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The move to Memory Care....'Hotel California'
The move had to be made. That doesn't make it any easier.
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Disability and CELA Lawyer
Hello Everyone! I have been reading as much as possible on this site and have searched for answers to my questions to save any redundancy, but I'm still confused. I hope you don't mind me posting about this. After our appointment with the neuropsychologist, she insisted that disability is a must and should be my first…
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Seeing the end but not
I’m such a mixed bag of emotions. My father is the most resilient man I know, and I mean very resilient. Every time the docs have said he won’t overcome, he does, whether it’s walking post stroke, body self healing brain bleeds, malignant stomach tumor that was supposed to be the end within a matter of months but never…
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Middle of the night vent
4:30 and I've showered him, stripped the bed, mopped the floor, and started a load of laundry. I was so angry. And so so sad. I can handle almost anything. But stepping in pee because he decided to walk all over every part of the bathroom is hard to take. And when I sat down to cry, he came and held me. He breaks my heart…
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Coping with a father with dementia in my 20s
At the behest of my therapist, I am looking for the support of others going through similar circumstances as I am. I feel incredibly alone in my slow grieving process for my father, who is 68, and has been dealing with EO dementia for the last two years. I feel completely out of my depth as a 28 year old person without the…
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Help help help
I have a pwd that fell in February which caused an L1 compression fracture. She had surgery then went to a skilled nursing facility. When insurance stopped paying and the facility said it was not safe for her to be home alone, I moved her to assisted living. All she wants to do is to go home. The professionals at the…
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When is it time…
Hi all! my mom was diagnosed with late stage Alzheimer’s 2/23. Was a shock and so I moved my two kids in to her home and didn’t realize the extent of it until then. Well here we are a little over a year later and her progression has become severe. I quit working 8 months ago to take care of her 100%. Up until recently she…
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Whether to quit my job.
I am right now on fmla to be taking care of my dad. My question is the I’m 60 and the cost of paying someone will cost more that my salary per week. Don’t know whether to quit after fmla is over and just take care of dad myself. I have moved in with him last July.
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Suprapubic catheter
I'm thinking to have my dad try a suprapubic catheter as opposed to a Foley catheter. I will talk to his urologist next month about it. My dad is unhappy changing his catheter every month. However, I read that he still needs to change the suprapubic catheter every 4 to 6 weeks. But is it also painful? What if he gets an…
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All I can say is ....
THIS REALLY SUCKS!!!! I WANNA SCREAM SO LOUD HOW MUCH I HATE SEEING MY KIND, LOVING, BIGGEST HEART OF GOLD WOULD DO ANYTHING FOR ANYONE BF GO THROUGH THIS HORRIBLE DISEASE. HE IS ONLY 44!!!! WHY???? WHY HIM???? WHY ANYONE??? WHY CANT THERE BE A CURE??? SOMEONE SCREAM WITH ME ... PLEASE!!! We are all in this together 💜
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stage and progression
My first time here. My DH (87) was recently diagnosed with ALZ…no surprise. His memory has been off for a few years now, surprised I didn't realized something was wrong earlier….well, that's in the past. Doctor seem very vague, I guess everyone progressed differently with this. To me its seems his mind/memory is somewhat…
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Resources for Early Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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cross-post: looking to trade visits with someone in Nashville who's parent is in San Fran Bay
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Trade with someone living in Nashville?
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Mother is undiagnosed and won’t go to doctor or allow anyone in to help
my 84 yr old mother has been deteriorating years and she lives with my 92 yo father who cant remember anything but does still drive and do groceries My mother is sleeping almost all day and in a nightgown with more holes than cloth until 7pm every day and is a hoarder. Lately there has been food out all over the counters…
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Long Term Care Policy Eligibility
How "bad" does someone's dementia/cognitive impairment need to be before they qualify for long term care insurance? My mother's physician seems to believe that a patient needs to be almost completely incapacitated and living in a home before he would certify that she is chronically ill. Meanwhile she cannot drive anymore,…
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I want to hide
I just don’t want to get out of bed and face the day! To face DH. Sounds awful and I feel terrible saying it out loud, but it’s the truth! So many things that brought me pleasure no longer do. The sweet sound of the birds in the morning, going for a walk looking for sea glass on the beach, sitting on the deck on a…
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Where does a middle-stage person live?
My sister is 65, looks youthful, could almost "pass" for a non-dementia person if you don't try to have a conversation with her. Up till now we have had her living in a small house with a 24 hour aide. The landlord wants it back for his son, so we have to move her in July. It is not financially sustainable for her to…
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Dad Going Into Hospice
Condensed Verion Weve gone through so much concerning my Dad since last summer, but I'm going to try and keep this brief. My Dad is 70 and was diagnosed with Alzheimer's last summer. He's in memory care now. He refuses his medication (even for high blood pressure and cholesterol) and won't eat. It's not due to lack of…
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He hates adult day care - now what?
Just reaching out to this amazing community and hoping for some insight. My DH is 76 and diagnosed with Dementia about 13 yrs ago. Progression has been slow but recently has escalated with severe confusion, agitation and paranoia (is sure people, lawn care workers, people walking their dogs, etc) are stealing from us.…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…
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Lost filter
Out neighbor asked DH how tall he is and he responded “how short are you?” She said 5’7” and then asked him if his shoe size is a 15. So they played the guessing game until he acknowledged he is 6’6” and shoe size 13. She lifted up her foot and said that she wears a 15 because her arches have fallen and she use to wear a…
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DH is still very capable, but I am focusing on the diagnosis which frustrates him
My DH and I have been to a few doctor appointments and have been told he has some form of dementia. We're waiting on a couple more tests (hearing & sleep) before a follow-up appointment with the geriatric dementia specialist. DH says he just wants to live life and enjoy it as best he can. He admits he has memory issues -…
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Mother is having nightly delusions and I'm no longer sure we can care for her at home
My mother is 86 and has moderate to severe dementia. Her short term memory is all but gone, and now her long term memory is going as well--at night, mostly, she is waking up my father and asking him question after question about who he is, who her husband is, whether she has children, who the person in the other room is…
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Son making me feel guilty!!!
DH had AD 6 years now and have handled everything all by myself. He is on Trazadone for nighttime and Diazepam for agitation for day. My son feels he is getting worse because of the medication. I feel his dementia is just getting worse. He no longer has interest in TV. For 2 months now he wants to go home and questions all…
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Mom fell again. . .
And fractured her c2, has a brain bleed and is now on hospice back at her MC. She's conscious but eating and drinking very little. She's on liquid diet for swallowing. I take her little dog to see her every day as well as bring her a Coca-Cola. She likes that and I help her drink it from a straw. I don't think she'll make…
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Tips for AL transition for LO
My sister and I just went through moving our mother (almost 80) into AL a little over 2 weeks ago. We are feeling the guilt and angst that so many have shared but are realizing just how much she needed to be placed. She has been overwhelmed and confused and gets lost in the facility quite easily. We have her on meal…
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Helping my Dad care for my Mom
My Mom was diagnosed years ago. We were told many things to expect, and prepare for. Recently, my mom's condition started progressing more rapidly. She barely eats anything, she says everything tastes unpleasant, and it is very hard to get her to consume food. She has lost a lot of weight, and she is now very frail and…
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It’s happening quickly
My dad’s symptoms are the following: •Can’t hold a conversation. Always asks who we’re talking about. •Doesn’t remember friends & family members •Stumbles sometimes but no falls yet. •Forgot that yogurt goes in fridge. •Did not remember my son in a photo. I’m concerned that he has advanced significantly to another stage,…