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City will pay for daycare and bathroom safety mods.
Was just trying to find a cheaper but still good daycare for DW so I googled and found some prospective locations. I stopped by and spoke with the administrator, filled out some paperwork. I was thinking private pay and then I got a call from Senior Affairs. They asked some very basic financial questions and asked if I was…
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Midwest Gal You just never know what's next
I really thought that I could make it to the end of this journey with DH at home. I worked with mentally and intellectually disabled people for close to 40 years. I assumed i had more "tools" than most. It seemed that most the time my DH was very appreciative and kind, but things can change pretty darn fast. Things got…
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Argh by Stewart
I just wrote a lengthy email on here and it must have a limit on characters because a large chuck of the beginning disappeared. I was just getting used to not losing a post. That was frustrating. You've been warned.
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By Beachfan…..55 years
Today DH and I would have celebrated 55 married years. I am at the ‘shore in the sweet little home that has been in my family since 1951. I am within walking distance to the beach where DH proposed to me in August, 1967. Sometimes it seems like just yesterday. Several weeks ago, not long after his death, I was here by…
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By Ed - Drafts problem?
I just noticed that I have 5 drafts that never posted, all from older threads. I'm not sure if it was my fault, or if there might be a problem with the site. I'd appreciate it if you could look to see if you have any drafts. You can check by clicking on your avatar on the top right of this page. Then you will get a pop up…
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By White Crane: Tomorrow is our 56th Wedding Anniversary
A lot can change in a year, especially with Alzheimer's. Last year he could still appreciate our anniversary and even feel sad that he couldn't get out to get me a card. This year when I tell him our anniversary is coming up he just looks at me. Then he starts asking questions such as: Do we have any children? How many?…
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By Ed - About character limits on posts
I wrote to admin. about possibly removing the limits for posts, and why it would be a good idea to remove limits. Jo C. has made quite a few long posts on the site before the new update, and they provided a ton of very important information for members, but now she's limited, meaning the members suffer the loss of good…
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By Ed - Can my Dad pay me as his full time caregiver?
https://www.elderlawanswers.com/can-my-dad-pay-me-to-give-him-full-time-care-19770
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Mother Acting Out After 5pm
My mother lives with me, my brother and his wife and kids and has Alzheimer's which has progressed rapidly. Sometimes she wakes up confused but she really gets confused every day after 5pm and starts saying that she wants to go home. We keep telling her that she is home but she says no and says she lives in Puerto Rico…
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Can family members talk to neurologist on their own?
Hello, everyone. My DS and I have some questions for the neurologist that we feel awkward and unable to ask at DH's appointment tomorrow. DH is very difficult and may not respond well to our asking questions about prognosis, lifestyle issues, diet, etc. because of course (as many of you may have experienced) he "just has a…
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He has lost empathy
I'm a smart woman but I suddenly realized that DH has lost all empathy. I had to look up the definition of the word to make sure but, yup, he has lost that perspective and understanding of others. Wow. What a blow to realize today.
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Falls? by Stewart
My dw is having Falls always in her bedroom by her bed. Last night was her third in a couple months. Last night they heard her cry at 1030. She was so confused, they tried to stand her but she didn't know how to move her legs. They told me they had to stand her like a flat board? Her mobility has decreased in the last few…
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By LSUshad - MC explanations to LO?
My DW has been in MC for about 6 weeks. She asks me why I haven’t brought her home yet. She wants to know when she can come home. I have told her that I was sick and having medical procedures (partially true). I have told her that the doctors have said she needs to stay a while longer (also partially true). I have told her…
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Online Counseling sessions on dealing with caregiving situations
I am looking for online counseling sessions that might help me deal with the changes that caregiving brings to my life. I have a 72-year-old husband with early Alzheimer's and a 35-year-old son that is on the autism spectrum. I get overwhelmed and angry that this has happened. I lost my son's father to leukemia. I have…
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CStrope -- Navigating this new sight
Forgive me if I'm the only one struggling with this. On our old sight, I could look at the discussions that I had commented on, and read other posts about that same topic. Often times I found that there were members that referenced my comment, so it was nice to go back and see. How can I see what comments I have made so…
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New To This Community
Hi. I am new to this Community and just wanted to say that I'm grateful there are others out there looking for support and answers. My DH was just diagnosed with Dementia (no specifics - at least not yet). This is and has been rough to deal with since it all happened suddenly. Everyone including 5 doctors for the past…
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Finally got away and ??
