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Just this week started sleeping all day
Hi, it's been a long while since I posted or even visited the site (since before the format changed.) DW is now 5 1/2 years into EO Alz. She has been on an even keel for a while, but just this week her sleep behavior has changed drastically. She was always ready to get up every morning to get dressed and eat breakfast.…
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The Good , the Bad , and the Ugly of late stage 7
I’m posting this mostly for Josey Wales, and for others who are now in 7 . I want to be fair and give an accurate picture of what it looks like for others. So just as a little review, my husband 59 has had Alzheimer’s for 7 years. He has never hit a plateau , but just crawls along at a glacial pace. He is at home on…
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At Home Caretaker
In adding up expenses, the stay at home caretaker is less expensive than assisted living and memory care places. Is it normal for my friend to develop a strong bond with the caretaker? We are fortunate to find someone she likes but I cringe over the kiss goodbye and her waiting at the door when the caretaker leaves to wave…
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Telling a Young Grandchild
DW has an EO Alzheimer's diagnosis at 64. We raise two grandchildren, 19 and 7. Because they live with us, they need to understand why grandma acts the way she does. The older girl gets it, but I can't find a way to effectively educate the younger one. I'm looking for resources. Anybody?
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VA Disability Letter
My DH served in Viet Nam and was in Camp LeJeune. I received a letter from VA about the right to apply for disability etc. because of agent orange in Viet Nam and then the burn pits in Camp Lejeune. They said that his service locations/timing made his eligible for "presumptive cause." It gave a deadline in which to file. I…
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Question: Any caregivers taking Wellbutrin?
My primary care doctor prescribed Wellbutrin for me today for depression and anxiety. I really don't want to take anything that is going to work on my brain but I know I have to do something. I have one physical ailment after another and my mind is very tired all of the time. He says my depression and anxiety is causing my…
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Denial
I am brand new at this. My DW is in total denial about the possibility that she might have the beginnings of Alzheimer's or dementia. She is 73 and I am 71. She is the youngest of seven siblings but she is the only one left in her family. Her mother died in her 80's of Alzheimer's. Several of her other siblings had either…
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Early Stages
Hello to anyone reading. I’m in the process of coming to terms with the reality that my husband has some serious memory loss. EH has Lyme Disease but his connection with this illness as the reason behind his memory loss ignores the fact that his younger (73 yrs) brother is diagnosed with AD and now living in a group home…
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My wife is drug proof
My wife is in the non stop motion stage of her disease. She was prescribed Ativan to help with her agitation/restlessness. She is like the terminator she just keeps getting up and wandering. I think she could take Fentanyl and still keep getting up. I can get her to sit for about 2 minutes and she has to get up and walk…
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Husband has Dementia
My first husband of 45 years died of cancer in the end I was his caregiver. We had a business so I ended up running it because he was so sick. Then sold it to take care of him full time. My husband died and I felt my.life was over then I met a divorced man . We enjoyed each other so much had fun traveling the usa in a RV…
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Hallucinations vs typical Dementia Behavior
I am curious as to the differentiation of visual hallucinations vs a demented person’s perception of the people they see. For instance, my DH has in the past mistaken me to be his sister or mother or cousin. Who does he see when he looks at me? He talks about his mom often, and about a blond woman he saw earlier (which…
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Confabulation has begun
My DH has started confabulating. Yesterday he told me about a story on the local news that he "had seen". The thing is, he was sleeping when that story aired, I saw it, and had told him about it. I didn't correct him; I said that I'd been wondering about that, and now I know. He's never lived outside of two states; FL and…
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Telling family members?
