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Mixed emotions(1)
My husband’s mom has Alzheimer’s. She has been declining over the years and here recently she has been declining quickly. I love her and I love my husband.The problem is that we have been married for less than 2 years; so in a lot of ways we are still newly weds. Last year was challenging because we had to deal with Covid…
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VENT: some days DH is so particular
I prepare all of DH's meals. I have learned not to get exotic. I keep it simple. I am limited by my remedial cooking skills. When I come across something he likes, I include it in the rotation. When I make something he does not prefer, I remove it from the rotation. Sometimes he makes requests such as more vegetables or…
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More cognitive loss, Alas
My DH no longer knows how many brothers and sisters his father and mother had or their names. He no longer remembers how many children HIS OWN brother and sisters had, nor all their names. DH also doesn't remember which of his siblings had cancer or what kind of cancer. My DH is enrolling in a Genetic Counseling program…
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learning from stage 8
I now know that I can choose how to grieve . That doesn't mean that I"m not lonely each day when I realize he's gone. I cry each morning and say out loud, I"m sorry you had to go through that but honestly I"m glad you're gone. You're ok now. Then I think of you Lady Texan, and remember to feel grateful, you've always been…
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small safety suggestion
My laundry is upstairs, I find it impossible to carry an ordinary laundry basket safely. So I invested in a couple of tall semi rigid laundry hampers. One hand on the rail and one on the hamper and it is rigid enough to act as a sort of cane. Plus it is always on my side so it does not affect my balance All my stairs have…
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J&J vaccine
J&J vaccine is being investigated regarding blood clot complications in a small number of recipients. There is a condition called antiphospholipid syndrome aka Hughes Syndrome, that causes mini clots and spontaneous miscarriages. It is very rare. I have this condition. My hypothesis is that some women with this…
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abc123
Finally found it! Our daughter couldn't remember where she got them from, but she checked her Amazon account, and it was not ordered from there. So, since she had my debit card, I went back through my bank records, and found one from protectivebedding.com. I'm reasonably sure this is where she got it. Here's the link, and…
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Does this Happen
Sunday April 10th DH and I celebrated our 45th anniversary. I struggled for the last week worrying about getting through it. It went better than I thought. We looked at our wedding pictures together. I brought cupcakes and ice cream and decaf coffee. I set it up for DH and I talked to him about it being our anniversary. He…
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Can it progress this fast?
My husband was diagnosed less than three months ago with Alzheimer’s. His symptoms are primarily hallucinations. He sees people in our house, he sees two of me, he talks to me in the 3rd person, she did this and she did that. (She is me.). He’s asked me who I am? How long we’ve been married? Who lives in this house? Are we…
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Happy Mother’s Day
The big day finally came—two weeks after our second Covid vaccination. Yes, we finally got out to, you guessed it, WalMart. We went in by the same door we had always gone in only to be turned away because it is now an EXIT ONLY. Off we go on our motorized carts to find new slippers for DH. Not much selection this time of…
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What size bed?
Im curious as to how many people here who are dealing with incontinence still sleep in a king size bed? I'm hoping Dad will switch to a queen size. Mom is getting worse. We are using a waterproof mattress protector and pee pads, then a fitted sheet and flat sheet. Any suggestions on bedding, etc. are welcomed.
