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Discussion List
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Inappropriate Behavior
How do ytou deal with inappropriate behavior such as: Coming to dinner with no pants on —NO PANTS, peeing in the garbage can, eating with his fingers, alcoholism, I don't know how much longer I can put up with this. What can I do?
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Dad calling police in nursing home
Putting my dad in a nursing and getting multiple calls a day was bad enough. Now my dad is calling the police every day from the nursing home. I don't know what to do and I am getting very stressed about it.
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Counting the days
A recent comment by @Jo124c on another thread prompted me to share this poem I recently wrote. The commenter wrote about counting the number of days since their husband died and posting it on a whiteboard as a way of maintaining connection. ********** Sunday, December 21, 2025 Eleven months today (Will I ever stop marking…
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Mom refusing to go to Dr appointments
New here. Mom has ALZ/Dementia and COPD. She is dependent on oxygen concentrator. For years now, Mom has been canceling dr's appointments on the day. Dad, who was her primary caregiver, died in May '25 and my brother and I are trying to care for her in her home. She recently fell and had a gash on her scalp, leading to…
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How to find in-home care
In the last week, my mom's dementia has quickly advanced, and she's having many issues overnight. My dad wants to keep her at home but needs help. Do you have any advice for how to find overnight care, what to look for, etc? We're looking for care in Lake Norman area of NC near Charlotte.
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Bible Verse to Lift You Up 1/1/2026
THE LORD'S GOOD PLANS FOR YOU AND ME Jeremiah 29:11 NIV For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. 1 Thessalonians 5:16-18 NIV16 Rejoice always, 17 pray continually, 18 give thanks in all circumstances; for this is God’s will for…
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Kisunla infusions- treatment side effects
Hello, My dad is about to start his Kisunla infusions. I am hoping to hear from people whose loved ones or they themselves have experienced some of the infusions what the possible side effects have been. I am familiar with the listed side effects, but would like to hear from individuals who have experienced the infusions…
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Anyone sold a car with durable POA in CA?
I'm so frustrated. Twice I'm failing to sell my parents car in CA with power of attorney. I'm coming from out of state to sell the car so I'm so frustrated and not to mention in both cases I called in advance to make sure the transaction could take place. I'm off the charts irritated. I have struck out with carmax and the…
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End of Year Musings
I want to wish all the caregivers a Happy New Year. I began reading these message boards seventeen years ago this week, in 2008. I had a diagnosis of cognitive impairment not otherwise specified and I feared that I might have Alzheimer's Disease. I read every thread on the two patient boards and on the one caregiver board.…
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One Way to Ask for Help
I am terrible at asking for help. Asking for advice - easy … asking for help - so hard. I mean, I've always been self-reliant. But self-reliant is not going to cut it when things get real around here. So, I started looking for ways I could take people up on their offers, like when they say… "Let me know if there's anything…
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Newly Diagnosed - 77 yo father - Infusion Therapy Experience?
Hello all, Just joined today as we received my fathers early ALZ diagnosis right before Christmas. We are seeing the early signs of memory loss, repeating and difficulty with completing simple tasks. He has not decided if he wants to move forward with the therapy or not. Can anyone who has taken the therapy or know someone…
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Can I Do This?
I wonder if anyone else feels fundamentally unsuited to care for someone with dementia? This is who I am. I have had life long depression episodes that I do my best to manage. I thrive best when my physical environment is orderly. . I do not work well under time pressure. I am introverted (do not seek social contact). I am…
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Just need to talk to my friends (213)
Morning, welcome to December! Carl and Ron, it's 32 here, mostly drizzle but it's icy in Tulsa and snow North of there. Lots of accidents and backups in Tulsa. If you get out today, please be careful. I have no plans to be out, maybe on the front porch to feed the birds. I saw a few on the porch looking for food yesterday.…
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Long distance
I am 52 years old and got my mom diagnosed with dementia and she 2 1/2 hours to three hours away and I am struggling with her declining. She was my best friend my rock and just looking for support and whoever else is out there that we can discuss this.
