-
Mom was diagnosed when I was 21. Anyone else out there like me?
I’d love to connect with those of us whose parents got an early-onset diagnosis while you were / are in your 20s. My mom died 3 weeks ago after an 8 years battle with the disease and I feel so out of place in support groups with folks who at their youngest got the news while they were in their mid to late 30s.
-
New drug for mild AD - results pending
Hi everyone, I am helping my dad taking care of my mom, recently diagnosed with mild dementia due to possible AD. I saw on the news that BioVie presented Phase III blinded data of their oral medication for mild AD. Being a clinical trial statistician, I agree with the company that it is very promising - it indicates that…
-
When is the right time to tell others?
when is it the right time to tell others or do I need to? By others I mean for example if we are going to an extended family member party that doesn’t know about my mom do I need to give a heads up? My concern is that they will tell her things like “don’t you remember” or “you already told me that”. It’ll be a reminder to…
-
2 Parents with Dementia - HELP
Hello, I’m new here. I’m 31 and over the last two weeks, both of my parents have been diagnosed with Alzheimer’s/Dementia. My dad is only 56 and has ben diagnosed with mixed dementia - doctors are still trying to figure out his “unique situation” as he has no previous health conditions. He hasn’t been has a cavity before.…
-
Unsure of how to respond
When speaking with PWD on the phone, she has begun to ask me where I am and if various deceased relatives are with me. For example, she asked if my deceased brother was with me. I've been saying 'no,' but then she is worried about where they are and when they'll be back. What might be a better way to respond to these…
-
mom won't agree to in home help
My mom has dementia, can't be alone. She's staying with me. I've been trying to have an aide come a couple days a week. Mom is so resistant. She cuts the visits short, one day wouldn't let the aide in her house, and another day got upset when she discovered we're paying the aide, so the aide left. I'm getting pushed by my…
-
New to this and looking for support
My dad (81) has suffered 4 brain bleeds since April, apparently due to cerebral amyloid agiopathy, which has led to very advanced dementia with aggression symptoms. He was leading a normal (advanced age) life with my mom until then and was mostly OK even as recently as late August. Since then he has either been in a…
-
Pill Reminder App Recommendation
I handle refilling my parents medications and filling their med boxes. I was using the Hero pill dispenser and app. It would notify me when they didn't take their medication so I could call and nudge them. Now I have to send the Hero back because the program is discontinued. I'm looking for pill reminder app…
-
using technology to help with dementia
My mom is 84 and was diagnosed with dementia about 3 years ago. I'm a software engineer by profession and started working on a message board that can be hung on her wall. Essentially it's a 43" HDTV being used as a monitor for a small computer. The computer runs the app I'm working on. The board is controlled by a…
-
New to Forum: Introduction 👋🏻
Hi all, My partner was about 26-27 when she started to realize her mother was having difficulties recalling basic things. We are 31 now. Her mother lives independently (alone) and does not know what is happening. My partner is more or less her mother's only family. My partner's sister, her mother's other daughter, lives on…
-
Bathing concerns
My father was diagnosed over a year ago with ALZ. He lives in an independent living facility. Through the last year, his hygiene habits have really declined. He refuses to shower. His main methods to bathe have been sponge bathing, but that seems to have diminished as well. He's received OT/PT, has safety measures in the…
-
Will care facilities be closing?
Hello! I have two parents who are in a small assisted living facility that provides memory care. Almost all of the residents (about 25) have dementia, and several need quite a bit of care and have hospice or home health care, too. This facility has been good for my parents. We hope that Dad can stay there, but he has had…
-
Time Feels Slow
Time feels slow but fast all at the same time. I became my mothers caretaker a few short months ago but so much has happened and is still happening. It has been so fast but the days are filled with anxiety, worry, overthinking, sadness, anger, resentment, empathy then back to resentment and feeling like I just want to run…
-
Advice about phone use
Hi all. I'm new here. My mom has Alzheimers and has been living with us for the last 1 1/2 years. She is not able to live alone nor drive; she tends to her own personal hygiene needs - but otherwise is dependent on us for all other day to day needs. As we would expect, we have experienced a progressive decline. Our biggest…
-
Anger, two parents
I don’t even know where to begin. My dad had a stroke the end of may and my mom demanded that he be able to come Home after his rehab even though all the kids were recommending they consider moving to even an IL. During his initial recovery it became clear moms memory issues were waaayyy worse than we had realized. The…
-
Are people able to keep their careers while caregiving?