I was so torn about about going on a 2 night trip with my retired friends from work. Stomach in an uproar, mind wavering back and forth, decided to go. Do it now while you kind of still can is what I told myself. I know there will be a time when I can’t do this. Reached out to my sister in law, three kids, check in on him…
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screening for depression and progression--good and bad signs?
So, even though she's more content at the new facility, my partner isolates a lot and wants to spend most of her time when I am not there in her room by herself. Doesn't like eating in a group setting, even. Never one for group activities, this doesn't surprise me. But the head nurse of the unit yesterday asked me if I…
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Wife's outbursts
Today, had a new experience that I don't know how to deal with. I get up early, my wife sleeps late. I got up did some pruning, mowed lawn etc. When I came back in the house she was just finishing showering. I told her I was going to soak in our hot tub and then take a shower. I was getting things ready and put a towel and…
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New argumentative behavior
I'm a frequent reader and sometimes post-er. MY DH is not yet diagnosed (although we finally have an appointment for an evaluation in August! - if he will go!) but I firmly suspect the truth. His short term memory is shot. And now he is becoming argumentative and almost delusional about recent past events, and lately he…
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I did it
This will be a long post. Please forgive me ahead of time. Last Friday I called 911 and got my husband taken to emergency. His feet were really swollen and he was somewhat feverish. So off to the hospital. I received a call from the doctor asking for permission to administer an antipsychotic and I readily gave it. I…
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Medicare Change: Will Now Pay For Drugs Having FDA Approval
Medicare will now pay for drugs that have FDA approval including newly approved drugs for dementia. MDs will have to report patient response: https://www.aol.com/news/medicare-plans-pay-alzheimers-drugs-203839696.html J.
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I just had to put my husband in a facility
My husband has Alzheimer's disease and I kept him at home for as long as I possibly could, I have tremendous guilt !! Our son said to me "Mom, I have already lost my dad, I don't want to lose my Mom". All friends and family have told me I kept him home longer than I should have.......but I am ridden with guilt and it's…
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physiotherapy for ALZ patients
Has anyone had experience with using physical therapy to improve balance and movement? I'm wondering if i can ask the VA doctor to prescribe this for my DH. He is still walking slowly and is able to climb stairs, but is not doing much around the yard and doesn't seem interested. This is a big change from last summer, when…
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Sleep and signs of Incontinence
I have come to the point where I need a little guidance. My DH was diagnosed with Early Onset Alzheimer's three years ago, but I realize now there were signs at least two years before that time. I think the diagnosis is not accurate, but it probably does not make much difference at this stage. His MRI showed his brain was…
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Doctor refusing to approve carotid artery scan
Before DBF had his way bypass in 2018, he was showing significant signs of dementia. He'd sleep all day. He was unable to make simple decisions, comprehend contracts, go shopping, use the gas pump, etc... I was told by the doctor that his carotid artery had been 95% blocked. A couple months after the bypass, his thinking…
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Personal Story By Wife - Lyme Disease Mimicking Alzheimer's Disease
https://www.today.com/health/essay/tick-bite-husband-undiagnosed-lyme-disease-rcna31268 This also happened to famed singer, Kris Kristofferson. J.
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Great reads and many tears
I’ve read a wonderful book “ Travelers to Unimaginable Lands “ and have also been using a great reference book “The 36 Hour Day”. Both amazingly helpful and have given me wonderful insight into the brains workings for both dementia patients and caregivers, But I am finding there is nothing I can find that helps me deal…
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Bible Study to Lift You Up 6/6/23
CALLED TO A GODLY LIFE BIBLE REFLECTION 2 Peter 1:2-3 (NIV) “Grace and peace be yours in abundance through the knowledge of God and of Jesus our Lord. “His divine power has given us everything we need for a godly life through our knowledge of him who called us by his own glory and goodness.” What are a few ways Christians…
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Changing from Memory care to Home
Has anyone ever thought of taking their LO out of a Memory Care facility and just bringing them back home? I placed my DH in Memory Care due to wandering. He has only been there about 4 weeks. I definitely wasn't ready for this. I pay about $9000 a month for him and really don't know how long that will be possible. I am…