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Bed Rails
The shopping I do these days. Anyone recently purchased a bed rail they're happy with? I need a little help keeping my DW from rolling off of the edge of the bed. Thanks!
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Tamiflu for lessening flu symptoms in advanced Alzheimer’s?
Im wondering if anyone’s frail loved ones with advanced dementia been successful in taming flu symptoms and avoiding medicine side effects by taking Tamiflu? Trying to make decisions in advance as half the residents are showing flu symptoms.
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Another missing person left an AL facility
Please don’t allow people with dementia to live alone or put them in ALs. They are not watched 24/7. This is the 4th case in the last few weeks. Just because they have never wandered before doesn’t mean they won’t. They can wander at any time. This is so sad! 😭 CLEARWATER – Detectives have issued a Purple Alert for…
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Neurologist
How can I get an appointment for my sister before October of next year? UAB has no openings till then and no wait list to get on. The needs of the patient come first and it is a shame appointments are too far off when a train wreck is about to happen.
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Every Day My Dad Wants to leave NH
I don't know how to stop the insanity. My dad is physically disabled and almost bed bound. He keeps saying he is fine and I should pick him up and take him Home. I can't take this every day over and over. This could go on for years. And each time I talk with him 5 minutes later he forgots starting the cycle over again.
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New here, need some help to keep going
Hi there, I have been caring for my mother who is almost 82 to now for about 3 year Directly and indirectly. It's starting to feel over whelming again and seems the disease is taking another progressive step forward. I'm feeling kinda lost, I'm 42 and have been taking care of my mother in one way or another since my father…
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What to do when they won't move
What can we do, or who can we contact, when our person won't move, not even to use the restroom? We went to the ER a few days ago when my husband complained of pain and could not get out of bed. Once at the hospital, he didn't have any more pain, so they sent us home. Today, he's on the couch and wants a cup to pee in…
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Could alcohol be the cause and how do you know if it is?
My husband was diagnosed with early onset dementia (he’s 68) about 5 months ago. He had a neuropsych evaluation and he said it was really tough. I assumed he was having trouble during the testing as it took much longer to complete than I was originally told. Before he finished, the neuropsychologist came out and told me he…
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Oh my, it happened again.
So tonight I made some ground turkey patties with gravies. I did not check, I usually do, he did not drink anything before eating so it happened again. It got stock down his esophagus so I had to get him to the kitchen sink. I’ll spare you the details. It took like 10 minutes to get water to go through. That condition did…
- When to get help?
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Long term insurance
has anyone experienced this. I paid facility Oct Nov Dec. the insurance has 60 day elimination so December 15 would be 60 days hubby there and insurance kicks in. However facility messed me up because they didn’t get paperwork on time to insurance. I was now billed January and the amount is mind boggling. If paperwork was…
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dental care for bedridden mother w/Alzheimer's
I've been caring for my 89 yr old mother with Alzheimer's for several years. She fell & broke her hip this past February, & has been bedridden since. She has decay in her bottom teeth, & one tooth is nearly completely rotted away. As she can't walk, I can't get her to a dentist; & even if I could, she would likely not…
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DH is fighting his care every step of the way
I am not sure I can keep caring for my DH. He is in his late 70's with vascular dementia and Alzheimer's. He is in a later stage. He is always combative when it comes to his care. Recently he has needed disposable briefs. Actually I guess I needed them as I could not keep up with the cleaning and laundry when he was…
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Just hit me there is no Calvary
I got sick over the weekend, turned out to be slight case of pneumonia, all I needed was some nyquil right. My one son was in Michigan, other son at work and lives 30 mins away. I truly felt alone. I did teach myself how to use doordash. Sounds silly but I had never used it before. I guess what I'm saying is we will…
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Alzheimer's and spinning - things moving/jumping
Hi new here - My SO has probably early stage 6 Alz. He has started becoming more agitated and can no longer do ADL's most days. Today he called me to get him from Day Care. He said he was really sick - no fever, Heart Rate, BP, and muscle i.e ability to hold arms out in front of him and close eyes - no stroke symptoms -…
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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