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Conflicted In Feelings
I love my mom dearly. I find it an honor to take care of her as she moves into the mid-stages of Vascular Dementia. But lately, when her mood shifts, and she is very much out of character I find myself screaming inside "Who are you!" In those moments I try to shift the mood and put on light music - she was a classical…
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I know I Shouldn’t Feel Guilty
Mum is in late stage dementia a d I left her for 10 minutes in the kitchen yesterday and she fell. My brother and I pit her in bed and gave her half a Seroquil. About midnight she had to go to the bathroom and I had to hold her under her armpits to get to the bathroom. This morning it was worse so we called an ambulance…
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Feeling sad, mad, frustrated, and all that goes along with moving LO into an ALF.
Hi. I am new to this forum. I have been on the Dementia / ALZ journey with my Mom since 2019. She was still living at home on her own until this June. Up until then I had taken over managing all of her finances, going to her house every week to buy groceries, setup her pills for the week (and check to make sure she has…
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Newly diagnosed/driving us nuts !
My mother in law has been with us for a year now. She has always had a bizarre personality and often attention seeking behaviors. She isn’t very honest either and wants to go every time someone goes out the door to do something. She just got a diagnosis of early onset ATZ She can’t take her meds on her own even if they are…
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Suggestion For Obtaining More Responses To Your Posts/Issues
This is a new Forum category, "Caring For A Parent." Unfortunately, there is not very much attendance on this Forum, so responses/input from others has been rather sparse. As Members, we are permitted to Post on any of the Forums and all of the Forums. The Caregivers Forum and Spousal/Partner Forums are the best attended…
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POA? Quit Deed? Meeting Monday
Hi! My mom has been diagnosed with ALZ and Parkinsons. She also recently had a fall and requires more help. She said she's trying to stay in her home maybe a few more months. Until the fall, she did not want to sign a POA. Now she is saying she wants to sign one with my brother and I both equal on it. We have a meeting…
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Dad on hospice - on decline - use of Ativan for restlessness - your experience with hospice?
Hello all, Dad with dementia and on hospice is showing recent decline. On oxygen for 1st time (2 liters). I reported to Hospice nurse that he keeps bobbing his head up and down and pulls at clothes. She suggested a dose (.5 mg) of Ativan and observe if it helps. He takes water and some spoonfuls of yogurt but other than…
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Bowel Incontinence Cleaning
Hello, I have a routine with my LO involving changing her disposable underwear, and there often is a bowel issue that needs my cleaning attention. Barely able to communicate and largely bedridden (she is elderly), I may not be able to prompt her to go to the bathroom on a schedule (but I will try btw). We have no extra…
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Questions for newly diagnosed mom
Hi everyone - my mom was diagnosed last week and the doctor said she is in the early stages. One of the recommendations that the doctor had was to set up some help for her at home - her executive functioning is still intact but her short term memory is so poor that it's hard to trust her with basic things. She doesn't need…
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Frustrated spouse
My mother had recently moved in with my husband and I, after being told that she can no longer live alone. My husband has been very supportive and for the most part, we've been a great team. But whenever she tries to help out around the house, and does something "incorrectly", he get frustrated and tells her to stop. I'm…
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She's Still Got It!
Mom is 85 and has ALZ related dementia. She has been in MC for 2 years now. She has neuropathy and diabetes and her feet are darkening and swelling. She won't let the CNA's walk her around to help her circulation, but insists she walks all the time. My brother visits once a week and walks with her; I live out of state, but…
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Where to start
Hello, I am new here and have no idea where to start with getting help for my mom. We are at the stage where we believe she needs to be checked on a few times a week and I live 2 hours away. How do I begin to find out what services might be available to support us? Her doctors, insurance, etc.? Thanks, Joy
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Travel - Long drive for short visit
My mother has moderate Alzheimer's and is 81 years old. She has incontinence issues and shuffles when she walks (is in PT for this now) but otherwise is in pretty good health. My father passed away 1 year and 1 month ago, which was hard on my mother at the time of his passing but only becomes an issue for her when she is…
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Zoloft for mom
My mother still is not adjusting well to MC. They called me and wanted me to have her doctor prescribe Zoloft. I took her to her PCP and they did prescribe Zoloft. I haven't delivered it to the med tech at the MC yet. What experience has anyone had with Zoloft?
