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Today is our wedding anniversary
Today is our 57th wedding anniversary. Such good memories/ such sad ones too. The saddest was the day back in January when the doctor told me I could no longer take care of him at home. He needed too much care. It felt like my heart was being ripped out. The grief was overwhelming. Thank God for the good memories. Our…
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Supplements?
Hi All, This is my 2nd question here I’m posting. Knowing now that my dad has dementia, I’m now interested in taking any conceivable preventative actions to benefit myself. To my knowledge there are (at least) 2 well-known OTC Memory Supplements on the market. One of them is Prevagen and I’m not sure offhand the name of…
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Voice
In the last six months my DW (possible stage 4) has begun to often speak in a voice that is too low for me to hear when we converse. I went and got my ears checked by the way and I am fine.😆 Anyone else experiencing this?
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Comments on Medicare Proposals on Improved Hospital Care for Dementia Patients
Michael Ellenbogen wants to encourage anyone interested to make comments on this measure. I am going to include Michael's comments: Please get people to make comments on this site ASAP. Very important. You must submit your comments by June 10 on the Regulations.gov site. Pls see the proposed CMS Measure link added here.…
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Parents in AL, likely moving to MC soon and too hard to visit them
I moved both parents to AL five weeks ago. That was difficult enough. Then last week the DoN called saying both parents seem like a better fit in MC. We met at the facility and agreed to try an increased level of care in AL "for now". After only five weeks, I did not want to disrupt my parents and with another move so…
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Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…
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When / how to correct?
My DW has cognitive impairment, so not to the dementia level yet (thank goodness). However, I am trying to learn when to say or correct discussions. For example, the other day she locked me out of the house - it is only the two of us, so when I came in the back door I said "hey you locked me out" her response "I did not".…
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Got a few days off - almost - Credit Fraud attempts
Well with the support of the folks at my LO's MC and my wonderful son, I got to go away for a couple of days. Everyone promised to be extra vigilant and it just about worked. But … I got a call from a bank verifying that we were opening a charge account or taking out a loan. So I was able to shut that down and was on pins…
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This too shall pass
Last weekend with my BF (44 eeoa) was AMAZING!!! I would pay to have all of our weekends like that. This last weekend wasn't horrible but he just seemed more withdrawn. This morning he woke up confused and kept saying "I don't know what's going on". I was talking to his Dr about his medication and he was still waking up.…
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Teaching mom about dementia
My mom has been primary caretaker for my dad with vascular dementia. I had to teach her how to talk to dad. She tends to want to explain things to him as if he can comprehend everything she says. My dad can't be convinced logically and my mom needs to practice different ways to communicate without upsetting him. There have…
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His words - so true.
DH is silent most of the time now. He sleeps a lot too, but lightly. Catnapping around the clock here in early Stage 7. At any time I may realize he isn’t fully asleep, but eyes are closed. He may open his eyes, semi-smile and make clear eye contact. He may or may not say anything - well at least not in words. I sit next…
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Extreme anxiety, fatigue, apathy in DLB
I have done a lot of internet searching but can't find these as major symptoms. After about a year of testing my spouse was diagnosed with MCI, probably caused by DLB and secondarily by Alzheimers. Most days she awakens early worrying about something, then when she gets up about 10 she immediately feels tired and lies down…
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New to the community - First post
Hi all - This is my first time on the site and my first time posting. My DW was diagnosed with MCI but no definitive diagnosis of Alzheimers yet. She is most likely still in the early stage but when she is stressed or in an unfamiliar environment her symptoms get much worse. She was diagnosed with MCI by a neurologist at…
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Trouble Redirecting
Hi all, My poor DW. She's spent the last several days crying, asking about why there is such distance between us. Like our relationship has changed and I don't love her anymore. Of course I do, it's that she is moving further along and away, but she can't grasp that. I can't seem to get her off of it. She's a former…
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Really Mom? LOL
They really don’t know how bad off they are, but they notice everyone around them. Mom was complaining to me on the phone about the other female residents of the AL. They seem to keep watch over her since my step-dad died: monitoring her eating habits, checking her progress ( or lack thereof) on the puzzle she’s been…
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Agitation and anger and a couple of questions
