-
Anyone found a way to clean...?
Now that I am now doing all my beloved's laundry, including bedding, from the nursing home she's in, I can appreciate why their linen still smelled bad when returned to the clean laundry cart. I've washed a set of my DW's bedding 3 times and it still smells like a backed up septic tank. Is any product or technique you have…
-
Behaviour
My husband who has dementia lost his license in May so I hid his keys . He has recently insisted to be retested and got it back much to my surprise. We are waiting for the ministry of transportation to contact us to give him the go ahead to drive. Every day he forgets about the process and insists that he get his keys back…
-
SDianeL Fellow RV traveler
SDianeL, I have paid close attention to your posts as I also saw great similarities in our dementia world. Particularly, the RV life. I was in the medical field for decades and my experiences included geriatric nursing and pharmacy so I had some knowledge as to what to expect. It was certainly way more complex than I…
-
Newly Suspect Alz in my Husband
New Here. Husband's Mom and several aunts/great aunts have/had Alz. Husband is showing signs: Mood Swings, distrust, making up stories in his mind about issues that cannot be true. I need to talk to someone about the earliest detectable stages, and wondering if anyone on this site is willing to help me understand if I see…
-
Web site that may be of use
Hello everyone. I've been lurking for the past couple of years. I'm not one to join in much, but every post has helped me some how. I found this website today (see below) & its a fountain of information. It may been mentioned here at one time or another. If so please forgive the duplication. Maybe it can help some of the…
-
Another update on Peewee.
It is with a heavy heart that I have to inform you all that Peewee's Journey have come to a end. Peewee got his wings early this morning around 3:30. I will forever Miss my Peewee. I was sitting by his side and holding his hand and telling him how much I loved him when he took his last breath. My Journey is over now, and…
-
My wonderful sweet Baboo
This is myself and my hubby Jon when things were good and this shitty disease had not yet happened.
-
Documenting decline
my DH was formally diagnosed Jan 2023 with MCI, “with a toe into dementia”. I guess they just weren’t able to call it what it was/is. I document as days go by as I feel I am sometimes to close to see the changes. I know they have happened. He now searches for words, sometimes he finds them, sometimes not. I handle his meds…
-
Recent changes with DH
For the past week or so I've been noticing increased confusion, anxiety, and agitation with my husband (64, FTD, stage 5). Some depression too, I think. He has been confabulating more. He's been much more emotional (including a couple of instances where he was very maudlin and talking about dying). More instances where…
-
New thread from Walter0617 concerning Medicaid
I just joined this forum and am already relieved to see I'm not alone in some of the issues I'm dealing with. My DW was diagnosed with Alzheimer's about 5 years ago. She was early onset and is now 69 years old. Her doctors tell me she is about 18 months from late stage. I still have her at home but am beginning to consider…
-
A question about the Amount of Sleep in Stage 7
In a recent post I noted that my DW is being discharged from hospice which she has been on for six months. They state that they cannot assess her as dying in the next six months. I am entitled to appeal this decision and of course seek an assessment from a different hospice agency. So I want to ask those of you in Stage 8…
-
Still in hospital
Hi everyone. just got back from visiting my husband in the hospital. He really is somewhere in Narnia but did hold my hand for awhile, which felt nice. I spoke with him but he didn’t answer. I can barely hold it together when I visit, maybe I am in some kind of denial. I can’t believe he is like this but it is what it is.…
-
Losing my DH of 58 years
My DH departed this earth and the chains of Alzheimer’s on August 5. Even though I know he would not have wanted to stay longer in his condition I miss my partner of a lifetime. I was his caregiver for the last 6 years. He was in MC for 10 months and was going to have to be moved to a SNF soon. I was with him one evening…
-
Bringing in a caregiver
Hello everyone- this is my first post. My DW (age 76) is in stage 4. I am 67 and still working. Although she can get by during the day on her own while I am at work, she is spending increasing amounts of time watching TV and often forgets to eat. She also calls me regularly because she forgets how to operate the remote…
-
Each time a new symptom appears it's a jolt to my system
We've been on this journey for two years and I've seen many symptoms of my DH's cognitive decline show up during this time. Each time one appears, it's a jolt to my system, even tho I know to expect more, it's just that each one arrives dressed up differently that expected! One example: We've rocked along for awhile with…
-
LATEST "Diagnosis" ALZ - PCA not good news
UPDATE! I JUST WENT BACK IN HIS MEDICAL RECORDS FROM THE VA. BEFORE HIS HEART SURGERY IN 2014 THEY DID A CT SCAN BECAUSE HE SAID HE WAS HAVING HEADACHES. IN THEIR REPORT IT NOTED WHITE MATTER DISEASE & VOLUME LOSS AND VASCULAR CALCIFICATIONS. BACK THEN I WASN'T HIS CAREGIVER AND IF THEY TOLD HIM THAT HE PROBABLY WOULD HAVE…
-
Caught in the crack
My 1st time to be here. My almost 70 yo husband was finally dx'd with AD about 2 months ago although we had started the process 3 years ago. I had a bout with colon cancer last year that put his problems on hold. Btw I'm cancer free. So I don't even know where to begin. He had to stop working a month ago and it's really…
-
New Update on Peewee.
