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New member,need guidance as caregiver
So thankful for the posts I have read on this site and decided to join. I am a caregiver for my significant other. We have been together for 36 plus years. He was diagnosed with dementia in 2021 but it seems to have progressed. Some days he is pleasant, nice and cooperation but then there are days he is agitated and…
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Death of DH
My husband died in March after an 8 year battle with Alzheimer's. I am concerned because I don't seem to be going through a grief process. I don't even know how I am feeling. I know he is in a better place and after 61 years of marriage I miss him, but there is relief for me too because I don't have to watch him suffer any…
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BUGGSROO - HAPPY BIRTHDAY
AND . . . . https://www.youtube.com/watch?v=t_DDFjXUm00 HAPPY, HAPPY SPECIAL DAY DEAR BUGGSROO! We may not be able to be with you in person, but we are with you in spirit to share this special day for a special person. May this day find some lovely moments in it, and may your "new" year be filled with many blessings, both…
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Time to Withdraw from 401A and 401K - Update
I need to start withdrawing from my retirement accounts, but they require DH's signature and to be notarized. How can I get this accomplished when he's in memory care? I have DPOA, but I can't find any information on what the process requires under these circumstances. If anyone has experience, please advise. Thanks.
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Connections
I have early onset and was looking up info on hemocromatosis which i have it seems that people with it have a high risk of alzheimer's interesting. Others maybe in the same boat may find this interesting
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DH got his flu vaccine today
And I am wondering if he'll ever be getting another. DH has gotten this vaccine religiously for as long as I have known him. Today we stopped outside the pharmacy and I said, let's go in and get your flu vaccine. Frown. "I don't get that," he replied. I convinced him that he always did, and he went in with me. This is our…
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The ever popular incontinence care
Has anyone had luck using the North Coast incontinence products? Some of their products look great-on their webpage. I was hoping for a less biased opinion. My beloved is in residential memory care and the generic products they use there may as well be made from tissue paper. I do all her laundry and bedding and I don't…
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CELA Questions
DW and I are meeting with a CELA this week. I know we need wills and POAs, but what other questions should we be asking? If you've seen a CELA, what questions did you ask? What questions do you wish you had asked? Thanks.
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Diapers with tabs, Help!
Hi Everyone, So, we've been using the wonderful pull ups from Parent Giving, (made in Italy). If my DH would keep them in place at night they would be great , but he begins to remove the pant when he feels the urge, and as a result, we have a lot of changes , and it's exhausting. He has started 25 mg of Seraquel for sleep…
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Who Am I This Time?
Does any have experience with Capgras syndrome? My DH often believes that I'm his girlfriend/unmarried partner. We recently moved to a retirement community and he's been eaten up with anxiety, thinking that the management is going to fine us or kick us out for having an unauthorized person living in the apartment. This has…
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Appetite
Hello, My wife is suffering from Cognitive Imparment , that is rapidly getting worse. She gas no appetite what so ever an am at my Wits End ,trying to cook or prepare whatever ,to get her to eat more than a bite or two. Trying to supplement as best I can with Boost etc , but as you know nothing beats basic good diet .She…
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O.T. for cat lovers
Just thought I'd pass it on. https://www.amazon.com/dp/B09D3L5KTS?tag=bfemmalord-20&ascsubtag=7531904%2C21%2C36%2Cd%2C0%2C0%2C0%2C900%3A2%3B974%3A3%3B1125%3A1%2C36632720%2C0%2C0&th=1%252Cgoogle%2Cgoogle
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sleeping all night and all day
I have read a lot of post about sleeping but my wife is a little different then most. She sleeps all night and will keep sleeping as long as I will let her only getting up to go to the bathroom. She has slept 22 hours straight and only got up because I kept trying to get her up. I wake her several times a day to drink a…
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End of the trail
Well here we are waiting my wife's life force to come to an end. The hospice sends a nurse to stay with the patient to the end. That is where we are now. It has been 4 weeks and 3 days since hospice came. I cannot count the times my wife's life force drain was obvious and I was certain she wouldn't make it until morning…
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Dementia + Diabetes = ??
