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New to group and need help with any suggestions
I am new to this group and would appreciate your feedback. My 95 year old mother has between MCI to mild dementia and lives in the independent living part of a Retirement Community. She enjoys the social life there and the fact that she can have all of her meals in the dining room. She functions pretty well as she is in a…
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Who do I tell about diagnosis?
My dad who lives with me,was recently diagnosed with early stage Alzheimer's Disease. He is still high functioning, but no short term memory. I am not sure he remembers the diagnosis. When I have mentioned it he becomes very upset. There has been a lot of activity with doctor's appointments, family visits, etc and he has…
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When to move to AL?
Hello, I’m new to this forum and wanted to know if anyone has had experience with when/if to move a parent from independent living to assisted living? My mom is in IL right now and her Alzheimer’s is advancing, but she can still do many things for herself. She has pretty severe anxiety and I’m worried that moving her to an…
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Im struggling...
I feel like I'm drowning... I am my dad's caretaker. He has vd. I am grieving my life I left in Texas that I left in Feb. 2022 to take care of my dad in CA. I am having trouble just functioning day to day.
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Siblings in denial
Sorry, here again, So anyone else experiencing vast differences between you and your siblings as parents walk their way through Dementia? For the most part I know how to take care of myself. Still, I am astounded at how differently we perceive my father in law's needs and what is to me, common sense. My mom had her phone…
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How Do You Know When They Really Cannot Be Left Alone?
Hi, all. I don't get on here much. Two jobs and caregiver for my Mom after I moved in with her last year. I worry about finding out the hard way that she shouldn't be left alone any longer. She is really good at covering up for her weaknesses and I feel she is still at the stage where she does not want to worry me. How…
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Transition from hospital
Hi. My mom has been in the hospital for two weeks with Covid and cellulitis. Thankfully she has recovered from both problems and is medically cleared for discharge. Prior to admission, she was living in AL but waiting for a room in MC at the same facility. A room is assigned but the current resident is waiting for an open…
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Bible Verse to Lift You Up 11/27/23
THE LORD, THE GOOD SHEPHERD Ezekiel 34:15-16 New Living Translation 15 I myself will tend my sheep and give them a place to lie down in peace, says the Sovereign Lord. 16 I will search for my lost ones who strayed away, and I will bring them safely home again. I will bandage the injured and strengthen the weak... JESUS,…
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Bible Verse to Lift You Up 11/11/23
CARE FOR OTHERS IS CARE FOR THE LORD! Matthew 25:31-40 New Living Translation The Final Judgment 31 “But when the Son of Man comes in his glory, and all the angels with him, then he will sit upon his glorious throne. 32 All the nations will be gathered in his presence, and he will separate the people as a shepherd…
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How to get MIL to accept in home care?
My MIL was diagnosed with Alzheimer’s last year. She has always run everything for the family, and has a very strong personality, so it is extremely difficult to get her to accept any help. She is on several medications, but frequently has fits of rage. She also has been the main caregiver for my wheel-chair-bound FIL. He…
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Reality
Logically I know that my mom's processing skills are very poor, and confirmed by neuropsych testing. However I continue to find myself in the situation of explaining why... (why she can't shower without supervision, why she needs help getting dressed, why we are managing her money for her, why we prepare her meals, why she…
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Looking for in home care
Hello This is my first post. My dad passed away recently and I have become my moms primary care giver. I am looking for an individual to help me care for my mom in her home. I have been given many resources for agencies but was hoping to find an alternative. Any advice?
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How Do I Cope to be a better DIL and Spouse?
Intellectually I can understand why my MIL wants to go home and can never seem to get there. She is increasingly unhappy with us here (since we moved in with her in July, at her sisters' pleas we come RIGHT NOW). We've been able to add some respite days for the benefit of all of us through a grant that ends in about a…
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What am I doing wrong?
