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Advice I wish I’d been given at the beginning
It’s been a while since I’ve gotten on here to post or read. I was overwhelmed with the confirmation diagnosis that I’d already known for my DH of ES Alzheimer’s. I appreciate everyone who tried to help and give advice. However, most of it was scary doomsday stuff that I couldn’t handle at the time. Things like you’re on…
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What is going on?(1)
My husband was diagnosed with Alzheimer’s this year. He is 76. He’s sleeping 10 hours a night and fitfully sleeping in his chair during the day. What is disturbing is he sleeps with his mouth wide open. His mouth and hands are moving. It s not a restful sleep. He wakes up and searches on the floor or on his chair with his…
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A change coming for hospice?
I received an email a few days ago that mentioned this possibility. Apparently there has been quite a lot of fraud from hospice providers. It mentioned that "for profit" hospice companies are much more likely to commit fraud than "non profits". The matter is bad enough that it is being discussed in Congress, and changes…
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Six years and 1 month...
My DW has finally stopped asking where Mon is and asking to go home. She has fragmented sleep, an hour or two here and then awake and then another hour or two. She will wander slightly but only from one room to the next. If there is a distraction she will sit and then doze off after 4-5 minutes. She used to eat sandwiches…
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Stem Cell Treatments
DH's dementia has proceeded at a very rapid rate. He had gotten to the point that the neurologist put him in home hospice care. Our family doctor (not the neurologist) insisted that there had to be something causing the dementia to proceed so rapidly. He was disappointed that the neurologist wasn't willing to research this…
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'Our Body is thy temple' 'is now airing
Exciting news. Our new series 'Our Body is thy temple' 'is now airing on Glewed.TV. We have been shooting this series around the country over the last year and we take a deep dive into the disparities in the black community and their health and the role the black church can play. We feature such conditions as diabetes,…
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Looking for Home Services Advice
DW transitioned to a MCF on December 5. Regrettably, it did not go well. There were issues regarding supervision and attention to her needs. There was an incident involving another resident that troubled me greatly. I will leave it at that except to add that I brought her home out of concern for her safety after learning…
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Should I seek professional help?
About once a year or so I fall off the crazy train. After day in and day out of trying to live in my wife's ever shrinking world, taking care of her both physically and emotionally from the moment she wakes up at 4am until it's time for bed. Her never giving me any space and shadowing me all day long. Always trying to…
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Neuro visit update
Everything went very smoothly all the way into the exam room. I handed the nurse a note for the Dr to be discreet and listed all of the symptoms starting from about 5 years ago. I guess he was about as discreet as he could be while trying to do an exam. He had my note with him but he was pretty much "matter of fact" and…
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Crying question
I have notice my dw cries more and so the nurse, we are wondering if a medicine needs adjusting, she takes 10mg of Lexapro and olanzapine 3 times a day. 7.5mg,2.5mg and 7.5. She has been in mc for several months. She calms down after I get there and the nurse can get her to stop by changing the subject which she can't…
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Another question about women and toilet paper non-use
Hi all, In a previous question I noted that my DW was no longer using toilet paper after urination and I asked how much to be concerned about this. (I know this because she frequently does not remember to flush.) The consensus was that it was not a big problem but that I should make sure that she changed her underwear…
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Despite the grief....
I have found a few things.... 1. I haven't done a load of laundry since Tuesday. 2. I have less dishes to wash. 3. I discovered that there were other shows besides Gunsmoke, MASH, and A-Team. I'm not making light of my or anyone's grief for it is very real, it was just thoughts that ran through my mind. Judi
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Covid deaths hit 400 a day
We are getting a substantial increase in deaths in the over 70 crowd Wear mask get shots be careful
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Apparently it’s a difficult time!
