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Safety Suggestions if a PWD Is aggressive
This post includes several lessons I learned regarding safety. Please don't wait for a crisis to implement safety practices. After DH was diagnosed, he became aggressive, threatening and verbally abusive on more than one occasion. It was very scary; I was shocked the first time it happened and probably didn't think very…
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Is this dementia ?
My senior husband who has been having memory issues lately has been putting the ice cream in the fridge instead of the freezer. Ice cream is all melted! Any one else’s loved one doing this? How annoying!
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End Stage - Rapid Decline - Early Onset
Just wanted to "talk" to others and provide an update for others out there wondering how it looks as things progress. I feel like there is not a lot of information specific to disease progression for early onset. At Christmas, my 56 year old DH was able to go out to dinner and feed himself. Today he is at home on hospice,…
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Oklahoma bill passed
“Residents in our long-term or assisted-living facilities are too often prescribed antipsychotic drugs with sometimes devastating effects,” West said. “This law will protect these residents by helping to better monitor for adverse effects and ensuring the families of residents remain fully informed of the treatments being…
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Yesterday was almost too much to cope with.
The day was over the top. It’s the next day and I still feel shellshocked. The electrician got here at 9:30 to fix the light in the upstairs bathroom. DH treated him with disdain and later griped at him for dragging mud into of the house and getting it on the carpet and on the bathroom floor. There was no mud on the carpet…
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Fair pay for family member?
It's possible I might have to go in for surgery, although that still is to be determined. We have a family member who might be interested in staying at out house with my wife if I need her to. We have not approached her yet, but I was wondering what you thought would be fair compensation. It will be 24 hours per day, but…
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Just need to talk to my friends (144)
.Morning, Was a bit late in starting a new part of our thread - we got up over 7,000 readings. We are a talkative bunch and I so enjoy learning about what everyone's doing. Iris - we have one water tank in the corral, near the barn and two in the what used to be a garden, south of the house, near where we feed the girls…
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What DH can do to help caregiver in an emergency
A benefit of COVID has been that my adult daughter has been able to work remotely and has been living with us since last August to help with her Dad, my DH, and also to stay away from a not-so-COVID safe roommate so doesn't accidentally transmit something to us. She will be transitioning back to her apartment and be with…
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DW in Memory Care
As some of you may remember after spending 5 weeks at a Behavioral Health facility my DW went directly to a Memory Care facility. She is doing well there. The rages and aggression has been controlled. She no longer knows who I am. That had started before the psych evaluation. She continues to talk in word salad and…
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Covid 19 numbers still awful
In the Euphoria over vaccines some folks do not realize just how persistent and nasty this disease really is. In the last 28 days we have had 26,017 deaths If you go back 21 days and look at known infections over the prior 28 days it is 1,715,290 26,017/1,715,290 yields a Known infection fatality ratio (KIFR) of 1.5% In…
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Act of rage
I need words of wisdom to help me do the right thing. My DH husband recently threw his Kindle in and act of rage and broke it. I'm so tempted not to replace it. Suffer the consequences. But I know that's not fair. I suppose I'm trying to get back at him for all the rage-before and after dementia. He has never touched me…
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what stage...?
Can anyone pin down what stage is characterized by my DW's current symptoms*: - sundowning - compulsive/repetitive organizing of clothing, mail, labels, catalogs, over and over, too many categories to list - refusal to wear Depends despite incontinence; she will take them off and not put anything on...will use pads, but…
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You Just Have to Laugh
DH lost his mom about 5 years ago. Today he was feeling sad about it. DH "I never thought she'd go away." Me "I know, I feel the same way about my mom." (My mom's still alive) DH "Whose your mom?" Me "Janet" DH "She is? When did that happen?" Me "About the same time I was born." It just made me giggle.