My DH is starting to have angry outbursts when things don't go his way. It's intermittent but noticeable. For example, he gets easily frustrated around tasks that used to be easy for him - the TV remote is the most recent source of frustration- he has replaced the batteries several times in the last few weeks, blaming…
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Help locating text
I have not been able to find a post that was a very good point by point summary of advantages of MC vs home care. It was not an account of the writer’s experience but was in response to someone else’s. I believe it was 2-3 paragraphs. I’ve had no luck finding it with the Search function and am hoping someone remembers it…
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Dad with Dementia
Hi All, I'm new here. I don't know where to begin. I'm honestly not really that close to my dad (my parents have been divorced since the early 1980's). My younger sister lives in another state, and is not very close either. Neither of us are now (we both tried to be during our teens, but it was challenging). Both of our…
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bedtime games
Hello everyone ,I am shannon , nice to meet you. I take care of my 83 yr. old mother whom has dementia. She is in late stages where you really cannot have a conversation with her , she uses word salads , etc…but she gets wht you say to her , for the most part, sort of . She is still at home, I live here with her and am…
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Mom's In Good Hands
I pray a lot to God that my Mom is comfortable at her NH with all the CNA's and nurses. Today when I visited my Mom, she was being cleaned up by a CNA that I know for 8 years since my Mom has been in the same NH. My Mom was singing and laughing and so was the CNA. I stayed outside her room and listened. It was really an…
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Anticipatory Grief resources
Does anyone have any idea on where I can get help with this? I will soon be in a Grief support group due to my mom passing. But the grief of seeing the changes in my husband has been so difficult. As I see each new thing, he cannot do it hurts. He knows I am an important person to him, but I am not totally sure he knows…
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Helpful friend or not?
My 84 yo mother beginning late stage ALZ talks to her only friend on her phone constantly. The friend is younger than her and I don’t know her. Supposedly this is someone she’s known for over 10 years. This friend seems to believe my mother’s stories of life with me. That I steal from her, don’t take her out , lock her in…
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New to the group
I have been diagnosed with Alzheimer’s for about 3 years ago. I have been in a clinical trial at USSD for two years. I have an amazing husband. He has been to every appointment. He’s also a pharma person. He gives so much love and support. I am 65 years old. I worked for NASA as a programmer. But Alzheimer’s has changed my…
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Questionnaire d'enquête
Bonjour à tous, J'effectue une enquête dans le cadre de ma formation qui porte sur "La nutrition peut-elle améliorer les troubles cognitifs dans la maladie d'Alzheimer et les maladies apparentées ?" et j'aurai besoin du témoignage de personnes touchées par cette maladie neurodégénérative ou les aidants d'une personne…
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Funny- “ The Calvary Isn’t Coming “
About 3 am DH comes busting in my room and tells me in no uncertain terms that “I will never be the Queen of the Castle and that this is his house and I’m a squatter.” I was so darn tired that I started laughing uncontrollably. That didn’t sit well with him. I still can’t keep my mouth shut. When I think he’s downstairs,…
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Struggling
I just moved my mother out of independent living to assisted. In the week since, she is increasingly paranoid and combative. She blames me for most things. She also is increasingly unable to use her laptop and phone. She calls all night and then yells at me. I turn off my phone but it eventually I need to deal with it. She…
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Choosing an acceptable meal or menu
I ponder whether to ask a PWD what they want to eat, or whether I should just choose what is healthy. The former brings some joy but may not be healthy. The latter may be good for health but a person may dislike it. Ideally, you can find something that meets both needs. I understand that the sense of taste or smell…
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Grieving and Planning
Hello All- My first post ever. I am 40 years old and moved in to help my father 78 who was diagnosed with alz in 2020-- but had been declining for over a decade. He has really progressed and is incontinent, very weak, and disoriented. He recently had a fall in the shower and we had to call 911 for a lift assist-- it was…
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just placed in memory care
Just placed my DH in memory care 2 days ago. He was diagnosed with Alzheimers in 2021. I spent the first day with him getting him settled and talking to the staff. DH doesn't understand why he is there and is very sad, tries to argue that he is fine and wants to go home. The second day, I went to visit, took him for a walk…
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Teacher Retirement makes us unable to qualify for a Texas disability exemption?
Young onset husband worked for 18 years as a teacher. He left 10 years ago for what we called "stress" then, but same symptoms he's experiencing now. Confirmed Alzheimers. Because he never wanted to return to school, he transferred out his measly retirement account to an IRA. We were just denied SSDI, I'm assuming because…