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Importance of Checking Credit Reports at least Annually
It’s been years since I last posted. Just completed 5 years without my sweetie. It’s been both fast and slow and yet I still feel like he is coming home for dinner every day. My lifesaving alzconnected e-village is never far from my thoughts. I refer many people and do check the posts occasionally. It is difficult to come…
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Newbie Question
Let me start with my question and the goal of this post, and follow up with probably more info than anyone wants; but catharsis for me. Questions: My wife has dementia - probably related to her blood cancer; but perhaps not. Are there tests to determine what is the cause? And if there are, are there treatments that make…
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The Dreaded Spreadsheet
We had a milestone recently. Not a good one, just a significant one. I maintain a spreadsheet that tracks all our financial assets, and every month, I go in to all our online accounts, pull the new balances and enter them on the spreadsheet. In years past, my wife was happy to take a report of our net worth each month, but…
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Clicking of Teeth
My first post. I was struck by something CStrope wrote a few days ago. She said something to the effect that she had gotten used to her DH constantly clicking his teeth. So briefly my DW has recently been diagnosed with Semantic Dementia (SD). She is clicking and lightly grinding her teeth 24/7. Her jaw is in constant…
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Placed DW in MC
I placed DW of 45 years in Memory Care yesterday morning, and am in the period of being strongly discouraged from seeing her. They have kept me well-informed about her during the past two days, but I am sick with grief that I did not anticipate, and guilt as well, wondering if I should have done this at this point. As I…
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Survived covid
AA really duficult 3 weeks. Somehow as we were both positive we made it thru . I was really sick with fevers, nausea and chills on an d off for 3 weeks. Even an ambulance ride to hospital due to dehydration for me. We are very lucky that they took my DH with me and he sat patiently in a chair with me on stretcher getting…
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DW Recent MCI diagnosis
Hello all, I am beginning my new life as a caregiver for my DW. We are retired, both 72 and married 50 yrs this year. I reached out yesterday to this wonderful resource. And called in to talk with Care Consultant. She mentioned this site so here I am. DW has not been formally diagnosed with dementia, yet our family doctor…
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New(1)
Hello, I am new to AlzConnect and having trouble finding anyone out there to chat with about caring for my spouse. Thanks if you can help.
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Lost in Plain Sight
Morning! My DH lost his good glasses over a week ago. He thought they were lost in the bedroom. I found them today on a large glass patio table in our Sun Room near our sliding glass door. He put them there when he took our dog out back. He has been in and out that door several times since losing the glasses. On Christmas…
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Jerry has passed
My husband of 33 years passed peacefully in his sleep today. In fact he has been sleeping for the last two days almost non stop. He has been almost unresponsive during that time. I was expecting the rn to visit this am , so I gave him a change and a fresh sheet. He had had night sweats during the night so I gave him a…
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What’s new?
Absolutely nothing! I mentioned on another post that I was on Video chat with my brothers last night. I have four brothers, all retired and pursuing the heir retirement dreams. One lives on a lake in TN, one has 100+ acres of land and had horses in upstate NY. Another is pursuing his photography hobby in Chicago, and the…
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Moving too Fast
Hi All, I am so confused....my DH has EOAD - Over the last few weeks we have been working to get his medicine adjusted to control anger, anxiety and agitation. He just seems to be declining so quickly. He paces non-stop, all day and doesn't sleep much. His appetite is declining. He does eat some days a full meal. His…
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New Covid Strains
Heard this afternoon that the South African variant, which is more contagious, has been detected in this country now. We should take the recommendation for double-masking seriously: it's worth buying N95 masks (or Chinese/Korean equivalent, look for brands that have received FDA emergency use authorization) and cover them…
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Respite Care(10)
In two weeks, I have respite care scheduled to begin coming to our home for 4 hours once a week. That may increase to twice a week, but I’m sorta going to break the ice to see how this goes. I guess I’m somewhat pessimistic. Let me explain: Presently when a friend comes to visit my wife (diagnosed with Alzheimer’s) she…
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Anesthesia, specifically propofol
DH is having a flexible sigmoidoscopy procedure on Wednesday. The anesthesia team will be using an anesthesia called propofol. Can any of you please share your experience when propofol was used on your PWD. I am nervous based on the posts I have read here regarding anesthesia effects on PWD, but I do not recall if it was…
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Need: Block unknown calls to Android device
DH has a Samsung Android and though I have tried to block all calls (not from contacts) on it, this feature does not work. I need an app (happy to pay) that will perform this function and stay in the background so DH doesn't see it (it will confuse him and/or make him upset). Verizon will only allow me to temporarily block…
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Is it too early?
