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White matter disease.
I have white matter disease which can progress to dementia. My neurologist and neuropsychologist have ruled out this as cause of my cognitive problems and say I don’t have a cognitive disorder, but untreated depression and grief. But I have more lesions on my brain than 5 yrs ago and memory worse as well. But there are…
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Heightened Agitation and aggression
Hi Everyone, I’m 57, diagnosed with Early Onset Alzheimers in August this year. I find that I’m increasingly agitated by noise. Constant repetitious noises. My aggression seems to be getting stronger and harder to control. Im really annoy with myself how quickly I react and fly off, I always used to stop, think then…
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I just want to say Hi and hope this is a place for me to find some support
I am 54 and have not been diagnosed. I got Covid 2.5 years ago and have not been the same since. I have been pretty much unfunctional especially in my mind. Cognitive abilities, memory, attachment, executive functioning, personal functions, moods, distortion,etc. The medical community has been less than helpful since there…
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New
Hello, I am 43 and just been told I have either frontal temporal dementia or early Alzheimer’s. They leaning towards Alzheimer’s. How do I deal with this? The last 5 years I have had 2 open heart surgeries and stent and now this. Like this is a death sentence to me and my kids are going to have to deal with it and I hate…
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New and scared 4-4-2024
hello and thank you for this opportunity. I had a neuropsychological testing this past Monday. i was then diagnosed yesterday (Friday) with young onset dementia. 2 1/2 to 3 years ago i started to notice cognitive delays with myself. I am a special ed teacher so i recognized some things. several parents referring his/her…
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What can I do?
I’m feeling so down. Like a bad daughter. I’m hearing from family/friends that my LO is saying things to them that are untrue about me. This is not about ME however it’s very hard to hear. I reach out everyday in some way to my LO- in early stages of disease. Texts, phone calls, left messages etc. every day- many times not…
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Need POA
I’m 61 and have white matter dementia. I met with an atty yesterday about will and POA. The problem is I have no one who I can ask to be my POA. My kids are in their 20s but each have issues that will make it difficult for them to take this on. Ive thought of naming both and have them rely on my brother (he can’t do POA…
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Change in handedness
My husband is right-handed. Recently I noticed he is using his left hand and not his right. Has anyone else seen this happen? I was curious why he is doing that now. He is in the later part of the middle stage. I tried looking it up but could not find an answer.
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Mother has Alzheimer's
My mom was diagnosed with Alzheimer's very recently and my parents told me a week ago. I (27M) still live with them. I work so my dad has been the one to really help my mom out (going to appointments with her, ensuring she takes her medication, etc.). I wasn't there when they got the diagnosis, but the neurologist said it…
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How Do I Keep My Mom at Home (with me) vs Assisted Living with Alzheimer’s
Hi! I’m new here, and my Mom was diagnosed this past fall. Things were ok, but I moved her into my house to keep an eye on her. I left my job to be with her full time, and things were good! After getting a Bladder Infection, she has taken a HUGE turn, and her Anxiety is OVERWHELMING her, to the point that she’s still…
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Primary language
My DH's father was Mexican and mother was hispanic from Texas. My DH was born in Juarez and grew up in El Paso and his primary language was Spanish. He learned English threw the years and was fluent in both languages. As the disease is progressing he is speaking more and more in Spanish to me (which I understand very…
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What rights do other siblings have that aren’t in charge of guardianship
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Nutrition Ideas?
Seeking suggestions for high calorie, high energy foods I can puree for DH in addition to our current go-to list. I thought adding a non-dairy meal replacement shake daily would help with providing extra nutrition and calories for this Stage (7), even though he is going to keep losing a few lbs at each month's weigh-in I…
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New to this group
My DH was diagnosed with dementia several years ago. The doctor said that his was triggered by a TBI he received due to a car accident he had in the early 70's. He crushed in the front left side of his skull. At first it wasn't bad but now it has progressed. An MRI done five years ago showed that approximately 1/3 of the…
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Anyone have experience with BOTH parents at once?
