-
I don’t know day to day
Some days I maintain hope things will stabilize and we will be able to continue our unsettled but no small life. And then the next day I feel as if I will barely survive the day the constant need of reassurance or trying to communicate with what equates to an eight-year-old I even forget myself that my discussions with her…
-
Sudden changes
My DH was diagnosed with Moderate Major Neurocognitive Decline due to possible AD in December of last year. Outside of the short term memory issue, he's been relatively under control. The last few weeks he's shown dramatic downturns; nightly panic attacks, auditory hallucinations, near psychotic episodes during night…
-
noticeable changes after the Moderna Vaccine
DH and I had our 2nd Moderna vaccine yesterday morning. Today, I feel fluish and fatigued. This is in line with the literature I reviewed prior to the vaccine. DH is off balance, confused and his tremors are noticeably more pronounced. In addition, DH is having hallucinations which is a completely new behavior for him.…
-
Losing my best friend and afraid
My husband has not been diagnosed but is having symptoms of memory loss, confusion, rage, and intense paranoia. He has limited insight and believes I am his enemy most of the time. He has made physical, financial, and divorce threats. He is a moving target, and other times he is rational and apologetic. He was a Division 1…
-
An update from WL
Last February I brought my DW home from memory care as I discussed here. I just feel led to give you an update on the outcome of that decision in hopes it might help others making this difficult choice. When she first came home there was some confusion on her part but she soon settled in as if she had never left and she…
-
Please let me know?
Please let me know if I am adding to much information to this site. I do a lot of reading and these are things I feel are import to share here. That is only bout a 5th of what I read. If it to much please let me know. Thanks
-
Moving(1)
I am new to this site and it is usually not in my nature to seek out help as I am a strong person who handles it all but I really need at this time some direction and advise from people who have done this before me. My DH was diagnosed 4 years ago with CBD (corticobasal degeneration). At the beginning of the pandemic I was…
-
Come on Pfizer and Moderna
Why don't we still know the number of people at risk for clotting from the coronavirus vaccines and why don't we know who is at risk for these adverse side effects. Here is part of the answer: Pfizer and Moderna executives declined the offer [from Johnson and Johnson to investigate clotting events], saying their vaccines…
-
On a leash
Sorry for the short rant but today is one of the days I feel like I am on a leash I can’t be more than 5 feet away before the frantic paging starts trying to get the weekend started with the upkeep of catching up the laundry that includes items that have been missed placed not sure whether they have been used or not so we…
-
What legal documents are needed
A couple of weeks ago someone mentioned in the middle of a thread that you need 5 legal documents. I have 3 (DPOA, will, living will) and wondering what the other 2 are. Getting ready to have the talk about getting affairs in order with DH and need to be specific with him because of his paranoia. Can anyone recall what the…
-
The National Alliance for Caregiving Calls on White House to Prioritize Family Caregivers When Devel
https://finance.yahoo.com/news/national-alliance-caregiving-calls-white-120000644.html
-
feeling the chronic stress
Really reacting this week to the grinding, one-sided nature of our interactions. There is much that needs doing around here, but my energy is zilch. It takes everything I've got just to keep us in the road. This morning it was merely taking the dog to the groomer, and I'm already exhausted by the time we get back just…
-
Any advice about managing catastrophic reactions?
At least I recognize this for what it is, but I'm not sure what to do about it. Triggered yesterday by yet another confrontation about driving. Got pretty heated. The adrenaline helps her focus, so I got pretty detailed about why she shouldn't, including that it's in her medical record. The risk of getting sued, the risk…
-
Caretaker Yes or No
My DW is late mid stage with a high stroke risk due to CAA in addition to VD. She is active physically and can fool people quite well on her good days ( sometimes even me ). I have used care-helpers at different times over the last 10 months. The most recent issues have come in the mornings before I leave for work @ 6:00…
-
Just need to talk to my friends (146)
Hi, Thought I'd go ahead and get started with an empty cottonsack tonight. Guess I'll never forget how that felt. Those of you who are new to our thread may not know what I mean by that - when I was growing up we picked cotton or pulled bolls. We put it in a long cotton sack with a green cotton boll tied in one corner at…
-
Mask Dilemma
DW refuses to wear a mask. In our state she doesn't need one if she's fully vaccinated. In order to enter the place for vaccination she has to wear a mask. Go figure.
