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Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
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Positive Thought 3/4/21
ALL Quotes from: POSITIVE QUOTES FOR EVERY DAY, complied by Patricia Lorenz * FAILING? * "You always pass failure on the way to success."--Mickey Rooney, Actor * me: O.K. so I failed today. I think it is safe to assume we all do and more often than we would like. We have two choices: One, keep dwelling on the failure and…
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drivers license expiring
Mom's license is about to expire. She is in MC and I would switch it to just a state ID, but she still has a leased car in her name (not driving it, but we use it from time to time). Does anyone happen to know if she has to have an active drivers license just because she has a car (she doesn't have access to it and…
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Dementia’s and the vaccine
My LO has Alzheimer’s and VD. Experiences agitation, depression, psychosis, delusions and has meds for these. We’ve made some changes to dosages recently due to agitation increasing. After the second vaccine shot, I am seeing an extreme increase in agitation. Has anyone experienced this? Wondering if it is temporary as…
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Staying in touch from a distance with LO in nursing home
Hello, My grandmother who has Alzheimers/dementia was recently admitted to a nursing home (previously was living with my grandfather who was her caretaker). She lives across the country from me. I want to stay in touch with her. I called and talked to her on the phone a few weeks ago and expected that it would be difficult…
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Is it ok to lie to help your LO?
Hi everyone, My mother is not officially diagnosed (still waiting on the neuropsych evaluation) but we all know what is coming, as its been bad for a while, and seems to be getting worse. She currently has been wandering at night knocking on neighbor's doors looking for my father (she refuses to believe my father is my…
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Hawaii - lack of medical input available
My wife has had Alzheimer's for 5 years, and has reached a stage of crying all day, appearing to be in pain, and getting little to no rest. We have a referral to get a consult at the Cleveland Clinic in Las Vegas, but trying to decide weather the move and plane ride would be more detrimental than helpful has put us at a…
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She Falling; I'm Stressed!
My 77 year old mother lives with me full time. She is in the late stage of Alz. She has a knee that locks on her, vein issues in her legs which make them swell, an internal tremor, and takes medication that makes her dizzy. Despite all of this she doesn't believe anything is wrong with her and she can walk just fine…
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Active dying ain't for sissies...
... and yet, I'm kinda being one. Dementia Dichotomy https://www.stumpedtowndementia.com/post/dementia-dichotomy Huh. Well, how 'bout that? https://www.stumpedtowndementia.com/post/huh-well-how-bout-that Nothing https://www.stumpedtowndementia.com/post/nothing
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Need advice, dealing with BOTH parents now.
Hi Everyone. My Dad (84) has been caring for my Mom (80) for the past 8 years. Like many spouses he is doing everything at home on top of caring for her. Thank God she has been easy to care for. She has become incontinent over the past month. She is wearing depends now. My Dad is in excellent health, keeps busy with a few…
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Today’s parental argument
My step Dad( no diagnosis) berated my mom (mild dementia) today because he heard her talking in her sleep. She was supposedly dreaming about a boyfriend with a certain physical attribute. Mom has no memory of this dream. I don’t think she has a memory of any boyfriend like this. She married my biological father at age 18.…
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Looking for MC resources in NYC
Hi everyone, I just joined the group today. My mother, who is 96 and has advanced dementia, has been cared for in her apartment in NY (I'm in CA) for the past 4 years by a live-in person who manages her care, plus now 24-hour a day aides who come in and take care of her, helping her get to the toilet, making meals and…
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Anyone go back to earlier stage?
My mom has been slowly progressing through this disease and we have been trying to keep track of her behaviors and moods so we can keep tabs on where we think we are and where we think we are going next. Well probably about 3+ weeks ago I would have said she was a late stage 5/early stage 6. We started noticing more…
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Current Situation / Eating Habits
Current situation- Mom diagnosed 2 years ago with dementia mainly due to mini-stroke damage/but potentially also has ALZ or other contributing factors. She was living alone past 2 years, but under the mostly constant care of her sister, who has decided it is now too much for her. So I moved mom here with me (and my wife…
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Dementia Exiled: Continued & Concluded
Thank you all who have related to, understood, and reached out to me with our latest batch of caregiving madness. As things keep going downhill so fast I haven't been able to say proper thanks to each of you. Here's the conclusion of our dementia exile... Dementia Exile: Part 3 - The Hospital…
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It's time to move my mom to MC, how do I tell her?
