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ER with two with dementia
MC called and said I need to take my mom to ER. Room is crowded and DW has been acting out emotionally a lot. All is calm now but underlying stress as the longer we are here the worse things might become. Lord have mercy!! Santa Maria Madre de Dios!
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Jekyll and Hyde
Today was a tough one; my beloved was sweet one minute and mean the next all day long. Couldn't remember the code to get in the house-even when I told it to him he had to ask twice more so he could put it on the whiteboard. Told me the strawberries he was eating were really good-they were blueberries. I said yes they…
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In and Out of Debilitating Self-pity
I could always eat a little something but this pit in my stomach is constant and interfering with my appetite. The good news is those nagging five pounds are gone! My heart is also racing. I can feel it pounding in my chest, especially when I start thinking about all that needs to happen, CELA, a will for me (I know AND…
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If and how to tell others about the dementia
Need some advice about telling others about my DH's dementia. We play pickleball and while he can play pretty well, he forgets (and will never remember) some of the basic rules. The other players at the facility are just acquaintances or sometimes strangers if we have not played with them before. With pickleball you're…
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So scared
New here. DH diagnosis of dementia possibly Alzheimer’s. I’m 62 he is 67. My mind is all over with worry. Grief and anger. I know it’s not his fault but I’m so sad I feel every emotion and am having a hard time getting thru the day without crying. I have to work because now I carry our insurance. I hate leaving him and I…
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Now We Add Cancer To The Mix
DW has EOAD and is a type 1 diabetic. A few weeks ago I brought some concerns to her doctor who referred her to a an OB/GYN. A biopsy was done and resulted in a diagnosis of cervical cancer. We are scheduled for the initial appointment with the Oncologist tomorrow. I expect to have to make some difficult decisions about…
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First time posting
I am on this journey with all of you caring for my DH who was officially diagnosed with ALZ about 3 years ago but as it goes I have known he had this disease since 2015. My husband is 75 and I am 66, and we have been married for 39 years. I believe he is in the beginning of stage 6, as I help with grooming and often assist…
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Trying to help mom cope with dad
Hi, Just signed up. Dad probably started showing symptoms about 6 years ago, but seems to be accelerating last 18 months. My mom is overwhelmed, feels uncomfortable talking about him to any friends/ family about this besides myself. She has distanced herself from everyone and has no patience with my dad. I listen to her…
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New Diagnosis for 56 YO Wife...looking for *anything* to grasp on to.
We are stunned, gutted, confused, scared, and heartbroken. Yesterday, we received the results of a spinal tap that confirmed that my 56 year-old wife has young onset Alzheimers. She is due to start Monoclonal antibody treatment (Lecanamab) as soon as the Insurance is sorted out, and will also be starting Aricept as well.…
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From our local paper - and who knows if it actually happened?
CROWN POINT — A Munster man was charged with repeatedly abusing his wife, who suffers from dementia. John Lazar, 79, was charged Wednesday with battery resulting in bodily injury to an endangered adult and domestic battery resulting in moderate bodily injury. Charging documents allege that Lazar had been beating his wife…
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Discovered Husband with Alzheimer’s had an affair
Hi and I’m wondering if anyone else has been in this situation…..I’ve been married (I thought happily and in a loyal marriage) until recently. My husband was diagnosed with early onset Alzheimer’s in Sept 22 and the neurologist indicated he’d had it for 4-5 years previously. (There were definitely some warning signs and…
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Limbo
My wife is in hospice. It's a full service from medical comfort assistance to non medical stuff including lots of end of life decisions. Two days of different people calling and coming over dedicated to helping me keep my wife comfortable and prepare for her passing. I have contacted both our families with the latest…
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Florida vacccination shuts out Alzheimers caretakers and patietns.
Florida has instituted a vaccination regime that effectively excludes Alzheimer's patients and care takers who cannot drive to vaccination sites and wait in many hours long lines behind healthy 65 year olds. https://www.cnn.com/2020/12/30/us/florida-coronavirus-vaccine-line/index.html Florida's county-by-county plan to…
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M1
Just thinking about you, and wondering if the epidural helped as much as you hoped.