Hospice put Peewee on comfort care Yesterday and said he has about 32 to 72 hours left then his journey will be over. I am so heart broken. I feel so lost. Peewee is no longer sleeping in my bed and I can't bare to sleep in there without him. How will I get through this?
-
A new thread started by Jan
Jan524 Member August 28 Hi, Denise1847. This is my first post. My 70 year old husband was tested and diagnosed with AD about 6 months ago. I estimate current stage 4. I came to this forum today specifically looking for answers about a problem with showering and wearing clean clothes that we're facing. He's a doctor and was…
-
This doctor reversed heart disease. Now he wants to do it for Alzheimer’s
https://www.cnn.com/2022/07/30/health/dean-ornish-lifestyle-study-alzheimers-wellness/index.html
-
Any recommendations for floor mat alarm?
Hello, We are in stage 6 and DH is having restlessness all night long. This has resulted in 2 falls in the past 2 nights, and no sleep for me. I want to get an alarm for the bed and for his chair so that i or a caregiver will be alerted to his movements but am clueless about what to buy. Any input would be helpful. Now i…
-
My Wife is Dying
Hi. My wife has one or two more weeks to live and she’s coming home with me until the end. When I look at her I feel so overwhelming sad. We’ve had a good life and it’s hard to watch her go. She can’t talk well enough to communicate effectively but she tries. should I put aside my selfish sad feelings and try to put on a…
-
DW now being discharged from hospice after 6 months on hospice.
It's been one year since I had to place DW in an MCF. Her care has been very good there. Six months ago she was experiencing a significant decline and the MCF recommended hospice. She was accepted without issue as she was losing weight, having trouble swallowing, required hand feeding and had become unable to walk without…
-
Michiganpat
Pat, I hope you are still on the site. If you are anywhere near Saline, we have a member who was instrumental in making it a dementia friendly town. I'm sure he would talk to you, and he could offer suggestions. Just tell him that you heard about him from alzconnected.org. Here is his contact, although you might have to…
-
How to find care
My husband who is 76 is in stage 6/7 at this time. I am the only person who can care for him. Family lives far away. How do I find outside help? His psychiatrist can offer no suggestions. He’s calm but confused during the day but these last five nights have found him confused delusional and up till early morning hours.…
-
He fell today.
DH fell this morning outside and couldn’t get up. We had just gotten home from the grocery store. He just lost his balance and went down pretty hard on the sidewalk and against a tree. Thankfully, nothing was broken. He couldn’t get up though. Last year, the physical therapist told me that in a situation like that got me…
-
My DH is obsessed with the news
My DH is stage 4 by my guestimate. He is obsessed with the news. He talks about it constantly and gets himself all worked up. I try to change the subject and it works for a few minutes but then he turns it right back to the news. He watches Fox and Cnn several hours a day and even tapes some of the late talk shows to see…
-
New here and scared
Hello, I am new to support groups and to being a caregiver. My husband of 38 years started having memory issues in 2019 but we thought it was just stress and aging until last year he also starting having speech issues and even worse memory issues. After several doctor visits and test, we were told he had PPA (primary…
-
Pull-up with more coverage in back?
My husband does not have dementia but I have not been able to find help on this issues anywhere else. I’m hoping someone can help me. He has started having occasional bowel leakage and “accidents”. I purchased him some Real Fit Depends for the flair ups and he loves how they look (refuses to wear regular depends because of…
-
Anosognosia
I was reading an article that @Ed1937 posted about anosognosia (https://www.agingcare.com/articles/anosognosia-dementia-patients-cant-recognize-impairment-210090.htm) that mentioned the LEAP method. Wanting to know more, I ended up going down a rabbit hole and found this article:…