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I just need to write some stuff down.
My mom is about to turn 88, alzheimers (I think possibly Lewy body), lives with me, is on Namenda and Seroquel which seem to calm hallucinations, perseverating, etc. Without those meds, it's bonkers around here. She is a lovely mom in many ways, but also the most self-centered person I've ever known (prior to this…
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My Mental Health
Hello, my mom is in the final stages of Alzheimer's. I still go see her at the NH and it still is so painful to see such a vibrant woman deteriorate for the past 7 years. I don't know if she knows who I am or who she is at times I say to my self "why go"? It's good when I see her and she is still in bed, her hair is not…
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An Old Question With Many Answers
When I took care of both my parents at home, I certainly did not always make the right decisions for them and for myself. I understand everyone here must find their own way and no one should criticize. I tried to do my best and certainly there are many here who are doing the same. I often write about and admire loving,…
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Hunger
Mom eats breakfast and then 45 minutes later is asking for more food. Does the same at lunch. Has a mid afternoon snack. Doesn’t seem to have problem at dinner time. Eats really fast - chewing food and has spoon lifted to out more in even though she’s not done chewing. When we try to get her to slow down she says she’s…
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Caregiving Burnout
Hello everyone. I’m new here. I could really use some advice. Can anyone recommend someone to talk to about how to handle severe dementia and sundowners? I’m single and live with my parents…only one is suffering from dementia. But it just feels like everything is in my shoulders. Clean the house. Do the laundry. Take care…
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Better places to look for help
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Has Anyone Gotten Non-Driver ID in a new state for a PWD?
Last year, we moved my extremely elderly LO last year across the country to be near me. I would like to get them a non-Driver's ID for our state. I have been gathering up documents but there seems to be no way to do it without taking them in person to the motor vehicle bureau. I might be better off trying to just renew the…
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Fearing the future
My 83 yo Dad was diagnosed in November 2023. I’m guessing he’s in late 2 or early 3 stage. Still lives alone and drives. We visited 3 IL places. He doesn’t want to move from his 3K sq. ft. house into 900 sf. What have been your experiences moving your parent to AL or MC at later stages? I’m also his caregiver paying bills,…
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Suggestions on how to handle constant complaining
My 91 yo MIL was diagnosed with mixed dementia at the middle stage a year ago. She’s steadily worsened over the last year. According to the Tam Cummings chart, she’s 50/50 early/late stage 5. She’s never had a particularly sunny disposition, but the complaints are now near constant. She’s very social so craves conversation…
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Mom is getting violent and delusions are 24/7
Mom had dementia (no specific kind has been formally diagnosed but docs leaning toward Lewy Body due to the never-ending delusions and hallucinations) and for a good year or so she remained pleasant, agreeable and still had a sense of humor. I told everyone that asked about how we were so lucky because she couldn't be more…
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Incontenence
My 96 year old father refuses to wear pull-ups but he can't make it to the bathroom fast enough with his walker. He wets himself all day. And he makes a mess when using the bathroom for #2. Also, he refuses to bathe or let anyone wash him. He's very defiant. We were thinking of giving him an anxiety medication to help him…
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LO Refuses Care
Hi Everyone, My parent is in late stage dementia and we cannot find proper care for him. He can still physically speak, but nothing he says makes sense and he cannot respond in a logical way to even the simplest questions. We recently made the hard decision to move him to a memory care facility, but he was promptly removed…
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I desperately want to be wrong
Hello Wonderful People, I am now half a continent away from my LO. She is slated to move to AL later this month. I'm pretty much out of the loop. I am recovering well from pneumonia and am grateful for that. My LO's POA shared that the community where my LO is headed did an assessment at the community and another in home…
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Dad with Vascular Dementia with agitation/anger
Hello. Im new here. Just signed up. I’ve been caring for my father, who is 85 and physically healthy except for the moderate dementia with agitation/anger. I go to his apartment 2-3 times a week to make him take a shower, clean his apartment, take him to doctors visits, run errands. He lives in an independent facility for…
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Sadness and acceptance of my grandmothers late stage dementia.
