Welcome to ALZConnected! You are not alone.

I lost my DH of 38 years today. I was visiting him at MC as I did every day, and he was a little more aware of me and walking a little better than he has been of late so we were having a good visit. Gave me a kiss, responded “I love you too” when I told him I loved him. The nurse saw him walking with me and stopped to tell…

Hi all, I'm a newbie here. I cared for my dad when he had dementia and "lucky" for me he was a sweet warm wonderful person who always knew his family right til the end (died from other than alzheimers). My husband now has dementia, and he is not sweet, warm or wonderful. He has never admitted to a problem, refuses to…

Hi everyone! Brand new here. Been caring for my grandmother for 5yrs with alz/dementia. Just def having burnout with no support. Thanks for you all being here

My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…

Mom is in an amazing Alf. Over the last 4 months, I notice a "progression " in her memory, which before we had half hour before she would forget conversation, now it's immediate. She used to come to my house every Sunday to spend the day, now after 30 45 min she wants to ho home. Even on holidays. Beyond that she has been…

My spouse has early onset Alzheimer's . We live in Elgin Illinois and I was wondering if there are any support groups that meet maybe weekly in the Northern Illinois area. I feel like it would help greatly if she could meet with others who have reduced memories in a small group setting. They have a memory cafe here that…

Hi, My 87 year old LO has vascular dementia, and she is only eating 30% of her food. She has lost 20 pounds 5' 7" 110 lbs. She was at the dentist recently, so her teeth are not bugging her. She is verbal, repeats herself, she can still play cards, the doctor said she is in the middle to late stage of dementia. It is a…

Convince me that I should let a stranger (social worker) in the intimacy of my home. Convince me that I should tolerate this invasion of my privacy. Convince me that I should go through another interrogatory that invades my life. Convince me that I will not be infuriated by all these questions that could imply that I’m not…

I’ve been caring for my mother-in-law (MIL) who has started to become a bit forgetful. Over the last year, she has burnt countless pans. The smoke has bothered her neighbors and, in one scary incident, nearly harmed her cat. Because of this, my wife and I were constantly worried she would boil a pan dry or leave a burner…

My mother (86) has steadily declined this year. A couple months ago she didn't know who my sister & I were, didn't remember being pregnant or living as a family unit with us & our father, etc. We've been begging her to go into AL but she's refused. A month ago she locked herself out of her house all night long, had…

Hi Everyone, What a start to the new year. I'm seeing signs of progression in my DH, diagnosed over a year ago with Alz. I saw signs about 3 years prior to that. I believe he's at the early stage 5. He used to accuse me of not sharing information with him, but it wasn't very often and I would just apologize and say I must…

I am thinking it would be helpful for DH and me to do more than just the normal day-to-day. We could benefit from playing cards, or a Bible study, or ping-pong. Our church is full of people who are older than we are, and not really interested in socializing. I do think we could find purpose in volunteering to help at the…

Here’s the thing. Right now DH with ALZ has short term memory loss and needs detailed instructions to do tasks. But he actually is functioning pretty well. We love camping and I have been trying to decide if we should just go for it and see how it goes. We desperately need to put fun into our lives while we still can. I…

I see a lot of discussions out there about sleep or lack thereof. If meds like Seroquel or lorazepam or whatever isn’t quite working I suggest you ask about trying temazepam. It comes in 15 and 30mg doses. I’ve been using the 30mg for DW now for a couple of months and it hasn’t let me down. At first she woke up pretty…

First, Happy New Year. After being in the kitchen all day cooking up a storm, I spilled a pot of boiling water on my arm and foot. My skin started disintegrating before my eyes. So so scary. As I’m screaming in pain DH starts hitting me in the head. Thankfully my phone was near and had to call 911. It was an unbelievable…

My DW has moved from sundowners to near constant motion. The last two months have really been something. I'm not sure she had more than 5 hours sleep most nights, sometimes going over 24 hours without sleep and no loss in movement energy. Earlier she was much more agitated and then it shifted to general aimless wandering.…

Has anyone had any experience with these supplements? I did what research I could find but there is very little and the results were mixed. My kids are pressuring me to add them to DH's meds, which i might, but they are convinced that this is going to stop the ALZ or even reverse it. Second question: how to deal with these…

I have found that people just don’t really understand how hard this is if they haven’t experienced it. And that you feel so alone although you’re never really by yourself. The first couple of years after diagnosis wasn’t too bad, but the last 5 have been pretty overwhelming at times. My DW hasn’t remembered that we’re…

I've been primary caregiver for my mom for nearly two years. She's still living at home but no longer driving. Moods are hard, depression is a thing. My SO and daughter help with check ins but it's still a lot. I've been considering looking into therapy for myself. Any suggestions? Tips? Things to consider when finding the…

My 94 year old Mom is in her 12th year of Alz dementia. She is at home. We're not considering a facility but I'm curious what a facility would do in this situation. She will throw dishes, threaten violence, and punch and scratch during any interaction that requires her being touched. Can she be sedated in bed full time?…

My mother has decline cognitively and it is dangerous for her to drive, but she has these outburst about driving and sometimes says she might as well die if she can't drive and be independent.

I wouldn't call my husband incontinent but he urinates frequently, like every 15- 20 min. We are home most of the time and he does go to the bathroom himself but every single pr of underwear has urine stains. He only goes a little each time he urinates. When we do go out he uses the urinal in the car 1-3x per outing and…

Hello, new here. As an adult child my mom is newly diagnosed with ALZ. They mentioned moderate stage at this point. She is now on meds for her mood swings and aggression. Yet she is still having bad days. I also should mention she is married to my stepdad of 30+ yrs. He refuses to see the bigger picture of all the above.…

Over the past few months I have noticed cognitive decline in my husband. He often forgets things, brings me the wrong item I've asked for, cannot remember events that happened several minutes ago, i.e. that is, I will tell him something and he will ask me almost immediately for info I just provided. Our PCP has referred us…

DH has had several episodes of hiccups lasting an hour to as much as 36 hours straight. The PCP gave us Baclofen 5 mg to use PRN. I read online that it is a muscle relaxant and side effects can be weakness, instability, and confusion, which all showed up. Today he is exhausted and sleeping. Has anyone used a dosage less…

Husband got lost for 2.5 hours the other day while driving to a nearbypark that hes been to a thousand times. Since then I have discouraged him from driving and now hes just really mad at me. I just don't know how to handle this.

DH tried to clean the toilet today. I walked in and it smelled industrial so I asked if he had sprayed something. He said yes he had cleaned the toilet. I asked him to show me what he used….. It was rainex windshield water repellent treatment😂

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Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…