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Need A Bigger Boat
I’m counting down the days to our first actual Dr. (neurologist) appointment. Am I putting too much stock in this first appt? Two weeks today. Am I going to get any actual answers? I fear not. Does anyone know what I can expect at this appt? This morning about 3am we apparently had a pinhole pipe leak in the game room…
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Update and question
DH went directly from the hospital to MC on Tuesday. A friend drove me there on Wednesday so I could take him some clothes and also to start the paperwork needed for his admittance. I hadn't planned on visiting him as I wanted to give him a few days to get settled in. To my surprise, the administrator said he was settling…
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New member with questions
My DH, age 81, with AD and Probable VD was officially diagnosed in 2021, but showed symptoms of the disease much earlier. I think he is stage 6. I am blessed that he is cooperative and seldom agitated. He has not been driving since before diagnosis and it has not been an issue for him. So here is my question: His driver's…
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Joint POA and sudden weight loss
I am wondering if anyone has had experience with using a joint POA. My DS and I are thinking that we might need a Plan B for MC placement should I become unable to care for DH , even for a short period. DS would like to visit facilities and even perhaps put DH on any waitlists for placement that he might encounter. Both of…
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feeling resentful
Hi. I am new to this site. My husband was just recently diagnosed with early onset Alzheimers. He just turned 60. We have had a tumultuous year as he is a doctor and had to retire, had a serious automobile accident, and now is facing criminal charges from that accident. For the most part, he is independent but struggles…
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How do I know I’m not the problem?
Am I being tough enough through this journey. Visited DH in the hospital. He is constantly irate with me for deserting him. The entire duration of our visit is focused on bringing him home. then he starts asking why he is there. At home he was doing a lot of ranting and raving related to delusions. He’d become verbally…
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Is this Sundowners?
Last night I was completely caught off guard. My DH was admitted to the hospital for sepsis and UTI on Sunday so he could get IV antibiotics. He is being released today. Some confusion being here, but nothing major. I went home to feed our dog and shortly after getting home he called frantic because he was thinking we were…
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Wisdom from Dr. Natalie and the Careblazer team
I just got this in an email today from the Careblazer team, I hope it's ok to repost, I want to make it clear I'm just reposting, not creating. But it has such an important message and not everyone gets the emails, so I really felt the need to pass it on. Maybe it will be a message someone needs today; I know I did. "When…
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Intense burning pain in gastro intestinal tract
My wife was diagnosed with early onset Alzheimer's in 2015. In the last year and a half, she has been experiencing intense burning pain in her stomach. She has been treated for acid reflux, had her gall bladder removed, has had a colonoscopy, upper endoscopy, and a stomach emptying study, All tests were negative and all…
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Managing combativeness for incontinence care
Well, we are now crossing the line into urinary incontinence--just occasionally, but it's starting. It's a battle just to get my partner to shower once a week and change clothes: today, the shower drain overflowed because the pipe was frozen, so we didn't even get a shower, and she was so upset, that it was a huge deal for…
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Considering starting Memory Care
I am considering moving my DW to memory care, and I am asking for feedback. I am 71 and my wife is 72. She retired in 2017 and I retired in 2020. There were some memory issues apparent in 2019, but with hindsight, I can now see that there were cognitive issues earlier. She was formally diagnosed with MCI in early 2021, and…
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salad dressing
File this under "amusing" or whatever.... No deep message here. DW and I eat dinner (I prepare) around the same time every night. We have a salad, but each of us prefers a different salad dressing. Almost every night she asks me to pass my bottle to her, and she puts the bottles side by side. Scientist that she was, she…
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Still alert but falls frequently
My spouse of 69 has moderately advanced Alzheimer’s and although forgetful is still able to function in daily activities. However, he has severe balance problems and falls unpredictably, even with a walker. He is bruised and sore from the falls. Our house is not well set up for a wheelchair. He gets annoyed when I try to…
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NEW TO FORUM
My first time using the forum and MDW has Dementia which has been a real trying experience and doctors say it only gets worse. Have been reading what other care takers of their loved ones go through and wonder if anyone has had their loved one accuse you of stealing their money, moving their things around, think I do not…
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delusions
Hello. I don't post very often, but have been reading posts more and more. Today, we went to the grocery store. Everything was fine until I had to go to the bathroom. We wheeled the cart to the entrance to the bathroom. I told my husband to stay there with the cart, which he did. When I came out 3 or 4 minutes later, he…
