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My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…

My wife is at Fast stage 6D/E. I just received a letter from her doctors saying she lacks the ability to make her own decision. This is hard to take in and process. it's final she will never be coming home again. I've mentally known it, but until you get the formal letter it didn't really feel real. At this point it's just…

Hi, My father was diagnosed with alzheimers in August of 2025. Its been really rough mentally and emotionally. It's hard to watch my mom struggle with my dad. It sucks that the Dad that I known and love is no longer the person I know. What have you done to cope with this change in your life?

I’m caring for my 85 yo husband. As far as I can determine he is moderately affected: able to do adls, able to walk slowly due to chf. Short term memory gone—less than 10 minutes. Orientation limited. Does walk alone around the block. However, his personality has changed. He has always been explosive when angry but…

My wife and I will have been married 62 years in March. Throughout our marriage, we've had our up's and down's - so much so that we're now to the point of having lost the spark that generated the fire so many years ago. Her mother had Alzheimer's and the fear of the disease has prompted my wife to ask me several times if…

Hello. I am finding more and more that my DH can not entertain/challenge himself when I'm not there to schedule things for him. Has anyone ever hired a specialist to come to the house to do work that stimulates the mind? Kind of like a tutor? My DH is in the early stages of Alzheimer's and I don't want to ask him to go to…

We moved my mom in a week ago that has dementia. I wish I could say it’s been a wonderful process, but it has not. It has been awful. She continually every day wants to call her brothers to come and get her and take her home she that we are in Florida when we actually are in Ohio. She keeps saying she wants her brothers to…

Hello, all. I found this group months ago, but only finished the registration process last week. All of what I have read so far has been so supportive and helpful, and I've already received my copy of The 36-Hour Day. Thank you all so much! The family (except my mom) started noticing more cognitive decline with my dad…

I'm new to this website. My 66 year old wife was diagnosed with Alzheimer's. She seems to be in later stages though. My wife was experiencing severe sundowning in the late afternoon to early evening. She was aggressive towards me. She occasionally shoves and pushes me. She once tore the iPad out of my hands and ripped the…

We started adding depakote (125mg) and a low dose of Benadryl to the serequol on Friday and I am seeing benefits. For those who’ve seen some of my posts my DW is one who is literally on her feet all day from when she wakes up till bed with temazepam. Different levels of restlessness and agitation. Mainly moderate to high.…

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Hello! First, sending a lot of compassion and energy to everyone here. For me, my mother is in the later stages of Dementia we are looking to move her into a medicaid facility where we could potentially pay for an upgrade to a single room. I am looking for resources or any discussions on financing memory care with Medicaid…

My husband just diagnosed with AD. His bloodwork “two copies of APOE4 allele were detected “. He also is on Eliquis blood thinner for A fib episode in March 2025. No recent Afib. We have upcoming neurology appointment and I have put my hopes on Lequimbi. After doing research it seems he may not be a good candidate. Then…

My 87-year-old mother is in Memory Care. She was diagnosed with COPD 15 years ago and she controlled it well with an inhaler and occasional use of a nebulizer at home before moving into the ALF. Other than COPD and dementia, she is in relatively decent health. Her facility left me a message three days ago saying "your…

We are all in various stages of this horrid disease. Some caregivers spend most of their time on their LOs needs every day. Others who aren't as far along on the journey modify the environment and provide support as needed fo LOs who are still able to do their ADLs. I'm in the later group and am trying to stay on top of…

My DH was diagnosed with MCI over a year ago, although I never felt that his neurologist did a complete evaluation. While I think that he got us started on the right path with Aricept and Cymbalta, we never got much info from him other than the MCI conclusion and now quarterly visits that just last a few minutes. I…

my wife had what we thought was middle stage Alzheimer when she fell and broke her upper femur. she had surgery and was in rehab for 20 days then brought home. she steadily declined and her doc recommended hospice. she was dead in 2 weeks. my question is does the anesthesia have a profound affect on Alzheimer patients?

Those who post on this site provide a welcome wealth of wisdom. A frequent topic is giving up driving. To say this has been hard for my DH is an understatement. He was first officially diagnosed with MCI 8 years ago, and this was changed to AD 5 years ago. It was definitely time to give up driving when his geriatric…

We have been married for 55 years and always slept in a king-size bed with king-size quilts. Within the last month I have thrown out a quilt and have a second one at the cleaner (not cheap). My DW is starting to become incontinent. I intend to remain sleeping with my DW in a king-size bed as long as it is practical. We…

DH has been getting more delusional and agitated. Doc suggested a switch from olanzapine to rexulti. Wondered if there is any experience with rexulti out there. I know every PWD is different but would still like to hear about experiences with this med. Also what dose at what time of day? Doc suggested a cutback reducing…

Has anyone had a loved one that takes both Depakote and Seroquel? If so, I am wondering what reaction you see in the person you care for that takes both medications, and was it also for agitation and aggression? DH is already on Seroquel but the Neurologist suggested adding Depakote along with Seroquel for DH anxiety and…

My husband's finger and toe nails need some serious attention, beyond what I feel i am able to do. His finger nails are long, yellowed and thick. A few of them are black in color and look terrible. His toe nails are really long and very thick. I'm amazed he can even get socks on over them, they are bad. They are too thick…

I placed DH in what was a reputable MC in September. It would take too long to share all the problems. But I have met with corporate leaders and now have the ombudsman involved. I have another facility evaluating him Monday. I fear that they will label him difficult or combative and make moving more difficult. Currently,…

I’m looking for feedback from caregivers in Alzconnected about my manuscript based on the years from 2017-24 when I cared for my daughter. She died from Alzheimer’s n 2024 at the age of 58. I thought members might be interested in reading about my experience managing my emotional highs and lows. All I ask is that readers…

Hello, first post here and hoping for some insight. My mom is late stage and spent 3 weeks in the hospital because it was not safe for her at home. She was moved to a facility today and they don't even have a memory care unit. We do not have money, so it is paid for with medicaid and it was the first bed available and we…

Today started early because we had a dentist appointment an hour away. Dad was already up using the bathroom at 8am. So I explained that we need to get dressed and change diapers. I gather items to bring then look in to find Dad went back to bed. I wake him and say we'll be late. Now he switches into slower mode. When we…

I wonder if anyone else has experienced this and has a good way to manage it. As it goes, the cavalry has not come, except I've been super lucky to have one of my DW's sisters come give me a couple of respite days every couple of months, so it could definitely be worse. That said, now that I've updated folks with the info…

My DH (probably late stage 4 or into stage 5?) makes comments and wants to be intimate alot! I on the otherhand have not wanted to for some time, just no desire. I feel guilty for not being intimate with him, but just can not bring myself to. DH has always had a higher drive than me. I keep thinking this will probably get…

My husband has lost his short term memory. I get frustrated with being asked the same questions and topics. Need advice or tips. Thank you

Usually my Mom takes a long nap in the afternoon and falls asleep on the couch while we're watching tv by 7 or 8pm. The past week she's been napping morning and night, still waking for meals. She seems very confused with general conversation, inability to demonstrate any logic. She's been diagnosed with mixed vascular,…