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Dealing with early stages of this awful disease
Hi I am new here and appreciate this type of forum as we are all having to adapt to this disease. Before we moved out of state we found out that our MIL had a brain tumor. We never had a conversation with her doctor but we could tell there were signs of slight memory loss. My husband made the move out of state before the…
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Is this a stupid question?
But if some one has short term memory loss and is age 85 does that mean AD or just old age? This year, DH short term memory loss has got worse, seemingly quite quickly. I'm very depressed by this as I feel I'm losing him mentally. Is this the start of AD?
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How do I get a diagnosis for a spouse?
I am new to this site. I have noticed behaviors for about a year in my husband. Many of the issues you mention on this site are the behaviors I observed. I have a friend whose husband had Alzheimer’s and she has been so helpful. My husband will never admit he has symptoms. How do I get a diagnosis? He does allow me to go…
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Bittersweet Birthday
It's my birthday today. I've had a good day: my husband made me breakfast and coffee to take to work and had a present for me when I got home; I heard from my mom, my 3 siblings, and had lots of FB messages and texts. My husband and I had a lovely outing yesterday in the big city near us. It's also the first in my life…
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Should I tell my mom her brother passed away?
My mom has been in memory care for 2 years now. She talks very little and only a few words with no context. Her brother who did go visit her regularly passed away suddenly a couple days ago. Should I tell her or take her to the services. I really have no idea what she comprehends. She seems to know what's going on at times…
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Did the Antidepressant make my DH worse? Need some advice please.
My DH was diagnosed 4 years ago. Back then he was able to drive, run his computer, use his smart phone and manage the TV selector. Fast forward to now, he is incapable of doing any of the above, thinks there are people sitting in our house. Last Sunday I came home the front door was wide open and I spotted him walking up…
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Walking on eggshells
Dh has young onset and I feel like I'm losing my mind. Feels like I'm constantly walking on eggshells so that I don't say or do the wrong thing. And like I'm constantly running interference between him and two oldest kids. He has very little patience with them and says that they're constantly giving him attitude or talking…
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Update on Decision & Question: Decline, delusions & agitation-next steps?
Mom (87yo) is declining rapidly in past 4 months and we (step-dad and I, sis occasionally) are seeing increase in her delusion that he has a GF, she comes in in middle of night and takes things, brings things, breaks things-mostly kitchen items or things in closets she doesn’t recognize-hairdryer, coats, utensils, serving…
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Nursing home time for Mom after hip surgery, doc says it is time, 2 Siblings not on board.
Mom just broke her hip and had surgery last Friday. Will need to go to nursing home for recovery. Then, doc says it is time for nursing home permanently. For the last 5 years she has had a caregiver in her home 24/7. Mom has mobility problems even before the fall and she has been in a wheelchair most of the time. She has…
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Hours of PCA care
I remember my grandmother had 24 hour aides from Medicaid or Medicare in her last years of dementia (1989-1993). I was not too aware of what was happening at the time but I recall certain facts. My aunt lived with her and was her FT carer…did not have a job..and GM still got round the clock aides. I am in the same boat as…
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Haven't yet figured out dx, but new symptom
…has cropped up. Brief history: DH was struggling. MRI in Oct 2023 showed brain shrinkage. Initial dx: moderate cognitive decline (13 of 30 MOCA), suspect Parkinsons, and Alz. In March, Speech therapist suspected Ataxia and so far indications seem correct dx. Neurologist is waiting on Mayo Clinic results of genetic…
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How long does it take for a loved one to adjust to memory care
It has been 5 weeks since my DH was placed in memory care. Every time I go, he says things like, "when can I go home, I want to be with you, I want you to take care of me." I hate this. I say things like, "the doctor says you need to be here to feel better." It breaks my heart so much I don't want to go. I go home…
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Disregard
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Police officer called me at 5:30 am
My guy was diagnosed with mci 3 years ago. We lived together until 6 months ago. I told him he needed to move back to his condo. He is able to perform all of the daily living tasks. I felt we were no longer partners, but I was definitely his memory, decision maker, bill payer, etc. I informed his son I no longer wanted to…
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BIBLE VERSE TO LIFT YOU UP 12/29/24
WHEN EVERYTHING IS READY * WE WILL ALWAYS BE WITH JESUS! John 14:1-3 New Living Translation “Don’t let your hearts be troubled. Trust in God, and trust also in me. There is more than enough room in my Father’s home. If this were not so, would I have told you that I am going to prepare a place for you? When everything is…
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Bredesen randomized controlled trial
I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approach for MCI or early stage dementia. Here’s a link to the page with more info about the trial…
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I didn't plan for this:
I am a fairly good planner. I was a project manager, so I know planning for things that can go wrong is wise. I have not planned for the case where I die before my DW. We have wills, POAs, and family members assigned to take over health care and financial matters. However, I have not planned for someone to take over the…
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Dealing with addiction
Hello all, I'm new to this community so I'm not sure on the etiquette but I desperately need help. I recently had to take on the caregiver role for my grandfather. It's mostly okay I'm learning to handle all kinds of things I never knew I could do but I am struggling to deal with his addictions. He drinks and smokes…
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How do you do it?
