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My DH has passed
I have only been on this group for a relatively short time since becoming my DH caregiver. I have received a lot of great information and support. It is with a sad heart I tell you my DH on passed this morning. He went into the hospital because of increasing falls, and failing health on Feb 9th. They placed him in a long…
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by Ed - Life after losing someone
Next week will mark 10 months since my wife passed on. The evening of her funeral, I received a call from a woman we've known for more than 50 years. She and her husband have divorced, and she asked me to come down to Mississippi to spend a couple of weeks with her. I'm in Indiana. I was speechless, and I haven't talked to…
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false teeth
My DW has a difficult time with her false upper plate. She continually takes them out to clean them with a paper napkin. It could be at dinner or walking at a shopping mall. For the last couple of years, she has complained that her teeth were not "sharp enough". We have been to the dentist twice and they "sharpened " them.…
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New Gal Caring for DH
Hello all, Recently my DH was diagnosed with MCI along with hydrocephelus. He will have to have an operation for the hydro. It seems to me that he is progressing rather rapidly on the MCI. We see the neurologist on May 11th for the first time after all the testing. Last evening was the first time I think DH was aware he is…
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The little things that are hard
Still learning the board (and how much you hate the new format) so I'm not sure if this is an appropriate post, but here goes. I have been dealing with some awful things as we have started this journey. I know some truly horrific things are coming. But there are some little things that have just been tough. I feel like, in…
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Question for Group
I was wondering if anyone has had the experience of their LO getting so cold suddenly that his teeth were chattering. He had dinner and was fine and the next thing I knew he was freezing. I took his temp and it was 96.7. I wrapped him in a blanket and he gradually warmed up. His temp back to 98.7. This is the second time…
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Early onset Alzheimers
Hi I am VERY NEW to all of this and I am confused. I was diagnosed with Early onset Alzheimers with variation a month before my 54 birthday. I am now 55 my memory is getting worse and harder to do my job. I am looking into disability retirement through my work. It is also hard to understand alot of things at one time.…
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Another turn in this horrible disease
Okay my bedridden DH has 3 bedsores. They say his skin is breaking down since he won't eat much. He refuses nearly any meat. He stays dehydrated. Hospice is talking about putting a catheter in him. I bet he pulls it out. When the nurse gets here today I will ask about the alternating air pressure mattress. I have…
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For Elaine D
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To Bouy_Over_Board
You may want to start a new discussion to introduce yourself and to ask any questions. We don't want you to get lost in another thread. To do this there is a "New Discussion" button at the top of the discussion page. Press that and it will bring up the template. Don't forget to press the "Post Discussion" button at the end.
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by M1--Pray for us, send good karma, vibrations--cross fingers and toes, all of it
Got a call at 5 pm today that the long-awaited reassessment by my preferred MC facility (the one that wouldn't take her last year) is going to happen tomorrow. And they want me there, which I think is a good sign. At least I hope so. I almost hate to mention it because I will be so crushed if it doesn't fly. But at least…
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..so I am Learning
Good Evening to All: I've been on this forum a little over a year and although I do not contribute much, I do read everyone's posts and I've taken lots of tips and learning as I travel this challenging road. Long story short, my DH, now at age 62, has been diagnosed EOAD end of 2021. At that time, he was placed as being in…
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by Ed - more on AI voice cloning
https://www.tiktok.com/@primemoviequotes/video/7222443019910548782?_d=secCgYIASAHKAESPgo8D2nAdi%2FzMQpp4Rs9oio8cR%2F0vdHd4FhM%2FEEWdS7yBcxxdj7Ncr2s2miWg3QC8eYy8GODvzyjotEgheKdGgA%3D&_r=1&checksum=06097b0bc48b17d0dc5809284085f7c99249f8ce3bccf8cc9ad87472bd991906&preview_pb=0&sec_user_id=MS4wLjABAAAA9mD0x-zNUIL-H8KoATUt5IywE1w…
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By Josie in Podunk (formerly lostinpodunk) - Changed My Screen Name
When I first came here 2 years ago I truly was LostinPodunk. I was struggling against the tide of the not unexpected diagnosis…hoping/fighting for answers I now know aren't coming because there truly are none other than dealing with each day and changes as they come. Now, thanks in great part, to all of you I do not feel…
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Inappropriate In Public Stage