My mother has had MCI for several years which is slowly progressing. I decided to move her from her home in the East to California. the goal was too fine and assisted living place near us. she has been living with us for 3 months and I have no motivation to find assisted living places. We have arguments everyday and I feel…
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Toileting *TMI*
Hello everyone, my name is Claire, and I’m taking care of my mother who has early onset Alzheimer’s. She’s been diagnosed for almost 4 years now, showing symptoms for about 6-7, and has been living with me for the past 2 years so that I can care for her. I’ve been trying to put off placing her in a MCF for as long as…
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Suspected dementia: need advice
Hello! Brand new to this. Please know I'm grateful for your help. -Relocated 93 YO Mom (and elderly dog) from Florida house to indep. living near me in WA, Jan 2023. Very indep. woman; very stressful for her. -Since then, I've noticed STM loss and taken over bills. Also big changes: she has stopped her voracious reading;…
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New & desperate in need of advice
Hi, I’m new here & after scrolling through some of the posts and comments here I’ve got to say I feel so much better to know I’m not alone! I can relate to feeling resentful, frustrated, overwhelmed and all of the many (MANY) emotions that come along with caring for PWD. My mom does not have an official diagnosis but many…
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Slip-sliding away
Any suggestions/tips on ways for me to capture and preserve what we have left before it’s too late? Videos or recordings is what I’m thinking of doing. What questions would you recommend I ask her? Is it worth looking at old photos/historical family albums to see if she is able to give us any insight into our family…
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Home health care 24/7
Hi all, I’ve been researching options for a place for my mother with Alzheimer’s to live. I found a good MC option 2 hours away, but it is very expensive! Thankfully , our family can afford it. I live in a small rural community that has no AL or MC. I just had the idea of buying a house near me and looking into home health…
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Planning hospice care for dad.
The palliative care doctor advised me to contact a hospice provider for my dad. I selected Vitas hospice. I called for information about the company and they told me to set up a visit with my dad, me and mom. I look forward to planning further and to give me a piece of mind that dad will be taken care of. I will post how…
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Feeling overwhelmed, stressed, and isolated
Hi, I care for my mother who was diagnosed with early onset dementia about 9 years ago. She has done really well and I am truly blessed with how well she does. Since April of this year, I’ve taken to being her caregiver and was able to leave my job to care for her full time. As I said she does do well, but I can tell her…
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How do I handle statements like “I want to die”
Hi I’m new to this support group. My mom is 77 and has Lewy Body Dementia and Alzheimer. She is in an assisted living facility and is struggling bad. 7 phone calls yesterday and the first four were “I can’t do this”, “I want to die” and “no one wants me”. I really struggle with what to say to her. Nothing I say seems to…
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Doctors appointments help!
I just took my mom yesterday to a new primary care. I just moved her closer to me and so we are starting from ground zero. She was undiagnosed before she left her last doctor but had taken a cognitive test and shows signs of dementia. Anyway, at this doctors appointment she told the doctor absolutely nothing. Told her she…
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My mom has dementia that recently got a lot worse
My mom was recently diagnosed with dementia and had been showing symptoms for a couple years. Minor memory issues and forgetting keys and her phone and things like that. It has progressed so quickly over the past few weeks and she is now scared to be alone. She lives with her husband who has taken good care of her but she…
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Mother was removed from her home
New to this and have some questions. Our mother has recently been diagnosed. There are 3 girls and 1 boy in our family. My older sister and I are 2 hours away and brother is several states away. Little sister lives in same town. My oldest sister mentioned she thought something was wrong with mother and wanted tonget her to…
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Dignity
I'm not sure exactly how to ask this, but my MIL with Alz is taken to church every week. Her children feel she wants to continue this (although she doesn't remember if she went to church or not). My issue is that dementia was my MIL biggest fear 15-20 years ago - if someone she knew started showing signs, she'd talk about…
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Mother Has Dementia
Hello, I am very new to this and have never used open forums or discussions to talk about my personal life. I recently moved in both of my parents with me because of their illness and they could no longer take care of themselves. My mother has mid-later stage dementia and my father has early onset Alzheimer’s. I also have…
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Caregiver Burnout Direct Link to Injuries
I've posted about burnout, needing a break, etc. but never thought this would happen. On 11/6 while clearing leaves, mulching I tried to clear leaves from the mower's shoot and partially amputated 2 fingers on my dominant hand. Surgery on 11/10...left me in pain, unable to use one hand, completely care for myself never…
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Progression
hi there! Anyone have any experience when their alz pt starts a new med (rexulti) and then they being more confused? Is this based on the disease or based on the medication…. I know it’s really hard to say. But I’m hoping if I stop the med, that she’s not as confused.