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Crucial communication
My mom 94 was just placed in memory care 2 weeks ago. The facility actually moved her without letting me know for 24 hours! She has been (in her mind) traveling, in hotel rooms, at school, work, my work - you get it. As far as I knew never really left the ALF facility just wandered inside with her packed bag. I’ve been…
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Mother recently diagnosed
Hello. My 72 year old mother was recently diagnosed with dementia in November 2020. However, I have been noticing changes for about the last 3 years. The sad part is, she has been the sole caretaker of my stepfather for the past 9 years who has Alzheimer's. It's very stressful, very sad, and I am at a loss as to what to…
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Need to tell what's going on before I go insane
Hello All,I'm new, name is Jamark. I have to tell someone what's going on else I don't know how much longer I would be here. I've loved mom since I first knew her. She'd cry, I would cry. If she was in pain, I'd take it so she wouldn't have to feel it, though it didn't work very well. I love mom and don't want this to be,…
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New and overwhelmed...
I am not sure if this is where I need to be as we don''t yet have a definitive diagnosis for my husband. For now, it is cognitive impairment. He is 57 years old. It started about 2 years ago with short term memory issues. His long term memory is great! I am looking for ways to make the most of our day to day communication.…
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New member, mom has something similar to undiagnosed Vascular Dementia
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If it was sad it would be pretty funny, ish
So, my mom heads outside after we just got home from a drive, pulls her hood one, grabs a water bottle and heads back outside. Mom, what are you doing? Oh watering the plants!! Its pouring rain....but I will take it Should read "wasn't sad..." eek
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Says she’s not being fed in assisted living
Hello, my mom has dementia and is in assisted living. She constantly is worried and says she isn’t being fed but we for sure know differently. Anyone ever had the experience of a loved one worrying about her meals?
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Recommendation - GI Doc in DE/MD/SE PA
I'm looking for a GI doctor recommendation in the DE, MD, OR SE PA area. My mom needs a procedure and we're nervous about the anesthesia as she saw a steep decline after a mastectomy in 2018. I know it will be a milder anesthesia this time but would like someone who has experience with Alzheimers patients. I guess I really…
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New EO AD caregiver needs someone to connect
Hello, My husband was diagnosed with EO AD in August 2020. He is 62 years old Symptoms started three years prior. I've accomplished a lot in the past six months from putting legal and financial affairs in order, getting SS Disability, and enrolling him in clinical trial through MGH. I would love to connect with others who…
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Now my mom
I’m in the midst of caring for my MIL (three years into this ordeal) and now my mom has been dxed. I’m visiting for Spring Break and can see her starting to struggle and be frustrated with small things. I’ve lost my person I lean on when things are hard. I don't want to tell her all the things my mil is going through.…
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Bible Verse to Lift You Up 3/17/21
I AM A CHILD OF GOD * 1 John 3:1 New International Version See what great love the Father has lavished on us, that we should be called children of God! And that is what we are! The reason the world does not know us is that it did not know him.” * Joyce Meyer STRAIGHT TALK: : "Speak words that empower you--not words that…
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Advice for Nutritional Guidance
Looking for some advice on nutrition in terms of helping my LO in mid-stage Alzheimer's. She was already a picky eater, but that, like the disease, has progressed. For example, she prefers a potato over a green vegetable (like broccoli), but really would rather not each vegetables; instead concentrate on the protein. Yet,…
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New & Struggling
Hi everyone, My mother is 56 and has been living with Alzheimer's and aphasia for several years now. I am so thankful that she is still able to be home, and that she married a wonderful man who has been caring for her as best he can (seriously, I could go on and on about what a blessing my stepdad has been and how amazed…
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Stifled Feelings
Hi, I've just joined and this is my first post. I'm the husband of a woman with EO, diagnosed in August. I feel like I can't share any of my inner feelings with her unless they are totally benign. This is really causing me to bunch up inside. I feel like I've lost my partner and confidant who I can tell things to. I feel…
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NH & MC research - spreadsheet?
