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Bidet?
My DW, stage six, still toilets herself but is having trouble cleaning herself with toilet paper leading to underwear issues, hand washing issues. Sometimes things go ok, often not so good. I am wondering if anyone has experience with installing a bidet to help improve personal care? I am concerned she could not learn to…
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I think I found something worse than forgetting
This morning my DH just watched me as I get him up/changed/and in his chair. I asked what was wrong and he continued to stare at me. As I got him his pills and breakfast he point at me and said, "you." I asked if he know who I was and he shook his head no. So I just figured out what is worse than forgetting things and that…
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How do you force someone into placement?
I'm hoping I never have to do that, but there are signs suggesting that it might be in the not too distant future. God, I hope not! Most of the time (80%?) she seems to be just about normal, knowing what is going on, and (mostly) how to respond to things. But then there is the other 20% to deal with, and I'm not sure I can…
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Sometimes you just can't answer the question
I sleep very lightly. When my wife gets up, or just moves around in bed, I wake up. Early this morning, she started moving around, and woke up. She asked me what time it was. I told her it was 2 o'clock. She then asked me "Why is it so early?".
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Donepazil
DW has been taking Donepazil and Memantine for several years, but it's hard to know if they've been doing any good. Due to an unfortunate set of circumstances we ran out of Donepazil, and DW had to go a few days without. Immediately she fell off her plateau, became even more restless and got into a foul mood. Let's hope…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…
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Psych evaluation continues
DW's psych evaluation just finished its 3rd week. I got a call from a member of the Palliative Care team after they had been asked to do an assessment of her. They told me that she won't be leaving there any time soon. Also said that sometimes when a patient is ready to leave they can't be cared for at home. When I asked…
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He is gone
I have been absent for quite some time and I apologize for not being more supportive. DH lost his battle tonight. And, he battled, right to the end. Our daughter and son were here. We kept him home and we gathered at the end. Our daughter was with him when he took his last breath. Yesterday, after the aid and caregiver got…
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Fidget toy ideas
My Dh, stage 7, will often twist his blanket or towel or whatever he is holding in his hand, so I recently gave him one of the dog toys (it was new) that had a small rubber ball in the middle of a rope with knots. Then I gave him a large jumbo hot dog that crinkles. He will sometimes twist the ball around the rope or try…
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Who would have known Celexa was needed and makes the difference
Was having issues with DH for a while due to extreme sun-downing, agitation, sometimes aggression, etc., that has been going on for some time. I have posted about it looking for solutions, advice, etc. DH has been on Seroquel for awhile.. Adjustments had to be made because too much at one time made him worse. Finding the…
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You're gonna think I'm crazy, but where are we?
That's what she said right after breakfast. I told her we were in our home, and I told her the address. She said "I still don't know where we are. What is around here that I should know something about?" I told her Strack and Van Til's, a large grocery store, was about 6 or 7 blocks north of us, and the Corner Cafe was…
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Control over finances / loss of control
There may be a board for this but I could not find it. My DH thinks he should be in control of money coming to him from disability. He thinks it is play money, not for household expenses. He wont save it for the time he needs full time care and he gets angry and unreasonable when we try to talk about it. We are both on the…
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MC is opening up for visits!
DH has been in MC for 6 months now. Other than taking him out for appointments, all our visits have been with plexiglass between us. But now that Covid cases here are going down and the residents and staff have had their vaccinations, we can visit in their rooms starting Thursday! When I found out, I cried tears of joy for…
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It's another day
I joined this group over four years ago after finally having a diagnosis. The support on here I felt would be so helpful. I've not gone back and read my posts, but right out of the gate, I posted about going to an Elder Attorney for medical and durable power of attorney. My husband and I married in 1965. I was one month…
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Scary covid numbers
Scary numbers I use 7 day averages with a 21 day lag to calculate KIFR (Known Infection Fatality Ratio) Here is the 7 day average data for the last 14 days for deaths. Deaths week ending Feb 22 2041 Cases week ending Feb 1 148, 419 (21 day lag) KIFR 1.375% Deaths week ending March 1 1996 Cases week ending February 8 112655…
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Long Term Namenda Use Question
DW has been on Namenda (memantine) for 3 years, personally I never noticed any improvement when she started taking the medication. From what I have read the medication is only effective for about 1 year. I am contemplating asking her neurologist to remove this from her medication regiment. I wanted to ask if others have…
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Why can't it always be the same?
Not too long ago, my wife wanted to go to her mother's place. But I wasn't sure if she knew her mother was dead. It wasn't long before the subject turned to my mother. I told her my mother was dead. She said "well, so is mine". So I guess she wanted to visit the gravesite. This morning she wanted to go again. I asked her…
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What to wear?
My mom can't seem to keep her pants up. She's losing so much weight that we can't keep up with buying her jeans every time she loses weight. All the jeans she does have fit her a little big. Except I noticed she tugs her jeans down intentionally so her pull ups are always being exposed. And of course she doesn't know. I'm…
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MCF Chains
There are a few national or multi state MCF or AL chains that have facilities near me. Some may be franchises. Any body have experience with Artis, Leisure Care, Benchmark, EPOCH, Masonicare? I’m sure there are more, and Amy experience you can share would be helpful. Thanks.
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dentist
My DHnow has been complaining of tooth pain. He has not been to the dentist in several years. Has anyone dealt with their LO and going to the dentist . He will not be able to deal with x-rays .He has great difficulties following any directions. Thank you for any help in this area
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Textbook example?
DW went upstairs to put on pjs. I went up to check on her. She was trying to put on her pjs over the clothes she had worn all day. 6a?
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Need help with forum
Can someone please instruct me on how to create my own password for login? I have tried "reset password" several times and all i get is a new one created by this site. Which I can't remember because its just an alphabet soup. Thanks!
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Are you considering placement - ever?
If so, this is a must read thread from last June. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147552810
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Respite. Care
Last time I posted a message, it was about respite care too. Since that time two different people have come. This has been going on for only two weeks. The first time I got a text message from the lady sitting with my wife that everything was going really well. The second time it seemed to be going well also. That’s the…
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Shower hints
Any hints how to get DW to take a shower without using brute force?
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Beautiful lesson of life after death of spouse.
This was posted on my Facebook page. It's beautiful and thought I needed to share: You can shed tears because they are gone, or you can smile because they lived. You can close your eyes and pray they will come back, or you can open your eyes and see all that they left for you. Your heart can be empty because you can’t see…
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We are going to keep you safe, even if it kills your spirit.
This article hit home for me. https://www.nytimes.com/2021/02/19/o...-dementia.html
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Limbo Land
Hi, all. I have just joined alzconnected today. After scanning the topics on this Forum, I did not see any that really covered what is on my mind. So..... My wife has mild cognitive impairment, diagnosed April 2020. She began to have memory problems in Fall 2019. Things have gradually, albeit slowly, progressed since then.…
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Time for Hospice evaluation or too early?
DH can still walk around the house and yard. Cannot communicate well due to due to Primary Aggressive Aphasia. In the past week he barely eats two bites of anything and not drinking much either. He did use the toilet up until four days ago but goes in his depends now and does not realize it. He sleeps okay but it takes him…
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DW got her second shot.
I brought her brownies, chocolate Ice cream and Blueberry pie just in case she had a negative reaction. She didn't but she ate them all happily . I did see her for a few seconds for the first time since last March. Her hair is down to her shoulders, the longest its been since June 1975. She did not recognize or acknowledge…