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Personal Care Assistant Hours
My unmarried partner is about stage 5. I do everything for him. He can still shower and toilet on his own, but I do absolutely everything else for him. Massachusetts pays any family member except a legally married spouse to provide PCA care. I have not started the paperwork yet, but I wonder how many hours of PCA care…
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New to the group
Hi everyone. I am new here. My husband has been diagnosed with Neurogenerative Brain Disease. We are unsure the official diagnosis at this point as he is presenting atypical for Alzheimer's and FrontoTemporal Lobe dementia however they do feel it is one or the other. He is currently diagnosed with MCI. We are in our mid…
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Easy recipes for insta-pot
https://alzconnected.org/discussion/comment/118950#Comment_118950 OK Jeanne C., you can start your crock pot thread now. 👍️If you start it, I might even add a post.
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caregiver needs
After six plus years of caregiving, my DW public behavior changed to the point that I sought counseling to emotionally handle these changes. The counselor asked me what things I did just for me. I believe that he suspects that everything I do is related to my wife and the disease. He suggested that I contact my support…
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DH currently in process of diagnosis, feeling overwhelmed, how to help him with diagnosis
My DH had his follow up visit with a neuro np today. She is saying based on memory tests he is borderline memory disorder. He does not have the alzheimer indicators on MRI, ordering a pet scan to look for amyloid particles and due to his age (57) he could be a good candidate for lecanumab med. The med has side effect…
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New Here and hoping to connect
Hi Everyone, My DH was diagnosed with vascular dementia just over a year ago and is 50. We moved to a new city and so I'm struggling to find support, especially since I tend to be an introvert. My biggest difficulty so far is not taking things personally when he is sooo mean to me even when he's nice to everyone else! It's…
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Regarding an MCI diagnosis
The time of MCI or "we don't really have a diagnosis" is a time to get active. I read a lot of posts of little activity. Many people will claim that there is nothing that can be done. I disagree. You don't know what will happen and neither does your doctor. Some population of MCI will improve, some will remain the same…
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New here
Hi, I’m new here. My 38 year old husband was just diagnosed with mild dementia and I am looking for support. He has MS which led to the cognitive decline. I’m heartbroken.
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Long journey has ended
Our long journey into night has ended. My DH passed away after 11 years of early onset AD. I struggled so terribly with all of this, but was given the following advice: Throw the Alzheimer's disease away, and remember your loved one before the disease. But that is the most difficult thing I have ever done! The disease…
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House maintenance, appliances, savings, etc
I'm not sure what my question is but maybe we'll all fiure it out by the time I'm done. Between 2005 and 2010, we did a major kitchen and bath remodel and replaced every single major appliance in the house. And now it's 2023 and I know those appliances are going to start to need replacement again, as well as a couple other…
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Years to go. Dementia is so SLOW.
I'm no longer in the trenches. I feel so much for those of you still caring for your LO at home. I have no idea how I made it through all that. But I'm here to let a few thoughts out again, about life after placement. I had a care plan meeting for DH at his MC yesterday. Hospice was there, too. It was a nice discussion,…
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Floundering.
My 72 year old husband was given a MCI diagnosis inn Jan 2023. He feels it is not correct. I agree but for different reasons. I fee he is further into it than that. He no longer manages our money, has more issues with short term memory ( but sometimes it’s ok) he cannot make decisions quickly. we are adding a screen room…
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OT: About refunds for OTC hearing aids
I'm posting a link about that, but I did get OTC hearing aids from Costco, with a 180 day money back guarantee. My hearing is not terrible, but I have trouble with high frequencies, and at times understanding women speaking. Also hearing in crowds is not good. I had the initial settings put on my hearing aids, but they…
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how to handle dillusions
I have a major problem with my LO who thinks i am telling him that I am having an affair with my sisters neighbor. There is no neighbor but I cant get him to believe that. When he starts on me about this so called affair he says I told him all about it. He tells me details that Ive supposidly have told him. I know you are…
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We all need to laugh everyday
I posted this earlier, but for some reason it didn’t show up on messages so I’m trying again. Funny thing, it does show up when I access through notifications. ???? A frog goes into a bank and approaches the teller. He can see from her nameplate that her name is Patricia Whack. "Miss Whack, I'd like to get a $10000 loan to…
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Is it safe to leave LO alone??
