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Trying to articulate an emotinonal experience I had
I'm a photographer, mostly real estate the last 10 years. Anyway I was shooting a property in Santa Fe while my DW was in daycare, I'm still fairly young and could have a few more good photography years left. As I was wrapping up this particular job and putting my equipment away, there was an apartment complex down the…
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Help! DH just kicked out Adult Day Care due to sudden personality chsnge
Very kind and good natured, DH is now mean irritable sarcastic and less social. Doesn’t like anybody. Asked to remain at home until evaluated by physician. Likely a. Can anyone give me some advice? Do meds help? This was my only respite. So distraught.
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Amyloid PETScan
Hello all, Doc is talking about an Amyloid PETScan and a regular PETScan as help with diagnosis and treatment planning. Anyone have experience with an Amyloid PETscan? Many thanks.
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Bible Verse to Lift You Up 10/17/23
*TODAY'S VITAMIN We pray & help people as guided. Jesus taught "everyone" is our neighbor. See Luke 10:30-37 NLT for Jesus' teaching about the Good Samaritan. *I NEED TO REVIEW THIS OFTEN. How about you? 1 Corinthians 13:4-7 New Living Translation 4 Love is patient and kind. Love is not jealous or boastful or proud 5 or…
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Lessons I am learning
I've been taking stock these days and as I note my DH's progression, I decided also to take notes on my own progress. Here are 3 notable lessons I've learned in the last few months: 1) I learned that DH should always win the argument. It's impossible to argue like we used to (we are two retired lawyers), so now, I try to…
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The Weirdness of Stage Eight
Hello to everyone, It's been awhile . I have been reading your posts and making a few hopefully helpful comments. My heart hurts for all of you, for us, and for our loved ones who have been stricken. We have all been stricken, that's for sure. Just a few thoughts... Its only been 3 weeks since Bob passed, but if you ask me…
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The Little Things
It’s the Little Things My husband has been doing okay with the ADLs, but this morning something really saddened me. I was in the bedroom when my husband got dressed. He did not change his underwear and simply put a new tee shirt over the one he wore to bed. He also poohpoohed my suggestion he put on a turtle neck because…
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New(ish) Diagnosis and EOAD
Hello, I am a 48 year old wife whose 58 year old husband has recently been diagnosed with dementia. We are awaiting PET scan and more testing (always more testing) for a "type" of dementia. We have 2 children (21 and 18) that are in college. I started noticing symptoms a year ago, and then in February of this year he had…
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Increasing anxiety with crying
My 91 year old mother was diagnosed with dementia this year but has been suffering for many years. She has issues with blood pressure dropping and has to be careful what she takes. I have read into the Zyprexa and Seroquel, and both of the drugs give warnings as they can cause a stroke, or a heart attack and they’re not…
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What stage do you think my DW in??
My wife was diagnosed 1yr ago “mild Alzheimer’s “. DW has short term memory loss , gets confused and was told not to drive.everything else she does to take care of her self. Did have her on Clinical Trial for 2 months but stopped. WANT STAGE YOU THINK SHES IN??????
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Laugh for today
During a recent password audit by a company, it was found that an employee was using the following password: "MickeyMinniePlutoHueyLouieDeweyDonaldGoofySacramento" When asked why he had such a long password, he rolled his eyes and said: "Hello! It has to be at least 8 characters and include at least one capital."
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Foley catheter
My DH is in the later stage of ALZ and has had a permanent Foley catheter for 6 months. He's been really good about leaving the catheter and stabilizer alone until recently. He has removed 3 stabilizers in the past two weeks. He does this at night while I'm asleep. Any suggestions about how to protect the stabilizer from…
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"I'm scared, I don't want to die!"
My DW is in stage 6 somewhere and I sense we are getting closer to 7 but who really knows? Anyway, she is scared all the time and every now and then, out of nowhere, she will start sobbing and with a terrified look on her face exlaim "I don't want to die!" I'm not sure if those are moments of clarity but deep down she…
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squirreling
New to this group. My DH was diagnosed with dementia about three years ago. He has been what we call "squirreling". It is when he takes random items and hide them around the house, like a squirrel hides nuts in the yard. It started with his flashlight, he would keep it with him all the time. He started squirreling it,…
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Is this normal thinking??
I sit and read all the posts at about 6am as wife not up.Diagnosed 1yr ago mild Alzheimer I never really read a happy post , yes short term going and confused alittle my question is is it normal to feel that maybe she’ll stay just like this??
