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So lonely and exhausted
Hi all, My heart goes out to everyone here. My husband has dementia and I am caring for him. I suppose he is stage 5. We have no children or family near by. I have a serious illness myself, but I used to have a lot of great friends who have passed over the last few years because they were ill also... and not youngsters. I…
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please share your thoughts
My LO seems to be wavering between stage 4 and 5 Clearly has signs of stage 5 but not there totally. I have a high pressured health care job that requires at least 10 hours a day consistently that I have never felt was really the right fit for me and do not love. (There was a merger and I actually got a promotion but never…
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Dementia progress
DH dementia progress. I've never bothered with what stage he is in. I know it is a little different with AD. I am lucky to have training and work with dementia persons in my career. Sometimes it has helped me; like he will often say he is not hungry but will eat if I put food in front of him. Today I remember something…
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Just need to talk to my friends (139)
Morning, Guess it's time to start another part of the thread - seems like it's getting hard to get on, at least for me. Zetta, yes, Chester was the one with the limp. He was the first side-kick of Matt Dillon. I don't think he was a Deputy like Festus. The majority of the shows I'm seeing now have Chester in them. I like…
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Legal and Financial Help
My DH is rapidly going downhill with ALZ. He is young and still working. I am in a terrible position trying to juggle his benefits and legal situation. Fortunately his employer has offered and we have enrolled in Long term disability and LTC benefits. However the LTC benefits are just basic and will not cover the expense…
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new on here , looking for advice
I'm new to this forum and I'm looking for phrases and words I can use with my DW with early stage Alzheimers. We seem to get into most of our arguments when I asked questions and I think I'm beginning to learn that I need to quit asking so many questions and start giving her choices and options. And I think I'm starting to…
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Resentful and bitter at times
I am going to be perfectly honest. My husband who is prob in late stage 6 or early stage 7 dementia was not always the best husband. He was very narcissistic and did cheat on me during our marriage. I hung in there because if I left him he would have no one. He did not have a good relationship with his family. He and his…
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M1, Marta, Any Other MD or NP, Etc. Need Expertise
Hello and thank you if you know the answer to this off-topic question: I am scheduled to receive my first COVID vaccination on Monday. I know not to take Ibuprofen or Tylenol prior to being vaccinated as they can lessen the robustness of the vaccine effect, and I am good with that. BUT: I am on Bactrim for an infection I…
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I think Peewee is at the stage where he no longer wants to.
Change clothes or take showers, and can't tell when it's to cold for a light jacket. If I say something to him about he needs to shower he says he just had a shower yesterday. He has not taken one for over a month now. If I tell him to change his clothes he will put on a pair of shorts. He wears the same light jacket day…
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Dementia and Covid risk
People with dementia had significantly greater risk of contracting the coronavirus, and they were much more likely to be hospitalized and die from it, than people without dementia, a new study of millions of medical records in the United States has found. Their risk could not be entirely explained by characteristics…
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She's gone(1)
Its bittersweet she is no longer locked in a shell of herself but my DW of 40 years passed away today. She died at home and I was holding her hand so I am thankful for that. Reading this forum helped me get through some tough times and I thank you all. for those of you still weathering this storm may god bless you and keep…
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How long between showers
My possibly stage 4-5 LO will not shower. I began keeping track and now we are almost at 2 weeks. This discussion has helped so much with ways to lead my LO where we have to go but how do i force her to shower. Maybe i just need to relax
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Sudden Behavior Change
My husband and I have been caring for his mother full-time (all living together) for a year now. In the last week or so I've noticed a decline in her behavior. The sundowning starts earlier in the day and almost without any warning. She askes lots more questions, and when she doesn't like the answer, she'll ask more…
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New here and living Groundhogs day.
I am new to ALZ Connected but not to living with it. It is hard to put into words what this lousy disease has done. My DH was diagnosed with EOAD in 2017 after doctoring for many years and not understanding different things that were going on. He was 62 when he was diagnosed. I think he should have been diagnosed in 2014.…
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Good meditation/sleep app?
