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Yet another new scam
This is an excerpt from our local newspaper. CROWN POINT — Lake County Treasurer John Petalas is warning the public to beware of phony tax bills being sent from an address in Texas. Petalas said he received an inquiry recently from Humane Indiana in Munster about a letter from the “Tax Resolution Unit Lake County." It…
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Clinical Trials
I've never posted before so I'm not sure how many times this has been talked about. My husband with YOAD participated in a clinical trial through Rush University's Memory Care Center. We both acknowledged that he would probably never benefit in the long run, he felt very strongly about participating. His lasted for a…
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O.T., but it can bring a smile
https://www.boredpanda.com/illustrations-of-pets-in-disney-style-alessia-ciullo-part-2/?utm_source=news.google&utm_medium=referral&utm_campaign=organic
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The problem with Leqembi
The FDA will most likely approve Leqembi in July and Medicare has then indicated that it will extend coverage (to those in research settings). But my own opinion is that neither should happen. Every other recent anti-amyloid trial has shown that these drugs only modestly slow down the disease in APOE4 carriers. In…
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DH has UTI
My husbands confusion has recently been getting worst. Based on a few things I read here I had him tested for a UTI and he had one. He was on antibiotics for four days and then he started getting a fever of 101.5 this morning. So I took him to the ER and they felt the antibiotics weren’t working and they ended up admitting…
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Where do you draw the line on medical interventions?
Like most of you, I have medical POA. I struggle to find balance in his care. He has coronary artery disease (managed with meds and diet). We learned a few years ago that he has a stenotic heart valve. I had no problem recently telling his cardiologist that we would not be pursuing treatment for it (a TAVR procedure). I…
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Frustration
My husband with dementia is having some physical issues-sore tooth and lower back pain. Of course, each day he thinks it is just happened or only a few days ago. It has been now over a month. I am frustrated as he will not listen to me to seek help. He just keeps telling me to wait and see if it lasts. This is a continuous…
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Help with downsizing
DH was diagnosed 3 years ago with mild dementia. Is slowing forgetting increasingly and very confused. Doesn't know his way when we drive in a familiar location. We live in a large home and although I think it's time to downsize, he is unable to make that decision. He says it will be too traumatic. He is very comfortable…
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Medication for angry outbursts
My DH withALZ has been pretty docile until about 1 month ago when he had some undiagnosed infection. Prednisone and Z-pac cured the infection but since then his mood has deteriorated. He has started being argumentative, cussing and refusing to cooperate with me or caregivers. His neurologist has prescribed divalproex to…
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Butterfly Wings to Crushed
What can caregivers do if caught in a situation like this? Asking for a friend. Unfolding now. Has anyone else here got experience, ideas, contacts, etc. regarding this nightmare? I notice C may not be posting much just as I had not been able to. He may not see this in time. '99% of the world has no idea': inside the…
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Questions about CELA, documents, etc
I read here often and have learned so much! Went to CELA and had a Family Trust, DPOA, related documents created or updated. CELA was not especially helpful in saying, "Now, do this, put these things into the Trust". Finally we are about to identify which accounts need to be moved to Trust. We live in Texas. I have read an…
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Stolen moment
I went for a July 4 cookout today at MC--it actually turned into a "cook-in," because it was too hot. After lunch we went to her room, as we have gotten in the habit of drawing and painting (she mainly watches, can't initiate much). But I was tired, stole a moment to lie down on her bed and almost fell asleep. She went and…
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Happy 4th !
Happy July 4th to everyone! Hope you are enjoying to the best you can this holiday. I’ve had mixed emotions today from looking forward to having our family here for a BBQ to exhaustion from getting everything ready to resentment for DH not being able to help to guilt for feeling that way to sadness and tears as I watch him…
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Getting a signature stamp
My DH can barely write, or sign his name. We recently signed some legal docs, and they would even accept an "x". Someone suggested getting a signature stamp while he still can write . Has any one done this? I was told that these are acceptable for banking and other purposes.
