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It’s happening quickly
My dad’s symptoms are the following: •Can’t hold a conversation. Always asks who we’re talking about. •Doesn’t remember friends & family members •Stumbles sometimes but no falls yet. •Forgot that yogurt goes in fridge. •Did not remember my son in a photo. I’m concerned that he has advanced significantly to another stage,…
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Wondering the stage
Over past 2 weeks lo has been picking poop out of her depends. She also places it in the depends bag with clean depends and in clean baby wipes container and other random places. In IWhat Stage does this occur and is this something people with dementia do??
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Struggling with guilt/unhealthy relationship with parents
My mom is 70 and has dementia…my dad is her primary caregiver but he is also somewhat in denial about how rapidly her condition is progressing (initially she was diagnosed with MCI - Mild Cognitive Impairment - about three years ago, and they are reluctant to get a more current diagnosis). I'm in my early 40s, work…
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Multiple layers
Most nights my husband gets up around 2 or 3 a.m. and gets dressed. I just let him do this, as I’ve tried everything I can think of to get him not to and to come back to bed. Anyway he always puts on multiple T-shirts and sometimes 2 pair of pants. Last night he really out did himself. This morning I could tell he had on 5…
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Communication help with angry paranoid delusions
Hi, I'm new here. I'm in a somewhat unusual situation in that I live on the25-acre property of a friend with dementia. We've been friends for 40 years. When I moved into the rental cottage up the hill from his house, I could see the signs of short-term memory loss. Since then he's declined a lot especially rapidly in the…
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Bitter Sweet
Today is my LO's last day in her house. She doesn't really understand time any longer so she won't be upset until that moment of clarity and understanding occurs. I've lived with her here in SC for 1 month now. I'm 1000 miles away from my home. I just want to go home to my life and I feel relieved that day is almost here.…
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where do you live?
DW has been asking me this question most of the day "Where do you live?" I tell her, "Here." She says, "Since when?" I tell her, "Since 1981, when we bought the house together." "But I haven't seen you. I've been living alone most of the time." What am I supposed to do with that? She hasn't "seen" me because she doesn't…
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Why didn't you tell me?...
We get a daily newspaper. We listen to NPR's morning and evening news programs. The Israel-Gaza war has been one of the main topics for 7 months. At lunch, I mentioned the war, and DW said she didn't know anything about it. "Why didn't you tell me?" Oh, gee, there's lots I could say. "I assumed because the news media have…
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Sister with Severe memory issues
I am new here and live about 45min wa from an only sister who in this past year has shown signs of severe memory/reasoning issues but refuses to go to a doctor because she says nothing is wrong with her. She lives alone and I do not know what to do to help her. Her symptoms seem to be progressing pretty fast.
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Defiant Sister with Damentia Symptoms
I am a two year younger sister living 45min from my older sister who shows severe short term memory loss, reasoning abilities, comprehension difficulties and some inability to think of words. She defiantly refuses to go to a doctor because she thinks nothing is wrong with her. I am soooo stressed over not being able to…
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where did my husband go?
DW is now frequently living in a world where her husband, whom she loved a lot, suddenly left her without explanation, which she finds extremely upsetting. She says she had been living alone for a long time when I appeared, and she treats me like a guest in our own house. We will have conversations where she tells me all…
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How to have DH let family and friends know of his diagnosis
Hi, I"m new here (although did use this site often when helping with my Mom who passed from Alz). THis time my DH has been diagnosed with demientia - though we haven't narrowed it down to a specific type yet. SO still early on. MY DH is still in denial or hoping something will "fix" the mild(his perception) issues he's…
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Please chime in if you know
My DH, 79 , was diagnosed with moderate cognitive decline, possibly Parkinsons in October 2023. His abilities took a nose dive and all activities of daily living are left to me. I believe it was Jamie (?) who mentioned trying for VA benefits. I don't remember why (sorry, long night, little sleep). I just received a call…
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Just need to scream
Tonight DH went up to bed and came down again almost immediately to complain that "someone" kept messing with the shades in the bedroom and he wished they would stop. I reminded him that the only people who go into that room are him and me. It's true that sometimes, if he hasn't raised the shades in the morning I will do…
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His last night at home
This is the last night my DH will spend at home. I understand now that he can’t live here, I can’t take care of him, I can’t keep him from slipping away. I’ve tried to hold him so tightly that he can’t forget me or home, but it is not reality. He will drift away, take his own road from here. He will forget me, our history,…
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Help with how to handle parent who lives with us
5 years ago we moved and Grandma insisted she didn’t want to live alone. We purchased a home together with her. 7 months ago she received an Alzheimer’s dementia diagnosis with anognosia and she has declined rapidly. She walks with a walker or holding onto walls, in incontinent, had her license taken away, can no longer…
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Support and Help
Good Morning! First time poster here, who is looking for some support. DH was diagnosed with Mild Cogitive Impairment at the age of 39. He is now 43. He has a neurologist, regular therapist, and neuropsychologist who provide support for him. At this time, he is still able to work and the condition doesn't seem to have a…
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End of life planning and final wishes.
