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I'm new here and I can't find the right place to post.
Sorry, I looked at about a 100 links here and I didn't find anything that fit. I'm simply looking for the correct forum to post my question regarding my wife who has early onset Alzheimer's and her children who live all over the country. Is there a place where I can ask this question?
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Mobile phone in MC
In a week, my DW will move to an apartment in MC. I wonder what advice you all have regarding cell phone. She barely uses it any more, because she can not do so safely and effectively, but . . . How will I or her friends reach her?
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Not Diagnosed yet
I have been left with the responsibility of caring solely for my grandmother who is showing very progressed signs of dementia. My issue is, how do I get her a diagnosis and help, if she refuses to go to the doctor and her son (who is states away) has POA over her and refuses to acknowledge there is a medical need? I am so…
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dad bombarding me with calls
I switched out my a 90 year old dad’s phone from a smart phone to a flip phone because he had gotten to the point where he really couldn’t manage the smartphone anymore (even though he is convinced he could). He doesn’t like the flip phone and he keeps calling or trying to text me to tell me he isn’t going to use it!! My…
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Separating Parents in AL - How to handle the physical move itself?
Suggestions for Thursday's move? We have to: Tell our mother (stage 6a/6b with anosognosia) we have decided that she and Daddy need separate rooms in order to receive the care they each need Respond to her confusion, frustration, fear, and anger (her symptoms manifest with great anger) Support our dad (who already knows…
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Thank you!!!
I just wanted to say a huge thank you for this space with all the wisdom from people. I just joined a few days ago, and today is the first time I have ever felt the “permission” to go on dnd. I have never felt the okayness to just slip out. I have done both and never experienced such relief. I don’t have to listen to the…
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Two days in the life ...
My son and I went to visit my mom in her MC on Saturday. She smiled when she saw me but really lit up when she saw "the boy" (she doesn't remember his name). She reached out and gave him a big hug, something uncharacteristic of her these last few years. We played a simple color matching game (he played on her "team" for…
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Mom with Dementia, Dad can’t take care of her alone anymore
Hi I am Carol and I am new here. My Mom was diagnosed with vascular dementia about 4 years ago. She has has a slow decline since the beginning of this year and I reached out to palliative care for help. Mom is 81 and Dad is 84 and not I. The greatest condition to be caring for her alone. She fell in April, broke her…
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New Drug - not approved as yet
Just something to watch if it applies to your LO’s situation
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Today is our wedding anniversary
Today is our 57th wedding anniversary. Such good memories/ such sad ones too. The saddest was the day back in January when the doctor told me I could no longer take care of him at home. He needed too much care. It felt like my heart was being ripped out. The grief was overwhelming. Thank God for the good memories. Our…
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Supplements?
Hi All, This is my 2nd question here I’m posting. Knowing now that my dad has dementia, I’m now interested in taking any conceivable preventative actions to benefit myself. To my knowledge there are (at least) 2 well-known OTC Memory Supplements on the market. One of them is Prevagen and I’m not sure offhand the name of…
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Voice
In the last six months my DW (possible stage 4) has begun to often speak in a voice that is too low for me to hear when we converse. I went and got my ears checked by the way and I am fine.😆 Anyone else experiencing this?
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Comments on Medicare Proposals on Improved Hospital Care for Dementia Patients
Michael Ellenbogen wants to encourage anyone interested to make comments on this measure. I am going to include Michael's comments: Please get people to make comments on this site ASAP. Very important. You must submit your comments by June 10 on the Regulations.gov site. Pls see the proposed CMS Measure link added here.…
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Parents in AL, likely moving to MC soon and too hard to visit them
I moved both parents to AL five weeks ago. That was difficult enough. Then last week the DoN called saying both parents seem like a better fit in MC. We met at the facility and agreed to try an increased level of care in AL "for now". After only five weeks, I did not want to disrupt my parents and with another move so…
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Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…
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When / how to correct?