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How to handle confusions
I'm new to this site. I could really use some advice. My father has dementia and living in nursing home. He is convinced that he was/is in WWII. He never served in the military. He keeps asking when his uniforms are going to come showing his new rank. I don't know what to say to him. I keep telling him they are out of his…
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how to proceed with parent's care, disagreements within the family
Hello all, I'm new here and am in need of advice/support from others who understand what it’s like to care for a parent. My mother (60y/o) has been dealing with memory loss since 2019, she was diagnosed with mild cognitive decline at the time and has advanced significantly since. We are working with doctors to get an…
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Seeking advice
Hello, new to the forum! I've been struggling trying to find answers and help with my mom. 4 years I tried convincing both my mom and dad to sell their house and move closer. My dad 6 years ago was diagnosed with colon cancer, late stage. He somehow managed to survive it, but never came even close to recovering fully. A…
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Impossible situation.
I could really use some prayers right now. My husband has mds, a form of blood cancer is getting ready to start chemo. That in itself is hard. I have a horribly abusive mom that is 86 with some dementia. She told me yesterday with hate in her eyes and face that I’ve been nothing but trouble and she’s been thru with me…
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ADVICE:From MCI to Full ALZ/Memantin
Hi, New. Mom 74 Diagnosed with MCI, but Pet scans show hypometabolism in all areas of the brain. Full cognitive workup shows spacio awareness issues, but not much else. Neuro suggested she start Memantin to " slow possible progress". My limited research shows it does not slow and many dangerous side effects, but Mom still…
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Depression as my Moms Alzheimers progresses
Hey everyone, I am new here and was looking for advice on how to deal with what feels like constant grieving. Shortly after covid hit, my mom was diagnosed with PCA, a type of dementia that affects vision. After her diagnoses, things have progressed really fast and I have been going through feelings of depression, anxiety…
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Need advice! Mom recently moved to MC and hates it!
Hello! I'm looking for some help. My 85 yr old mother with dementia moved into MC after after a 2 week stay in the Geripsych unit at our local hospital. She was taken there very much against her will by brother while I was out of the country. She has macular degeneration very bad and has very poor vision. This poor vision…
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Does a spouse have the right to visit husband in memory care facility?
My step father was moved from hospital to nursing home and now into memory care. (The facility doesn’t accept Medicare or Medicaid which may make a difference?) My mother has Alzheimer’s. She married her husband in 2016 and has never been liked by the 4 grown sons of her husband. They met her at the beginning of her…
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Pocketing food - how do we get him to swallow the pureed food he holds on his tongue
Hi, Dad with dementia and on hospice just started pocketing food. Is fed food by spoon. Willing to open his mouth to accept the food but it lays on his tongue. Case Manager RN says it's part of the dementia/decline process. Otherwise, he can be alert to sit in wheelchair. Seems hungry, just doesn't seem to remember how to…
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I don't know how to feel
Dealing with my father's dementia has severely affected me. 15 years ago, my father abandoned us, left us in debt, we lost everything. I mean everything-- only the clothes on our backs and a few items that I had with me. Then 10 years ago, he comes back like nothing, made no effort to find work, and just...exists. Then 5…
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Mom taking a quick turn 95
Over the past 5 weeks my MOM’s memory has deteriorated rapidly. She is in a nursing home and I see her almost every day. Was really strong and with it and then splat.. it all crushed.. just a few weeks before I was to have Hip Replacement Surgery .. Surgery is 2 weeks past..my brother and sister were both here to care for…
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7 mos in to the Alz journey...
46 y/o daughter still raising teenagers; 76 y/o mom moved in with early stage diagnosis. Just looking for comraderie, hope and guidance. *at this time I am her temporary caregiver, younger sibling will take over daily support in 3 mos.
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Respite care in NJ
Looking for a place in Bergen County NJ for outpatient respite care for mom who needs to be supervised at all times, to give me a break on occasion. Also does medicare help with the cost? Are there any Grants available to help pay?
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Talking to her hallucinations all day long
My mom has been living in a memory care facility for about 6 months now - 2 months ago I moved her 4 hours to be closer to me as I was the only person visiting her and it was a 4 hour drive for me. She is having hallucinations all of the time and only talks to the people on the ceiling. She does both sides of the…
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Stays Up Into Wee Hours of the Morning
Good Evening. My mom, who has dementia, stays awake until the wee hours of the morning (often not going to bed until 2:30a.m. or after). My dad is her primary caregiver. They live independently in their own home. What advice can I share with my dad to help my mom go to bed earlier? (My dad will not go to bed until she…
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UTI test negative - retest?
Has anyone ever had a negative UA that turned out to be positive on retest? My LO is elderly and in memory care and her behavior has changed and the caregivers are thinking UTI. We did the test and the lab was a long time getting the results back and they were remarkably clear and negative. I am wondering if it's worth…