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I feel so beat up and confused
How do you deal with ongoing anger and rage coming from your loved one? Is this a symptom that I need to learn to cope with more effectively? When are delusions something to be put up with as opposed to treated because it is part of the disease? We sold our home 2-3 yrs ago. DH misses our former home. He is frequently…
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60 Minutes show on Alzheimers Treatment
Neurosurgeon Dr. Ali Rezai is using focused ultrasound to slow Alzheimer's progression. The show was on just recently and can be seen on youtube. Just search for Neurosurgeon pioneers Alzheimer's. My husband passed a year ago but it warms my heart that there might be a breakthrough that could make a difference for so many…
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Last Friday my world went sideways
Last Friday, my youngest son and his daughter left our house about 8 AM to go back to Indiana. They had been here for a week helping me because I had surgery on my arm on January 12. At 9 AM. My husband got up and got dressed. He came downstairs and ate breakfast. Then he sat in his recliner and said he wanted to rest. At…
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Major Life Changes
I haven't been on this message board for awhile because we have had soooo much going on lately. DH has been in a steady decline in his Alzheimer's status this year which has required some major life changes for us. I had been overwhelmed with stress in balancing my job, managing home maintenance/repairs, and DH, so the…
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Feeling lost
I’m new here. My wife is at the early stages, she is 67 and I am 60. I still have to work so our lives have a lot of moving pieces. Slowly I have been watching my wife deteriorate. The past 6 months it seems like even the easier tasks are getting harder for her & take her a lot more time. It’s like her problem solving…
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Testing during early stages
I am wondering about testing to monitor progression during the early stages. DH is 60. Still working and has diagnosis of MCI. We have gone through all the tests. MRI, spinal tap, neuropsychological testing, countless blood tests. We are not sure if he has Alzheimer’s or FTD as he is presenting as atypical for both.…
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Thinking about meds….
While my husband was in the ER there was a day where he did not get his morning meds until 1:30. He was bright, alert, lucid, calm until the late meds kicked in then his nasty side returned. Many of you have been into this journey longer than I have so you probably know. I need to keep in mind that some symptoms may be…
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Thanks for Elder Care Lawyer help
I took the advice of my financial adviser on this elder care lawyer. But I will contact a CELA. I guess I’ll just pick someone under Nelf(thanks @M1 ) I had an eye infection and was sitting in my car taking notes when he called so maybe I didn’t every word right. But basically, it would be 2000.00 for documents only. I do…
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My turn in hospital
Unable to raise blood sugar when it got low. Came in Thursday to ER, and released Friday. Back in Friday with same issue. Released Sunday morning. 6 hours later, back in and admitted again. Just hoping they find an answer to the problem. Really hard for me to type, so I won't be posting much at all. Waiting for…
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Good days / no so good days
My DH is somewhere in the middle of dementia ?? We shared a couple of peaceful days and today the flip side. I now know to tread lightly by not discussing anything requiring a decision from him on these days, even so, the roller coaster is challenging. I'm new to this discussion forum and thank you all for being here.
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Sad and just need to talk with folks who understand
Our dear neighbor and friend died this morning. Hearing of her death made me so sad that DH asked what was wrong and I told him. But throughout the day he kept asking me "what's going on next door". He can't recall what happened but does have a glimmer that there is something not right. I am usually used to his repeated…
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Touching base
It’s been several months since my last post, altho I’ve been reading regularly. I’ve spent those months getting my legal ducks in a row and just generally taking charge. My DH no longer drives and has (reluctantly) surrendered his license. We agreed to turn our 2nd vehicle over to our youngest, who has moved in with us for…
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Too much drama
My DH has vascular dementia. He will "lock on" to something that bothers him and shake it to death like a dog with a toy. That is, he won't let it go. Today we had a blizzard. He can't shovel/snow blow because of a heart condition. He wants me to find someone to do this. I did find a service that has been quite good. But…
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Our Journey is Over
My husband passed 1/5/2024. I would like to remember him as the handsome, charming man I met 5 years ago and maybe that will come with time. This horrible disease takes everything. Surprisingly it wasn't ALZ but Stage 4 metastatic lung cancer, very aggressive small cell. We had no idea he had it. The doctors said the…
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Lethargic and a bit bitter....
I'm here, on Tuesday afternoon, and there's a howling wind outside and it's freezing cold. This may be contributing to the lethargy I'm experiencing. Last week, we met with the doc to discuss the results of DH's PETScan. It was inconclusive, noting mild diminished activity without a specific dementia pattern. DH has…