My mom is 86 with alzheimers. We have had 46 hours a week of home care but I can no longer handle the rest of those hours and she needs (and has been approved) to enter MC facility. I kno it's needed but feel so guilty. She has always been a homebody. Has said many times she would rather die than go to 'the nut house' as…
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Father is in denial of mom's Alzheimer's
Hello everyone, I'm new at this. My mother was diagnosed last June with Alzheimer and she lives with my dad. They are both in denial of this disease, Dad thinks its just old age and Mom just does not remember. I live 3+ hours away, but I visit at least twice a month. I was their this last weekend cause my dad had a stent…
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Using Poetry as an Outlet
Hello everyone. My amazing momma is writing a series about using poetry as an outlet for people who have someone close to them that have Alzheimer's Disease or Dementia. If you're interested in this idea or reading poetry about this difficult topic here's the link to the article:…
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Not Sleeping & Obsessed w/ Blankets
Well it seems we've hit another milestone in ALZ with our LO. She's not sleeping much at night. We'll go to bed and she's up and out of bed numerous times, walking the hall, trying all the doors, knocking on our bedroom door, talking right outside our door, etc. Sometimes it goes on for hours before she settles down. And…
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Respite Care(8)
I'm looking to place DW in Respite Care in the next couple of months..I went on line to search for rules & requirements but did not find much...My questions: Can I as a caregiver make the arrangements? or does Medicare have to do it as their paying for it? Who gets the ball rolling on this.. - also are weekends approved? I…
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Who would have known the Celexa was needed and works well
Was having issues with DH for a while due to extreme sun-downing, agitation, sometimes aggression, etc., that has been going on for some time. I have posted about it looking for solutions, advice, etc. DH has been on Seroquel for awhile.. Adjustments had to be made because too much at one time made him worse. Finding the…
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Dementia Exiled
The last two weeks have been a bloodbath of anguish, fear, and trauma. I'm guessing some of you have been experiencing the exact same thing... Dementia Exiled: Part 1 - Escape https://www.stumpedtowndementia.com/post/dementia-exiled-part-1 Dementia Exiled: Part 2 - Shelter from the storm without. No shelter from the storm…
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More than dementia? Parkinsonism?
Hello, My mom is 76, but I saw the first signs of dementia in her when she was in her late 50’s or early 60’s. In the mid 2000’s, she was still working but was making mistakes at work that didn’t seem normal and I knew then, something was going on. My mom also had a tendency to fall easily, or just collapse. She struggled…
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Return Home from MC
This is my first question, but I have been reading this forum for almost a year. I have read several posts recently about LO moving into MC. Has anyone moved their LO to MC, then later needed to bring them back home because they could not transition? Here is our background. Our 100 year old Mother has late stage 5…
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Haloperidol(1)
I am NOT questioning or criticizing my mom's physicians. I'll throw this waiver out here to begin with. Diagnosing people you only see once in awhile with alzheimers is a difficult thing. And then trying to help a patient is a trial and error process because everyone is different and it can be difficult to determine what…
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Walking at about a 45 degree angle
My mom started walking around maybe 2 months ago with her back bend at at 45 degree angle. I know there is such thing is muscle weakness and that it happens gradually but this just happened all at once. When we try to straighten her up she's not in pain. I don't know if this is a habit or if she's really walking like that…
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Where’s Cobalt?
Anyone seen a post from Cobalt lately? I’m wondering how she is.
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Domestic Partner of Caregiver/Daughter
NOTE: Apologies for a very long first post. I am reaching out on behalf of my girlfriend, who I've been with for about 3 and a half years. We live together and own a home. We are committed to each other, even though we are not yet married. My girlfriend's father was diagnosed with early onset in the Fall. He is still…
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Advice needed for depressed father
Hi everyone, My brother, father, sister, and I are a caretaking team for my 78 yo mother, who lives at home. My brother lives with my parents and I come every other day to be with my mom. My mom is in the later stages of dementia: incontinent, frequent UTIs, losing mobility, starting to lose her appetite, and is beginning…
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Mom with dementia wants to date!
My 71 year old Mom who has dementia, early/ moderate stage, wants to date. She is “boy crazy” like a teenage girl. Anyone have advice or been in this situation? It’s all she talks about and says she’s miserable and lonely. We are obviously not going to let her go out with a stranger or be alone with anyone.