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New Here - Wife of 56yo - Major Neurocognitive Disorder
Good Morning. After years of struggling and questioning my own sanity, my husband has been diagnosed with MND by a neuropsychologist. His MRI shows extensive white brain matter and old lacunes. We have a follow-up with the neurologist on 5/6 to get an official diagnosis, cause and prognosis, but according to the report, it…
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Spouse Newly Diagnosed
Hello everyone, My 65-year-old DH of 43 years was just diagnosed with dementia by neurologist with whom it took 6 months to get an appointment. PCP diagnosed MCI last summer. Although I anticipated, no, expected, the dementia diagnosis, I am reeling from it being “official.” I feel rage and despair and hopelessness. I am…
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New here
Greetings, I just signed up today, August 17, 2023. Thank you for this forum. I am the primary caregiver for my husband. I am still learning how to cope with his diagnosis. Sorry to ask questions, but where can I find the "stages" of Alzheimer's? I see many of you mention a stage with a number. I need to know what stage my…
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Competely overwhelmed and in tears or on the verge of tears ALWAYS
Hi all! I'm new here. My 59 yo DH was diagnosed with early onset alzheimer's and primary progressive aphasia in Sept 2020. He was able to continue working until Dec of 22. He's been home and frustrated and bored and angry since then. He gets so confused and believes things that haven't happened. Sees things and people do…
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Extraction of all teeth
DH aged 83 stage 5/6 needs to have all his teeth extracted. Should it be done all in one appointment? I am concerned with anesthesia and whether I will be able to care for him after the procedure until he heals. Any recommendations will be appreciated.
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There are no dementia indicators on an MRI, so what kinds of dementia wouldn't show up?
My DH had an MRI last week. It showed basically what the previous two did - some shrinkage of the brain but not really any progression and about the expected shrinkage for a 78-year-old man. What kinds of dementia would have no indicator on a brain scan? He walks and talks like a person with dementia - he is confused much…
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Nutrition Tips - gourmet puree! (Just kidding, but great tips)
Forum mates, I just posted about our chewing woes in the Caregiver's forum and here is a different article. Hoping this helps someone else either now or in the future, as it turns out to be a VERY time consuming thing! I will know enough to maybe open a gourmet puree restaurant when this is all over (!). This author is…
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Reached out to my state rep
I am tired of everyone (doctors, lawyers, care givers, MC administration, etc) that I speak to telling me the system is broke, the system is going to implode, that there is nothing more I can do, and that I am in a unique position. That position being younger than my DH and not able to retire yet to care for him. Assisted…
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Nutrition Tips - soft mechanical or pureed (and in general)
Forum mates, I went looking for tips to help me with the challenge of pureeing everything that DH eats, and still getting enough variety and nutrition in him to not lose too much weight, too fast. He is late stage 7 many of you know, and recently has rebounded from what seemed like his last hours on earth. He is of course…
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VOICES
Hello , I'm not really sure how to deal with the voices my mom hears all the time , I have been entertaining it by telling her they cant hurt her and that I wont let anyone near her ? Am I doing the right thing ? I just don't want to create confusion by telling her they all-in her head should I dismissed it ? She gets mad…
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My observations about MC
First of all, at least in my situation, an MC isn't like "committing" them to an "institution" where we imagine them in straight jackets banging their heads against the wall all day while Jack Nicholson is planning his escape. An MC can be a very homely and lovely place for them to recieve the care they need in a caring…
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How to deal with perceived anger
Just curious how everyone deals with your LO thinking you are angry at them but of course you are not. DH got up this morning saying I was really angry at him last night. I wasnt but that did not matter. What do you do? Do you just say okay I was angry but I am not now so lets move on? I dont like being the bad guy and…
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AL question
how do I tell my mom she has to move to AL?