My DW has cognitive impairment, so not to the dementia level yet (thank goodness). However, I am trying to learn when to say or correct discussions. For example, the other day she locked me out of the house - it is only the two of us, so when I came in the back door I said "hey you locked me out" her response "I did not".…
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Got a few days off - almost - Credit Fraud attempts
Well with the support of the folks at my LO's MC and my wonderful son, I got to go away for a couple of days. Everyone promised to be extra vigilant and it just about worked. But … I got a call from a bank verifying that we were opening a charge account or taking out a loan. So I was able to shut that down and was on pins…
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This too shall pass
Last weekend with my BF (44 eeoa) was AMAZING!!! I would pay to have all of our weekends like that. This last weekend wasn't horrible but he just seemed more withdrawn. This morning he woke up confused and kept saying "I don't know what's going on". I was talking to his Dr about his medication and he was still waking up.…
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Teaching mom about dementia
My mom has been primary caretaker for my dad with vascular dementia. I had to teach her how to talk to dad. She tends to want to explain things to him as if he can comprehend everything she says. My dad can't be convinced logically and my mom needs to practice different ways to communicate without upsetting him. There have…
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His words - so true.
DH is silent most of the time now. He sleeps a lot too, but lightly. Catnapping around the clock here in early Stage 7. At any time I may realize he isn’t fully asleep, but eyes are closed. He may open his eyes, semi-smile and make clear eye contact. He may or may not say anything - well at least not in words. I sit next…
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Extreme anxiety, fatigue, apathy in DLB
I have done a lot of internet searching but can't find these as major symptoms. After about a year of testing my spouse was diagnosed with MCI, probably caused by DLB and secondarily by Alzheimers. Most days she awakens early worrying about something, then when she gets up about 10 she immediately feels tired and lies down…
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New to the community - First post
Hi all - This is my first time on the site and my first time posting. My DW was diagnosed with MCI but no definitive diagnosis of Alzheimers yet. She is most likely still in the early stage but when she is stressed or in an unfamiliar environment her symptoms get much worse. She was diagnosed with MCI by a neurologist at…
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Trouble Redirecting
Hi all, My poor DW. She's spent the last several days crying, asking about why there is such distance between us. Like our relationship has changed and I don't love her anymore. Of course I do, it's that she is moving further along and away, but she can't grasp that. I can't seem to get her off of it. She's a former…
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Really Mom? LOL
They really don’t know how bad off they are, but they notice everyone around them. Mom was complaining to me on the phone about the other female residents of the AL. They seem to keep watch over her since my step-dad died: monitoring her eating habits, checking her progress ( or lack thereof) on the puzzle she’s been…
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Agitation and anger and a couple of questions
My DH is starting to have angry outbursts when things don't go his way. It's intermittent but noticeable. For example, he gets easily frustrated around tasks that used to be easy for him - the TV remote is the most recent source of frustration- he has replaced the batteries several times in the last few weeks, blaming…
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Help locating text
I have not been able to find a post that was a very good point by point summary of advantages of MC vs home care. It was not an account of the writer’s experience but was in response to someone else’s. I believe it was 2-3 paragraphs. I’ve had no luck finding it with the Search function and am hoping someone remembers it…
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Dad with Dementia
Hi All, I'm new here. I don't know where to begin. I'm honestly not really that close to my dad (my parents have been divorced since the early 1980's). My younger sister lives in another state, and is not very close either. Neither of us are now (we both tried to be during our teens, but it was challenging). Both of our…
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bedtime games
Hello everyone ,I am shannon , nice to meet you. I take care of my 83 yr. old mother whom has dementia. She is in late stages where you really cannot have a conversation with her , she uses word salads , etc…but she gets wht you say to her , for the most part, sort of . She is still at home, I live here with her and am…
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Mom's In Good Hands
I pray a lot to God that my Mom is comfortable at her NH with all the CNA's and nurses. Today when I visited my Mom, she was being cleaned up by a CNA that I know for 8 years since my Mom has been in the same NH. My Mom was singing and laughing and so was the CNA. I stayed outside her room and listened. It was really an…
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Anticipatory Grief resources
Does anyone have any idea on where I can get help with this? I will soon be in a Grief support group due to my mom passing. But the grief of seeing the changes in my husband has been so difficult. As I see each new thing, he cannot do it hurts. He knows I am an important person to him, but I am not totally sure he knows…