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Caregivers Support by Participating in a New Study
Hello! I am new to all of this, only have had experience with dementia and Alzheimer's when both my Grandmother and my husband's Grandmother were diagnosed many years ago. We just learned my Mom's results of recent neurology tests, and all of this is overwhelming. I feel helpless, especially living 3+ hours from the rest…
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Thanks for your experience
Hi, I'm new to our group. I have lived with my parents for 11 years. Dad and I care for my Mom who's 76 in stage 6. She has had early onset for 15 years. I'm no expert, just read about stages. Occasionally I work a month at a time 7 days a week 12 hours a day and this is my "break time" to get away from home. My Dad is a…
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Can I receive phone support for assistance to the aid or caregiver about parent
Can I receive phone support for assistance to the aid or caregiver about parent
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Covid 19....All of Us Sick
I'm trying to decide. I had plans to enter Dad into hospice after he graduated from regular home health. Transition while doing well. We were down to two weeks. Live-in-sibling contracted Covid 19. Now we are all sick. About seven days for live-in-sibling. Five days later for the rest of us. The dilemma is dad was fairing…
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Crying for several hours each day
Hi friends, I have commented on a couple of posts but have not started a discussion. Thank you in advance for reading. My mom who is in LSD cries often. Sometimes it will last for 2-3 hours several times a day. Other days are not as often but all days there is crying at some point. She is physically still ambulatory but…
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Wandering with a purpose?
My mom has Alzheimers and has a little dog. She lives alone (with the dog) although she shouldn't. She refuses to move. Anyhow, last night she was found wandering around her mobile home park looking for her "second dog." She somehow thought that she had two dogs and lost one of them. When a eighbor found mom and walked her…
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My frustrations are getting the best of me
My mom has lived with me for 13 years . In 2014 she had several hospital stays with everything you can imagine . She was finally diagnosed in 2019 with LBD. She was on hospice for 8 months & somehow , again bounced back . Her health honestly has improved but her memory & cognitive senses have worsened. I never thought that…
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Parent in AL - Do you wish you have more information?
Hi All, First time posting. Glad to find this resource. We moved our father into a nearby AL from a different AL many hours away back in May. I'm very close to the new facility, and have a sibling who lives out of state. The move was smooth, father is settling in nicely, and from that standpoint, we're VERY lucky! Curious…
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When to move mom to a care facility
Mom is no longer ambulatory and very heavy, and doesn't sleep.
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Bible Verse to Lift You Up 8/14/23
COMMANDMENT OF LOVE BIBLE REFLECTION Matthew 22:36-40 (ERV) “He said, ‘Teacher, which command in the law is the most important?’ “Jesus answered, ‘Love the Lord your God with all your heart, all your soul, and all your mind.’ This is the first and most important command. And the second command is like the first: ‘Love your…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Advice needed (MC/AL)
Hi everyone, I moved my mom to MC and it was overall really positive. Then I think I screwed up. This weekend, she was complaining a lot about memory care: she wanted to move back to her old AL apt. Because she was a very difficult mom, sometimes I just give in from exhaustion. So I agreed that we could discuss it. Here is…
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need advice/help
My mom and I do not know what to do about my dad. He has been acting irrational and loses his temper a lot. I have heard him tell my mom he wants a divorce and that she is no longer his wife and I am no longer his daughter. He has repeatedly say to my mom that he wants a divorce then a few hours later he claims he never…
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Getting Physical
Hi, This is about my FIL. He is 92 and he is living at home with a full time aide. He never had a diagnosis from a neurologist (don't ask me why, I am only the DIL) but he is delusional and has dementia. His wife died 2 years ago, but he had been not well since before that. She never told anyone of his problems. Married…
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Stopping Memmatine
Hi, My cousin, a cardiologist familiar with my dad's case, has recommended stopping his memmatine. My dad has been on it for over five years, probably more. My dad is having a lot of delusions and is sleeping a great deal. I don't think this medication is helping him if it ever did. There is no way to judge this drugs…
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How to know getting valid info from Healthcare nurse and others
My Mom has had 24/7 home healthcare for over 3 years now from a Health Care company. My brother was there during the last evaluation. How do we know we are getting an objective evaluation as the assessing nurse, caregiver, and Health Care company are all saying they can handle things with our Mom. We pay a lot of money for…
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Duplicate Post
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New here and need advice
I'm new here to the message boards. My dad is 82 and his primary care provider. I get between 20 to 25 hours of caregiving support from the state department of aging. I'm working on getting extra hours from the VA. My dad has end stage dementia. It's becoming difficult to handle him in the overnight hours to get him to…
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Taking Mom to ER
I am wondering when it is okay to take my mother to the ER. In less than 30 days she has lost almost 30 pounds; she doesn't eat more than 2 meals a day (usually a couple pieces of toast or a bowl of cereal). Her confusion is so great that I have to tell multiple times a day where her room is; today while at the table, she…
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Late Stage Dementia
For anyone that has lived through late stage as a care giver can you please let me know how long your loved one lasted? I'm having trouble wrapping my head around how fast my mother is progressing. Everyday just seems to be something new that catches me off guard. Any insight would be appreciated.
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Feeling Blue
My Mom who my son and I have been taking care of since last year in our home was at the moderately severe stage. About ten days ago, she got sick suddenly. Within hours, she was locked inside our bathroom and having an issue. When we finally got the bathroom door open, we found her naked and more altered than normal,…
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Parent always wants to go home…
Hello, I’m new here and my family needs assistance. My Mom constantly talks about going home and feels like her home of almost 50 years is not her home. We constantly reassure her that she’s safe but she’s getting really agitated to the point where she’s stating that she wants to be hospitalized or put in a home. Her…
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Moving Mom
Hello I am new here and also trying to navigate the crazy road of caregiving. I started to notice signs of my mother loosing her memory a few years ago. Not knowing how to approach the conversation and express my concerns to her I just waited for when the moment was “right”. Three months ago my mother called me and told me…
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Social groups
I am wondering if anyone knows of any social groups in the Western New York area that my mother would be able to go to. She sits at home alone and just stares at the television unless I am with her and can take her out. She refuses to go to the Senior Center in our area and I feel she really needs more interaction with…
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Feeling Resentful
Hello, I am new to this forum and appreciate having a place to connect with others who understand. I take care of my mother with Alzhiemer's and it's becoming so overwhelming and I find myself resenting her for it. I work from home and she lives with me but there are constant interuptions throughout the day while I am in…
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The search is depressing
We are in the stages where it's getting too difficult to care for my dad, he needs basically 24/7 supervision to be safe. So, in searching both here where we live in Reno NV and in the northern Denver CO metro area, we are looking for MC or an AL facility that can handle dementia patients. The kicker is, Dad came to us in…
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Feeling resentful/tired
My 92 year old mother with dementia lives with my husband and me. We both have full time jobs. I've had to hire a caregiver while we work 40 hours/week. I am an only child, so no siblings to help. My only child (daughter) lives on the east coast. (we live in CA) I just find myself so burnt out....resentful, tired. I do the…
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Father continually tells me how beautiful/gorgeous/wonderful I look.
:s We just moved my father in to our house this weekend. Part of me thinks he is mistaking me for someone else since he seems to be so obsessed with telling my how beautiful I am. This is not new behavior--he actually got kicked out of the residential living he was in because he was inappropriate to other residents on many…