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Wife won't address issue of possible alz diagnosis
My wife won't let me discuss the possibility that she may be getting Alzheimer's. Her mother died of alz at the age of 83. My wife is 73 and has been having trouble remembering words for several years now. She is the youngest of seven siblings and is the only one left alive. Several of her siblings had dementia. She is…
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Anosognosia
My husband is in Moderate stage Alzheimer's. 4/5. He totally rejects his diagnosis. His short term memory is gone and his long-term memory is going. On a side note, he is also hard of hearing and was tested and fitted for hearing aide. Getting him to wear them is a struggle because he insists he hears just fine. I spend my…
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Daring to travel, leaving him home alone
It feels very daring and somewhat risky to decide to leave my dh home alone while I travel to visit my new granddaughter who is two weeks old. I've been encouraged to go by others. So. I finally acted on their advice and am going for it. It's an experiment; a grand adventure. And perhaps some healing/personal growth…
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Is this Aphasia?
I'm a little confused about Aphasia. When I make a statement or ask a question and DWs reply is totally off topic, is that Aphasia? Like this: Me: "I got us some more Strawberries." DW: "That's because I'm not very tall." Speech is clear as a bell just makes no sense. Thanks.
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Memory Care Placement - Assisted Living ??
I know the time will come when I need to make the decision for my DH about a Memory Care. My daughter-in-law is a nurse and said to get him on the waiting list now. Are there facilities where I can stay with him? Like a one bedroom apartment. He's 78 and I'm 75. We don't have a home to sell and already live in an…
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Moving before it gets too bad?
In the next few months, I hope to get an evaluation for DH. He has an appointment but is already saying he won't go. We'll see how that goes. My question is related to the near future. I am interested in moving to another community in a different state. The move would be for me, not necessarily for DH. I'm thinking about…
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Overwhelmed with DH boredom
I am new to this group. My DH was diagnosed with MCI 2 months ago. His short term memory had been getting worse over the last 5 years. The first was losing track of directions, locations. The first change I saw in him slowly developed after retirement over 7 years ago. We always loved doing things together including travel…
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Family Care Guide - alz.org
I found this on the VA website and I'm sure it's here somewhere but I hadn't seen it yet. Maybe it will help someone just starting their journey with this terrible disease. https://www.alz.org/media/manh/documents/Family-Care-Guide-FINAL.pdf
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Bringing LO home
My LO was diagnosed with ALZ in 2019 and is in decline (early stage 7). She has been in a MC facility. Unfortunately, I am running out of money and am bringing her home to live with me in a new apartment. It was either home or a Medicaid facility. In either case, the change will be traumatic for her. The hospice I love is…
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Returning to share information
Hello all, I was in this group several years ago as I was going through the struggles as caregiver to my DH. This was great platform to vent, cry, laugh and gather insight with those going on a similar path of caregiving full time. My husband passed in 2019. I want to share information with the partners or spouses in the…
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I thought I would be better prepared
Helped take care of my mother years ago when she was diagnosed with Alzheimer's. But not even that compares to taking care of a spouse of 40 years. My husband, now 80, was diagnosed with Alz in 2020. Looking back to 2018, during our move, the signs were there and have since progressed. Short term memory is now gone. Long…
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Follow up on UTI
recently i posted about some unusual behaviors my DH was exhibiting, delirium, lethargy, weakness. We nrought a urine specimen to the lab and he indeed, did have a UTI,.{thank you, Ed} He was on 750 mg of Levaquin for 5 days, and had no side effects from the drug. He is so much bettter, has more energy and is not…
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New here. Not sure of anything anymore.
I started noticing changes in DH a couple years ago. He just blew me off, chalked it up to age (71 at that time). Then came Covid. He's had it 4 times, twice hospitalized with Covid pneumonia. Developed long Covid a year ago. About that time, his cognition began to diminish slightly and now, he's just no longer the same…
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Bible Verse to Lift You Up 6/29/23
First, thank all of you who have made comments. I appreciate them. God bless everyone who comes here. Peace always, Ronnie (Veronica Kelly Badowski, VKB) CIRCLE OF LOVE Galatians 5:13 New Living Translation For you have been called to live in freedom, my brothers and sisters. But don’t use your freedom to satisfy your…
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Sleep Apnea Question
I am curious to learn how many of your spouses had untreated sleep apnea before they were diagnosed with their memory problems.
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MCI
I am new to the group and was reading some older posts regarding MCI. My DH was diagnosed with MCI officially in April 2023. His MOCA was 15. Not good. His spatial scores are still good so our neurologist did not advise against driving. We are going to the Cleveland Clinic. DH is still working. He is an outside sales…