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Caring for my mother on at home hospice
Hello. I’m new to the group but need an outlet to hopefully connect to someone whom better understands than those I know that are trying around me. My mother has been battling Lewy Body Dementia for about 7 years. She has rapidly declined in the past months, has been in the hospital and rehab. She last was admitted for…
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Bowel incontinence severe pain, comfort care
Hello all, I’m wondering if anyone else has witnessed extreme pain with moving bowels? My mom has been bedridden in hospital for 2.5 months. Aside from dementia and reoccurring UTI’s, she has no other diagnosis yet (BPD tho). After a few bout of screaming, crying, and moaning “it hurtttts”, I asked the doctor to switch her…
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Caregiver thru a service doing 24/7 care in a private home - having a break?
How does it usually work with a 24/7 caregiver in a patients private home ? How do they get a break? The service says they have the 8 hour break when the patient sleeps. The service meets all the state and federal requirements. The service says it is up to what the care giver can handle or needs. Is this how it is usually…
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Daughter dealing with Parkinson's father
Dad diagnosed has shown signs of hallucinations and agitation. Definitely accusations toward me, phantom smells, more pain than his usual. It has gotten hard for me to deal with since he lives with me. He seems to have more depressive and painful days. Not sure if his cognitive behavioral issues are due to his pain or in…
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Irritation with Father in law/dementia + dysphagia
Hello lovely people, My husband and I stopped into the memory care center where Father in law resides. It was about 30 minutes from lunch time. My Father in law just wanted a hot dog in the worst way. He is, by the way, on pureed food. Anyway, I could not distract him but my husband did, so I walked out of the room and…
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Dementia & strange behavior
My mom is in late stage dementia. Most of the time she’s sweet and calm but sometimes she does such weird things like trying to rip the button off her sweater because she wanted to put it in her ice cream; putting cookies in her water glass; trying to take a bite out of an ant trap; thinking the cat is a dog; pouring water…
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Right way to Correct wrong behavior
My mom has mid to late dementia. Sometimes she tries to use a knife to eat instead of a fork or she attempts to eat non- food items (pens, water caps etc). When I go to correct her she gets very agitated. All the research I’ve done says not to correct them or tell them they made a mistake — be patient blah blah blah. NO…
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Reminding them they have dementia
While my father is my mother's full-time caregiver, I assist him with medical and financial matters. I also visit for two weeks each month because I live in another state. I accompanied my mother to her appointment with the Neurologist for diagnosis. She is not accepting that she has dementia and constantly says she's not…
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Delusions of moving - on a loop
Both in-laws are suffering from dementia issues. However, right now concern is with my elderly MIL. She is in a care facility. She has started having delusions that she is moving. She has packed up her china display plates and other knick knacks. She is insistent she is moving. So many texts and phone calls... Just too…
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Refusal to shower
My mom has not showered in about 2 years!!! She 'washes around'/sponge bathes, but isn't washing her hair and probably other body parts get missed. She's been in AL since November 2022, but they can't force her to bathe. Her short term memory is gone, she resets every 15-30 minutes (completely forgets whatever conversation…
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Monitoring decline
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Unsure about displaying memorabilia
My mother is suffering from ALZ and moved in with us last year. Before she got sick, she and my dad (they are divorced but friends) would camp and canoe with friends. She had a blanket my sister made her with pictures from many of those moments, as well as a framed "Certificate of Courage" with a photo of her in her canoe…
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Safety concern
Mom has young onset alz. She is obsessed with my dad. Today, while I was in a meeting, she ran outside, flagging down a random car, convinced it was Dad. I ran to her, no, mom we don't know them, you can't do that. I know I'm not supposed to correct her, but I was afraid. What would have been a better way?
