggressive or angry behavior towards others (caregivers)?
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NOBODY HAS MY BACK
My LO is in a very expensive, but beautiful and is well cared for. However, the money is going fast. Worst of all is that I HAVE NO-ONE. No relatives. Friends who died. I am all alone. It is like being a live widow. I am also in therapy - but they cannot give you a family and the kind of friends you need at this time. If I…
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For Ed
Hi Ed, I smile as I write this..I thought of you this morning as I hummed "and I love you so"! The Perry Como version of course 😉 Michele
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One door closes another one opens.
For the last year I have been taking my wife to work with me. She stayed in the office occupying herself with coloring books, computer games, rubiks cube, pencil and paper and whatever else she wanted. About a month ago she started getting really hyper, cannot sit still pacing all over the house compulsively gathering and…
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Reality check
Hi all-First time posting, so if this has been addressed, my apologies. For 1.5 years my hubby has been showing signs-word retrieval issues, saying a word that is similar to the one he wants but not the correct word, losing/misplacing items, processing problems, denial that he narrowly missed another car, general short…
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Bad day followed by bad night
Maybe bad isn't the right word but that's the one that comes to me right now. I am so tired from lack of sleep. Yesterday I had lunch out with a group of women from our church. We have been doing this twice a month for years and DH has never liked it. Yesterday was especially bad. Even after the caregiver came he was still…
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What to do if DH gets evicted due to aggression?
DH has become very combative when MCF staff tries to change his clothes, chases them out or physically pushes them away, and he screams at his roommate to "get out!" Several times his roommate had to sleep in another room for safety, not to mention the added attention required by staff when his roommate is sleeping in the…
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Winning the shower battle
My husband has always taken a shower at night. For the past four or five months he has fought me. I only wanted him to take one every three days. I finally realized he is tired at night and wants to go to bed. Now I say at 4:30 that I am going to start dinner so why doesn’t he take a shower. He has usually been watching TV…
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Sorry if I offend anyone!
Arranged for DH to go on boat with my wonderful son in law and grandchild. SiL idea! DH had a great day and then went to Firehouse about 4. Said he would BBQ pork roast I marinated. I was so excited to not cook dinner! Well 7:15 rolls around and I call him he comes home says he’s to tired to bbq so I once again cook then I…
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Just wanted to check in
Hi Everybody, I haven't been on in a while. Things are going fairly well. Still miss her and probably will always.. Still making my meetings and staying sober. If it wasn't for them and you people I don't know if I would have made it OK. Reading what others were going thru at times made me know that things could be worse…
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something new I've not encountered--upsetting to my partner
After a while you think you've seen/heard it all, but: a new one. there is a new resident at my partner's MC who barks like a dog continuously and repeatedly. I think he thinks it's funny, but it's pretty pathetic. My partner finds it very upsetting and it has made her retreat even more than she already was. Highly verbal…
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New caregiver resource website
I went to a Alzheimers of Tennessee caregiver class. It was for professionals,Students of nursing homes and regular folks like me. I went to try to glean something about finance stuff as they had an eldercare lawyer speak, I got to ask my questions about my personal situation and left with questions anyway, they had a…
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Where've you been?
Doing my pool exercises this afternoon and watching a documentary about country music on PBS, when they brought up a song by Cathy Mattea from many years ago. I remember the story from back then. The songwriter's grandparents had been married for 60 years, at the end of which they were both hospitalized, she with dementia.…
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Dog Died
My wife with PD, Alzheimer's, Altered Mental Status, chronic UTIs is currently in rehab for strengthening up before returning home after three nights in local hospital. I came home today and found that her 13 year old Beagle curled up in the corner of the Family Room and quietly chased his last rabbit. Do I tell her that…
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Recent Memory Care Placement
If you have recently placed your LO in Memory Care, how have you coped with the transition? How has your LO coped with the transition?
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Thinking I’m doing good , but not!
DH is always asking to go out to eat. Problem is it’s way to expensive and he orders drinks like he was still in his 20’s! He shouldn’t drink and I keep making excuses not to go. So I have the grandkids today and figure we can go for lunch and DH would be happy. Well what a disaster! I told him they don’t have alcohol and…
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Readjusting to the contrast between others' lives, and mine at home
Thank you for your replies on my last post about traveling and leaving dh home. For me it was a first step at reclaiming some of my life. It worked out okay. I called him each day and he got a couple other calls from people. He was ready for me to come home, though, and it gave me a benchmark about leaving him alone when I…
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My plan for a future without my DW
Hi Y'all, I cannot describe how much this site has helped me. My DW was diagnosed with Amnestic MCI in June 2022. This site convinced me to convince her she should stop driving. This site has given me so many suggestions about how to go about what I'm dealing with now as well as how to plan for what I'll be dealing with in…
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Asked by nannyritch- Woken in the night by DH reaching for her hand
I'm creating a new discussion for nannyritch's question in another thread. You're more likely to get responses if a new discussion is started. "Can’t thank y’all enough for posts. It’s good to know I’m not the only one out there going thur this. I have a question. My DH wakes me up constantly during night just reaching…
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Not a laugh, but maybe a smile for today
Our town of about 16,000 people is really a nice town, with something going on all the time. They recently did a major renovation on the park, and they sell memorial bricks to put in the brick walkways throughout the park. The main entrance has a concrete walk. Since my wife was a gardener, it will say "In memory of Carole…