It hadn’t occurred to me before, but now I’m wanting to go out less. My wife has started clutching at her clothes and exposing her middle. She approaches strangers and tries to talk to them. She tries to get into other people’s cars or fights with her reflection in their windows. Wanders off in stores; she’s good at it and…
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Hello from Sandyshe
Hi all it’s Sandymac here, but I couldn’t sign in under the new format, so rejoined under my new name….didn’t want to miss out I haven’t read anything much yet, still trying to work out how everything works, but I suppose we’ll all get used to it in time Off to bed now
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Water(2)
Has anyone else here had this problem? My DH has become fixated on drinking water lately. Lots of water. He is probably stage 5/6 and has great mobility and eats well. When he drinks anything he drinks the whole glass down all at once and then a minute later forgets that he drank it and asks for, or gets another himself.…
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Pot Sirring
Growing Dementia related issues have made it where I have had to remove my daughter and son-in-law’s numbers from Handyman’s phone as he keeps stirring a pot I struggle almost daily to keep a lid on. His degrading executive function skills cause him to ring them up every time he gets stuck on stewing about continuing…
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bed sores question
After 3 months of being bedridden my DH has developed a bed sore. I had avoided them with a small pillow that was very soft. Then he developed a heat rash on his back so Hospice is now having me put a king size pillow to stop the heat from building up. I have a lamb's cover under him that was supposed to help with bed…
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by Ed - Deleting a thread, and about using bold type
If you start a new thread, but decide that you wished you didn't, you could edit the post, then get rid of what you wrote, and replace the title with DELETED (yes, you can do that now). That would make it easy for people to skip over it. And - does everyone think it's easier to read the type when it is in bold?
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Vitruvius: Seven months since DW's placement and I'm adrift
It's now been seven months since I placed my DW. This became necessary as the stress of taking care of her lead me to the ER. I visit every other day, but she is now on hospice and barely acknowledges my presence. My guilt stems from this: I retired to care for her, but could no longer care for her at home, so now I have a…
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My cousin is gone
My cousin, age 96 years, who was my late mother's last first cousin, passed away two nights ago from Alzheimer's Disease. She had been in a Memory Care facility and recently fell and broke her hip. Surgical repair was not considered to be an option. Hospice was called. I had been calling her every week although I doubt…
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First day at adult day care
Hello, fellow travelers. Today was DH's first day at social adult day services. I gather it was not a resounding success. The very kind program director said he did so-so. He enjoyed the visiting dog, but would not eat very much of the lunch provided or use the toilet, despite multiple prompts. He got up several times from…
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Simpler discussion format
Hello everyone. I found a simpler disussion format at Mayo Clinic: https://connect.mayoclinic.org/group/caregivers-dementia/
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by Ed - Diagnosis and depression
Just wondering how many of your LOs developed depression after finding out about the diagnosis.
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by Dio - Day of Move Ideas for Placement - Success
To all you brave warriors who have successfully placed your LO in MCF, please share your execution plan on the day of moving in. I'm looking for ideas. Since DH is still very cognizant of what's going on around him, I'd hate to traumatize him with the move. Some ideas so far include: Have friends bring him to dine at the…
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LGW Blindsided by hallucinations
My DH told me there was a pig outside our window. Instead of being thrilled that he had actually said something I told him there was no pig. I am so irritated with myself. I know he won't remember the conversation but I can't believe I argued with him. I hate this disease. He doesn't have many hallucinations (that I know…
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Therapist in the Boston area
Does anyone know a therapist in the boston area that understands caregiver stress? I know you really need someone that understands what it is like caring for someone with alzheimers. Thank you so much Deb
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Spouse with dementia and parkinson’s
Morning guys. Having a lot of frustration and trouble coping with husband’s moderate dementia. I believe he has now gone into the next “phase”. No sign of affection or caring towards me, I.e. no hugs, kisses or recognition of me. Then out of the blue he gets mean and nasty blaming me for watering my plants, that he’s the…
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How to tell my husband he can't work on cars anymore
Hy husband is in the moderate stage and still thinks he can work on cars. This results in taking apart the car and can't put it back together, making it unable to drive to the shop. He gets angry when I tell him I'd rather pay someone. How do I get him to let go?