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need to vent
DH and I were putting the storm windows in. We noticed some bees going into a small hole in the siding. Before I could stop him, he stuck the screwdriver in the hole and wiggled it around. So now we are both nursing multiple stings and the windows aren't in. He has no idea why this happened. He's like a large, helpless 3…
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Don't want to go visit
Harshedbuzz mentioned in another post this morning that her dad was reluctant to accept help from anyone but her mom, and was insulted to think that she needed a break from him. That's exactly the position that I find myself in, and after delivering her back to MC from the hospital on Monday afternoon, all I wanted was a…
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Dental Care
My DH is in the very late stages of Alzheimer's and it is virtually impossible to clean his teeth. He is totally immobile, cannot walk, talk, is incontinent, and has been a Hospice patient for some time. Cleaning his teeth is a problem, as he cannot understand any instruction about opening his mouth. He has lost one tooth…
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Help with shaving DH
Hi, my husband is good at shaving his face, however he only shaves to his jawline. I do under his chin and neck areas. I have bought so many electric shavers but he says they don’t work. When I tell him we need to shave that area he will say not now. By the time it gets so bad I will tell him we are doing it now, sometimes…
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Not new to Alzheimer's but new to it being my wife
Hi friends. My wife and I have been together for 10 years - she is 52 and I am 46. We cared for her father who had Alzheimer's and her mother who had dementia until they each died at home. Through caring for them, we became active in our local Alzheimer's community. After caring for her parents for 5 years, those people…
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Just need some prayers
THANK YOU ALL SO MUCH FOR YOUR THOUGHTS AND PRAYERS. IT MEANS SO MUCH TO ME. I am the caregiver for my DH, 78 who was diagnosed 2 years ago. He's Stage 5 with Alzheimer's-Posterior Cortical Atrophy. In 2017 I had breast cancer with radiation. Severe side effects from radiation which have lasted 6.5 yrs. Recently I'm having…
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Hallucinating
My husband’s hallucinations surged this week because we were in a vacation spot with lots of family. Now he’s hearing voices day and night, telling him the same nasty suggestion over and over. Left vacation early today, and had him checked over completely at ER. Possible UTI, but maybe not. It’s been 14 years since he…
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Recently diagnosed
My husband has recently been diagnosed with Parkinsonism and Lewy Body dementia. It has been a few years of hospital stays with lots of different diagnosis. I am somewhat relieved to at least know, but heart broken. It is hard because I'm not sure if my husband is in denial or doesn't understand what is going on. The…
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Cataract surgery?
My DW is schedule for cataract surgery next week but now I'm reconsidering. She had a retinopexy to repair a hole in her retina a couple of years ago and that has increased her likelihood of cataracts in that eye. She still doesn't see well out of that eye due to the retina surgery. She has a bad cataract in that eye but…
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The Mirage of Caregiver Support
This is a follow-up to my article “The Cavalry Is Not Coming.” It is meant to be instructive, without being overly dark and whiney. Eight years into this journey, I am long past the realization that the Cavalry Is Not Coming. I am on my own in the care of my wife with vascular dementia. I have absolutely no expectations…
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What to do when they won't take their meds?
My DH suddenly will not take his meds anymore. He will let me put them in his mouth and then he won't swallow them. He hides them under his tongue, if I look to see if they are gone. What he does is chew the pills up, swish them around in his mouth with water and suddenly spit (literally spew) them all over the place.…
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FTD
Caregiver support
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Hides items or misplaces, things, and then blame someone else
I am sure this is not unusual for many of you. It’s just very difficult when my spouse blames other people for taking the things I know we had. When I try to help him find them, he gets angry or the item can’t be found because I don’t know where it’s gone. And somehow, it ends up being my fault, or he sulks, the rest of…
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Thinks he’s been to the moon
My DH is stage 5. His symptoms have included delusions from the beginning. I’ve posted before asking if others have seen the same in their loved one. Even before memory issues were apparent, he would tell bizarre stories of his experiences, things that could not be reality. The latest is that he went to the moon. He tells…
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Bible Verse to Lift You Up 11/1/23
ALL MY HEART Matthew 22:37 New Living Translation 37 Jesus replied, “‘You must love the Lord your God with all your heart, all your soul, and all your mind.’ TODAY’S VITAMIN When we love God with all our heart, soul and mind, it means we put Him first in our lives. Nothing is more important than spending time with Him in…