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We're back
Dear Forum Mates, I have been away (abruptly) for a few months and thought about you all EVERY DAY, several times a day. You have truly been missed. We (DH and me) are as well as can be expected, but had some serious stuff thrown our way and I just couldn't keep up with also reading and posting. I saw a note from…
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Yes, I got scammed
My son with mental illness wants to move to his own apartment. He can live alone, but just needs support. When he gets his mind set about something like this, he is relentless about finding something, to the point of driving me crazy. He found a place that was going to give him a discount because of his illness. He needed…
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White Crane: Need advice for skin care for husband
My husband's skin is very dry and not in good shape. He has sores on his chest, legs, and arms. Now he has developed some on his face and scalp. Part of it is his constant scratching and rubbing. Even though his fingernails are bitten down to nothing, he still seems to be able to dig at his skin. The physicians assistant…
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Aftermath
´I have been tottering along slowly getting used to being alone save for my two lovely cats. My orange Maine Coon follows me and lies on me, shrieking if he doesn’t know where I am. I feel exuberant, deeply sad and lonely all in a minute. My husband as far as I know is still being stabilized in the hospital. The house…
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59 yo DH dx w/ EOAD April 2023
Hello, I am 54 yo and my 59 yo husband was diagnosed today with early onset Alzheimer's dementia. He's getting an EKG before starting on 5 mg of Aricept. He has also been prescribed speech therapy and genetic testing. I would like to connect with people going through the same, or have gone through similar, who maybe…
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My husband was recently diagnosed with Alzheimer's...
It's now official. Something was going on for the last three years. We've been through 3 neurologists and much denial to bring us here. I am the caregiver and am already completely overwhelmed. I now recognize all that has been developing for the past three years and it makes sense but I have no idea what to do or what I…
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How can I protect my DH from making a complete fool of himself?
My DH is progressing and is currently in stage 3-4 of dementia. He is still very social out in public, and people talking to him for a short time would never believe he has any issues. Last week we attended a neighborhood function - we have only been here since late October - and he spent time talking with a woman who is a…
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Stage 8 one month in
Most days are fine. Every once in awhile I feel the strong urge to go home and check to see if my DH is okay. I think I have been away from him for too long. I am still at my daughter's house. Father's Day was tough but I kept busy. Now tomorrow is the 1 month anniversary of his passing and I hope someday the 22nd will be…
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In person community prorgrams
Does anyone live in a community that sponsors in person programs for early stage dementia people? I and other folks in the Columbus, Oh area are withering away because we have no place to take our loved ones for socialization. Our sponsors still like to gather and talk. Maybe we can adopt something another city is doing.…
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Hope for our current suffering
I am hoping this video might help when you are feeling hopeless. https://www.youtube.com/watch?v=qQ5h_HB5rbQ
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Off Topic: Spinal Fusion Input
Sorry to take this off topic. My DH is older; 81 and a Type II Diabetic. (He does not have dementia, but I feel a bit of concern re anesthesia effect on an elder.) He is scheduled for back surgery with Laminectomy and Fusions at multiple sites: L2,3; L3,4; and L4,5. I am not greatly concerned re laminectomies, but do have…
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Jack Hanna's Alz. story
https://www.yahoo.com/news/jack-hannas-long-goodbye-alzheimers-100110678.html
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mixed emotions
someone tell me how do you take your LO to a memory care facility without feeling so bad on the inside. I know in my heart this is the right thing for me. caregiver burnout is for real. i have it and i cant control it anymore. what makes it even worse is i know he would be ok at home if only one of his children would take…
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Do people with stage 2 regress to past toxic behaviors
He was toxic previously, anger, defensive, always never his fault . Separated, he got help, returned for 4 wonderful years, all issues gone, took full responsibility for past toxic behavior….. last 6-8 months though, he us now in stage 2 gds score of 4.5 , seeing same behavior return, not often, but enough to worry me,…
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Netflix or Disney Plus
It has been a long time since I've posted anything on this site. In fact this is the first time since the format change so I'm going to keep my question simple today. Besides regular TV we have had Netflix for years. I'm finding my LO just isn't very interested in most of the shows on them. He has always been a Disney fan…
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Experience 12 Minutes In Alzheimer's Dementia
If you haven't seen this, it is eye opening. https://www.youtube.com/watch?v=LL_Gq7Shc-Y&t=29s
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Is it just me?
