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Just wondering
My DH will not let me manage his medicine. I filled up the 7 day pill box and he threw a fit. So that’s done for now. About 1 month ago, after our Neuro visit the Dr. increased the Aricept to 10mg and put him on Zoloft. He was supposed to increase aricept 1st then wait 1 week and take 1/2 of the 25 mg Zoloft. I halfed the…
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What do I do?
Hello everybody. I'm from São Paulo Brazil. My mon had herpes zoster in her eye last year and had some mental problems afterwards. Her geriatric told me she was in the early stages of Alzheimer, to which I wasn't prepared. She lived by herself and did all on her own. After the herpes, I brought her to live with me. In the…
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I'm moving to the new house in two weeks. Feeling lonely but grateful
It's been awhile since I posted an update. I continue to spend down our life savings so DH can qualify for Medicaid. My new house is almost ready to move into. The interior has been completely re-painted and the new carpet is being installed. Friends from church and my sister have been over here at the old house almost…
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Young caregiver
Hi, I am a 25 year old young caregiver. For almost 4 years now, I have been the sole caregiver of my 58-year-old mother suffering from early Alzheimer's, since my father passed away in 2020 due to the pandemic. I am Italian, but given my mother's condition we moved to China, her homeland, to take better care of her. I…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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My mother keeps asking if her parents are alive
my mom, 75, is in the early stages of Alzheimers. She recently has been asking if her parents are alive (they both died over 25 years ago) and my dad told her that yes, they died a while ago. He didn't want to lie and didn't know what to do. My mother started crying that she didn't get a chance to say goodbye to her father…
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Employment
Does anyone have any suggestions for employment for my husband who has early onset of dementia/mild cognitive impairment? He recently retired from teaching and still would like to do some type of work. Technology is not a strength of his. Does anyone have a loved one that is working with early onset? Any information would…
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Doughnuts
DH has diabetes. Every Saturday morning is a coffee and doughnuts get together at our condo complex. It became an unpleasant situation when DH would eat 4 or more doughnuts so I have been taking him out to breakfast instead to avoid his uncontrollable behavior. Today while I was getting our car to go to breakfast, DH…
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First time out
Today I took my mom out for an adventure from her LTC facility. She has been there for 3 weeks and I thought i would see if she could handle going to familiar places with me. Wrong,,, she did not recognize our house which I am glad for, since we just needed to just stop in and drop off the dog. She had no clue this was…
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Looking for tips with sundowning episodes
Hello everyone, very glad to have found this forum. So my mom’s dementia has progressed fairly fast since 2022. For the last month or so her sundowing episodes have been overwhelming. I would appreciate any tips and tricks you can share. Thank you in advance. 🙂🙏🏻
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Re-posting for new member MariaT - alcohol and dementia struggles
MariaT says: This is my first time on the forum. I was feeling very alone, thinking that no one else had to face dementia plus alcohol dependence (white wine) in a spouse, which makes everything so much worse and harder. Of course, his doctors have told him he must stop, but he remembers nothing and gets angry at the very…
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Sneaking Alcohol and Driving
My DH was diagnosed with MCI about four years ago. He scored low in short term memory and executive functioning on his neuropsych exam. 2023 was absolute hell with sneaking alcohol, voluntary commital for suicide plan not acted out but still threatens suicide, physical violence twice (I wouldn't let him drive off in…
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On-going hygiene issues
My DH won't shower unless he had to go somewhere which is now once every week to ten days. I can try all the tricks I've read about setting up the bathroom or offering to help and it doesn't make a difference. He doesn't want to go out to eat, or shop, or for a drive so bribing him with those events doesn't help. He may…
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Mom broke her hip two days ago
This past Sunday, I got a call from my Mom's Memory care. She had fallen and they thought her hip was broken. She was sent ambulance to the nearest trauma center and it was determined she did indeed break her hip (femoral head). They did surgery the same day and replaced the femoral head. My Mom was fully ambulatory, and…
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Zoom
hi are there any zoom meetings for a spouse that has a husband with early onset FLD he is 40
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Clonepin? Or Seroquel?