-
Husband had panic attack, I think
I originally posted this a couple of days ago, mostly to vent, but I guess I was also hoping someone would comment on it., I may have put it in the wrong place. I think my DH had a panic attack. We were watching the met game. I watched it with him for a while, but then decided I wanted to go and watch something I liked. I…
-
Luxury Nursing home for French people in Tunisia
A friend who visited my partner during his respite stay him suggested me to have a look at the nursing home that opened in Tunisia for French people. She head about it in a TV show. Even if it is in French, you can have a look. https://www.carthagea.fr/ Due to terrorism, Tunisian tourism has declined a lot. So they have…
-
Elder Abuse in People Living with Dementia: Considerations for Prevention, Detection and Interventio
On June 23, 2021 from 2-3 p.m. ET, please join the National Alzheimer’s and Dementia Resource Center for the webinar, Elder Abuse in People Living with Dementia: Considerations for Prevention, Detection and Intervention. A description of the webinar and registration information follows. Elder mistreatment is a common…
-
Cozaar (Losartan Potassium)
My husband was just put on Losartan Potassium for high blood pressure. He was diagnosed last year with MCI. (My feeling is that it was a result of his high blood pressure — that he has had for years.) I did some research on Losartan and saw where studies have shown it to improve or reverse dementia. Has any of your loved…
-
Back from the 19-day respite stay
Monday was the checkout of my partner’s respite stay in a memory care. Reminder : the first days he called me in the night complaining because the place was very sad. To everyone visiting him he told that I hadn’t told him I will let him there (we visited together, consulted a psychologist twice on this topic). He was…
-
My DH thinks there are four of me living in our home.
DH is convinced there is a group of us (his wife and her imposters) living in our house. Do any of you have a partner/spouse/LO who suffers from "imposter syndrome" or Capgras Syndrome? I am new to the world of dementia/Alzheimer's. I don't even know if what my DH has is dementia or Alzheimer's. What I do know is that my…
-
VENT: This is NOT a 24 hour diner
This is a very petty vent. I am over-reacting I know. My annoyance is real and I am going to feel it, until I am done feeling it. DH is up at 4:30 am. I get up at 5 and make him coffee. He wants his meds and I oblige. I make him oatmeal at 7 am. I fancy it up with cinnamon and cranberries. At 10:30 am he is hungry again. I…
-
betrayal?
My wife of 41 years, Wanda, is in stage 6 ALZ. All of you know what this is like. In addition to the heartrending decisions involved, we know about the incontinence, the wandering, the stubbornness, the devastating silence from one who can no longer speak in complete sentences, the ache from watching a once vital person…
-
New Evaluation Guide for DFA Communities
Dementia Friendly America is pleased to share the newly released Dementia-Friendly Community Evaluation Guide. The Evaluation Guide, developed with funding from AARP, is geared toward local dementia-friendly community leaders and partners to help evaluate the impact of their DFA efforts. Measuring common outcomes of…
-
Tiny losses
Every day now there are tiny losses in my DH's memory. Yesterday we went to our favorite restaurant with our son, for Mother's Day. My DH ordered, and when the food came DH slid his order toward our son. "This is your order, Dad." "It is?" And he accepted it, and we went on. I also notice that when he enters the…
-
A most difficult day
DH will soon be 91 and I am 81. He is moderate stage Alzheimer's and was diagnosed 5 yrs ago. 3 yrs ago had brain surgery for subdural hematomas. ( 24 Holes in his head for brain bleeds ) He has no short term memory. He had surgery today for basal cell cancer on his nose. That appt including travel was close to 6 hrs.When…
-
He is gone(1)
My husband died February 1st. It’s been so hard. I miss him. I miss my vibrant, intelligent, beautiful sweet husband. I can’t believe he’s gone. I wanted to say how helpful this site has been for me. Thank you all for sharing your hearts on this forum. In January, hospice advised me to keep my husband in bed, as he was…
-
Scarey new behavior
DH has started leaving the house when he gets upset or angry about something. It started on Easter Sunday when I said something that upset him and he got up and walked out the front door. I wrote about that in another post. When I caught up to him, he was about to cross a busy street. It took forty five minutes to get him…
-
Perplexed
We are in year four of this dementia and I remain confused about the changes in DW behavior. The original diagnosis was MCI of the Alzheimer's type. It was done by a PP and a psychologist. This is about as much dx we are going to get for one , my DW doesn't feel that there is any problem. I too have taken over many of the…