It was a year ago to the date, when I was going thru a period where my dw's behaviors were peaking. So I am wondering if this is the case with others. The reason I am wondering is, my dw is showing some older behaviors, not being cooperative, crying, she is usually OK when they tell her I am coming back tomorrow and that I…
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O.T. Streaming TV terms explained
I think we have a few members who are in the dark when it comes to streaming TV. If so, this should be helpful. I didn't know all the definitions either, so don't feel bad. It's good to know the basics. https://www.techhive.com/article/1484154/cord-cutter-glossary.html
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In early phases, when to inform financial advisors/banks?
My dh has slow progression of bvFTD, diagnosed by the neuropsych in 2015. (In the followup with a neurologist he agreed dh has some sort of dementia, but didn't want to name it. It leaves a question in my mind. The neuropsych was very sure about the FTD; also said dh has high cognitive reserve.) My husband has continued to…
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The highlight of my day...
You know you are in caregiver land when discovering a new restroom location is an exciting event! if we take a certain route and plan carefully, we can be out and about for a couple of hours now. Library has 2 large bathrooms, AG Hall, also has one, also local market next to the Post office. This has been our "safe" route…
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Dementia Conversation
My DW, late stage 6, still speaks, but mostly it’s gibberish—word salad, invented words, impossible to follow. But yesterday, clear as a bell. Here’s the convo: DW (not looking at me): Honey? Me: Yes? DW: Not you Me: whom are you looking for? DW: I want to kiss my husband Me: Am I your husband? DW: No Me: Do you want to…
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Strange new behaviors
So, I feel that we are definitely entering into a new phase after being on a plateau for about 6 months. Most recently, my DH seems to be having a silent dialog with himself, accompanied by sudden gestures, and charade like behavior, while asleep or awake. Yesterday he was napping in a chair and seemed to be acting out a…
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I'm hurting
Today is father's day, and in 6 days my wife will be gone 1 year. Yes, dementia causes hurt, but for me it was nothing like death. Not even close. We spent a lifetime together. Today I would like to be alone, but that won't happen. The lyrics of this song really got to me. The music doesn't start until 10 silent seconds…
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Waking up at time like it is daytime
My DH is waking up at 2 or 3 am, getting showered and going downstairs. He then stays up for an hour and goes back to sleep. He says he doesn't understand why he gets up. Is this sundowning or something else? He goes to bed at 8:30 or 9 p.m. every night without any behavior issues in the evening. Any suggestions/thoughts?
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The hide and seek game (just smaller scale)
I'd like to know from others with LO's in MC if you have trouble keeping up with their belongings. Not losing things from the room, but constantly rearranging the things that are in the room. Her restlessness with possessions is striking. I try to keep the number of things and clothes pretty low, but even then--today i…
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Need volunteers and Adult Day Care in Seymour area
I am caring for a spouse and have no relief at all. I cannot seem to find any volunteers to come and stay with him for a few hours or an adult day care in the area to give me some time that is not costly. Does anyone know of any services in my area that might help, we don't qualify for Medicaid or Veteran aid unless we…
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Help
Hello, I am so torn about making the decision to place LO in memory care. I am his only caregiver, 27/7. Just when I have reached my limitations, the last 2 weeks have been more manageable. How do you know when it is truly time for memory care?
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Elder orphans
Just curious if anyone else will be or is an elder orphan after this is over. I'm in my early sixties, no children of my own. Still young enough to enjoy life when this ordeal is said and done but wonder quite often what could happen to me someday if I need help and I'm still alone as I get older. I do have a brother and…
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From the NYT: Hospice Is a Profitable Business, but Nonprofits Mostly Do a Better Job
https://www.nytimes.com/2023/06/10/health/hospice-profits.html?unlocked_article_code=8H_NrKKGVq1y27D6uN_0Pd_x3T5c-NcJSFV_g2jMczDSmdI6gOWEBVOesUDra2_8K-2o7I4M18PtOEOuUJCSCPADR7f6DTDFoE_pmqOKyFV97x3MS8s4gLjXYkVKwblCLhffGsafVwCgpKFRNMGTqNDXNGhQ6L_mQ9IH8Hy4IkWCpGukeXE1Lw8kYm1R1aTq6C4W9wJU7xGUQmLYqVj6MylXoi3nA3IDCOG8D5-UHnoFOcv2…
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Stage 5 clothing issues
Hi, everybody. I am wondering if others have dealt with an issue that is driving me crazy and has been going on for a while now. The issue is what my DH will wear when he is at home. When we go out, he is fine dressing as he always has -- t-shirt, cargo pants, fleece jacket on top for warmth. At home is a different story.…