Seeking advice, experiences caring for someone w/insulin dependent diabetes + Alzheimer's. DH, diagnosed last year, refuses help on insulin dosage & administration. Despite warnings, instructions of Endo & Neuro MDs. I've given up, resigned he'll end up in ICU. (Insulin pump is not an option, too dangerous, per Endo.)…
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Bad night-Need to vent, share my solutions & discuss options.
*****UPDATE*****: Another episode last night. He got up, went to the bathroom, then went into the living room and I found him laying on the sofa. It was 6:40AM. I said come back to bed and he said no! Leave me alone. I said it's not time to get up yet, let's go back to bed and he said "where?" So he didn't know how to get…
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Friends commenting on my DW’s condition
Hello all. Just wondering if any of you have had this experience: friends and family offering encouraging comments about how my spouse doesn’t seem to be doing too badly based on spending a few hours with her/him. I know that they are well meaning and saying it to try to make me feel better but in some ways it makes me…
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Thank you everyone for you continued support and love.
Thank you all for your replies and comments. This Group has helped me so much over the years. When we are going through this journey, We come to the last time our loved ones does something and not realize it's the last time. Taking the trash out or washing dishes, doing laundry , checking the oil in the car. holding hands…
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How to prepare my DH for a flight
A trip I planned over a year ago, right after my DH’s diagnosis, is taking place in a couple of weeks. DH is cognitively aware of the trip and seems really excited about it. It’s an Alaskan fishing trip that’s always been a dream of his. His doctors have been aware of the plans all along and think it will be good for him.…
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Tracking husband who likes to take walks
I am looking for some type of tracking device for my 64 year old husband who likes rTo take walks when I am at work. I used to have the Life360 app on his cell but how to go to a much simpler cell for him and not able to put apps on it. looking for something that will alert me when he is out of certain area and is not too…
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Can I just leave?
My DH was diagnosed in June and rapidly getting worse. He lost his job, which I knew was coming. He can’t complete paperwork for for the drs office or unemployment but gets very angry when I try and help. I go to work and never one w how he will be when I return. I’m scared a lot. The thought of moving out gives me such…
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Question on Shadowing
I have noticed the last week or so that if I say I’m going anywhere, i.e. Mailbox, take a walk, store, etc. my husband quickly says he’s going with me. We have always gone to the store together, but the others are new. This is not typical for him. I was hospitalized for a pulmonary embolism late July and have been to…
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The Driving Thing
Last week we saw the neurologist, who gave DH another cognitive test. DH did more poorly than he did last month and the neurologist gave us pretty much the same diagnosis as the primary care physician—an Alzheimer’s type of dementia. And also told us DH will need to quit driving. At the time, DH seemed to accept this…
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A naive question...
So as I think ahead to caring for DH, and having unknown caregivers come to the house.....I read about theft issues and wonder what do you do? Do you put "everything" in a safe deposit box and never wear your wedding rings again? How do your "theft proof" the interior of your home, especially while dealing with the obvious…
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Possible New Diagnosis
My husband of over 30 years recently went to his neurologist. He had a seizure back in 2020 due to a head injury. He's been OK up until a few months ago. I've really noticed that his short term memory has gotten really bad. During the visit to the doctor I brought up this issue and they administered one of those tests to…
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To travel or not to travel, that is the question
At Easter, I had planned a trip with my DH to Florida to see my parents (14 hours by car). Decided against it bc I wasn't sure I could manage it (and him) on my own. My sister and I are currently discussing a drive down together with my husband and her teenage boys. Pros: my sister and her boys are great with him, she's a…
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My hospice experience today
Hello to everyone, This has been quite the week. My husband has his days and nights reversed, and i am pretty sleep deprived at this point. I feel that this could be a slow process, and we need all the support that is or could be available. 24 hour care is not an option , but i will certainly need to put a more rigorous…
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Allow me to vent.
So, my feelings after posting this are no longer positive. I vented. Glad for that. I'm obviously in a really bad place because I can't take any help without having it make me feel worse. This is the longest, hardest road ever.
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I am trying to change my profile page but it does not seem to change.
What is the trick to doing that? Thanks
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M1 -Thinking Of You
Hello, M1; have been thinking of you and wondering how things are for you right now. Sending warmest of thoughts your way. J.