Hello all. As we move toward a diagnosis for DH, it's time for me to think about telling his two kids about what's going on. I'm guessing that DH would not want me to tell anyone - but his anosognosia would be driving that. Both kids are adults, living in other states and both have not talked to their father much in the…
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Dad was diagnosed with dementia when I was 17
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About brain scans
They are a part of a diagnosis...only a part and there are different kinds of scans, All you need to know about brain scans and dementia - Alzheimer's Research UK (alzheimersresearchuk.org)
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Small mercies
I'm grateful -- really grateful for the small mercies that are features of the stage we're at now. It sounds absolutely terrible to express it this way -- to say it out loud -- but I'm grateful that being with my wife, diagnosed with dementia and moderate Alz early this year, is not the daily, hourly horror it was even a…
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New to site, question about stages
Hi. Just joined this morning and already see posts that are pertinent and helpful. Question about stages -- I see posts referring to stage 4, stage 7, etc and am unfamiliar with these numbered stages. I've seen early/middle/late stage definitions and think my husband is middle stage. How are these numbered stages derived?…
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Excellent Handout Packet: dementia, stages, CG's, actively dying - Tam Cummings
Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging tool that includes how the caregiver is likely…
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Should confabulation be addressed or ignored?
Background: My 58 y.o. alcoholic wife had a psychotic episode in 2016 after quitting drinking. She was hospitalized with a diagnosis of Delirium tremens but I believe she suffered/suffers from Wernicke Korsakoff Syndrome. Over the past seven years she has exhibited symptoms of dementia which I have managed through…
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Scores well on mmse but stage is different
I’m new here but have been finding help through reading discussions. Thank you all. My husband falls into stage 4 on memory/abilities etc. He has times when he calls me by other peoples names, can be disorientatated, can’t cook, can’t do any form of finance, cannot sort/remember medicine etc. The doctor performed deeper…
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MY DH cried this morning. Breaks my heart...
My DH, a Vietnam Vet tough Marine cried this morning at breakfast. He said he didn't like what was happening to him and he was afraid. He's stage 4 with some behaviors in stage 5 already. He's never been afraid of anything. When someone you love and lived with for 38 years says that to you it breaks your heart in two. I…
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Out of sight out of mind
We still have a land line phone. Our system is old and the phone constantly displays a message stating there's a new voicemail. My husband was obsessed with it. Checking the phone dozens of times per day looking for the voicemail that isn't there. Last week I cut a piece of duct tape and placed it over the "new voicemail"…
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Newly dealing with MCI
Hi. My DH has started to display MCI for a few years now. For the most part he functions well. But the occasional lapses always concern me. I want to prepare myself for what may come, and seek advice, especially when I might have to correct his faulty memory. Much thanks.
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Time to discuss anxiety meds with my DH
My DH who has been diagnosed with MCI is good with me handling everything. Although I am seeing more anxiety in him. He gets so frustrated when things don’t get fixed, or any delays. Today, trying to resolve his computer problem with him interrupting me with constant talking and repeated questions. I suggested to him that…
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M1
Just wondering how the epidural went. Hopefully it was fast acting, and did the trick.
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Hiring home care aid
The time is coming when I will need some in home assistance, at first just a companion/sitter type person. I'm wondering about experiences, pros/cons, of hiring someone directly vs through an agency. Obviously there is the concern of background, theft, etc, I realize there is some protection in using a licensed agency.…
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22/30 on MoCA
Hello all. After almost 2 years of trying, I finally got DH to the doc for an evaluation and he scored 22/30 on the MoCA. With this information, we scheduled an MRI scheduled for next week. I liked the evaluator - she put DH at ease and knew her stuff. DH was initially resistant, but became calm during the evaluation and…
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Disappointed in myself on a daily basis
Hello, fellow travelers. New poster here, though I have been reading for months. DH DXed 6/21, and I have been struggling since then with something that does not come naturally to me: patience. I know how important it is, and every day I wake up vowing to do better. And almost every day I have lost it by 11 a.m. It does…
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Experiment
My wife is in the hyperactive can't sit still gather and pile stage of her illness and over time I sound like a broken record saying "Sit down, relax." "No,no don't touch." Another thing she is in to now is endless wardrobe changes. Take this smelly shirt off to put another smelly shirt on. Socks come off and get lost. So…
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Wish I knew what to do
I wish I could place my dh. Kids don’t think it’s time. But then again they won’t my even talk about him or what we go thur daily. We are going thru a real rough patch right now even with all the meds he is not sleeping little things sets him off. One minute he wants food next he is saying he is not hungry. He sits a lot…