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Grandchild acting as CG and needs any/all advice
I'm 24 and very suddenly became my grandma's caregiver. My grandpa passed suddenly in February and my parents and I found out that he was hiding how much my grandma had declined in the past year. Due to Covid and them living 3 hours away we hadn't seen them since Christmas of 2019. So while we new of the diagnosis and…
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How to approach guilt of a loved one
I’m hoping someone here can give me some advice. My girlfriend is 26, and her father was recently diagnosed with early onset in the past couple years. She doesn’t like to talk about it much, and for the most part tries to hide her feelings down deep - until recently. She expressed to me that she believes his disease is all…
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how do I reply to this?
When I tell my wife she isn't able to do certain complicated things (like cooking, sorting her pills, keeping track of appointments) -- she's almost unable to use a microwave or simple phone -- she often challenges me by saying "How do you know I can't?" I don't want to dare her to try, because the attempts could be…
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Iphone for Mom with early onset Alz
So my mom has asked and asked for a new phone. She previously bricked her iphone so badly even Apple was impressed. It's toast. I have gotten her a new one, and am in the process of setting it up, but I want to put some safeguards in place. I know about the parental controls, and have an appt with Apple to get all of that…
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Help - constant babbling
Quick history: My mom was diagnosed in 2018. Symptomatic in 2015. Note of interest: my parents went on a 3 week cruise at the end of 2014, and when they returned, my mom said she never felt “right” again. TIAs suspected while on cruise. Diagnosis was never completely clear with 2 neurologists. Pet Scan/CT/MRI findings:…
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in need your opinions
Hello, First of all, I'm not from the USA. 5 years ago I took my mom (72) to a neurologist because there was some problem with her memory. I don't remember now what exactly, but it was apparently serious enough for me to take her to see a doctor (I live with my parents). There was no problem seen in her mri, but her…
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Jack Hanna Diagnosed With Dementia
The very sweet and kindly Jack Hanna has been diagnosed with dementia: https://www.nytimes.com/2021/04/08/us/jack-hanna-dementia.html J.
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LO Ever Refused to Go to DayCare (Ahem...Activity Center)
This hasn't happened yet, but I'm wondering if anyone else has dealt with it. My sister, who has Alzheimer's, seems open to going to an Adult Activity Center (I never call it "Day Care"). Because of Covid-19 and some other things, we haven't started that yet. When we do, I wonder if she'll ever refuse to go, like toddlers…
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Frustrated, angry and very sad
This is more of a rant and just get off my chest but if anyone would like to respond, I’m HAPPY to take in advice and info. My father in-law was diagnosed with Alzheimer’s over a year ago. My mother-in-law tried to hide it from us for as long as she could until she landed in the the emergency room/hospital for three days…
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Covid vaccine effects
Hi, has anyone noticed a change in their LO after the COVID vaccine? I know that this disease is so unpredictable. However, as the family was discussing drastic changes in our mom over the last 3 weeks, someone asked if anything had changed recently that could have triggered her decline. She had both Pfizer vaccine shots…
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New Approaches to Long-Term Care Access for Middle-Income Households
By 2029, it’s estimated that 54% of middle-income seniors won’t be able to afford the long-term care they need. Milken Institute outlines how the public and private sectors must partner to increase LTC access. https://bit.ly/3mq9LXZ
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Is she in the right place?
Hi all! My mom is 95. She has been in AL for about 18 months. Last month, she had an episode one morning and we feared a stroke. Apparently her dementia just accelerated and her confusion increased x3 at least. I moved her to a different home with memory care that I’ve only heard positive comments about. She has been…
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Everything Is Green
Lately we have noticed that when ever our LO describes anything with color, it's always green. Anyone else have this happen?