I am very embarrassed to say that DH and I were master procrastinators when it came to end of life planning. Of course I am now worried about this. I wonder if it would be a mistake to try to discuss his wishes during one of his lucid spells. I don’t want to frighten or distress him.
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Panicking in bed at night
I woke up in the middle of the night and I couldn't read the clock and my heart was racing and I just sat on the edge of the bed looking at the bedroom door and almost got up to go out side(if I had opened the door the alarm would've gone off) my wife said where are you going and I said I don't know and all this time I was…
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Driving
My husband is blaming me for taking away his drivers license even though I remind him it was his Neurologist that did it. He thinks I am being cruel and can't understand why I would do this to him.
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What do I tell Mom when she asks to go home?
Hello, I'm new here, and new to caring for my Mother who is middle stage with dementia. Long story short, my Dad was her primary care give until he passed away suddenly about 2 months ago. He hid from the family his illness (cancer) and the extent of Mom's dementia. I live out of state, so that was pretty easy for him to…
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Iris' story + MCI
I want to provide the long version of my story. Perhaps some members can get some knowledge from what I have been through. I was well until I became extremely fatigued in early 1986, at the age of 36. I thought I must have been exposed to a virus, although I did not develop a fever until mid-1986. In late 1987 I noticed…
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Mom had dementia, now dad has it.
Hi, my mom passed on about 6 years ago after dealing with early onset Alzheimer's. Now my dad has been diagnosed with it, and I just came here for some support because, although he's not in the advanced stages yet, I'm starting to see changes in his memory. It reminds me of what my mom went through and how I felt when she…
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Concern for parents mom is showing memory loss
My parents still live in thier home. They are able to do thier adls and drive. My dad is 89 and mom is 84. My mom is showing memory loss angry and not able to navigate reading mail and paying bills. I am not sure what to do next week. I have been avoiding getting too involved with Dr appts etc. We work hard on keeping them…
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Dementia vs stage 4 lung cancer - advice needed
For those who have experience being a caregiver for someone who has significant co-morbidities, could you help me understand how to address my MIL’s changing needs? MIL is almost 92. She has had lung cancer for 10 years. The oncologist believes the tumors are very slow growing due to two immunotherapy treatments 7 years…
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Feeling down
Might have to move my mom. Lots of problems at her place. Three more people moved out. She’s deteriorating. Looking at other places, and meeting with the director next week. She went to the ER last Wednesday again (long story, she’s fine) and there was no follow up, except by staff who really do care about her. Their…
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Terrible Family
My DW has been diagnosed with FTD. We have been married for 31 years. Over those years I enjoyed her family very much. I grew close to her parents and her younger brother. I helped her parents with minor maintenance, yard work etc. over the decades. I was best man at her younger brother's wedding. I helped him get his…
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Update - DH56 with FTD
I am so incredibly grateful for all the love and compassion and guidance you have all given to me. I'm sure you can all relate when I say that I am losing track of the days. Time is just floating by and I feel like time is like a ticking bomb right now. I know things will not get easier - different in a horrific kind of…
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Medicaid
We live in an apartment in a retirement community. They have MC, SNC, AL, and Adult Daycare on the premises also. I recently asked our Manager what I would need to do if my DH needs SNC in the future. She said we would get a bed for him with a Medicaid Waiver and then apply for Medicaid (he would definitely qualify). Since…
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clueless cashier
We went to the grocery store today. DH pushes the cart as we wind our way around the store. We get to the checkout and he puts the items on the conveyor. There’s no bagger so he starts to grab a paper bag to fill. The store now charges for bags so we bring our own. I stop him and remind him we brought cloth bags. He starts…