My DH is on Clonepin. As I understand, it’s kind of like Xanax. His main issue is his agitation about wanting to go home to his parents every day. (Parents long gone). He begs for hours every day to “go home”. The Clonepin helps to some degree but it’s not a miracle drug. Would Seroquel be a better option?
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Help! Dealing with Mom wanting to go home
Mom has been in memory care for one month. She's asking to go home per usual, and I am following the points suggested to me to redirect, etc. My question is emotionally how do you deal with the guilt of it all? I am so sad, and just want to tell her the truth (of course, I won't..she's unable to process) but the feelings…
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going to bathroom
I'm new here, taking care of my 75 yo wife who has dementia. Lately, last few weeks, she has been sitting on the toilet for hours on end (8-10-12 hours a day) feeling like she has to go after already having done her business. Doc says it's the dementia that makes her feel that there's more to come. Don't know how to get…
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Dealing with the rollercoaster of emotions... FTD/Pick's DH56
Oh guys. These rollercoaster of emotions. We are newly diagnosed, but it's like crossing the finish line of part 1 of this psychological thriller. I feel like I've been living in hell for over 10 years as DH's personality and emotions changed before my eyes and I was the only one who could see. When I shared with a…
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Geriatric vs. Regular psychiatrist
I don't want to sound cruel or that I don't care. My bf (44yo) was referred to a geriatric psychiatrist to help with "the man in the mirror... his reflection in general" the closest gery psych is almost 45 mins away. My question is, is there truely a difference between a regular psychiatrist and a geriatric psychiatrist…
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Scary Adventure
Yesterday, (around 2pm) somewhat expected, my LO announced she was going home (usuall) but since it was close she was going to walk (usuall), i interjected “got an errand to run, ill take you” and we got in the car (usuall), went to leave the driveway - “that’s the wrong way, my house is the other way (unusual). Agitated…
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Dementia vs stage 4 lung cancer - advice neede
(cross posted from caring for a parent) For those who have experience being a caregiver for someone who has significant co-morbidities, could you help me understand how to address my MIL’s changing needs? MIL is almost 92. She has had lung cancer for 10 years. The oncologist believes the tumors are very slow growing due to…
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The rest of the story
DH was diagnosed with lung cancer -- aggressive -- the first week in March. There was nothing to be done. The sudden worsening of memory, vision issues, abdominal issues, lessening appetite and energy - it was not from a progression of his neurological disease but the cancer accelerating the neurological symptoms. He was…
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Do You Talk To Yourself Out Loud As A Caregiver?
I have started talking out loud to myself (Not within DH’s hearing) both to vent about something DH has done or said and to try and calm myself. I say “it is not him, it is the disease” or “I can get through this” or even have back and forth mini-conversation with me, myself and I! Does anyone else do this? Am I losing it?
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Got it
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Disregard
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He ate the diaper cream 🥹
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SSDI
My DH gets a pension from local government retirement. He worked many years prior to that job paying into SS so he does receive some SS income but it is reduced due to Government Pension Offset. Will the GPO or his pension affect his eligibility for SSDI based on his alzheimers? Thinking about future needs, SSDI could…
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Grieving my dad
Hello everyone, I'm new here and I hope it's ok for me to post here even though I'm not a caregiver. I'm 24. My dad was diagnosed with frontotemporal dementia almost 6 years ago, during the summer between my freshman and sophomore years of college. My parents are both in their early 60s and my mom is my dad's primary…
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Father on a fixed income
My dad is located in CA and is living on a small fixed income (less than $2,000 a month). He has zero savings and I am not in a position to help fiscally or in a position to have him live with me. Trying to find any additional help has been impossible. Does anyone know of organizations that help. He is currently in a…