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Moving experiences?
Have any of you moved with your DW/DH? I am interested in hearing from others how a move went. We are considering a move to a continuing care community that would allow DW and me to live independently as long as possible but then for her to move to memory care and nursing care when the time for each comes. I believe this…
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Reaching the End
My DW of 42 years passed Monday from EO. She just forgot how to swallow she had been bed bound for a few months and she was so confused about everything. She passed with her children and husband at her side at home. While the journey was sometimes hard she was still happy until the last few weeks. Gone too soon, yes but…
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jerry's story
He was born in 1946 in Pennsylvania to a polish mother and and an Italian father. He had a big sister Darlene and many aunts, uncles and cousins.Thjey moved to California (Reseda) around 56 and lived an all american suburban lifestyle. He wasn't great in school because no one realized he had terrible vision.It led him to…
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One day of the life of a caregiver
As usual DH was wet this morning. To the bathroom to change clothes. Bathroom has to be 75 degrees or warmer to keep him calm. Sweating by the time I undress him. Finished the shower. Got him dressed, sometimes he is like an octopus to dress arms and legs moving every where but where they need to go. Kitchen table for…
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Doctor, Dentist, and Bank...Oh My!
In The last two weeks, DH has had a dermatology appointment, a dental emergency, and we needed to go to the bank yesterday. DH dislikes doctors and taking him for an appointment is always stressful. From the moment we arrived at the dermatologist's office he complained loudly...Is there a doctor here? If they're so busy,…
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In case your interested.
I don't recall anyone talking about it, but I may be wrong. There is a magazine called Alzheimers Today, comes out 4 times a year and it's free. Has some good articles. Alzheimer's Foundation of America | Alzheimer’s TODAY Magazine https://alzfdn.org/media-center/alzheimerstoday
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Top caregiver tips
Here is a video of really good tips. Watch it all the way through, so you don't miss anything. There are links to the full videos if you scroll down below the video. This is worth watching. There are a few ads that you can skip. https://www.youtube.com/watch?v=Mcei7IGu6xQ&feature=youtu.be
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when I have a bad reaction, DH has a more intense bad reaction
I should know better by now. In science I learned that for every action, there is an equal and opposite reaction. In our home there seems to be the law of caregiving that when I react badly to DH, he has a more intense and more stubborn bad reaction to me. DH has severely painful hemorrhoids. He has been a grouch. It has…
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How do you determine when a pain or discomfort is real
My DH has been hyper sensitive to any discomfort He has never been like this and has had cardiac pain and DPT in his legs causing great pain in the past. He told me he had chest pains so I took him to ER. When getting there he starts singing and totally jovial as they check him in and denied chest pain. EKG fine Last night…
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A copied post from Polyanna_4good
new to the forum and absolutely lost. Mom with dementia and very violent-has stabbed people with scissors, beat my father with Parkinson’s with a brass headed cane leaving him In the Hospital and still her caregiver will not provider orders for memory care. I feel this is so irresponsible-but she says it is up to my mother…
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Failed the “dry January” test
Hello all, New Year’s resolution was to stop my nightly wine consumption. I’ve failed miserably. DH is fairly stable and I am learning to deal with his repeated questions and toilet duties. Kudos to the poop club! Guess I’m feeling down about what’s going on in our country. At any rate, my mind set is to live for today and…
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another new issue...size really does seem to matter
I encountered my first issue where my smaller stature and my DH larger stature really hit home. I can no longer control DH, the paranoid delusions have really taken hold the last two days. What he thinks he is capable of doing and what he can actually do are so different, added by the fact that he thinks we are stealing…
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Tremors(1)
I am new to this forum. Has anyone experienced hand and arm tremors with late stage dementia?
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Referred to hospice
I took my husband to our doctor on Tuesday. He was wonderful. He took his time with us asking we questions to see where he was in this horrible journey. He also observed him for a while. He feels that he is in late stage Lewy Body Dementia with signs of Parkinson’s. After his evaluation he said he wanted to do a referral…
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MoCA Test Score and Stages
My husband scored a 2/30 on the MoCA test last August. I estimate he is late Stage 5. I can leave him alone for a couple of hours, at most. He is unable to cook, shop, pay bills, make a phone call, 50/50 on TV remote, short-term memory is about 30 seconds. Just wondering how your loved ones' scores matched up to stages.
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Palliative Care experiences?
