-
Memory care outings-hows that work for everyone
I had to quickly make some big decisions this week. My DH had a trip to the emergency room and then admitted to the hospital. He is not safe to return home. I have secured a room for him in a MCF. All he talks about is getting out of the hospital and going home. I'm sonqorried about the transition. His doctors have told me…
-
Visiting Frequency
My mom is still in the hospital, waiting to transfer to MC. I had been visiting her twice a day (the hospital is literally 3 blocks away) and then dropped back to once a day. The charge nurse and the doctor say that it's helping keep her calm, the familiar face. Yet, when I'm there, my mom takes it as a signal that I am…
-
Medicaid Advice
Hi, all, My father in law has dementia and lives alone. The evaluation from senior services said that he's not bad enough to qualify for a memory care or assisted living facility. We disagree. My husband is his power of attorney and in complete charge of the finances. My father in law views scammers as friends calling so…
-
DRESSING UP
Has anyone ever gotten dressed and only find out you have 2 different shoes on or find out your t-shirt is on inside out and your pants on back wards I have. The other night I put my pj's on and my wife said look at your pj's you have them on inside out.
-
I hate seeing my Mom like this..
When I first came to the nursing home I saw a lot of residents completely out of it, just breathing with their mouths open and on oxygen. That was 7 years ago. Today I saw my Mom and she is one of those residents on oxygen with her mouth open and completely out of it. She didn't even want to wake up, just sleep. If anyone…
-
Moving mother from AL facility in Texas to Western NY area facility
Hello, This is my first discussion post ever. Hope this works okay. I currently live in Ontario, Canada on near the Niagara Falls area. I grew up in TX which is where my mother is currently in an AL facility. She has indicated that she wants to be closer to her family here in Canada so after some research, I figure this…
-
Update on brain donation and autopsy
I posted yesterday about my DW, aged 72, with the rare Semantic Variant of Primary Progressive Aphasia, svPPA, also known by its shorthand Semantic Dementia. She is still hanging on and I have no idea for how much longer, but hospice advised me to start looking into her final arrangements. I have been in contact with the…
-
Refusing help
Anyone have any suggestions on how to get your parent to the doctor for testing and/or medication? They are in denial or not able to admit there are memory issues. Also they are paranoid and thinks someone comes in and steals things when in reality it is her moving and hiding things constantly because she is afraid they…
-
Effects of Zyprexa and Seroquel
My mom has been in the hospital since Tuesday because she seemed to rapidly decline. In the meantime, I've FINALLY gotten her Medicaid approved and found an MCF. While in the hospital, my mom has become completely 100% delusional and has hallucinations. Apparently, she was trying to leave at night to look for me (which…
-
resources for re-homing a rescue dog in Middle Tennessee
Hi folks, Thanks for all your support and wisdom. I've been lurking for months, reading and gaining support, but this is my first post. My sis and I are remotely supporting a father with ES dementia and a mother who is highly functional but recovering from a serious TBI herself, requiring massive caregiver support for…
-
Understanding new sleep patterns
DH has been in "Memory Care" for 4 months, and has progressed significantly in that time. I use quotes around Memory Care because I have never been so disappointed in our health care system and society overall as I am with where he is residing. Nothing I was told when moving him there has been done to make his stay…
-
Intelgenx shows cognitive improvement
In April I posted here about the Emory University montelukast Alzheimer's trial. The trial results showed that one group of participants showed cognitive improvement. However the results were suspect because the group showing improvement was the placebo group. The group supposedly treated with montelukast continued to…
-
Somewhat off topic--a question about underpads
I had been using pet pee pads beneath my 19 1/2 year old blind cat, Simon. He sleeps a lot, and at night he usually doesn't make it to the litter box. But every morning the pee pad was soaked and leaked onto the floor. I tried different brands, they all leaked. Then I read about using underpads that are used for…
-
Running out of steam
my DH is in Alzheimer’s stage 6b according to the doctors. We’re about 7 years in and I’m questioning being able to proceed to the end of this journey. I feel so guilty and selfish when I read about all of you who are lovingly caring for your loved ones beyond where I am. I am 62 and still working full time. I can mostly…
-
I made it through my first day and night.
