-
Thanks to all of you in this forum
I read a lot but cannot post to often because my DH shadows me from morning until he goes to sleep. I thank you from the bottom of my heart for sharing your journey and expertise. JustBill wrote on Nov 18 that he looks for moments of light or happiness to carry him through the day. I have followed his advise, carving out…
-
Somebody was asking how secure our posts are to outsiders
I just did a Google search for "sex" on this site only. It turned up 571 results. This is the query I used - site:alzconnected.org "sex". Then I did a search for "Ed". I got 879 results. My query was - site:alzconnected.org "Ed". If I searched for "Ed1937" I got 604 hits. So it seems pretty easy for people to find…
-
9 weeks in memory care and destructive
Hi, I’ve been visiting my DH almost daily. Each time I go there, there’s a little more destruction in his room from the night time. (After visiting hours-breaks my heart). He has marred up the walls, broke a toilet, mirror, door, 4 door handles, 3 thermostats (one in another resident room), broke his little table and…
-
65 years ago today
Yes, today would be our 65th anniversary. For more than 3 years I planned on asking her to marry me again today. But of course that can't happen. But even if she were still here, there's a reasonable chance she wouldn't know me any longer. So I'll have to focus on what a great person she was, what our love meant, and try…
-
Need a laugh?(1)
I got a invitation from someone I had not seen on the forum so I went looking for that user name and came across this hilarious post. Thank to all those who may not still be here for the laughs I got. Stewart https://www.alzconnected.org/discussion.aspx?g=posts&t=2147484140
-
aspirational pneumonia
Aspirational Pneumonia. My new nightmare. Even after tell the hospitals (I had to go to a 2nd hospital to get help) that my DH has Vascular and Mixed Dementia they didn''t seem to know or be aware of this disease. My DH was extremely dehydrated because he was sleeping 24 hours a day. I forced liquid through his lips in a…
-
potty humor.
I was up several times in the night with restless spouse syndrome. When I woke the last time she was standing by the bedside poking me awake. I asked if she needed help and she said “Yes. I did something bad. Will you hate me?”. I noticed her pants were on backwards, and that’s almost always a sign of bathroom troubles.…
-
Feeling bad when I yell
The last month I’m worried about my outbursts. I yell at my DH over something he’s done. it seems to come from no where but really, I’m probably already tired. I got upset when he put too much wood on the fire, or let in the muddy dogs inside when we are expecting company. How bad is this for him? It’s hurtful, and he acts…
-
So hard to visit him now
My husband is about stage 5-6 AD. He had a stroke and is paralyzed on his right side. He is no longer able to be cared for at home. He’s in a skilled nursing facility, where he is well taken care of. The place looks like a country inn. I visit several times a week. My DH has become increasingly difficult to deal with. He…
-
What a difference two years make.
Two years ago my wife did our Christmas shopping as she had for 35+ years. We have 6 people to shop for and she got the gifts mixed up. No big deal, busy with work maybe just a brain fart. Not only did she do all the Christmas shopping but everything else as well. All I had to do was work, she spoiled me rotten doing…
-
Strange ES observation/realization
Before I learned so much about AD I thought it was mostly a disease about forgetting. We all know it’s so much more. One interesting realization I made was at Thanksgiving this year. My husband has always preferred the dark turkey meat. This year he put only turkey breast on his plate and I was very surprised. I understand…
-
Hes Constantly hungry and I'm exhausted!