My dh has EOD. His father did and stayed at home until he could no longer eat. He died 1 month after entering memory care. They lived in another state. In my mind I have always expected to keep him home until he got to the stage of being incontinent. He is 13” taller and I could not physically take care of him. However…
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Coping with grief and loss
https://vimeo.com/421756670 An excellent webinar on the experience of grief and loss of caregivers as a loved ones disease progresses. It gave me insight into my emotional state and I thought it well worth sharing. There are other good resources at the Ontario Caregivers website.
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The perils of AD and work Zoom
Some days you can’t win for trying. I start my work day with a Zoom meeting with about 20 colleagues. I’m generally in listen-only mode, so I attend without starting video or audio. And usually DW is still in bed when the meeting occurs. Yesterday, however, she woke and was ready to rise earlier than usual. So I was…
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Finding out that handling the impossible, is possible....
In all the scenarios over the years I could imagine I'd find myself, it was never what I'm doing now ... 68 years old, out of shape, dealing with Crohn's/IBS attacks and an FTD husband, single-handedly clearing out my dad's independent living apartment and completing his financial affairs with the retirement complex; doing…
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Alone(4)
The last day I saw DW in person was March 5. 2020 In truth she had no idea who I was even then. It had been a year since she showed any recognition of me or the children or grandchildren. I fell in love with her in 1971. The memory of her love and life and laughter keep me going. But I admit it tears my guts to see her on…
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PWD reaction to Zoom calls
Lately, DW has had extremely negative behavior when I am on a video chat or even on the phone. Last night I was on a video chat with my brothers, and DW started to shake and whimper and try to get my attention. She was very agitated. I muted about every 5 minutes to calm her down, but she just would not get calm. This…
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Doc put him on Seroquel for aggressive behavior
My DH had a second day of aggression (two weeks apart) where he defies everything we try to get him to do or not do. He constantly wants to go home to Fowler, KS where he was born and raised on a big wheat farm, but nobody is there anymore. In defiance, he jumped into our pickup truck and left on Sunday. My son and I…
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DW going into rages
As my DW's Alzheimer's has progressed (late mid stage) we have seen more and more angry rages. At first she would just get upset and it would pass after a little while. The first serious one was also my first experience with sundowners as we when out before dark but were returning home after dark and she became…
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New to the Message Board Just need to vent
Good evening everyone, I am a caregiver for my husband who is 76 years old and was diagnosed in 2016 with late onset Alzheimer's. Like many of you, I have a similar story of how things have been for me. My husband and I have always been the ones who have taken care of all our family members who were sick or had any kind of…
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What about God
From a former unbeliever.Well HE doesn't heal Alzheimer's but He gives us peace. I said God help me stop drinking after 35 years of excess. He did in one night before I believed, went to church or read the Bible. The next year my wife was diagnosed with Alzheimer's at age 52 and I didn't think much of God. I had so much…
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Sedation dentist needed
My wife is in need of dental care. She has advanced dementia, is nonverbal and cannot follow instructions. She will need sedation for the examination and work, but the sedation dentists with whom I have spoken say they need to examine her before accepting her as a patient.They won't sedate her for the exam. A catch-22. Has…
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O.T. This is our town
This is a pretty nice article on our town. If you get a "Log in" screen, just close it. You should be able to see it. https://www.nwitimes.com/business/local/watch-now-eclectic-unique-shops-make-downtown-griffith-a-vibrant-destination/article_ae90d083-e35d-5215-97a5-c804d5e825f5.html
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Just need to talk to my friends (138)
Hi, Thought I'd begin a new part of the thread because I waited and waited and just couldn't get on - don't know if it's our thread or what. Judith - frustration is the best word I can think of to express my feelings. You get something started and it falls through - so, frustration. So, Johnson & Johnson's vaccine is…
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I'd like cheese with my whine please.
OMG this is soo hard. I think he is in pain and all I can do is drug him into oblivion. He is very agitated so, I'm giving him Morphine , and Lorazapam (for aggitation and Haladol for halucinations. Up till now we have struggled to get to the toilet and fight to get the depends down and me wishing it was easier to get…