I want to thank everyone who posted to give me prayers and encouragement as I struggled through placing my precious Tommy in his new home at a wonderful memory care center. It was one of the toughest things I ever did but I had so many friends who texted and called and came to visit I feel like it’s going to be okay. He…
-
Can’t believe it
DH took a shower today without being asked cajoled etc etc etc. It has been at least 2years since this has happened. I am happily dumbfounded. I complimented him and he replied “It doesn’t take much to make you happy does it?” I answered Yes, it doesn’t take much. Praise the Lord!
-
We need help!
My husband and his siblings are struggling to get their mother into assisted living. Doctors have been ZERO help with diagnoses and claim she has memory loss due to old age. She has presented well at her last 2 appointments. However we get 5-10 calls daily because of numerous things. (Lost her keys, lost her purse, cant…
-
Uncomfortable question
My DH watched his parents both go through Alzheimer's/Dementia and it terrified him. He always said "if I ever get like that please let me take my life". He was serious. Now he is at the beginning of this awful disease and on numerous occasions he has said to please let him take his life and "please don't let me live like…
-
Hospice for Alzheimer's Patient
My mom is a resident at an assisted living memory care community. She is 84 years old and has had memory issues for 4.5 years. She has been living in assisted living for 2 years and is declining rapidly. She is in a wheelchair all the time and is a 2-person assist for everything. The problem is that the 2-person assist is…
-
Kids Who Care for Parent(s) At Home
Are you an adult child that takes care of your parent AT HOME? This discussion is for you! Hello! 😊 I take care of my Mother ❤️ One of the hardest things is the grief felt as she progresses and how family treats you as if you're both already gone (ie, passed away) — they don't visit or help much and never say thank you.…
-
How I dealt with a diagnosis of dementia
I was originally diagnosed by my neurologist as having cognitive impairment not otherwise specified. This means that the memory loss and other cognitive issues are due to another disease condition besides Alzheimer's Disease. Since I had had memory loss for some time, I was okay with that diagnosis. It is on the same order…
-
Won't keep diaper or underwear on
I care for my 71 year old sister who won't flush the toilet or keep and undergarments on. She's leaving trails on my carpet and her room stinks. I'm very new at this and don't know how to help her. Any info will be appreciated.
-
Hospice assessment
On Monday I asked the nurse at Mom’s AL if she thought Mom was ready for hospice. She jumped right on that. The account rep stopped by an hour later and took the initial info. She really didn’t seem that hopeful but she started the process. The PCP’s office called me Tuesday and wanted to know what diagnosis they should…
-
Alternative Therapies
Hi. I’m new to Alzheimer’s and to this board. I’m wondering if there are alternatives to the standard ‘take your meds and wait’ scenario. Has anyone here researched or run across information?
-
How to tell them about a death?
I found out ths morning that my bf (45 eoa) his cousin was in an accident and passed away. We have a commitment ceremony happening in 2 weeks. His mom decided to not tell him about his cousin because she wants him to focus on the ceremony and we will tell him after. We don't know what state that may put him in as this is…
-
Cabin in the country
we have never been on a vacation as a family more than a few nights but I took a leap of faith and booked a cabin. My husband with FTD and three kids will hopefully have good weather. My husband and I always loved camping so these are easier trips as the woods always look like our old camping days…nothing odd or scary new…
-
Lessons I've learned about "Memory Care"
I've previously made reference to lessons I've learned since placing my DH in the memory care unit on 4/1. Here are some of them. Hopefully others can add to the list and it will help others as they make this step with their loved one. Nursing care and Memory Care are two different things. Many Memory Care facilities are…
-
some sort of shadowing
DH diagnosed with ES recently, but after reading more and paying attention to what is actually happening to him, he is probably at stage 4 or so. For some time now, he has been staring at me. I find it quite annoying but haven't said anything. More recently, he has been coming up behind me and kissing me on the top of my…
-
Trying to make life altering decisions and. . .
Well meaning and good friends who are retired nurses and worked in most every field at the VA. I was talking about the hospice care and the meds the, well respected hospice doctor put her on. All I heard was how those drugs don't interact and make sure the hospice company isn't experimenting. Why would they experiment?…
-
ALZ and the law
My father was served with a court filing against him for trespass on private residential property. He has moderate ALZ and believes that people want him to visit them. Will his doctor's notes be admissible in court as a defense?