Actually posting a lot this week! Feel like I can’t deal. DH still complaining of leg pain but won’t go see doctor just wants to grimace , moan, complain, and shut down and make it difficult to help him! I have not been so understanding as I know I am doing everything and just been crying and becoming a person I don’t…
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Stage 8(2)
Hello all. This morning between 2-4 my husband passed peacefully in his sleep. I would talk with him whenever I went into his room. He seemed to know I was there because he looked at me when I said his name. It's a relief, but I know the sadness and tears will come. My favorite memory of this past week was from Sunday when…
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National Plan to Address Alzheimer’s Disease: 2022 Update
https://aspe.hhs.gov/sites/default/files/documents/59cefdd628581b48b2e389891a675af0/napa-national-plan-2022-update.pdf The 2022 Update includes several notable recent actions to address disparities in ADRD care. Earlier this year, the Indian Health Service (IHS) established the Alzheimer’s Grant Program, a first-of-its…
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A Little Panic
Friends: I have just had a little moment of panic. Hubs (MCI) has been doing alright, as long as I can live with susbstantial forgetfulness (sometimes drives me up the proverbial wall). We had a delightful Xmas lunch with former work colleagues and he was very much a sensible participant in the conversation. This evening…
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Hallmark Dementia/Alz movie
I recently watched a Hallmark movie( Italian memories) or something like that. It showed how a person with Dementia can seem fine one moment and greatly confused the next moment. It also showed the importance of the primary caregivers need for respite and differing family dynamics about what’s important for person with…
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Jolly Christmas?
Sitting in an airport bar awaiting my flight to spend Christmas with “our” daughter and her family. I’ve always loved being with our kids and young grandchildren during the holidays, but leaving him behind feels so sad and wrong. Not to go feels like our kids have lost us both. I wonder if next year I stayed back with him…
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I think she is sensing the separation
My DW wakes up every morning, crying, pleading with me not to leave her or as she said "Promise you won't put me somewhere", "Promise you won't leave me" all morning for the first hour. I've never mentioned placing her in MC at some point so I don't know if she's sensing something and having moment's of semi-clarity, or…
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What’s in that Emergency Clean-up Kit, again?
Preface is that I am recuperating from a pre-Christmas gift of respiratory virus bequeathed me by our lovely great-grands who are school age and for whom I provide school transport while mom recovers from a broken driving leg. Thank you, darlings, Nana loves you very much, too. Second is that Pop-pop now has said virus as…
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Happy Holiday
KWANZAA...ROHATSIS...HANUKKAH...CHRISTMAS...ASHURA..YALDA...JUUL...NEW YEAR...TWELFTH NIGHT AND FESTIVUS FOR THE REST OF US!
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I bought DW a wheel chair today
The myoclonus (jerking) is so bad she cant walk even with an aide holding her arm. So she will have a transport wheelchair She is a fall risk and I don't want her in pain from a broken bone Her eyes don't move to track objects. Her brain is slowly shutting down. 50 years ago I asked the wonderful girl i ever met to marry…
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I hate the question Are you married?
It seems like such a simple question. I've been asked this several times in the past month or so. First, when shopping for new car insurance. Yes, I'm technically married. He's in a nursing home. So no, I probably don't want to include him as a driver. Second, when having to fill out yearly paperwork at my job with the rep…
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Overthinking?
Am I overthinking this, or is he overthinking this? As you may know, my DH was recently told he has VD. Over the past 2 weeks, he has been saying things that I think may be paranoia, or maybe he's just saying what he thinks. He has a childhood friend, and the relationship has been awkward over the past few years for…
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Monday chuckle
DH and I just watched Tim Conway’s sketch on the Carol Burnett Show about Siamese elephants! Boy did we need that! Look it up it just might give you a chuckle!
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Different Ways That Dementia Presents article
I saw an article or YouTube about the different ways that dementia can present - memory loss, personality changes, executive function loss based on the type of dementia. I'm not sure if it was Teepa Snow or Dr. Natali with Dementia Careblazers (or some other source). Do any of you happen to know of this or a similar…
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Suggestions heating bills high hubby cold
Our heating bills were off the chart last winter spending between $600 - $800 a month. I’ve been very diligent about keeping the thermostat lower and wearing an extra sweater. My DH has always been cold even in the summer! He wears several layers: a T shirt, long sleeved shirt, sweater, hooded sweatshirt and a fleece…
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Way off topic - Hachi - a dog's tale
I watched TV more tonight than I have in years, unless there was a ball game on. I watched the movie on Netflix "Hachi - a dog's tale". It is about a dog whose master died suddenly. The dog waited for his master to get off the train, like he did every day when the master would go to work. The dog waited for him to get off…
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Need help with the car issue
Hello, my DH is in denial about his illness and thinks he can drive. Although he hasn't, in months. Honestly, I don't think he really wants to, but hangs on to his dignity by insisting he can. I'll get into my car first. Or, he'll say, "I don't know how to get there" and I tell him I do and will drive. We've disabled his…