My DW was diagnosed 4 years ago with vascular dementia. This past year other symptoms have developed, hand tremors, hallucinations, RSBD, and her neurologist has added possible Lewy Body dementia to the mix. Although her cognitive ability is declining, she is very upbeat and has retained her wonderful sense of humor. She…
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When conversations creates more confusion
Yesterday dh and I were talking (well trying, dh has a limited vocabulary) . It started easy enough. Our son had sent a text about the nice cool weather they were enjoying. ( he and his family are on vacation) any way I shared with dh and he asked where they were so I told him. He replied we’ve been there! I was excited (…
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Does Original Medicare Cover PCA services
Anyone know if Medicare covers PCA care? thank you
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UTI and weird behavior
Last week i posted about my DH exhibiting weird behavior, strange gesticulating while sleeping, delirium, and lethargy. Ed responded and reminded me to check for possible UTI, and sure enough, he has one. Now the VA Doc has put him on a 5 day course of levaquin. I'm a bit scared of the possible side effects, but an…
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Should I stay or should I go?
that is my current dilemma; now that i can visit my partner in MC (not tolerated by her at the previous facility) I am struggling to find the right balance. She wants me there, every day if I could be, though it makes her somewhat unhappy when I leave and there is a constant "why can't we just leave and I be with you?" I…
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Dementia/divorce
I started divorce proceedings before we realized he had dementia. He is young, 54. We have been fighting alot. Now i try to discuss things rationally with him and the arguments are worse. He is a very bright man, and he uses my fears and insecurities against me. He acuses me of abandoning him, not caring, everthing that is…
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New Here
Hi all! I am looking for help and support. My wife has is only 51 and has been experiencing memory issues for the last 10 years. I understand she is young but there is a significant family history of dementia. W she still has the diagnosis amnesia NOS and we are waiting for a few more tests and follow up with neurologist.…
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Feeling Guilty
Where do i begin. For the past few years, my husband And i were having problem., financial, personal etc. I was suspecting drug abuse also. eventually i pusued divorce. He moved out but refused to get a job, and support himself in any meaningful way. I continued to support him to the best of my abilities, racking up tons…
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My son's mother-in-law
My son's mother-in-law has come to live with him and his wife. The mom has dementia and speaks a foreign language. The mom thinks my son does not like her as he does not communicate with her. How can I tell my son without making him angry with me. I try to help my daughter-in-law as much as possible to give her a break. It…
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How do you cope with the day in and day out of caregiving?
I know the stereotypical answer is supposed to be things like yoga, meditation, exercise, breathing. . . etc. My coping methods are not that, except for exercise. I do walk a lot, otherwise, not on that list. Just curious if I'm the only one not doing it right.
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We're back
Dear Forum Mates, I have been away (abruptly) for a few months and thought about you all EVERY DAY, several times a day. You have truly been missed. We (DH and me) are as well as can be expected, but had some serious stuff thrown our way and I just couldn't keep up with also reading and posting. I saw a note from…
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Yes, I got scammed
My son with mental illness wants to move to his own apartment. He can live alone, but just needs support. When he gets his mind set about something like this, he is relentless about finding something, to the point of driving me crazy. He found a place that was going to give him a discount because of his illness. He needed…
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White Crane: Need advice for skin care for husband
My husband's skin is very dry and not in good shape. He has sores on his chest, legs, and arms. Now he has developed some on his face and scalp. Part of it is his constant scratching and rubbing. Even though his fingernails are bitten down to nothing, he still seems to be able to dig at his skin. The physicians assistant…
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Aftermath
´I have been tottering along slowly getting used to being alone save for my two lovely cats. My orange Maine Coon follows me and lies on me, shrieking if he doesn’t know where I am. I feel exuberant, deeply sad and lonely all in a minute. My husband as far as I know is still being stabilized in the hospital. The house…
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59 yo DH dx w/ EOAD April 2023
Hello, I am 54 yo and my 59 yo husband was diagnosed today with early onset Alzheimer's dementia. He's getting an EKG before starting on 5 mg of Aricept. He has also been prescribed speech therapy and genetic testing. I would like to connect with people going through the same, or have gone through similar, who maybe…