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Jo C, privacy and a good wishes thread
While I have been away a long time and only just discovered Jo C's illness, it is wonderful to see how many discussion board members care and are concerned. During our years together as Peer Volunteers, we often discussed how important our privacy was and how it was necessary to have boundaries to keep our identity…
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Brand New to This- Mom will NOT go to the Dr. but she's definitely developing dementia.
I'm going to have to care for my 83 yr old mom without an official diagnosis, but her mom died of Alzheimer's and now my mom is heartbreakingly losing her grasp on memory, reality and her own personality. My mom has been my rock my whole life and is such a generous loving soul. Sometimes I don't know who she is when she…
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I'm overwhelm!
My DH was diagnosed with dementia a few months ago I don't really know witch one because every time we see the doctor it changes. He sees things that I don't see. I'm amazed how fast its progressing the way that he cant remember things. He is only suppose to be in the mild stage. What really gets me is all the paper work I…
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Dental care
I haven't seen much here and need some suggestions/advice. Wife is early-mid stage 7. she could use a good dental cleaning, lots of plaque. Brushes daily but breath is getting really bad. She cannot travel anymore and is at home. Hospice care.
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Rough times
I’m a newcomer to this. My DW is in mid stage dementia, starting last October and is aggressively getting worse. Being the caregiver and trying to to work with an elder lawyer is so overwhelming. My DW is only 67, it’s difficult thinking I’ll have to deal with MC placement in the future. In the afternoons (I’ll call it…
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Renovations
We will have to do some renovations to the house, mainly doors and bathroom and ramp to resolve access issues. Is there any advice on how to do this without causing stress for LO. Thank you
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Vascular dementia, alcohol abuse, presenting well around others and friends who tell her she's fine.
I am taking care of my 74 yr old aunt who has vascular dementia (middle stages) and suffers from alcohol abuse. I moved her 1yr ago from STL to SFO and got her an apt where my 77yr old father stays with her for company. She had been having falls regularly in STL and when I moved her she had just had 12 staples remove from…
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"Who am I?"
Today I realized again that DH isn’t always sure exactly who I am. He knows my name, at least, but not necessarily that I am his wife of nearly 49 years. He seems to believe that he was married to someone else before me, and I suspect that this is partly because I don’t look the way I did back then—of course, neither does…
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I just don't know what to do.
Those of you on this site have probably seen me post several times. I am all over the board. As background — my DH was diagnosed with Alzheimer's 6 years ago after 4 or 5 years of symptoms. I quit my job and stayed home with him, and things went pretty well until three months ago. It was tiring, I couldn't get much time…
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As of 2:00 today, my DH is in Memory Care
When you say for better for worse, in sickness and in health, I'm not sure I thought about dealing with dementia. My husband who was diagnosed with FTD 3 1/2 years ago is not in a Memory Care facility. My heart is breaking. We met 41 years ago, and have been married almost 38. I'm not sure I'll ever be ok without him
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The bizarre way the dementia mind works!
This would have almost been funny if it hadn't been my DH talking to me! My DH has accused me of infidelity with a particular individual on more than one occasion. I have learned not to over-react after I got really angry the first time and then realized it made no difference. Last night he accused me again, but this time…
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On a lighter note……one year in
Last Sunday marked one year without DH. On Saturday, I felt the need to carry out a threat that I had made many times over many years. DH coached HS baseball for 43 years on the field that is now named in his honor. He was successful, well respected, and well loved, but he was unable (or unwilling) to stay in the 3rd base…
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Sib is main caregiver
My mother is in an assisted living facility and lives in the same town as my brother. He is the main care taker for my mom. He makes the dr appointments, he takes her groceries and brings her home to his house for weekend getaways. His wife is the main care giver, takes her to hair appointments managed her meds when she’s…
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Questions to be asking
I currently live out of state from my LO. They were recently diagnosed with EOA and from my research I believe that they are in early stage. I call every few days to check in on them. What are some questions that I might want to ask that can help me know how they are progressing through EOA? I know there are limitations…
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Leqembi
Any one experience. Please share. 🙏.
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Random thoughts from the early days...
I'm feeling so grateful to have found this place. I am in the beginning of this journey. I'm sure you'll all relate, though, when I say it's been hell for many years. I know it's been AT LEAST five, but now I find myself looking back and finally understanding all those fights (basically me fighting with myself because for…
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Mom long distance
Hello, I'm new here, my mom was diagnosed with dementia a year ago, and has been on aricept ever since. She seems almost back to normal. Almost that is. She got this diagnosis after a head injury. Could she have possibly been misdiagnosed?
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Battling UTIs - question
My wife has had frequent recurring UTIs. Last fall I started her on TheraCran One. She did not have another UTI for just about a year, maybe a little more. But in the last 3 months she has had 3 more UTIs. And I'm going to have another sample tested tomorrow. The TheraCran One costs around $85.00 for a 3 month supply, and…
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Caring for a spouse AND a parent
Ten months after we moved to our retirement home, which is five hours from friends and even farther from family, DH was diagnosed with AD (early stage, and possible candidate for new treatment - we'll know more next month). I am also the sole caregiver for my 93yo mother, who has moderate, age-related dementia, but is…
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Light bulb!
Think I’m finally figuring out my anger is all about realizing each outburst, each I don’t remember, reminds me about his dementia and He/I am slowly losing him! And I cannot change it! Feeling helpless wishing for something that will never be! In a way that “ light bulb” is helping. I hope!
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Lorita's page
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Assets
I'm trying to determine what kind of assets are considered income for my parents to qualify for Medicaid and Long term care. I've been calling around for services for my parents when the time comes.
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how do you talk to an elderlaw attorney?
I'm in the beginning stages of talking to a (not officially certified) elderlaw attorney. We already have wills, health care proxies, etc., but I wanted another pair of eyes to see whether we missed something. Here's my problem. DW has anosognosia and gets angry at any suggestion that she has a problem. How can I discuss…
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Is this end of life symptoms? I’m so confused.
(Edited: I removed sentences that appeared to be critical of my spouse. He doesnt deserve that. We’re both trying our best.) MIL is 91 with lung cancer, kidney disease, and mixed dementia. She was recently discharged for the second hospitalization in 30 days. Since her first discharge at the end of March, she has declined…
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Losing Drivers License
My mom was diagnosed with Alzheimers in Sept and the doctor sent a letter to the DMV to suspend her drivers license. She's had an MRI, a Fit To Drive exam and an in office exam and they all indicate that the diagnosis is correct. She is adamant that she is ok to drive and refuses to give up her keys, her car or driving. My…
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Hygiene Issues
Recently my MIL has developed hygiene issues to the point she has a bad odor. She had given up using her walk-in tub and was doing a good job washing up in the sink. But within the last 2 weeks or so she hasn't been washing up and it's noticeable. Her use of antiperspirant doesn't help. She also isn't brushing her teeth or…
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All Alone...Only in her mind
The feeling of being alone with only her confused thoughts can be terrifying….. #JoyInAlzheimer's simplebender.com
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Representative Payee Annual Accounting
Can anyone else who has done this for a LO in MC, walk me through how they do the rep payee annual accounting, given the online forms don't allow any notes or places to attach receipts?
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Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
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Another outburst...doctor suggests new drug...MC
I am just sharing because it helps me to get this off my chest. My DH had another outburst on Thursday night which was truly frightening. My one interest that takes me out of the house is rehearsal for a musical group I belong to, which happens each Thursday evening. Since myself, my DDIL and DS are all a bit afraid of…