My DH just returned after 2 months - he was in the ICU followed by SNF for rehab to learn to walk again. Unfortunately his mental status took a deep dive and hasn't returned very much. Taking him home is challenging as I'm also now taking care of incontinence, which he's also never had before. He has early onset Alz plus…
-
Best Cell Phone for LO
We recently switched cell phone carriers for our family, and are trying to decide the best device for my DH to use. With his old phone, (IPhone 7), he did manage to answer a call, (50% of the time), but seldom if ever placed a call on his own. When he did, it was to just hit the last number that was on the call list. Even…
-
Memory Care guidance/tips
My DW has been placed (on Dec. 16th) into a memory care only facility & I’m going thru the ups & downs of that decision. I know she is safe & being well cared for by the staff. I took her out for the 1st time on Christmas Day & she had a great day seeing family & getting some gifts. The return went smoothly until it time…
-
Shaving cream
I have been shaving dh for several years. He has always had kinda oily skin but now it’s very dry. I noticed that after I shave him lately his face starts to look like it’s breaking out, really red and gets little blister like spots. I’ve tried one for sensitive skin and it doesn’t make any difference. Any one have ideas…
-
Suddenly Hospice
I am in shock. My Husband's GP has been minimizing his health problems. DH is very thin with balance, gait, and memory problems. It has been so frustrating trying to get a diagnosis and a care plan. I requested an MRI and his GP said "his brain was aging." Last week I told his GP he was getting worse with leg weakness and…
-
Question about incontinence
I am wondering if anyone has experienced this and what their outcomes were. This is a little too difficult to google and get any response that actually addresses my question. Bear with me please! At the end of October, my husband woke up one morning unable to walk. He was walking fine the night before. His cognitive…
-
A post from Tammie Jo
I copied Tammie Jo's post from another thread so she might get more answers. Tammie Jo, you might not receive any replies tonight. The forum usually has little traffic around this time. Check back later in the morning. I’m wondering if anyone can talk with me about the realities of early onset Alzheimer’s. My 54 year old…
-
onfused about what can be protected financially
We went to a CELA we heard speak at our local Alz Association. I took with us our 20 year old will, trust, for review. He said 3 things: 1. Put your house in the will since it is currently not, that will avoid probate for it. 2. Go back to original attorney ( they know each other, so I guess that was a positive input, but…
-
I feel lost(1)
It's been just over 2 weeks since my husband passed. It's still hard to believe. I made it through the wake and service and family coming from everywhere. I have been trying to get ready for Christmas. My 7-year-old granddaughter asked if I put my tree up yet. I told her I wasn't going to. She said what if someone helps…
-
Jmlarue(2)
You have been on my mind a lot lately and was wondering how you are doing. Hope you finally got VA to help with your dh and that you are taking care of yourself. I have been off for a couple of months myself because dh has been progressing. Just wanted you to know you are missed.
-
Merry Christmas/Happy Holidays to all my forum friends
Just can't say it enough. Part of my daily routine and my daily support to check in here. Care about all of you, posters or not, and appreciate hearing from those who can and do post. I've had my holiday celebrations already. Lunch at memory care on Tuesday resulted in a great group photo of my partner perched between…
-
Can’t fix finances
I am in the process of getting our finances in order and find my hands are tied by the institutions holding our money. They require 2 doctors to sign affidavits that DH is unfit to manage his accounts but DH refuses to be medically assessed. He currently has no doctor. I have made appointments but he refuses to go. In the…
-
Punished for Grieving
And so it's Christmas and I'm alone. Totally, alone. My son who lives 1.5 miles from my house refuses to spend any time with me because my sadness is palatable. Though our conversations don't evolve around his father, that he's bed bound in hospice care, my son is sensitive and my feelings are profound at the loss of a…
-
So you're concerned about your memory?
I've noticed some memory problems, and after I watched this, I feel a little better. This video is by Lisa Genova, author of "I'm Still Alice", and she is also a neuroscientist.. She talks about normal forgetfulness, and she explains…
-
Tech question
Is there a way to mark things as having been read, or to highlight items (other than the option to get the email notice). There is so much good information but I’d like to narrow my choices some….I often go back and reread something because I don’t realize I already read it. Thanks!
-
A message from our family
Good day to all of you, and a Merry Christmas and Happy Holidays. I'm posting this on behalf of both myself and my mom, gm gypsie. My brother, one of Jerry's sons, has made a movie with his family called Stealing Time. We would like to post a link to it, as it's a very short film that was created by my brother and his…
-
Do They Ever Adjust to a Caregiver
I had to start over with a new Caregiver Agency. The prior Agency didn't have enough staff and could not find anyone when my current Caregiver quit. My spouse has ALWAYS hated having a Caregiver (we started about four months ago) but became a little more mellow with it. The owner of the new Agency came over yesterday. We…
-
A disconcerting day
DH has been in memory care since mid August. Thankfully it is in the bldg a 3 min walk from our independent living apartment. He has fallen a few times and today I got the call that he was slumped over in the dining room at breakfast and was non responsive. I have a DNR in place but I allowed them to take him across the…
-
He looked like himself
This past Sunday, I DH asked me to help him pick out his clothes to wear to church. I got him out his khaki pants and a white shirt. The, since it was so cold outside, I got out two sweaters for him to choose from. He looked so handsome! Later, he was watching a football game on TV and instead of slouching in his recliner…