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Hello, My mom is in a memory unit of an assisted living facility. She is nearly 98 years old, wheelchair bound, and can still have basic conversations. The details are below but to make a long story short, they sent my mom to the ER without an aid and without informing me. The details: The other morning I got a call from…

Good evening, Returned from a week-long visit to my hometown. Went with my Mom to see my Dad (PWD) in the memory care unit 3 times while I was there. I was very happy to see he is doing better after having spent time in the hospital for medication management. He had been sleep deprived, depressed, anxious, agitated; then…

I have a friend whose housemate has very significant memory loss, but no diagnosis. The friend has asked for some input from me since I have a little experience in general. I have tried to search some of the discussions about the legal, financial and interpersonal challenges, but haven't hit on exactly what I'm looking…

These knots in my stomach come and go. It’s awful thinking about leaving him there without him knowing. I have always been as honest as I could. Getting there 11:30 then noon is lunch when they will transition him. I have to find out what will we be doing for 30 minutes. I keep thinking what if he won’t transition. I was…

I think this is the saddest and lowest I have felt for a while. It has just struck me how quiet it is in the house if I’m not talking or prattling on or the radio isn’t turned on. My darling DH with Aphasia, VD, now bent over most of the time and creeping silently around the house, it’s quite awful. I’m getting tired, the…

My DH with EO is starting to do things that are potentially destructive. Beginning a couple months ago, my LO began getting concerned with the car oil level and has been checking and adding oil. Yesterday, my LO added oil to the car. And the car leaked a lot of oil and smelled like something was burning. My LO got it…

Need some advice about telling others about my DH's dementia. We play pickleball and while he can play pretty well, he forgets (and will never remember) some of the basic rules. The other players at the facility are just acquaintances or sometimes strangers if we have not played with them before. With pickleball you're…

This was posted in the support after loss forum but was suggested to also be posted here> I just wanted to offer up a watchout regarding taking a loved one with AD to the emergency room. I have now experienced this personally and heard similar reports from others. The medical community does wonderful things to treat health…

We have a friend who we haven’t seen in years who reconnected with us a few months back. He is flying up for 4 days to help with DH (in early stage 5) during our move to a new house. I am so grateful by his generosity. He stated that he knows very little about ALZ and wants to read up about it. What websites, etc, would…

My husband is 77, had several strokes, VD and other serious health issues and does not acknowledge he has serious problems, including dementia. He does not want to go to any more drs appts but his sleep has been seriously disrupted for over 6 yrs. He's on trazadone 150 mg which has decreased up/downs to about 5-7 x per…

My mom has dementia and she forget and can't remember things she does things that I don't know how to stop example she uses toilet water to clean herself with tp and she goes through alot if tp

Hello, my partner's uncle has started to show the signs of early stage Alzheimer's and while I have had family members experience this in the past never someone as close as they are with their uncle. He lives in a different city and while they are trying to spend as much time there as they can I want to help however I can…

Hello AlzConnected Community, I am new to the discussion group. My 74 year old husband went from Mild Cognitive Impairment to Alzheimers diagnosis in the Spring of 2025. I look forward to learning from others in the same situation. This morning my husband opened a fundraising letter from Alzheimer's Disease Research. It…

This is heartbreaking!! I wondered whether to share this but decided that another discussion about AL vs MC is helpful to those making the decision. “A Tampa Bay area family is demanding answers after an 83-year-old man was found dead in an assisted living facility.William Eugene Ray's family said he was found in a walk-in…

I know many of you have also gone through The Search for an item your spouse has misplaced. Has anyone figured out a way to control or prevent this? My DH has Alz disease & for many years, even before the diagnosis, he would pick up or put away items then not remember where he put them. Now his memory is so poor he can’t…

My DH passed away at age 65 last Saturday, Sept. 27th. I was glad we all got to say our goodbyes before he passed. I now understand stage 8. My days feel like a roller coaster of emotions, but the nights are the hardest. We have been married almost 38 years.

I just wanted to offer up a watchout regarding taking a loved one with AD to the emergency room. I have now experienced this personally and heard similar reports from others. The medical community does wonderful things to treat health issues. However, there is a huge gap in what they can do for persons with AD and the…

I follow him on X. His wife has Parkinson’s Dementia. He writes so beautifully. TO ALL CAREGIVERS The Quiet Violence of Caregiving. by Michael Whelan There is a peculiar kind of heartbreak in being the one who stays. No one prepares you for how illness can rearrange the person you love. Parkinson’s is not just tremors and…

I placed my wife in memory care for Alzheimer’s two years ago and she is now bedridden. She has always been a very loving person, treating a stranger like a longtime friend or family member. Several months ago she started having mood swings and anger issues. Lately, she has been very happy when I first get there; smiling…

I feel surrounded by caregivers that really care about others! Thank you, all of you, that took the time to share your great ideas & your stories, so similar to mine. I will put these into place & rearrange to have some safe storage places! Best wishes to all❤️

WOW so much going on I'll try to keep this concise. First of all, I'm grateful to have a community like this and I'm really hoping I can get some ideas. My mom (82) was diagnosed with minor neuro decline two years ago and her annual followups went minor to medium to major this summer. It's now "suspected Alzheimer disease"…

My husband is my concern. I’ve tried to talk to him about my concerns. Memory, irrational behavior, inappropriate decisions, he will not discuss or answer questions. His mom past of ALZ in 2022. He refused to help in any way with her care. His sister and I were there. HOw can I get him to see a doctor. I bring it up he…

My wife is afflicted with ALZ. she still loves me but we have had difficulties over the last month or so. We always had arguments over our 46 year marriage. So she asked for help from her daughters and they have offered it. Fine. Now she is 400 miles away. But now the oldest one has taken another step. She has blocked all…

https://breakthroughsforphysicians.nm.org/neurosciences-clinical-article-leqembi.html#:~:text=is%20doing%20something.%E2%80%9D-,Dr.,headache%2C%20confusion%20and%20visual%20disturbance.

I have been watching my DH decline for the past six years. At first I thought it was just his age, he is now 84, but soon realized it was more than that. So I started researching and became certain that he had dementia. The frustrating thing was the doctors kept saying he was fine. They would ask him to remember three…

My mom in in the moderate stage with Alzheimer’s. For several years she has been prescribed/taking Donepezil and at this weeks visite to her memory care specialist she was taken off the donepezil and prescribed Rivastigmine. Has anyone had any experience with this drug?

Hello, I'm new here. Currently, I'm caring for my Dad (71) and he lives with me. Over the course of 2025 he has fallen several times as a result of heart pausing, heavy drinking, and most recently what we think are seizures. He has broken his back, his arm (requiring surgery and when they put in the pace-maker as well),…

took hubby to tour assisted living facility. Of course he asks am I trying to get rid of him. He has neurologist appointment next week so hoping the doctor can encourage this. Does anyone have any suggestions how I can get him to agree to this. I’m trying to avoid just leaving him there. Thx!

I have been caring for my Mom who was last assessed at moderate stage Alzheimer’s. I moved in with her about two months ago due to the frequency of late night calls and confusion I was seeing. Last night a friend of mine raised his voice at my 19 year old son for something unrelated to my Mom. She began to spiral into…