My Mom was diagnosed with Lewy Body about 18 months ago and has remained living on her own in our hometown while my sister and I live in a city about 4 hours away. She recently fell and fractured her arm, so I have been here taking care of her for a couple weeks now. I have worked my way up at my company over 25 years and…
-
New to all this. Help get me started to help my Mom
Hello all. As I said in the title - I pretty new to this. My Mom got diagnosed about 3 years ago. Is in independent living (in a facility with Assisted Living and Memory Care. Soon will have to move her to higher level care. She is fighting us kids on this - saying she will die 1st before she moves. But she is listneing to…
-
my mom
My mom has dementia, seems to be progressing fast. She lives alone, I live close by. My siblings live a few hours away. I'm trying to get her to stay with me but she asks to go home a lot. We've recently started having an aide come. She is VERY resistant to this. She forgets why the lady comes, who she is, etc, etc. I feel…
-
Not cooking-forgetting to turn off stove
hello, for safety reasons, my mom is no longer cooking because she has forgotten to turn off the stove many times. Are there any adaptive tools we can purchase to help get her back to cooking? Like an alarm to tell us that the stove is on (probably doesn't exist). She has a gas stove. We just don’t want her to feel like…
-
Mom thinks we live in an identical home across town
Mom (MIL) was diagnosed with dementia, most likely Alzheimer's, last November. My husband and I moved in with her about 2 months ago. Dad passed away last June. A number of months ago Mom would tell us about Dad working on a house across town that was identical in every way, inside and out, to her house. She marveled at it…
-
Bible Verse to Lift You Up 11/1/23
ALL MY HEART Matthew 22:37 New Living Translation 37 Jesus replied, “‘You must love the Lord your God with all your heart, all your soul, and all your mind.’ TODAY’S VITAMIN When we love God with all our heart, soul and mind, it means we put Him first in our lives. Nothing is more important than spending time with Him in…
-
I give Mom (91) food but she forgets about it and doesn't eat it
This is a relatively new and now repeating occurrence in her deterioration. Is this common? My wife and I will have to help her to eat her food because she is no longer able to manage that task alone. What stage of dementia might she be in at this point? Thank you.
-
RCF falsely progressed my mom's dementia and I feel so guilty
Hello- my mom has dementia and was not adjusting well to a new RCF (first few days). So they gave her risperidone. I asked them to stop it and they told me they did, but they really didn't. Several times, at the beginning, hospice kept assuring me that the RCF had stopped the meds. But they kept giving it to her…
-
New and Overwhelmed
Hello Everyone, Early this month my Dad was finally properly diagnosed with ES after a prior diagnosis of MCI earlier this summer. Mom (73) is still active and has a sharp brain still, but this even has overwhelmed her. She is scared of having to put things on hold for herself just to take care of Dad. She find the Alz…
-
New chair woes (long)
For the background on this, see my "recliner chair" post from 9/13/23. @SDianeL, thank you for posting the link to the Haverty's chair. I also took @harshedbuzz 's suggestion to speak with an OT friend, who among other advice said NOT to purchase anything mom hadn't actually sat in. So we went to Haverty's and found that…
-
Worried and sad and cautiously optimistic
My mom has NPH and most likely another dementia diagnosis. I say this because her dementia/memory issue has progressed so rapidly in 2 years. I moved as fast as I could: in 1.5 years I got her placed, diagnosed, and surgery is scheduled in 2 weeks. Not bragging, just noting how fast it has been. Now, I feel I may still…
-
Should my Mom(who has dementia) move in with me and my family?
Hello, I'm seriously considering relocating my Mom from her home in Puerto Rico to live with me and my family in New Jersey. Mom has dementia and needs assistance with daily stuff like personal hygiene and meals. Although there's family in Puerto Rico that are close, everyone is too busy to help her every day. We can't…
-
Repeats one word over and over
I wrote about our plight at an awful RCF in another post, but as a result of that whole mess, my mom has gotten into a mode recently of only saying one word, at the same cadence, over and over again, all day long. Any time she's awake, she'll say "ok" or "ok-oh" with a one or two second break and then say it again all day…
-
More Men Are Taking Care of Aging Parents. They Feel Unprepared.
Good WSJ article here: https://www.wsj.com/health/wellness/men-caregivers-aging-parents-sons-ba7a6d71?st=2mo7qktf0ucw7yt&reflink=desktopwebshare_permalink
-
Mom Was Served
Good evening/morning/afternoon everyone! Yesterday was kind of a shock and I'm looking for some guidance. My mother got served court papers for a dental procedure she had never paid for. Long story short about 5 years ago she was told prior to the procedure that it would be covered by insurance, however once the procedure…