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Protecting a LO money
I hope this doesn't sound greedy. My sister has Alz and she is mid stage. She is resisting in home health aides and the main reason is money. She actually has plenty of money. She has lived alone her whole adult life and even though she never made much, she saved and invested well. But when i try to get health aides in she…
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Bible Verse to Lift You Up 1/1/24
CAREGIVERS SET THEIR HEARTS ON LOVE AND CARE FOR THE HELPLESS Isaiah 1:16-17 New Living Translation 16 Wash yourselves and be clean! Get your sins out of my sight. Give up your evil ways. 17 Learn to do good. Seek justice. Help the oppressed. Defend the cause of orphans. Fight for the rights of widows. * HOLY SPIRIT HELP…
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Advice Please…Feeling discouraged & Alone
i would appreciate some feedback regarding my mom with dementia. I’ve posted before about how to manage certain things with her, but today it’s more about me. I’m struggling with family concerns as it relates to others…not my mom, but she is who I would normally reach out to for advice and to listen. This is not possible…
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Only child emotionally struggling with mom forgetting my birthday
Hello, I'm relatively new here, and mom has been in memory care for about a year now, I'd guess she's in mod stage 5 so still knows who people are. I'm a 39 year old only child and I've struggled this year with the holidays and my birthday (Dec 28th) knowing that mom won't remember my birthday and that she didn't…
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My Dad’s Rapid Decline
Hello! My dad has been battling Alzheimer’s for many years. He has been in the advanced stages as far as communication and understanding but was able to walk and eat. He suddenly has been unresponsive for 3 days. This was alarming to us and I wanted to know if this is normal? Is he at the end?
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Mom seeing ghosts
Hi everyone! I am new and this is my first post. My mom was diagnosed about a month ago with Alzheimer’s. She lives alone and is on Medicare which does not cover Alzheimer’s care. She is seeing ghosts and wants them to leave and to not argue I’ve asked the ghosts to leave, etc. but she says she still sees them and that…
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Taking forever to eat meals
Over the last few weeks, my MIL is showing some new behaviors. Most I recognize as signs of her dementia progressing. But, is extremely slow eating part of dementia progression also? She still eats well, but she can take two hours to eat one small plate.
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it's stressful
My mother has dementia. My father is easily confused, and has congestive heart failure. They refuse to leave their home. My sister and I live hours away from them. They have both become incontinent. They are in their late 80's. My sister (and her daughter, who is a nurse at Mayo) found a palliative care doctor who drives…
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Terminal aggitation
My mom has taken a spiral over the past month now unfortunately. She was walking, talking and even traveled on an airplane with me two and a half months ago to visit my sister. She started to have screaming episodes in the middle of the night a few weeks ago and now they are during the day as well. Hospice has been trying…
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clashing with sibling this Christmas over COVID risks
My mom is in the moderate stages of AD, still living with my father but it is increasingly difficult with her behavior and level of confusion. They are 60+ years married, in their 80s, and my father is mom's primary caregiver (burdened by her care needs). I recently moved them to be closer to me (only daughter and youngest…
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First time posting
Hello Everyone. This is my first time posting in the forum and I thought I’d do a brief introduction. I’m a caregiver for my mom who has dementia. She just turned 73 earlier this month and she was diagnosed with dementia about 5 years ago. I work from home so I can tend to my mom. Aside from work and my mom, my days are…
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Stage 5 musings
My mom is in Stage 5. Part of me feels like it was too soon for memory care, but I swear when she was in Assisted Living everyone was like “isn’t there more support for her? Shouldn’t someone be checking on her?” Etc. Etc. Now, I worry about her decline. Today she asked if we would visit my sister (same name as mine). I…
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Next steps
Hi my mom was diagnosed with Vascular Dementia almost two years ago at age 76. I am her only child (age 33) concerned about her recent health decline after being in the hospital in November 2023. Scared about the future. What has helped you on this journey with your loved one? We are putting into place a life line (she…
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Tips for caregiving a parent who thinks there's nothing wrong...
