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Didn't post much, and now it's over
One year ago we learned my husband had dementia. As the year went on, Parkinsons became another issue. Last month, he was in heart failure. And today the love of my.life, my best buddy, and dearest friend died. To all of you on this journey, you will stay in my heart. I have no words of wisdom. This is a horrible disease…
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Perseveration
this is my first time on this forum. My wife has Alzheimer’s and is probably in stage 4 or 5. She can perseverate on a problem and as much as I try to get her to think about something else, she keeps going back to the problem that irritates her. I need help to find ways of dealing with this issue in productive ways. How do…
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Inevitable Falling
I am sole caregiver for mother with later stage dementia. Hospice comes by 2 or 3 times a week, paid caregiver once a week, brother visits maybe once a week. That leave Mom and I alone … 76.2% of the week (yes, I did the math). Mom has started falling. A couple of bad falls, several (mercifully) mild ones. Two or three…
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Hope we can make this board more active
Hello, fellow travelers. DH left this world one month ago, and I am struggling. Both the speed of his departure (seven weeks from first hospital admission to death) and the unexpectedness of it (just over three years since diagnosis) have really leveled me. I have heard from other members of speedy departures after…
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Catch-22
Well, I seem to have encountered a Catch-22. I explained our situation (wife with early dementia) to a lawyer, who said I would need a letter from my wife’s doctor before she (the lawyer) would draft a Power of Attorney. My wife’s doctor wrote a letter saying that my wife is cognitively impaired and that a POA would be…
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Mematine smell?
Has anyone noticed an odor coming off their LO after starting mematine? My mother’s Dr added mematine to donapezil about a month ago. Lately I notice an odor when I hug her. She is early on and still keeping up with hygiene and clean clothes so it’s not a cleanliness problem. The literature doesn’t mention a smell as a…
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New here need help took moms car away
hi I am new to this and our family is new to the whole Alzheimer’s. Dementia. I would say my mom is a stage five . We disabled the battery on the car November 1st and told her it needed to be fixed and every day she asked me about the car. So now I had it towed so that it can get fixed (fib) and even out of sight she still…
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Grateful
thank you all for the kind supportive words. Note: my wife has been in hospice for six months now she has two small bed sores on her hip and buttock
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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Help needed… grandfather thinks he fell in love with a nurse and had a big outburst, dementia?
I'll try to keep this as short as possible. My grandfather recently had a toe amputated about two weeks ago as it became infected (diabetic). He had to then come home on IV antibiotics, that I was to administer (i'm his grandson and POA). One day when I went to visit, a few days after the surgery, he had a nurse in his…
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Kisssing in MC
My husbands MC called last night to tell me that DH and a female resident had shared a mutual kiss on the lips. The nurse said they were going to do their best to keep them separated. My first reaction was, "Oh, ****" although I didn't say it out loud. The nurse said she was sorry and we hung up. I didn't know whether to…
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Waiting for Dr in Chicago
Finally got a referral for my LO for a neurologist at a clinic specializing in dementia and they can’t see my LO until February of 2025. Is that normal? (I’m new at this) My LO recently got an MCI diagnosis. We are seeking treatment and I worry things could change a lot in 8 months.
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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New to this and seeking guidance
I’m new to this whole world and the challenges it presents! Mom is showing many signs of Dementia/Alz and in the process of additional health tests. No official diagnosis, no cognitive testing. Limited healthcare in the area and PCP is generalist. We are trying to get her to Geriatric Dr in a few months tho haven’t brought…
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How he parts his hair -
So much of Alzheimer’s is heartbreakingly sad, especially when our loved ones stop generating conversations, but occasionally something is said that causes heartfelt mirth. I shower, dress, and most every night tuck my husband in even though he’s in memory care facility. While combing his hair after a shower, I asked him…
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Donepezil & Memantine your opinions
my wife has been on Memantine about 6 months Nurologist added Donepezil anyone use both at same time ???
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Guns
Hi my father is in the early stages of Alzheimer’s. We live in rural Alaska and he has always had an arsenal of guns in our home. He always carries one with him everywhere we go. He hasn’t given me any reason or worries about his guns. He also hasn’t shot them in almost year or so. But I know there is going to be a day…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…
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dosage of psych medication your person is on ?
Her medication per day; RISPERIDONE 0.5mg, CITALOPRAM 5mg, VENLAFAXINE 75 mg , blood thinner APIXABAN 5mg She remains highly anxious and agitated , frequently crying and shaking. she is also very delusional and experienced another episode of delirium 2 days ago …during which she became combative with a nurse, . A few hours…
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A toaster oven in AL
Mom asked her doctor that comes to see her at AL if she could have a toaster oven. The doctor talked with AL they decided it was fine and told her she could have one. I as DPOA was never included in the conversation. I am so mad. I know she can’t actually have a toaster oven unless I buy one for her or bring her to the…
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Need guidance Mom with Alzheimers
Hi, hoping someone can give me some guidance. My mom that is 77 was diagnosed after the blood test, MRI and spinal test that she has Alzheimer’s. Her neurologist told us she is in the early stages of the disease so she can get Leqembi injections every two weeks. She is supposed to get her 12th injection tomorrow and almost…
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eating habits regressing
DH has ES Alz…but lately, he seems to be regressing in HOW he eats…licking the knife after putting on peanut butter on toast, licking his fingers at the table instead of using his napkin…basic good manners. Is this just him or is this a thing?
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Sudden changes
My mother's birthday was early November, and that's the last time she seemed almost like herself. She soon became verbally aggressive and anxious. After a false negative test result, she was finally diagnosed with a UTI. It was treated. Since then she's changed. She's not keeping up her appearance now. She looks…
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Turning Corners and Crossing Bridges
Belated Happy Thanksgiving, y’all! I remain so grateful for this group, the life I’ve had with my DW, and even for parts of the life I still have with her. With that, the holiday was difficult as she turned another corner. Her stepdaughter and family were here, which was so nice on one hand. On the other, my DW asked me…
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My mother is dying and taking me with her!
Hello All, I’m new here, please bear with me as I figure things out. My mother who will be 85 yrs old on 12/16 is in the late stages of Alzheimer’s Disease. Mom had 3 kids, 2 boys and me the only girl. The guys have since departed this life leaving me as the sole caregiver for our mother who was once a strong, independent…
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Looking for next step in care
hi. 2 weeks ago we had to admit my dad to a hospital (he showed aggressive behavior towards my mom and recommended by the dr). A few days later he had a uti but a few days after showed aggressive behavior towards staff and they had to call security. They started him on meds there but now looking to move him to a nursing…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…