-
Disability application
Hi! I'm new to the group, am a spouse caring for a loved one diagnosed with early onset Alzheimer's (age 63). He is still working but it's getting harder. It seems like he should apply for disability, but I'm not sure where to start. I will need to help him a lot with this process, and I also work as the main wage earner,…
-
MCFs - Larger MCF Facility vs Adult Care Home
I am starting to look at MCFs for my DH as a backup plan for now but I do think I’ll end up placing him within the next year. So far I have only looked at 3 institutional MCFs with 20-30 beds. Some people have suggested that I look at the smaller Adult Care Homes. My DH is very private, doesn’t always want to talk to other…
-
Partner
No formatter is installed for the format not-found
-
I want to back up
No formatter is installed for the format not-found
-
@ Lane Simonian
Lane, I have had insomnia for many years and have been on several different classes of sleep aids. Do you have a suggestion for an essential oil to help me get to sleep? Iris
-
LO expects me to know the details of her "general" comments".
My mother will frequently ask for something she needs, and when when I ask for details of her request, she gets angry and says something like "I just told you" or "you should already know".
-
Does anyone here take care of parents in their home?
Hi, I have never written a post here but have stopped by a few times to read posts. My parents moved in with me about 1 1/2 years ago (March). Mom (87) had Level 6e AD and dad (91) has dementia. Mom is in level 6e, where she is talking jibberish at times, knows very few words, and apparently I change completely to her,…
-
Oh no! Nail polish on her face!!
My mom won't touch something for years (hence the nail polish) and then all of a sudden…. Previously, after not doing laundry for a year, she decided to do the laundry herself and poured so much bleach in the washer everything turned quite white and I had to open all the windows and get everyone out for a while due to the…
-
Dealing with LO'S Anger
I'm stressed out from my mom who has dementia being constantly angry. I'm feeling really frustrated because I'm struggling with my own life, and caring for her while trying to keep my own head above water is got me on edge and I don't know what to do
-
New diagnosis - how to help our Dad understand it?
[Reposted to caregiver forum] Hi, our Dad was recently diagnosed with Alzheimer's and we're looking to help him understand what this means/how it will change some of what he needs. Is there someone—a clinician, a social worker, or a group that we can go to in order to have an open conversation, where he (and we) can ask…
-
Incontinence Anecdote
I used to tell my children that, when they have children of their own and we are visiting, to not ask me to change diapers. I changed all of theirs and I would never change diapers again. I never should have said that.
-
I learned a new word today - anosodiaphoria
This means that a person is aware of their disorder, but they don't care. It's more common in people with brain injuries and frontotemporal lobe dementia. Anosognosia means that they are unaware of their condition or can't acknowledge how serious it is. The literature says that it's sometimes difficult to distinguish…
-
Dementia -Sexual comments
My Father has made sexual and lewd comments to me. It is very upsetting and frightening. Since I am his only care taker and he is living with me. Is there a way to stop this behavior?
-
Loss of executive function? Is this how it starts?
I know I'm being paranoid, but my avoidance levels are so high and my motivation so low, i begin to wonder if this is the beginning of losses that I won't ever recoup. I don't think I'm depressed, but maybe I'm fooling myself. or maybe this is just aging, maybe it's just stress. Maybe it's okay and my eyes are just bigger…
-
Where is my…
This is not so much memory related but more eyesight and perception. Trying to wrap my head around it. In the last few months, my DH cannot see items he’s looking for and are in front of him. A perfect example today was him looking for his eyeglasses. They were on the dining table in front of him and he did not see them.…
-
Some hope for the future?
My DS sent me this article about some promising research on Alzheimer’s. Like so many other things it’s only been tested with some success in mice so far but since at least one of the drugs is already been used for cancer, maybe it will prove successful in a shorter time.…
-
Hallucinations
we have seen a change in lo hallucinations. Used to be occasional and mostly gibberish. In the last few weeks they have become more organized and coherent. And not always in the evening and during the night. Yesterday morning at 3am I had swim lessons lo was a WSI. Last night about 9:00pm lo gave a group of students to…
-
Caregiving Supprt
I have read many discussions about how care giving has changed things for caregivers. We are moving in that direction. W had one person that came Tue Thur 4-8, but we never made it past 6:00 6:30, due to LO desire to go home or ………. Even with this experienced caregiver distracton redirect would only last 10-15 min. So…
-
Shivering and shaking
DH is lounging next to me and sort of trembling, shivering or shaking so hard. I asked if he was cold, earlier and he said yes (it’s hot in here) but I put a blanket on him & he went to sleep. But now the shaking is back. Hospice on-call nurse said he’s not likely in pain which we are watching… especially his crumbling…
-
My poor husband. Am I messing up?
DH is hospitalized for second time in less than a month. He was doing so well during day. Could carry a conversation with some difficulty, mostly continent, saw to his on ADL with some direction. We kept busy. He suddenly started having episodes of severe agitation in the evenings. I assume sundowning. He shoved me a few…
-
Lequembi for Patients with two Copies of APOE4 Gene
I understand that the risks associated with Leqembi increase significantly when the patient has two copies of the APOE4 gene. Is there anyone in this category taking Leqembi, or is the associated risk too high?
-
I need that word...
What is it called when the person with dementia doesn't think anything is wrong?
-
Crowd visit
MIL is an only child but has lots of cousins - she grew up with them but hasn’t seen most of them in at least 30 years. Now a long lost cousin is planning to visit. This is probably a good thing - MIL loves visitors and may remember this cousin from her childhood. But the cousin is bringing 4 children and Grandchildren…
-
One phone call, so many emotions
Mom called me about an hour ago. Her first words: when was I coming out because she hadn’t seen me in so long. I was there at the AL yesterday. I reminded her of what we talked about when I was there. She remembers that she woke up yesterday morning without her oxygen running… but she can’t remember I was there yesterday.…
-
New to this support group full time caregiver for my grandfather
Hi I'm Ebony I'm 37 and am currently a full time caregiver to my 81 year old grandfather. My grandfather originally lived 10 hours away in SC. Last year I moved my grandfather from South Carolina. Social service got involved and were going to remove him from his home because he is unable to care for himself ex... not…
-
A rapid decline?
My husband was diagnosed with MCI 2017 and diagnosed with mild/mod Alz on 4/24. The disease was progressing slowly. But since Jan, his symptoms are significantly worse. His MMSE scores dropped 4 points from Jan to April. And, in last few weeks, his symptoms suddenly worsened again. It’s like falling off a small cliff.Even…
-
Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
-
Trying to do what is best for everyone
My dad has alzheimers my mom and him have been married for 67 years. My mom was caring for him in their apartment. 2 weeks ago she said she just couldn't do it anymore. We set up an appointment to meet with a facility ( we did not want this but knew our mother needed more help) Also we had been staying my sister and I at…
-
L
At
-
Update: assessment went well, advice on move
The assessment went really well. Mom is at a higher level of care than I realized (no shock there), but they are confident they can work with her and meet her needs. We discussed incontinence and they asked some tough questions (e.g. am I opposed to the briefs with tape, more like diapers, which are harder to take off. I…