-
Good news (for me and DH, anyway)
Just returned from getting Moderna #1 COVID shot. My SIL is on the hospital board and was able to request that we be placed on the “drop everything and get here NOW extra vaccine” list. (We had been waiting for an e-mail from our medical portal to schedule; I was thinking it would be well into Spring/Summer before we’d get…
-
Nytimes says Dementia patients twice as likely to catch cpvid
https://www.nytimes.com/2021/02/09/health/covid-dementia-risk.html?referringSource=articleShare They are also more likely to be hospitalized and die from COVID too.
-
Seems to be huge changes this week?
HHas anyone noted increase loss of function in a week? DH has Alzheimers and in this last week has lost his ability to find or recogniize things? Cannot find rooms in house, or recognize what is a tub or toilet are? I know these are expected changes but seem to come on all of a sudden in last 5-7 days. He doesnt understand…
-
considering MC for DH
My husband was diagnosed officially 5 years ago and is currently in late stage 6. He is 75 and am 65. He doesn't know who I am but I think he realizes I am someone he can trust most of the time. The day to day care is very stressful at this point. He is incontinent with urination and is having an increase of BM accidents.…
-
A problem with light and switch
Every night now, I note that my partner sleep with the light on. Sometimes it is on when he goes to bed and he let it all the night. Sometimes it is because He goes to the toilets and doesn’t turn it off when coming back. In the toilets, light is also on... no matter (Even if difficult for me, I stopped caring about…
-
My dear Valentine...one year later
Hello all and best wishes on this day! One year ago today Tom walked into heaven. My daughter, son , and myself are still recovering, but adjusting well in our individual ways. As a spouse, I want to tell you that life is truly possible on the other side. Not easy. I will never fill that empty hole. I am learning to cope…
-
A valentine to DW
Valentine Dawn Feb 14 2021 You don’t know me Or why I call Your blue eyes stare As at a wall But I know you My blue eyed girl. My heart can leap Emotions swirl. You were my princess Long ago In summer heat and winter snow. We swam with sharks And walked with bears We skied down hills Without a care We loved and laughed…
-
Just Beginning the Journey
I am new here, and my husband is in the early stages, it has been progressing for about 2 years and seems the last few months is progressing faster. I am 13 years younger than my husband, he is 80, I work full time and I fear I am not being a good wife because I feel my life will be over taking care of him. I don't have…
-
Masks - choosing them
* I have spent so much money on masks! Trying to find ones that are safe and comfortable! I have N95s - not comfortable, but safe. I have cloth ones with filters but they are only 2 layers. I have what are probably counterfeit KN95s - very thin. And I really dislike the ear loops as they often come off my ears! There are…
-
Inpatient evaluation
After suffering through almost daily rages, one so horrific I had to call 911, trying different meds, and different dosages, and having to call 911 again this morning, I had EMS take my DW to the hospital for an inpatient evaluation. After spending hours waiting to see the doctor, blood and urine tests, chest x-ray, ekg,…
-
With Peewee decline I am going to be forced into early retirement.
I just don't see any other way around it. So here's my plan. In April I am going to tell the social security office of my intent to retire I will be 62 in July. I just can't work and pay someone else to come in my home and watch my Peewee. I had these people living in an old mobile home in my back yard. They were helping…
-
God saw you getting tired
My bride of 58 years, still beautiful and loving stopped eating today. She is tired, frustrated, says she is "Sorry for being like she is and wants to go home". We will let go now as this poem indicates. She is so peaceful in her sleep. When she wakes she'll have ice cream. Her comfort food for enjoyment and relaxing. I…
-
Guilt for enjoying a break
My husband, with Lewy Body Dementia, had an episode of cardiac syncope. Taken to e.r. Cardiac enzymes slightly elevated so kept him overnight for observation. Because of Covid I was unable to visit him. I feel so bad, but it was so wonderful to have the next day to myself, at least until discharge at 2:30. I even stopped…
-
Living in the Eternal Present
Yesterday, I took DW to a new primary care physician. The doctor’s practice includes caring for many dementia patients and, when the time comes that DW has greater mobility issues, the doc will make home visits. She is also part of the local community hospital’s palliative care practice. Anticipating the future, I want the…
-
So lonely and exhausted
Hi all, My heart goes out to everyone here. My husband has dementia and I am caring for him. I suppose he is stage 5. We have no children or family near by. I have a serious illness myself, but I used to have a lot of great friends who have passed over the last few years because they were ill also... and not youngsters. I…