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Delay in montelukast trials announcement
Since Alzconnected dropped the clinical trials discussions board in the new format, I decided to post here. The Emory University montelukast FDA trial for Alzheimers was completed in November of last year, and yet nine months later, there is still no announcement of results. It is hard to believe that they are still…
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Products, gadgets, and ideas that help me...and some that don't
Over the years, the kids have given us/me several things they thought might help. Some did; others were tossed aside. I got to thinking about this and came up with a list of some things I do and some products I use that are very helpful. In the car I keep an extra hat and pair of sunglasses for DH. So many times he won't…
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My moms fatigue
Hello, new to the group. My mom has had Alzheimer’s for 10 years and sleeps until noon every day.y question is when do I get concerned with her fatigue? Some days she’s gone other days she’s exhausted. Of course we are also battling constant UTIs and have purchased bidets to try and help. Advice?
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A couple of firsts
Well the saga continues. My wife had about 3 days with very little sleep. She would not sit down. I made the house safe to roam like a big play pen and she was content. She would roam around the house talking to herself or her hallucination and simulate working. I would try to stop her for a moment and I would get a vacant…
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dealing with delusions
I am 67 and my wife is 70 and is in early stage 6. Our 18-year-old granddaughter comes over once a week to help out. My wife has started having delusions of me having an affair with our granddaughter. The first time I argued with her but since then I have said that it's not true and walked away or was able to change the…
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The things you thought were going to be hard, but were actually pretty easy
Did you have any of those? I had two. When she became urinary incontinent, I thought it would be a fight to get her to wear Depends type supplies. I went out and bought some pretty pull ups, then asked her if she'd try them. She agreed. I immediately got rid of her panties, and she never asked about them, and never saw…
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Feeling short tempered today
One of those days where I’m annoyed with just about everything DH says and does! Last 3 days of rain and spent each day thinking of things to keep him busy while still trying to do house chores. Every other sentence was I don’t know what to do. We went for rides we watched TV, one more ION crime show repeat and I’ll kill…
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Any folks in DelMarVa area?
Turns out that GG06 and I live not too far apart and we were able to get together yesterday. It was such a good experience to chat with someone who is also on this journey (plus GG06 is delightful). We're hoping to meet up again next month. If anyone is from around here and wants to join us, let us know 😁
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Best Practices?
Hello! I've seen the phrase, "Best Practices," here in the forum. Where can I go online to get more information? Many thanks!
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Community to talk with
Thanks Iris. I am finding myself going to alz… To check and see if anyone wrote to me. I take that as a sign of investing in community. I’m scared and angry and confused myself. My DH seems to be more confused lately, not remembering things he remembered two weeks ago. Although there are questions about his health and…
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Rapid Progression
Has anyone experienced a rapidly progressing diagnosis of dementia/Alzheimer's following a major surgery with General anesthesia? My DH began exhibiting "noticeable" symptoms about 6-7 weeks after his surgery. That was 10 months ago. He is now in Memory Care.
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We made the move
I just wanted to thank all of you who made recommendations or comments on moving with my DH to another place about 200 miles away. In short, we did it, and have been here about two weeks. We are very lucky in that DS and DIL have really stepped up and helped us: they've brought food, helped unpack, mounted DH's TV set and…
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“Make friends with grief”
Yesterday was a hard day. I attended a memorial services for a work colleague who took his life two weeks ago, ending his suffering from major depressive disorder. A devastating loss of a wonderful, gentle man, only 42 years old, who left behind a wife and two young children. The pastor offered a couple of thoughts that…
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Stages of this disease
Any info on how long they stay in the aggressive mean stage. Starting looking for placement and my daughter says this stage won’t last long. The verbal abuse is so bad. Just don’t know how long I can do this
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Disability or unemployment
Hi. I’m new here. My husband was diagnosed with cognitive loss in June. He was “laid off” a week ago. They will be starting Leqembi when I get him on my insurance. I dont know if he should file for unemployment or try to get disability. He is 67 and I sent in for Medicare part b. Not sure what to do next
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Having the uncomfortable conversation
This is something that we all need to do, especially while we are healthy enough to make rational decisions. We need to let others know exactly what we would want in our darkest hours, if we can't let our wishes be known for medical decisions. My wife and I talked about this several times through the years, and when the…