I’ve joined this support group in efforts to make peace with acceptance. I would like to share an experience I had today with a beloved family member of mine with Alzheimer’s disease. In hopes that sharing, communicating it with someone will help bring some peace. My beautiful grandmother, Peggy, has been going through the…
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Hello
I just joined this online group. I am a caregiver for my Dad who has Alzheimer's. He is approaching the middle stages now, and was diagnosed in January 2022.
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Memory care and progression - need reassurance
Can someone please remind me that moving my mom to MC did not speed her progression? From the time she was diagnosed with NPH and dementia she had progressed so quickly. It’s still a shock to me. Every day she gets worse. I moved her to MC in October. The truth is I moved her from Asst Living because her progression there…
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Recovery of very elderly LO from broken hip
I would like to hear from other people and what their experiences have been. My extremely elderly LO is in a MC. She was doing well for the instant. I knew there would continue to be ups and downs. She is supposed to use a walker and of course sometimes resisted. Anyway she fell in her room. Probably getting out of bed.…
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65th Anniversary coming up—I need suggestions!
Hello everyone, my parents’ 65th anniversary is coming up in a few months. My dad is in independent living and very social. He would love to see friends to celebrate. My mom is deep into dementia and lives in the same complex in memory care. She can walk, talk and eat well but her memory is gone. She doesn’t know who I am,…
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Mom thinks she still works - she doesn't.
First- THANK YOU for any response. I am the eldest daughter, and my father is the primary caregiver of my Mom who has been officially diagnosed with Amnestic MCI (doc suspects we are heading into early stage AD.) Mom is starting a new trend of getting ready for work each morning and telling my Dad that she is going into…
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Consider what levels of physical care they can provide when looking at MC for the elderly
If you have an elderly LO and are looking at MC make sure you check out under what medical conditions they can stay. Some will not take people in wheelchairs. Some will only take people who can get in and out of the wheelchair with a single assist. But many will allow residents who need more help to stay. At what point…
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Is mom ready for MC? How advanced is her Alzheimer’s?
Hello and thank you for this valuable community. I’m new to these boards and am appreciative of the discussions. I think that my 88yo mother has moderate to advanced Alzheimer’s. I haven’t figured out what stage she is in yet. She lives in AL and can generally care for her personal functions. Her memory is shot. She can…
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Wanting to go home
Hello, My mom was diagnosed with ALZ a year ago. Due to her diagnosis, we relocated her to a memory care center. The center is very nice and has many amenities and I visit weekly. She is high functioning and able to take care of many ADLs herself. She constantly talks about moving home which is unfortunately not an option…
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Nighttime bedwetting
Hi. I am new to this site. My.mom has moderate alzheimers at this point. She has always been very Independent and was always her wish to be as Independent as possible. We have help during thr day but she is alone at night, which was fine til now as she follows her regular routines and we have a camera in her room to…
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In-home memory care
Wondering if anyone knows of in-home memory care or resources for my mother who has early-mid stage Alzheimer’s and is recently widowed. She doesn’t need full-time care yet (and is resistant to it), but my sister’s and I were thinking it would be great to incorporate more routine and maybe someone who could play cards with…
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Chosing a facility
Questions to ask before choosing an assisted living facility (msn.com)
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having a glass of wine with dinner while on Seroquel for dementia hallucinations
My mom is in early ish stage of dementia and started taking the lowest dose fo seroquel twice a day for her delusions. She still has those delusions but they control her a bit less and she's more manageable and acts like herself more often now. I know you're not supposed to have alcohol when youre on Seroquel. My mom is…
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Question about Ongoing Issue with LO
Hello all. My husband and I are caring for his mother who has Dementia. She is having an ongoing issue that we have taken her to multiple doctors for with no real answers. We are wondering if anyone may have experienced similar issues. Our LO says she feels like she has tons of phlegm or saliva in her throat all the time.…
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Need to see Neurologist
Hey all, Dad is showing an uptick in hallucinations/paranoia and delusions. He lives on a memory care floor of a healthcare community. He was seen by the Nurse Practitioner with the physchiatry group last week and started a new med, seroquel. I have requested a urine catch to check for UTI. The floor RN suggested I take…