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Broke my heart
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We were turned down for memory care for my DH at the CRRC where we live
My husband has been diagnosed with frontotemporal dementia. We moved to a CCRC 8 months ago and paid the initiation fee to guarantee his care. Today I was called to a meeting and informed that the memory support facility here cannot handle his case. They now want to send him to another facility that requires 2 years…
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bio-identical hormones
Any practical experience here about bio-identical hormone therapy such as BioTe with your LO? My DH (mid-stage, EOAD) and I both have used this therapy for about four years, and I know there is a wide variety of thought about use, but I'm curious about experience by others, especially as it relates to the testosterone…
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He has moved out.
I am trying to follow up on my discussion “the straw that broke this camel’s back”. I have got him to move back to his condo but he his having a difficult time adjusting. He is capable of doing all his daily living functions…bathing, dressing, meals, driving, cell phone, etc. I cannot get him to understand and accept that…
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We have not yet been offered any dementia specific drugs
Is this problematic? My mom has been difficult to diagnose. Thankfully she did stay at the doctor's office long enough to get a cognitive assessment which diagnosed her with moderate to severe cognitive decline from unspecified disease. I have another post here about the mess with trying to get medications for her (the…
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stress
Hi I am the eldest of four children with a mom who has dementia. We live outside of the United states. She's 80 and back in March had a 2nd hip replacement on the same hip. My siblings and I sort of rotate a schedule of staying nights with mom. we have someone during the day. It s stressful for me being the eldest it…
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If I’m the caregiver, is he the caretaker?
What I’ve learned today … Just because my open thermos of coffee isn’t in the car’s cup holder after church doesn’t mean it was left behind. (We even turned around and drove back and went into church and searched for it. No luck. Figured it was just gone until hours later discovering that it had overturned on the passenger…
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Tell me a story, of a move to memory care that went well.
Please… Mom moves next Friday. Can you tell me your positive stories? Maybe give me some hints of what will help. Maybe give me a sense of reassurance that this will be good.
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The Cavalry Is Not Coming
Reposting for the new platform. I have not posted here for quite a while, and I want to let you know that I am still here. I hope you all are doing well, and I also have a thought process to share with you. October 1, 2022 will mark seven years since my wife’s dementia became obvious, and that I knew for certain that this…
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I'm beaten down
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Disability application
Hi! I'm new to the group, am a spouse caring for a loved one diagnosed with early onset Alzheimer's (age 63). He is still working but it's getting harder. It seems like he should apply for disability, but I'm not sure where to start. I will need to help him a lot with this process, and I also work as the main wage earner,…
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MCFs - Larger MCF Facility vs Adult Care Home
I am starting to look at MCFs for my DH as a backup plan for now but I do think I’ll end up placing him within the next year. So far I have only looked at 3 institutional MCFs with 20-30 beds. Some people have suggested that I look at the smaller Adult Care Homes. My DH is very private, doesn’t always want to talk to other…
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Partner
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I want to back up
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@ Lane Simonian
Lane, I have had insomnia for many years and have been on several different classes of sleep aids. Do you have a suggestion for an essential oil to help me get to sleep? Iris
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LO expects me to know the details of her "general" comments".
My mother will frequently ask for something she needs, and when when I ask for details of her request, she gets angry and says something like "I just told you" or "you should already know".
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Does anyone here take care of parents in their home?
Hi, I have never written a post here but have stopped by a few times to read posts. My parents moved in with me about 1 1/2 years ago (March). Mom (87) had Level 6e AD and dad (91) has dementia. Mom is in level 6e, where she is talking jibberish at times, knows very few words, and apparently I change completely to her,…
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Oh no! Nail polish on her face!!
My mom won't touch something for years (hence the nail polish) and then all of a sudden…. Previously, after not doing laundry for a year, she decided to do the laundry herself and poured so much bleach in the washer everything turned quite white and I had to open all the windows and get everyone out for a while due to the…
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Dealing with LO'S Anger
I'm stressed out from my mom who has dementia being constantly angry. I'm feeling really frustrated because I'm struggling with my own life, and caring for her while trying to keep my own head above water is got me on edge and I don't know what to do
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New diagnosis - how to help our Dad understand it?
[Reposted to caregiver forum] Hi, our Dad was recently diagnosed with Alzheimer's and we're looking to help him understand what this means/how it will change some of what he needs. Is there someone—a clinician, a social worker, or a group that we can go to in order to have an open conversation, where he (and we) can ask…
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Incontinence Anecdote
I used to tell my children that, when they have children of their own and we are visiting, to not ask me to change diapers. I changed all of theirs and I would never change diapers again. I never should have said that.
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I learned a new word today - anosodiaphoria
This means that a person is aware of their disorder, but they don't care. It's more common in people with brain injuries and frontotemporal lobe dementia. Anosognosia means that they are unaware of their condition or can't acknowledge how serious it is. The literature says that it's sometimes difficult to distinguish…
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Dementia -Sexual comments
My Father has made sexual and lewd comments to me. It is very upsetting and frightening. Since I am his only care taker and he is living with me. Is there a way to stop this behavior?
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Loss of executive function? Is this how it starts?
I know I'm being paranoid, but my avoidance levels are so high and my motivation so low, i begin to wonder if this is the beginning of losses that I won't ever recoup. I don't think I'm depressed, but maybe I'm fooling myself. or maybe this is just aging, maybe it's just stress. Maybe it's okay and my eyes are just bigger…
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Where is my…
This is not so much memory related but more eyesight and perception. Trying to wrap my head around it. In the last few months, my DH cannot see items he’s looking for and are in front of him. A perfect example today was him looking for his eyeglasses. They were on the dining table in front of him and he did not see them.…
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Some hope for the future?
My DS sent me this article about some promising research on Alzheimer’s. Like so many other things it’s only been tested with some success in mice so far but since at least one of the drugs is already been used for cancer, maybe it will prove successful in a shorter time.…
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Hallucinations
we have seen a change in lo hallucinations. Used to be occasional and mostly gibberish. In the last few weeks they have become more organized and coherent. And not always in the evening and during the night. Yesterday morning at 3am I had swim lessons lo was a WSI. Last night about 9:00pm lo gave a group of students to…
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Caregiving Supprt
I have read many discussions about how care giving has changed things for caregivers. We are moving in that direction. W had one person that came Tue Thur 4-8, but we never made it past 6:00 6:30, due to LO desire to go home or ………. Even with this experienced caregiver distracton redirect would only last 10-15 min. So…
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Shivering and shaking
DH is lounging next to me and sort of trembling, shivering or shaking so hard. I asked if he was cold, earlier and he said yes (it’s hot in here) but I put a blanket on him & he went to sleep. But now the shaking is back. Hospice on-call nurse said he’s not likely in pain which we are watching… especially his crumbling…