Hi there! New here and struggling. I am an only child. I am in CT, my mom in FL. Mom was diagnosed in 2020 and things have steadily declined. I have durable POA, and health care POA. My mom is struggling to read and take care of finances but refuses to admit anything is wrong and refuses help. Other than sneaking around to…
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Aging in place/ downsizing our home
Dad and I plan to keep Mom at home as long as possible. We all live together and will be moving soon. Any ideas for the transition for Mom with advanced Alz. Of course safety like confounding locks on doors and gates. Our current home is two stories and very large 4200 ft The new home is on one story with no carpet 2500 ft…
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Weighted blanket
Anyone have good results with these weighted blankets?
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Caring for my mom/ posterior cortical atrophy
Hello,new here and was just wondering if anyone has or have a lo with posterior cortical atrophy??
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Moving mom into a home
Any tips on how to move a parent into memory care? She’s been so combative and aggressive and delusions are so severe that she cannot stay home with my dad any longer but she’s begging us to not put her in a nursing home because she doesn’t believe anything is wrong with her. She’s only 70 and physically healthy.
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New to everything
Hello, My mom been slowly losing her memory, for the last few year, This last year it has been getting worse and I am not sure where to turn. My mom is 75, some of her memory problems started 13 years ago when my older sister lost her battle to breast cancer, in the beginning I thought was her way of coping with the grief.…
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caring for sister (parents have passed on)
I live in Cal 6 months and NY 6 months. My sister is early/mid stage Alz.2 hours from me in NY. When I'm in NY, she stays with me one week a month. She is 73 and has lived alone her whole life. She is resisting help but I know her Alz is progressing and she can no longer follow a recipe to make meals. Worse, she just…
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New to both parents with cognitive decline - sole caregiver
I really don’t know where to start. Maybe with my father. Around 2018 (age 63) he said he was diagnosed with organic dementia by a VA specialist. He suffers from confusion at times, word finding issues, incorrect word substitution, anger/lashing out and more. He can function normally most days. He is in denial of his…
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AS (1 bedroom apt vs studio apt)
Hi Wonderful Community- My husband is wondering if anyone has had this experience: Your LO lived in a 1+bedroom apt. in AL/SL and then they moved to a studio apt as the disease progressed. If so, did they like the studio better?
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Help with other family members
I am a paid caregiver for my mil. My husband have moved in with her during to her wandering. Every once and a while her daughter (POA) and her daughter will show up and "try to help". Unfortunately they go about it all wrong they argue with her force her to do things she don't want to do and strip away any dignity she…
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Anosognosia and a person's right to contribute and know what's going on
My LO's depressed and sad about leaving her home soon and many other things. She wants to move near her family and I feel that's what would be best for her. They will visit her and be with her. Currently the plan is memory cate 1000's of milea from them, near her DPOA. Her DPOA carrs and wants her safe and nearby. My LO…
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Hallucinations
My mother’s condition has suddenly, sharply declined. She is dx with Parkinson’s but has been having hallucinations sine before the Parkinson’s dx so doc thinks it might actually be Lewy Body Dementia. The doctor prescribed a new med for hallucinations but my mom thought it was a sleeping pill and didn’t take it but three…
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MIL taking advantage now that FIL can no longer control spending, spent $19k on clothes last year
My FIL has mid stage dementia and my MIL has a long history of substance abuse and untreated mental health issues. She's been better since they moved to their retirement community but she still has her moments. We've been taking over the finances. The FIL long ago determined that he'd never have dementia and would never…
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A rock and a hard place with in-laws
Good morning everyone. We have felt so lucky to have found this site and this group of support. My wife and I have been together almost 22 years and I have been part of her family for the same amount of time. After losing my own father to cancer just less than 2 years into our relationship, her parents have always been…
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Don't Know what to do
My mom has had Dementia for a few years now and it is overwhelming at times especially when she says things like I (her daughter) or my aunt (her sister) are trying to harm her when that is not true. She doesn't even remember my name or that I am her daughter but I know it is just the disease but it still affects me at…
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What exactly is “sun downing”?
And do I need to do anything differently if my MIL is now showing sundowners syndrome? MIL lives with us and was diagnosed with middle mixed (Alzheimer’s/vascular) in Feb 2023. Although she scored poorly on the processing parts of the neuropsych exam, she eats, showers and changes clothes without assistance. I prepare her…