I know I have written posts before. I'm sorry to keep writing, but I don't know really where else to turn. I'm hoping someone has advice. All these nights where we go through the "we need to leave" and the need for movers have completely worn me out. I have explained over and over. He is convinced that he had no say in…
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What do you say to LO who is experiencing Hallucinations/delusions?
When my DH has hallucinations, talks about the people sitting around our house (just he and I live here) what should I do? What should I say. I mean, I've said to him that this is "our" home and no one is here but us. He gets mad and tells me that I'm trying to say he's crazy and that I'm planning on putting him in a…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Holiday
My mom moved into memory care AL in September. I am wondering how people have navigated the holidays with outings to the home setting? We are fearful it would be triggering to her but I am also unsure she remembers this house since she was only there June-September. I just want her to be comfortable and happy
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Memory Care ALF
I’m beginning to have concerns with my decision on a facility for my mother. I need advice because I don’t know if I am being unreasonable and maybe what I’m expecting is beyond what this level of care offers. When I visit, my mother has been wearing the same clothes since my last visit (3-4 days ago). Her clothes are…
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Handling SS and Medicare addresses when moving into facility
Hi, What do you do with your LO's Social Security address when s/he moves to a facility? My "understanding" is that it's linked to Medicare, so using any address other than the residence of the recipient will cause problems with the Medicare supplement and Part D plans in place that rely on the residence zip code. (I tried…
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Update on my dad’s a depression
when I last wrote here I talked about my dad’s fall and his depression. I am so grateful for the memory care assisted living he is in, they changed his meds with my permission to help him with his depression. He is doing so amazingly well! Still in the throws of grief as expected (mom died in sept then we moved him), but…
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People don't understand
This is mostly a rant.. I saw a neighbor last night that I don't know well. When I explained who I was, he said that he knows my husband (stage 6) and "talks to him all the time." My husband spends time on the front porch during warm weather (it's been cold for the last 3 months) and talks to people who pass by. I…
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HIghly Recommend Citicoline For Early/Mid Stage
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Wonder if I have PTSD after my dad died
My dad passed away four months ago. I had moved him and my mom to an ALF approximately four months prior to dad's death. Their conditions at home had become unsafe. For one thing, I keep ruminating about the status of their living conditions at home prior to their move to the ALF. In my mind, I still see the glaring red…
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Depression since FIL diagnosed
My father in law was recently diagnosed with Alzheimer's and I was doing okay with it until I had a really bad nightmare about it the other night. I dreamed that I went to visit him and found him in his car in someone else's driveway. He had gotten lost on the way home and couldn't figure out how to turn the car off. (In…
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Anger seems to last longer and longer
Last night, and a couple of nights ago, my DH started again with wanting to go to the "other house" and not understanding how all of our things could have gotten to this house. Of course there is no other house, but he gets angry and tells me that I am horrible and he would never treat me like this. It goes on and on, but…