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We need a thread for jokes
The Pope is handing out miracles to kids in Liverpool. Billy walks up on stage, and asks if the Pope can help him with his hearing. The Pope assured Billy that he could. He put his hands over Billy's ears, then said a few prayers. He removed his hands, and asked Billy how his hearing is now. Billy said he didn't know…
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Day Care programs
Is anyone seeing day care programs for alz patients beginning to open up to in person programs? My wife has been asking about some sort of classes or socializing events that she can go to, but everything in my area is still virtual. My wife has no interest in virtual classes or visits. I've checked with our local Alz…
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Trigger Warning: Mom with Alz & Suicidal Ideation
This topic contains information regarding mental health issues that may be triggering to some people. Please think deeply about how reading this may make you feel, and back out of this screen if you deem the topic as emotionally or physically triggering. If you do read it and feel triggered, please seek help immediately by…
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Excess alzheimers deaths during pandemic
In 2020 In addition to the 345,323 deaths from COVID-19 itself, there were 133,382 deaths attributable to Alzheimer's disease in 2020, compared to 121,499 deaths from AD in 2019, and 122,019 in 2018. At 9.7 percent, this represents a far larger year-on-year increase than in the years between 2015 and 2019. Researchers are…
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VENT: Caregiving & Home Repair
Yesterday the front door knob quit working. I took it apart, cleaned the innards and then dusted it with graphite and put it back together. It still didn't work. After consulting Google, I determined the problem was the latch part of the mechanism. I took it apart, cleaned all the parts and consulted Google again. Per…
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how, or if, to answer his questions
Hello, this is my first real post, although I've been reading here for a long time, and did respond to another's post. I placed my 84 yr old DH in assisted living/memory care on April 1. He is has moderate stage Alzheimer's. He was diagnosed about 6 yrs ago, with symptoms for about 3 yrs before that. I had in home aides,…
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OT - Post Covid Clinic
One of our daughters has been fighting symptoms for more than four months, and someone told her that Northwestern had a clinic in Chicago for people like her. She called to see about an appointment. After two or three days she finally got a call from someone who handled appointments. She could get one ------- on Dec. 20! I…
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For Lady Texan: on gratitude
Lady Texan, Thinking of you today as I am cleaning up the kitchen table (bills, mail, clipped coupons, etc.). I came across an article that I had clipped from a magazine that my neighbor gave me before recycling. The magazine is Spirituality and Wellness and the article is entitled: "Seven Buddhist Lessons in Gratitude"…
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I made her get the wrong hair cut
Some 5 months ago DW wanted to change her hair style to something that would be easier to manage by herself - shorter, less maintenance. Almost immediately she hated it, though it did serve its purpose early on. She wanted it put back, but understood this could not happen quickly. So she let it grow out a bit. Yesterday we…
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Pause on J&J vaccine
NYT WASHINGTON — Federal health agencies on Tuesday called for an immediate pause in use of Johnson & Johnson’s single-dose coronavirus vaccine after six recipients in the United States developed a rare disorder involving blood clots within about two weeks of vaccination, officials briefed on the decision said. All six…
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How to get LO to keep on Depends?
Any and all suggestions are welcomed. She is taking off the Depends more and more, soiling/wetting the bed and furniture. My Dad can hardly keep up with this problem.
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When do you call hospice?
I know my DH is not there yet but he is very advanced and progressing very quickly. He is not bed ridden and my intent is to keep him home but are there signs to look for as far as calling hospice. I'm sorry if this seems like a stupid question but I am curious to know how and when others handled this. Thanks to all of you.
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New med(1)
My husband is starting on a new med called Rivastigmine patches just wondering if there if any one has had side effects.
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Mixed emotions(1)
My husband’s mom has Alzheimer’s. She has been declining over the years and here recently she has been declining quickly. I love her and I love my husband.The problem is that we have been married for less than 2 years; so in a lot of ways we are still newly weds. Last year was challenging because we had to deal with Covid…
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VENT: some days DH is so particular
I prepare all of DH's meals. I have learned not to get exotic. I keep it simple. I am limited by my remedial cooking skills. When I come across something he likes, I include it in the rotation. When I make something he does not prefer, I remove it from the rotation. Sometimes he makes requests such as more vegetables or…
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More cognitive loss, Alas
My DH no longer knows how many brothers and sisters his father and mother had or their names. He no longer remembers how many children HIS OWN brother and sisters had, nor all their names. DH also doesn't remember which of his siblings had cancer or what kind of cancer. My DH is enrolling in a Genetic Counseling program…
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learning from stage 8
I now know that I can choose how to grieve . That doesn't mean that I"m not lonely each day when I realize he's gone. I cry each morning and say out loud, I"m sorry you had to go through that but honestly I"m glad you're gone. You're ok now. Then I think of you Lady Texan, and remember to feel grateful, you've always been…