-
please share your thoughts
My LO seems to be wavering between stage 4 and 5 Clearly has signs of stage 5 but not there totally. I have a high pressured health care job that requires at least 10 hours a day consistently that I have never felt was really the right fit for me and do not love. (There was a merger and I actually got a promotion but never…
-
Dementia progress
DH dementia progress. I've never bothered with what stage he is in. I know it is a little different with AD. I am lucky to have training and work with dementia persons in my career. Sometimes it has helped me; like he will often say he is not hungry but will eat if I put food in front of him. Today I remember something…
-
Just need to talk to my friends (139)
Morning, Guess it's time to start another part of the thread - seems like it's getting hard to get on, at least for me. Zetta, yes, Chester was the one with the limp. He was the first side-kick of Matt Dillon. I don't think he was a Deputy like Festus. The majority of the shows I'm seeing now have Chester in them. I like…
-
Legal and Financial Help
My DH is rapidly going downhill with ALZ. He is young and still working. I am in a terrible position trying to juggle his benefits and legal situation. Fortunately his employer has offered and we have enrolled in Long term disability and LTC benefits. However the LTC benefits are just basic and will not cover the expense…
-
new on here , looking for advice
I'm new to this forum and I'm looking for phrases and words I can use with my DW with early stage Alzheimers. We seem to get into most of our arguments when I asked questions and I think I'm beginning to learn that I need to quit asking so many questions and start giving her choices and options. And I think I'm starting to…
-
Resentful and bitter at times
I am going to be perfectly honest. My husband who is prob in late stage 6 or early stage 7 dementia was not always the best husband. He was very narcissistic and did cheat on me during our marriage. I hung in there because if I left him he would have no one. He did not have a good relationship with his family. He and his…
-
M1, Marta, Any Other MD or NP, Etc. Need Expertise
Hello and thank you if you know the answer to this off-topic question: I am scheduled to receive my first COVID vaccination on Monday. I know not to take Ibuprofen or Tylenol prior to being vaccinated as they can lessen the robustness of the vaccine effect, and I am good with that. BUT: I am on Bactrim for an infection I…
-
I think Peewee is at the stage where he no longer wants to.
Change clothes or take showers, and can't tell when it's to cold for a light jacket. If I say something to him about he needs to shower he says he just had a shower yesterday. He has not taken one for over a month now. If I tell him to change his clothes he will put on a pair of shorts. He wears the same light jacket day…
-
Dementia and Covid risk
People with dementia had significantly greater risk of contracting the coronavirus, and they were much more likely to be hospitalized and die from it, than people without dementia, a new study of millions of medical records in the United States has found. Their risk could not be entirely explained by characteristics…
-
She's gone(1)
Its bittersweet she is no longer locked in a shell of herself but my DW of 40 years passed away today. She died at home and I was holding her hand so I am thankful for that. Reading this forum helped me get through some tough times and I thank you all. for those of you still weathering this storm may god bless you and keep…
-
How long between showers
My possibly stage 4-5 LO will not shower. I began keeping track and now we are almost at 2 weeks. This discussion has helped so much with ways to lead my LO where we have to go but how do i force her to shower. Maybe i just need to relax
-
Sudden Behavior Change
My husband and I have been caring for his mother full-time (all living together) for a year now. In the last week or so I've noticed a decline in her behavior. The sundowning starts earlier in the day and almost without any warning. She askes lots more questions, and when she doesn't like the answer, she'll ask more…
-
New here and living Groundhogs day.
I am new to ALZ Connected but not to living with it. It is hard to put into words what this lousy disease has done. My DH was diagnosed with EOAD in 2017 after doctoring for many years and not understanding different things that were going on. He was 62 when he was diagnosed. I think he should have been diagnosed in 2014.…
-
Good meditation/sleep app?
I'm asking for myself. Chronic insomnia is my curse and I'm wondering if anyone has experience with an app you like? I've done white noise machines of various sorts in the past but am ready to try something different. Thanks for any suggestions-
-
Restraining order on my severe cognitively impaired husband
My husband’s memory care facility threw him under the bus, I believe, in order to evict him. I was in the process of asking for a hearing to overturn their thirty day eviction notice. They allowed his friend to spend nights in his single twin room without adequate oversight. They concocted a scenario, violated his HIPPA,…