My folks are 83 and 80, living together in their home. Dad was formally dx'd in 2022, after periodic hallucinations that there were 3 versions of my mother; he also had some aphasia but was sharp in other ways. Neurologist prescribed Aricept and it has helped a little. Mom has had mild cognitive decline for years, but it…
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Yesterday's Adult Day Care Center tour
Yesterday went with MIL to tour an Adult Day Care Center. My main motivation about her going to the adult day care center is just to get her out of the house to socialize and do some activity. I was nervous and feeling guilty about taking her. She kept asking where we were going. My fiblet was that a friend volunteers at…
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Early Dementia
My mom has early dementia. She still drives and she still lives alone, which I hate but she refuses to move and stop driving. She has no problem getting back home during the day. I have 3 sisters and she doesn't trust either of us because she thinks we talk about her / and conspiring against her. I'm the one that deals…
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From bad to worse
It has been a challenge navigating my DW dementia, AFib, and related health issues. Recently, I have been looking into the possibility of moving her to MC. She doesn't like doctors and wasn't feeling well for a week or so. Finally, I was able to convince her to go to see a doctor. So, Sunday night before Memorial Day, we…
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Alzheimer's/Alcohol Dementia, Alcoholism, Hoarding and Medication Refusal - what to do?
Hello, My mom has been a lifelong alcoholic who has refused most medical care in her life. She lost her home, was asked to leave her independent living situation due to hoarding, and she is in assisted living now for the last week but seems to have declined. She is physically weak, uses a walker, and is essentially blind…
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Sweet but sad...Buck up, honey
Some days in this journey are memorable and this was one of them. The trauma of her Monday fall caught up with my partner today, she was sleepy, achy, sore, and tearful. She has no memory of the fall nor of the night in the ER. She woke up about lunchtime a bit. Crying, she looked at me and said, "my life is over...I can't…
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Dad can’t manage finances anymore, but doesn’t realize it, and gets irritated when we try to help
Hi, I am new here and desperate for help. This is just one example of a financial problem we are having with dad. To start with he is responsible for a cemetery trust in which he is no longer capable of managing. I have tried to get this responsibility changed , but have not been able to get someone to step in and get this…
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Doing what I gotta do
Tonight I called my MIL and said I'm dropping your son off tmr before i go to work. He can't be here at home. I came home to my laundry soap (that isn't cheap) not in it's container. Some on the floor. The bed we sleep in was a disaster. (He put my pillow in the dryer caise it was cold). His new CPAP machine on the bed…
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Trying to get DW to Understand Time/Dates/Calendars/Schedules
My DW is in early to middle stages of cognitive impairment (not sure what exact diagnosis is yet – evaluation still in progress). She has lost all ability to understand timelines related to dates, schedules and appointments. She often confuses what was a past appointment with what is yet to come in the future. Here’s a…
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Confused and Stressed
Mom has been in MC for a year since my dad passed. It was hearbreaking to leave her at AL but she needed the daily care. It was the best decision since my sibiling and I all have families. Even though she can still dress herself, go to the bathroom and eat with others she throws a fit getting a shower from the aides. We…
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Music gives us our best moments lately
Every morning we listen to music, usually the Beatles or Elton John stations on Amazon Music. We sing along and sometimes "kitchen dance." Today, while singing along to Bohemian Rhapsody he came up with "gee algebra has a devil set aside for me." I'm so glad we can find ways to still giggle.
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new to group and sad/anxious about my dad’s decline
Hi all, I am the POA/ caregiver for my 90 year old dad who has dementia. He lives in a facility that is just a couple of miles from me and for the most part has been happy there. I was also POA for my mom who died 2 1/2 years ago after a 19 year journey with alzheimer’s. Although it was difficult to see my mom decline, she…
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clenched teeth
DW has started clenching her teeth the past day and today. She will not take any meds, or food or even let a straw in her mouth for liquids. Any suggestions?? Meds are opioid for pain and anti anxiety, stool softeners. The Percocete is essential for spinal stenosis, she is bed ridden since this past week. Learning how to…
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“She’s mostly in her own little world now”
Those following our story know my DW is in the final stages of Semantic Dementia and on hospice. She is losing weight in each monthly weighing. But she is still hanging on although clearly declining weekly. I was discussing my DW’s situation with the hospice nurse. I noted that my DW seems to be in a state of being either…
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Hospice for dad
Dad officially got approved for hospice at home. Yesterday the assessment nurse came and started paperwork. Today the RN came and waiting for SW and HHA to come. I told the care team to communicate with me on anything they need to know. I know my mom is relieved and hope my dad will continue to cooperate with staff. So far…
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Therapeutic Lie
Hi everybody! I was looking for some advice on how to explain to my mom (60 with ALZ) the idea of starting to go to an adult day care program. There’s this wonderful program that’s 5 minutes away from us, in a senior center that my mom is familiar with already because her mom used to go there. I’be recently heard the term…