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Please visit the General Caregiving board.
I started a thread for books about Alzheimer's Disease and caregiving. The intention is for members to find pertinent books in one place, instead of scattered about in random threads. There are already some good posts. Please visit and add a book if you can recommend it.
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A good day
We had a old friend over today for lunch. I kept it simple when usually I would overdo it and stress myself out getting ready for company. My DH was anxious before she arrived - started asking if he could stay with me and I was going go away without him. I redirected by getting him to sweep the floor. I decided to focus on…
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just need to talk to my friends 191
thread 191 just need to talk to my friends
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Brother came to live with me
I've recently had my brother with dementia come live with me. I knew he has dementia. He has such STRONG ANGER OUTBURSTS! I was totally taken off guard. I found this forum and hope to learn about his situation.
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adjusting
How do I adjust to placing my DH of 50 years in memory care? This has been so hard on me and I am not adjusting well. Overall he is doing ok. It had only been a little of 2 weeks.
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My husband bit me
I now get a psw once a day to bathe and change my husband. It takes two to do this. I hold his hands while the psw does the washing. It often degenerates into a weird game of twister while I grab his hands and use my legs to retrain him. Today he grabbed the psw’s shirt and exposed her breasts. She just laughed it off,…
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Mental Illness dementia or something else
Hi everyone, I am still coping with my moms memory issues and diagnosis. I am truly baffled: her issues are so obvious to me, my one other family member who knows her, and the people in her AL. But when I bring her to the doctor, desperate to get her some kind of care of evaluation for her memory issues, they either…
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Door Locks
Help! The door to our basement has only knobs, no locking system. My DH somehow managed to go down there and dismantle the dryer vent. I spent last night down there with step stools and heavy duty tape putting it back together, it took me 2 hours, and i was finished by midnight. I'm hesitant to install a keyless entry as i…
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48th wedding anniversary
It's now 48 years since I married my princess. And 5 years since she had any idea who I was I served chocolate cake and Ice cream for our 48th wedding anniversary I sang the old songs from the 70s She wore a dress she first wore 50 years ago and I read a poem from ― Isaac Asimov “In memory yet green, in joy still felt, The…
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A dual existence
Though I'm conscious that a qualified, skilled doctor made the diagnosis of my dh's condition, it's as if my mind likes to pretend I live a "normal" life like my friends and acquaintances. Some part of me "takes vacations" from the reality. It's as if I've become adept at living in two worlds, side by side. I live with one…
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Adult Day Care Experiences by PookieBlue
May 26, 2023 This post is directed at spousal caregivers and their experiences with getting spouse to attend adult daycare. I hope to be able to leave my DH at adult day care so I can be away from the house for a couple of hours every eight weeks to begin with, and more frequently as needed. My DH has always been the most…
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Too much of a cynic?
So i had an interesting talk today with the occupational therapist who's been evaluating my partner. She had a number of suggestions for things she wants to try- all of which she says my partner heartily endorsed when she was there, and almost all of which i completely expect to fail. For example, she wants to put her in a…
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By Ed - Off topic, but really important
I know of a teenager who has a lot of problems. Her mother has been trying to find help for her for quite some time. There are special "schools" that deal with turning around your troubled child. One her mother looked into was $165,000.00 a year. There are many others who have high cost programs that deal with this problem…
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By LSUshad. Fourth week of Memory Care
The last time I posted, I was about to place my DW in memory care. We dropped her off on April 28, and now she has been there almost 4 full weeks. We (my daughter and I) were advised to stay away from the facility for two weeks. Our first visit with her was on Mother’s Day. Since then, I have visited four times, every 2-3…
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Why is he so amorous now?