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Bible Verse to Lift You Up 4/8/21
JESUS AT THE DOOR GOD THOUGHT: Revelation 3:20 NIV “Here I am! I stand at the door and knock. If anyone hears my voice and opens the door, I will come in and eat with that person, and they with me.” VICTORY SHOUTS: Open the door! Invite Jesus in! POWER PRAYER: My Lord and Savior, thank you for wanting a close relationship…
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Better Brain Health through Equity: Addressing Health and Economic Disparities in Dementia for Afric
1. As our country ages and diversifies, we must support and promote healthy longevity and health equity. A new @MilkenInstitute report recommends 5 ways to build better brain health and reduce disparities: https://bit.ly/2PaKTHF 2. We have the power to advance and support equity in dementia care by delivering collaborative…
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My mom is finally at peace
My mom passed away Monday, April 5 after a long battle with Alzheimer’s. The family was called in to see her 10 days before she passed away. She had been in a nursing home for the past year and on hospice for the past 3 months. I saw both my grandmother and husband pass quickly and in their sleep but she fought until the…
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Home Care Recommendations Wnchester VA Area
My mom has ALZ and my dad is her caregiver. He is very capable but I feel he needs a break so I'm looking for in home care 1-2 x's week so he can go and run errands etc. Anyone in this group familiar with this area and in home care. Any recommendations on how to get referrals etc? My dad is on board with this which is…
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Misspoke
I am an adult child, visiting my parents for a few weeks, after getting my vaccine shots. This morning I just misspoke with my DF, who has AD. He is now upset, and my mother who came downstairs is upset. I was trying to help a situation and just made it worse. I was upbeat and excited about a possible outing for him with a…
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I am defeated
I feel like a terrible daughter in law. I removed my blind alzheimer's 78 year old mother in law from a covid infested facility in January where she was being nelgected. I've been living in an apartment with her for 83 days and I'm ready to give up. I admit defeat. I tried. I failed. I cannot be a 24/7 caregiver to a blind…
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New to this. Family member needs help but doesn’t want it
My dad has been in the hospital for a month. The drs say he needs guardianship. Somehow he got wind of this. He told me if I did that he would never speak to me again. I’m his only child and my brother died 7 years ago. I am very hurt. I don’t know the right thing to do. I never thought my dad would turn on me like this.
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Update on my dad(3)
I'm finally able to write a little, this has been so hard. For anybody else in a similar position, I hope reading this post might be a little comfort about the paths we follow while trying to do the right thing for our loves ones. In the first week of March Dad started falling a lot. He had fallen very little before that.…
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Parkinsons turned into Vascular Dementia
My mom was diagnosed with parkinsons about 5 years ago and a few years ago we were told she also has vascular dementia. Lot of denying going on by her but I was right there when she was told. She is getting some memory loss now, that is noticed more. She cannot remember what she ate earlier in the day and is now not…
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bedsores(1)
Any recommendation of mattress or chair pad? And topical medications? Everyday there is a new mountain to conquer! Thanks
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Trying to Get Out of Crisis Mode
Hi everyone, This is my first post. I have been reading posts on this forum for the past couple of weeks and have found it so helpful. Thank you all for being here. As brief background: I am the primary caregiver for my mother who is in her early 80s. Although we don't have an official diagnosis yet, I suspect that she is…
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NOTE OF THANK FOR SUPPORTING BIBLE VERSE
THEY WILL KNOW WE ARE CHRISTIANS John 13:35 NIV "By this everyone will know that you are my disciples, if you love one another.” * Thank you friends for your support to all of us here by reading Bible Verses and/or by making comments. * Hugs and Christian love to you all! Ronnie (my nickname)
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Aggression and seizures
My DH has an adult onset seizure disorder (NOS) and has also been diagnosed with a dementing disorder -not specified, diagnosed by his neurologist. After his last seizure event, he didn't believe me when I told him I had given him his dose of seizure medicine. He no longer manages his own medication because he takes a pill…
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Glorious moment of joy!
I posted on Saturday because I was having a bad case of the blues. I also spoke of finding moments of joy in this terrible journey and yesterday I had the greatest one yet. My sons play a silly little game amongst themselves of keeping score whenever they tell their Dad "I love you" and get one back. As of yesterday the…
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Trouble facing dad with AD after recent loss of mom with AD
My mom passed two months ago after a hard 4 year battle with mixed dementia and other health problems, including two below-knee amputations from vascular disease. She passed after about two weeks on hospice at home. I have been living down the block from my parents for two years and am so lucky to have in-home caregivers…
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How much water to drink?
I have been doing research. But I found all kinds of information online. From 2.7 liter for women to 1.7 for elderly. Some just say each person is different. Also not sure if the number includes the fruit, soup from lunch/diner. Please share your knowledge related this topic. thanks!
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LO finally says she needs care
After a very long time, almost a year, my LO says they realize they need care. This is finally after being in a home where during covid I could not go visit, was not told the entire story of what was going on. They had fallen and ambulance came, put in hospital and moved to skilled nursing near me, until weeks ago LO still…