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Husband is getting urine on the floor around the toilet
Lately my husband gets urine all over the floor beside, in front of and around the toilet. This upsets my stepson (his middle-aged son) because he always cleans it up. My therapist tells me that any negative reaction to this "accident" will only make things worse and upset my DH. He isn't incontinent yet, but I assume this…
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First real MC visit in a year
I had my first real MC visit in a year yesterday. She was clean and properly dressed. I brought in lunch for her. I fed her alone in the activity room. Her physical shape is excellent. She can walk, chew a fish sandwich if it is put in her mouth, swallow, drink with a straw and drink from a cup you hold to her mouth. She…
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Looking for hope
But not the kind you might think. When I first started reading posts on this forum I would do searches to try to find anything that would indicate that DH, early stage 7, was nearing the end of his journey. Unlike many on this forum I look forward to the day when I am alone / have my freedom. It might sound unkind and I’m…
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Husband very agitated,critical,and makes false accusations
I am looking for suggestions on how to deal with this. My husband has become very agitated. He becomes irate when driving or going to the store and many times even watching TV. He also is very critical of me. He used to be very supportive and kind and encouraging. Now he is critical and accuses me of doing things like…
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Mirtazapine
Anyone have experience with Mirtazapine for stimulating appetite in an elderly LBD patient? My DH was just prescribed 7.5 MG for the first time, it was given to him last night, and he has slept all day today! He’s much more wiped out than the usual tiredness and only sat up and ate a vanilla shake...then went right back to…
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Off topic - a funny baseball story
https://www.mlb.com/news/catcher-uses-potato-in-baseball-game?tffbeat
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Comparing some Alzheimer's treament numbers
Most of these trials lacked a placebo although some had a comparator (such as low dose or compared to acetylcholinesterase treatment). Most of these trials were for early Alzheimer's disesae (the Chinese herb study also included a moderate Alzheimer's group). Some of the numbers were taken off of charts so they are not…
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Is it time for 911?
Can anyone enlighten me on what the protocol is when calling 911 because DH is out of hand? He’s not violent but he’s so extremely agitated that he’s in my face repeating things loudly for long periods of time and I can’t take it any longer.
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First day of Stage 8
DH passed at 1pm today. I brought him home from MC at the end of January (with a live-in carer), and feel very lucky to have spent the last nine weeks with him. I'm hoping that a brain autopsy will reveal what caused the neurodegenerative issues (starting with seizures) that led to dementia, so that future patients may…
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what we have been working on in Oklahoma
http://webserver1.lsb.state.ok.us/cf_pdf/2021-22 ENGR/hB/HB1794 ENGR.PDF
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Important new Science
An important new study from the Karolinska Institute in Sweden shows demonstrated clear (albeit small) favorable long term effects from three common Alzheimer's medications galantamine, donepezil and rivastigmine. It is published online in Neurology, the top Journal in the world for this type of research Neurology Publish…
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My parents are Silent Generation and don’t talk to me
My folks are too old to be Baby Boomers, and they will NOT talk about dementia stuff. It’s very difficult to be trying to get diagnoses, medications, and manage symptoms when they close down. Does anyone have any suggestions? I don’t want to make anyone anxious, I want to be able to be a better advocate for them. Thanks
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New Approaches to Long-Term Care Access for Middle-Income Households
Today, Milken Institute released, "New Approaches to Long-Term Care Access for Middle-Income Households," outlining how the public and private sectors can expand LTC access for middle-income Americans. https://bit.ly/3mq9LXZ
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Did she actually say that?
My wife absolutely knows that we have two dogs (or one dog and one cat). Of course we don't. Since she always wants to see the "other dog", I just tell her we only have one. Yesterday we were by the patio doors that lead to the back yard. Our dog, Gracie, was in the yard. My wife saw her and asked where the other dog was.…
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45th Wedding anniversary
On Saturday April 10th we will be married 45 years. I was 19 and DH was 21 when we were married. So now I am 64 and he is 66. I plan on spending as much of the day with him as I can. He is in early stage 7. He doesn't walk, talk or help with any ADL's. I was hoping to have a picnic with him outside of the MC facility. It…
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Better Brain Health through Equity: Addressing Health and Economic Disparities in Dementia for Afric
1. As our country ages and diversifies, we must support and promote healthy longevity and health equity. A new @MilkenInstitute report recommends 5 ways to build better brain health and reduce disparities: https://bit.ly/2PaKTHF 2. We have the power to advance and support equity in dementia care by delivering collaborative…
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Jack Hanna Diagnosed With Dementia
The very sweet and kindly Jack Hanna has been diagnosed with dementia: https://www.nytimes.com/2021/04/08/us/jack-hanna-dementia.html J.
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Need someone who is or was in the medical field.
I need to connect with someone privately who is or was in the medical field. I have information that I believe can help many here if I put it in the right hands but I need the person needs to be able to share bits and piece of what I have learned. I would prefer JoeC. But she always turns me down so anyone who really wants…
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Lewy Body Dementia(1)
For any spouses who are caring for Lewy patients or Parkinson's Dementia, please check out the online forum https://groups.io/g/LBDCaringSpouses