I took my DH to a neurologist in our new geography. When he learned he didn’t have a GP, he referred “us” to palliative care. Kind of hospice “lite.” The brochure makes it sound awesome: a practice that focuses on person-centered care, including medical, social, spiritual, and the care partner. Any experiences or tips…
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Medical expense exclusion stays at 7.5%
The deduction floor has been 7.5 percent since 2017, a rule recently made permanent by the signing of the Consolidated Appropriations Act 2021 on December 27, 2020. https://www.forbes.com/sites/ashleaebeling/2020/12/22/medical-expense-deduction-tax-relief-is-big-win-for-seniors-in-year-end-spending-bill/?sh=57a907081b4d…
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I have no patience!
Lately I am not very patient with DH. He is still able to do things for himself but I am just tired! Tired of making breakfast, lunch and dinner, paying the bills, cleaning the house, laundry, picking up the mess that he makes, doing things he needs now, and tired of this pandemic! Just plain tired! Being tired and…
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New to forum(3)
For the past 4 months I have been reading all the posts and have finally got the nerve to join. My husband was diagnosed with AD in 2015. I must admit I thought there would be a cure in the near future. Our neurologist was on the "cutting edge" of a cure...a scientist besides being a great neurologist. We were able to do…
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Believing things that aren’t real
My DH will make up stories and be angry when I tell him no. For example, thinks we have more than one dog,or that he drove a car to the store when he clearly was with me driving he then says we must go get his car and why did I leave it. Today he walked out of a store and out on the sidewalk before I caught up with him. He…
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Escaping today's struggles
PBS recently aired "The best of 50s Pop", and I recorded it. We're now in the middle of watching it again. My wife is enjoying watching it, and it gets our minds off caregiving duties and the political state of our country. So get on youtube or get another source for music that will take you back in time. It's a great way…
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Dad is primary caregiver, but she loves and hates him
Earlier this month, I had posted about my mom's angry stage, and thanks to all of your suggestions, we were able to increase Seroquel. She takes 1 pill, 25mg, at night. It seems to be working, or at least has taken some of the anger off. She now is paranoid and consumed with the cell phone (she thinks dad is having an…
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Power of Attorney(2)
We had POA drawn up years ago for both me and my husband. I have POA for my him. He has ALZ but is still able to do a lot and is able to make some decisions. May take a lot of explaining before he makes the decision but he is still included! He is having a really hard time signing his name. How does POA work? Can I sign…
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Best predictor of Covid-19 severity - Dr. Mike Hansen(1)
Board certified pulmonologist, intensive care specialist, internal medicine physician with a YouTube channel https://www.youtube.com/watch?v=3s5UovlwpcA&list=WL&index=3
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COVID positive
I posted on 16th that DH and I got tested. Saturday I was called and told we were both positive. I was offered The transfusion of antibodies and said yes for both of us. I was so very sick but the only 1 of us that can drive bundled us both up and drove 15 miles to hospital er. We both received transfusion side by side. 1…
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Just assessed for hospice. Year 21 from symptoms beginning. FTD.
I haven't posted in a long time, but thought I would share that today we had our hospice assessment and we were able to get approved. A great burden has been lifted. We have chosen since the beginning to keep him at home if I could provide the best care. So far, it has gone pretty well I'd say. We are getting close and he…
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Simple, sweet, helpful book
My LOWD really connected with The Boy, the mole, the fox and the Horse by Charles Mackesy. I absolutely love it. You might find it inspirational and comforting as well.
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close to the end
We are nearly at the end now. Jerry is finally sleeping a lot and mostly bedridden. I was hoping to keep him as peaceful and pain free as possible. Its my bad for not giving him enough drugs at the correct dosage he NEEDS. this week has been torture for both of us because of my hang up about overdosing him. Its been gut…
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Talking to mirrors
Greetings! This is my first post. My DH is 62 and in stage 6 of EOAD. For the last several months he has been talking to mirrors and to his reflection in anything he can see it in, even car windows. Its pretty funny sometimes, he and his reflection seem to be best buddies and even joke around together frequently. Other…
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Spoon theory
Warm greetings. This is my first post. My LO is not yet diagnosed and will resist it. I read an article about spoons representing energy to be spent in a day. I’m trying it myself to see if it catches on. Does anyone else have any experience with using spoons to deal with routine or fatigue? Thank you, kind people.