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New to the site
Hello everyone! I’m new to this site. My brother and I along with my Mother was informed by a Neuropsychologist last week that she has early stage of Alzheimer’s. She still lives in her home with my brother. The doctor mentioned to me about getting a POA in place which I’ve never done before. Not sure if there are other…
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Transitioning to New MC
We moved my mom to a new MC this week where hopefully she'll receive better care. She's pretty agitated and anxious, and is demanding to go home. I haven't visited her since the day of the move. She was furious with me on moving day, accusing me of dumping her, not alerting her to the move, all sorts of things. To be…
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Mental Illness, addiction, Abuse, and Visiting
I am struggling. Shaking. Pls advise. It’s been 55 days since I called the ambulance for my mother. Medically stable now, stage 5 dementia they say. I have explained to every nurse and doctor about her years of opioid use and mood swings, from codependent and childlike to rage. Last week the rage started, the insults, and…
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My Dad
My dad of 90 has dementia and is getting worse very quickly, he’s aggressive and short temperedTwo days ago he went into hospital for edema and now his care home won’t take him back so he has to stay in hospital until we find him a place. how do you all cope with the verbal abuse and threatening to punch your face when all…
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This time is different
Hello everyone this is my first time on any type of support forum. My dad passed in November due to Amyloidosis in his heart. I hated seeing my dad deteriorate with his mind intact until he closed his eyes. And now my mom. She is physically capable, but her mind is going quickly. She knows her condition because she cared…
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How to not air so much dirty laundry (family-related)
Hello, I need a way of phrasing something about my family. The backdrop is: ================== Ever since I started caring for my mom, the rest of my family hasn't helped out. My sister and I had a descent to good relationship but once my mom got sick, she wanted to put her in a facility. Seeing how horrible the local…
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Bible Verse to Lift You Up 4/30/23
YOU AND I ARE LOVED! Romans 8:38-39 New Living Translation 38 And I am convinced that nothing can ever separate us from God’s love. Neither death nor life, neither angels nor demons, neither our fears for today nor our worries about tomorrow—not even the powers of hell can separate us from God’s love. 39 No power in the…
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Music therapy
My mom is in late stage AD ( we’ve been told) and has hospice care coming in and a music therapist is part of her care team. When he’s here singing with her it’s just unbelievable how different she is. Like a whole new happy person. Laughing and even joking around a bit. Normally she can’t even form a sentence. Makes me…
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Monitoring devices
My elderly parent who lives alone has early stage Alzheimer’s. She’s still doing well at the moment with caring for herself. My family and check on her throughout the day. I set up all her daily medications for the week so she does not have to worry about doing that. Since I can’t be there with her everyday, I wanted to…
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How to get help
My Mom was diagnosed in 2017 and I have been her caregiver ever since. I am trying to find help during the day, but don’t even know where to start. Trying to find out how to get financial help for her too.
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How much longer does she have?
My mom is in early stage 7 of EO AD and has declined significantly over the last two weeks. She was in geri psych for about 3 weeks due to violent behaviors, and on the day she returned to MC, with meds figured out, she was walking, giving people hugs, etc. Now, about two weeks later, she is in a wheelchair full time,…
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TAVR Procedure
Hi, My dad, 94, just got out of the hospital after a bout of pneumonia. Seems the cause pneumonia was the that my dad has aortic stenosis. Going to see the cardiologist on Thursday. My dad's stay in the hospital was very harrowing for me and him as his disease is at the mid to late stages (I don't quiet understand those…
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Bible Verse to Lift You Up 4/28/23
ANGRY? SAD? OVERWHELMED? WORRIED? * John 8:12 NKJV Then Jesus spoke to them again, saying, “I am the light of the world. He who follows Me shall not walk in darkness, but have the light of life.” * me: We get upset. We are only human, after all. But we Christians have God's wisdom and power living inside us. We are not…
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Just starting caregiver journey
My 85 year old dad is in the early stages of Alzheimer's. I am looking for information/resources for becoming his caregiver as he progresses into other stages. The perfect scenario for me would be keeping in his home as long as possible. My 84 mom is currently doing remarkably will with him, but I know eventually it will…
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My Mom has Dementia and now hates my Father
Hello! I'm new here. My Mom has dementia and directs all her anger at my father. He is a wonderful, patient man that takes care of her everyday (we are currently trying to get her into assisted living). She calls me everyday bashing him about how he takes all her clothes, pushes her around and throws out all her important…
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Sleep deprivation
My mom wakes me up several times a night saying “ I need help!”. Sometimes she’s worried that the cats going to fall off the bed, sometimes she’s cold even though it’s very warm in the house, sometimes she has no reason. I’m SO tired all the time. It’s difficult keeping my cool & staying patient with her. How do others…
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How to care for totally uncooperative parent
My sister and I care for our 101 year old dad. He is almost always uncooperative with everything we try to do to care for him. Most days I would rather wrestle an alligator than dress him. He has recently almost totally stopped walking and he no longer has control of his bowels. He fights us when we try to clean him up…