I'm asking for myself. Chronic insomnia is my curse and I'm wondering if anyone has experience with an app you like? I've done white noise machines of various sorts in the past but am ready to try something different. Thanks for any suggestions-
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Restraining order on my severe cognitively impaired husband
My husband’s memory care facility threw him under the bus, I believe, in order to evict him. I was in the process of asking for a hearing to overturn their thirty day eviction notice. They allowed his friend to spend nights in his single twin room without adequate oversight. They concocted a scenario, violated his HIPPA,…
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Pity Party(3)
Hi all, Just feeling a bit lonely tonight. DH is progressing, needs help with just about everything, and I feel, well, like my life just isn't my own. It's all about jumping up to do what he wants. And before anyone tells me not to jump up, how do you say no when your DH wants a drink of water and can't figure out how to…
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I guess I should feel flattered
Yesterday we went to get our second vaccine shot. They do a lot of shots, and the nurse who gave us the first dose was there, and she recognized us. Another nurse gave the second injection. When we were through, they wanted us to wait for 15 minutes before leaving. Another large room was filled with people waiting their 15…
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Strange Mental Mix
My wife was diagnosed about 4½ years ago and I believe that she is about in the middle of stage 5. For a while, I referred to her as my 5-foot tall 5-year-old. She has digressed since then. It is strange living with a woman who has the intelligence of an adult, but the mentality of a 4-year-old. I’m not looking for…
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Need some freedom
I know others will understand. I really need to be able to get out when I feel like going out. I know that having been quarentine due to COVID, no day program for DH for 1 month and pandemic restrictions is getting to me. I have such mixed feelings about caring for my husband with just about all activities, and needing…
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Heartbreaks, Big and Small
Some days, it’s hard to experience anything but loss. At breakfast this morning, I served my DW her usual yogurt. (It’s the default drug delivery system ever since she refused to take meds directly.) She picked up the spoon and put the handle end of it in her mouth and attempted to sip through it, as if it were a straw.…
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progression of dementia
My DH's dementia seems to be getting worse and I'm not handling it well. Any thoughts/support is appreciated. His anger is worse and more frequent, sundowning is part of this. Just last week, DH and I went to see the neurologist and DH was started on two new medications (DH fights me on medication and doctor's appointments…
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Tony Bennett has alz.
This is a good article on it. https://www.aarp.org/entertainment/celebrities/info-2021/tony-bennett-alzheimers.html?WT.mc_id=enews2021_02_03&utm_source=enews-aff-67&utm_medium=email&utm_campaign=enews-2021-02-03&utm_content=homeoffice&utm_term=Story1
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Respite Care while traveling
Just wondering if any one in SE Wisconsin has found any respite care providers that can be used while traveling, specifically a facility that my DH could stay at for a long weekend or a full week. Some of the senior living facilities near me advertise that they have it, but it is only if they happen to have a vacant room…
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Lewy bodies(1)
My husband was diagnosed 5 years ago with Alzheimer’s. Now we have been told he has Lewy Bodies with Parkinson. He is taking Depakote and Seroquel. Has anyone had this to happen and medication?
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Maybe some of you can use this
I received an email that I thought might be beneficial to some of you. The links work, so give it a try. Here it is. _________________________________________________________ Hey there Careblazer, Most times, when someone with dementia is engaging in a "difficult behavior" such as yelling, screaming, refusing help, etc. it…
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Tracking device(1)
Does anyone have suggestions for a tracking device? My husband is still able to take walks by himself but I would like to be able to see where he is sometimes. We live in a harbor and he follows the road around to the end of the harbor and back home. He carries a flip phone that has no tracking capability. I did buy a…
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Any Suggestions - Agitation, Sundowning?
DH has mixed dementia. DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He can also get mean at times. Is this part of the disease? He has never been this way prior to the diagnosis. He had a…
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Alzheimer’s Prediction May Be Found in Writing Tests
In today's NYT. Sorry, I don't know how to make an active link. https://www.nytimes.com/2021/02/01/health/alzheimers-prediction-speech.html?action=click&module=News&pgtype=Homepage Very interesting, especially when good treatments are available, in the future. Early screening would be very important then. Elaine
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I am wondering if every one here has gone away!
I don't understand...my connection is nothing near what I am experiencing. Is anyone here at this date? 2021. Clarkfla