My DH has gone way over the top recently with his affection for me. He is constantly grabbing me and trying to put his hand up my shirt or down my pants - even in the grocery store! At home he tells me I am beautiful and he loves me and he wants to make love to me all day long. He, of course, like most men his age has ED…
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The Homeless Elderly
i saw this report regarding the Homeless Elderly; it certainly presents something that one does not hear about: https://www.yahoo.com/news/seniors-flooding-homeless-shelters-cant-162941381.html It is stunning to me that this has not been a significant publicized part of the dynamics re the homeless population issues. it is…
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A Day in the Life
A Day in the Life “truck truck” We’ve moved his pickup truck to our daughter’s house. Out of sight, out of mind…. not so much. “truck truck” He wants the truck so he can get compost for the garden. He can’t drive……but doesn’t know that. “truck truck” He calls our daughter, asking for the truck. She tells him she’s working…
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Let me be blunt
Problem with incontinence and very soft stool mostly soon after eating ,very little food.The mush in the depends smashes/runs every where and sometimes out of the depends requiring a shower ,etc. This is a daily occurrence.Not a easy task. This causes UTIs. Is this common with PWD? That they don’t have solid BMs. also the…
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Backup Care Plan Resources
In a recent post, I mentioned a backup care plan that I was working on with the help of a support program that we are enrolled in. While I don’t feel that it is appropriate to share their copyrighted document, I thought I could do a search for similar resources online and post this for the group. My Google Search Term was:…
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By Ed - If you walk your dog, please read this
https://www.whas11.com/article/weather/storm-team-blog/the-heat-is-on-how-hot-common-outdoor-surfaces-can-get-in-the-summer-sun/417-fc5c9290-7ce9-4498-a7ab-5cfc433f999f
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Question
Wow, I am also new here and you guys and your advise are amazing!! My husband began experiencing problems early last year. He lost his job due to his memory decline. Fast forward to this year and it is even worse but neurologist will not diagnose him with Dementia/Alzheimers. Even though last years MRI showed volume loss…
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DH is soooo uncooperative!
My DH has bvFTD. He has an infection in his eye, back problems, and a very BAD attitude. He won't go to his doctor's appointments. Every time I set up an appointment for him, he tells me to reschedule it. He has trouble walking and uses a walker but even with that he struggles. I wanted to get a wheel chair for him, but he…
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Moving closer to adult children
My DH was diagnosed as having "mild dementia" in December. He has been angry, agitated and uncooperative. Lately he even has broken down in tears when he can't remember what he wants to. Seeing this, my son and DIL have urged me to move to the town where they live. They've been urging this for several months, but most…
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Day 7 no food or water
It is just so painful watching the days tick by with only sleeping and changing him. His changes are now 4 hours apart because of so little fluid coming off the different organs. In spite of a low-flow mattress he managed to get a new bed sore. The skin is just breaking down and when I start to change him he starts…
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New trend
For one my DW keeps trying to break with me but more concerning however is I can't take her anywhere because as we are driving home she gets hysterical, yelling, screaming basically in a panic over her "kids" and that I'm going the wrong way. She even grabbed and pulled my arm while it was on the steering wheel. Almost…
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Putting your own oxygen mask first
I have my cervical spine surgery scheduled for Wednesday. My DH is spiraling with anxiety. I am expected to be in the hospital overnight for observation. My brother will be with him Wednesday and Thursday for support. I wrote out two pages of notes and instructions for DH's care and schedule. DH is in early stage mixed…
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Not Recognizing Family Members
Any advice would be appreciated. We are only 1 1/2 yrs into this (I think] still no diagnosis. My DH has been suffering with memory loss, trouble finding foods and difficulty recognizing objects. It come and goes, some days better than others. Yesterday at our grandson’s high school graduation party he didn’t know ho our…
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Tools I use to help me cope
We cannot have too many coping tools and here is what has been working for me: 1) Exercise, 2) Breathing exercises, 3) Meditation, 4) Studying philosophy specifically Stoicism. Look up Marcus Aurelius quotes from meditations really resonate with what I am going through. I'm curious what other peoples coping tools are.
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Caregiver Support(1)
Anyone in the St Pete Florida area caring for a LO that would like to share information and support
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by Jfkoc: A good read
and an interesting solution albeit in France A French Village’s Radical Vision of a Good Life with Alzheimer’s | The New Yorker