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My DH went to MC today
My family and I have been thinking for a long time that because of his angry and agitated behavior DH needed a safer environment than I could provide for him at home. We had chosen a facility in February but we had to await an opening and also had difficulties getting doctors to sign off on their forms. I will say that the…
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Reposting new thread for nickibaker
I am also going through a similar experience with a man I have known for 15 years- After being in the hospital monthly for COPD for 1 1/2 years, rehab twice, and finally home with a part-time aid, his dementia became a bigger issue than his COPD. He is in denial (part of Dementia) and can be difficult. He does not accept…
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Son looking to support caregiving mother
Hi - first thank your time in reading through this. I am sure that some of you have heard all of this before. My mother is caring for my dad. They are 4 hours away from me in Palm Beach County. My dad is still largely independent, but as things progress, things will get more difficult for my mother. I would like to hire…
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stress
My father was diagnosed with Dementia this year. My mom is his primary caregiver. We have nursing help on occasion so my mom can get a break and my family and I spend alot of time with them . Besides the fact of struggling to see my dad go through this disease I find myself getting upset with my mom. Many times it seems…
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Balance problems
I have a tendency to fall especially around the house usually in the bedroom , I usually trip on the bedspread. I have fallen twice since last November once I fell and hit my head on the night stand and cut my head and wound up in the ER. There no serious injury. Since the then I have been taking balance courses 2 times a…
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wipe warmer?
I buy the Walmart brand xl 12X8inch wipes. DH doesn't like the cold wipes and one of the aids suggested a wipe warmer like the ones used for babies. Not having any luck finding one so was wondering if anyone purchased one of these that will fit the xlarge wipes? Thanks
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bathroom issues(6)
Hello this is my first post and am willing to listen to any/all recommendations for this problem. Has anyone experienced the loved one with dimentia having poop problems? The issue is she seems to some time poop on the floor. She also puts her hands in her poop. Today, I ended up loosing my cool when she had poop all over…
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If you are working
If you are wondering about memory loss and are working, you must be careful. If you are having difficulties and or not performing, you could be fired. See if you can review your last annual employee review for warnings of poor performance. Review with someone you trust. You might consider taking short term disabililty…
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She does not remember
Another sad day.... grandma thinks her granddaughter is grandma's cousin.
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Hygiene question
I’m sorry for the rather embarrassing nature of this question, but I don’t have anyone else to ask. My 91 yo MIL has recently had two incidences of incontinence. We’ve been able to avoid any additional incidents by going to the bathroom every 3 hours. My questions are: MIL regularly tells me that she doesn’t have to go and…
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How to cut down on the stress around tests/Dr. appointments?
Hi everyone - my mom tends to spiral in a big way whenever there is an upcoming doctor's appointment. This results in non-stop phone calls from her for a good 7-10 days beforehand, screaming, threatening to cancel the appointments, calling family members to accuse me of all sorts of things, etc. She is fine once we are…
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Has anyone been in this spot?
It is time for DH to go into s memory care facility. He can barely walk now and I fear for his safety should he get up during the night. I kept delaying as he also has incurable Leukemia ( docs do not want to treat due to further risk) that makes him vulnerable to infections. With stage 6 ALZ and low nutifils? Has anyone…
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Is a Real ID necessary?
My DH drivers license expires next Monday. I took him to the MVA to get a Real ID in place of a Drivers License. The clerk we saw told us he needed to have a social security benefits summery that list both his full name and his birth date. The Birth Certificate we have was issued by the hospital where he was born, has a…
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New to forum and dementia
Hello everyone Three months ago my beloved father who has Parkinsons, had a grand mall seizure. The seizure triggered a massive and frighteningly fast decline including rapid dementia. I had been caring for him at home (my husband and I live upstairs from him) for several years as he was unable to do certain ADLs and he…
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Making sense of where I am now - stage 8
It's been 5 1/2 years since my sister was diagnosed with early onset Alzheimer's and FTD, and a little over a month since she passed away from it (yeah, early onset does move fast). It's still easy for me to think that she's off somewhere on vacation with no cell service, although we're getting to the outer edges of that…
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Moving In
My brother wants to move my mom from her home into AL, gradually. He wants me to take her there one day for a meal, the next day for an activity etc... My mom doesn't want to move from her home and he thought maybe by moving her slowly into the facility, it might help with her anxiety and sadness. She did visit this lovely…
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A Little Introspection
My therapist has suggested that I might find it helpful to be more open about my DH’s dementia and my own struggles as his caregiver. She tells me that I need to let go of the feeling that I should carry this weight on my own. I know I’ll find support here if I can just say what I feel, but I have a long history of…