Hi everyone, I'm diving into the difficult process of researching a nursing home or memory care facility for my parents. Did anyone create a spreadsheet or other research note taking tool I could adapt? I hate reinventing the wheel, and frankly don't quite know what sort of information is most important yet to keep track…
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Exhausted and angry--venting
Please forgive my ridiculously long post. It's a character flaw. Background: My mom (91) was fully independent til last October. In hindsight, there were signs that she was deteriorating--she was suddenly unable to navigate the remote control and the phone, for example, and I made quite a few drives to her house to assist…
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Need some advice please(2)
Hi, I'm Steven and this is my first post here. I am looking for some recommendations for me to help better care for my mom. She is 68, lives about 3 hours away from me with her partner in Bloomington Illinois. Her two sisters also live in the same town as her but are pretty quick to run out of patience. I call every day…
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Getting vaccine for Loved One not in the system....just a vent!!
My mom is 83, lives at home with us, I have been trying since January to get her the vaccine. Her PCP was clueless, she has medicare, and there are ZERO appointments for two months...OH, we were told we could go to the medical center and do a walk through appointment which mean standing in line for over an hour possible…
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Calling her Mother
New here I care for my grandmother, she is 94 and lives with me. Her current obsession is wanting to call her mother. You can figure out that her mother is no longer with us by seeing her age. She won’t stop asking for a phone book to find someone to call. Everyone she asks to call has passed away. This is heartbreaking…
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Late Stage - Should We Move Mom?
My mom is in Stage 6 of Alzheimers disease and I am looking for advice on whether or not we should move her. She lives with my father who has been her sole caretaker since her diagnosis 6 years ago. He is burned out but is in denial that he is burned out. She needs help eating, toiletting, and bathing. She went through a…
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Moved Mom to Memory Care...
Hello my fellow warriors,Well, February has been the month from hell in our family... After a series of falls with resulting inability to stand or walk at all, and a deep dive in the cognitive department, I was left with no choice but to move my mom into a lovely Memory Care facility that is doing a wonderful job of…
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Every dementia CAREGIVER is different...
My sister journaled her thoughts and feelings during the final days of Mom's life and has given me permission to share. Just when I think that kid doesn't have a brain in her head she writes something so beautiful I know I'm the dumb one. How The Other Girl experienced Mom's death.…
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Disability
My husband and I recently received our (annual?) statements from Social Security. We are 63 and 61. His statement confirmed what I suspected. He has not worked enough hours in the last 10 years to qualify for disability. I didn't realize this information was on the report, since I never looked for it before. It's good to…
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Doctors Aargh!!!
My father was diagnosed with VD in 2019 at a prestigious university's memory clinic. The report was sent to his PCP who completely ignored it and has done nothing to help him. Not only does he have VD, but also gets tremors and double vision. But his doctor has never sent him to a neurologist. To me, that is mind blowing!…
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Parent diagnosed with Alzheimer's when I was an adolescent.
Hi all, I am wondering if anyone else had a parent diagnosed with dementia while they were young. My father was diagnosed with dementia in 2010, when I was starting high school. I'm in my mid twenties now. Looking back, I felt that my experience growing up while my father progressed through the early stages of the disease…
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Sandwich generation
This is a new term to me, but I guess that some of us fit the description. We are in between the two pieces of sandwich bread (caring for our parents) and (caring for our children at home). Is anyone else going through this? Adding a pandemic is just making it more challenging. Currently, I'd love to have my LO and their…
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NYTimes Article: NH False Reporting to Medicare.gov Ratings To Increase Their Scores
Five star ratings on Medicare.gov that families depend on when choosing NHs? Not so fast; all may not be what it seems since NHs do their own reporting, providing numbers in data and no one checks its accuracy . . . . . This is something I have ranted about for ages; yet, I still found this lengthy article stunning in its…
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Being sandwiched between dementia and needy (adult) child
I'm wondering if there's any advice out there for DH and I in the situation we now find ourselves about to be in. MIL will be returning next month from an extended visit with Sib #3; MIL is somewhere in the Stage 4-5 area...probably closer to 5 than 4 at this point. I'm not sure how much MIL has declined in the last few…
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Television
Does any of your LO's get upset if the TV is not on their station. My mom gets so upset if the TV is changed. Is this just a part of the deme.
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sleeping during visits
At the last couple of visits to my dad at his memory care, they have brought him up to see me and he is sleeping in the wheelchair. On Friday they brought him and as we tried to talk to him and get him to open his eyes, he would answer us but never fully wake up. This was at 10:15 in the morning. I have tried different…