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Medication
My LO memory has declined according to her recent memory test she had a few months ago. Her neurologist prescribed a medication called Memantine. The first week she was doing fine, but the second week there has been some changes. She tells me she is drowsy, dizzy and feels funny. I noticed her mood has changed since taking…
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I'm on the autism spectrum and Mom has dementia
So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the legal limit after being found in a field face down next to a church near her home in 2023. She laid there all night in the…
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FIRST TIME PARTICIPANT: My AAIC code did not work.
All last week I tried to log into ALZ.org online to view sessions, but the staff wasn’t answering emails during the conference and is now in vacation until the 12th of August. Can anyone explain to me how to use the code I was provided to log in online? I learned today from a YouTube presentation that the videos only…
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Mom is nearing the end
I’m sitting with my mom at her MCU. She has deteriorated very rapidly, stopped eating, is mostly asleep and very minimally aware. I live 5 hours away and for a variety of reasons have not visited her in many months. Fortunately until recently we had wonderful phone calls and she always knew it was me. I wish I had come…
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Caregiver for Brother Mid Stage Alz question
I am female, and the lone caregiver for my twin brother who lives with me. He is on the downside of mid-stages Alzheimer's and symptoms are speeding up. We are soon to be 70 years old. He cannot drive, can barely write his name and cannot do numbers at all. Moves very slowly and is beginning to have trouble finishing…
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Early stage, waiting for the other shoe to drop
DH was recently diagnosed with ES Alz. Looking back, there were definite signs 5-6 years ago. A few weeks ago, he totally missed the toilet in the middle of the night, twice. Since then, nothing. Lots of good advice from this group on that. Most of the time, he seems perfectly normal, except for his choice of word…
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Life in the Alzheimer's Warehouse
Good morning Dear Friends. I sometimes find it helpful to write down my thoughts. I am sharing what I wrote this morning in hopes that it will offer a perspective that while we don't have control over our situation, we can and do choose what we think of each day. Let's all fight with every fiber of our beings to stay out…
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Short Film: A Marriage to Remember
Lovely. https://www.youtube.com/watch?v=PZu51MnqfF4
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Scared and unsure
Iam so new to all this I apologize I just don’t know where to turn. My husband is showing signs of memory loss and it’s scary. I’ve got him to go to his pcp but I have no idea what is ahead. Iam having anxiety attacks and can’t seem to function well myself. This is a hell. I am just reaching out because I have no one to…
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How do I convince my mom to sign a medical and financial POA
Hello! First and foremost, I am so very thankful for this site. It is a wonderful feeling, knowing that you are not alone in this craziness that has up ended our lives. My mom is afflicted with Alzheimer’s and dementia. She’s 74 and was diagnosed last October. I would say she is pretty much status quo for how she is…
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No signs (I don't think) but had father and grandmother die with the disease
Hello- I'm new to this forum. Today's paper had a very interesting article about the new testing which is becoming available for early onset of the disease. I'm 57, healthy and I eat properly and exercise 5-6 times weekly. I'm retired so I don't have the "stresses" of a job. I recall my dad being concerned about not…
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Neurologist Recommendation?
Can anyone recommend a good geriatric neurologist who diagnoses dementia/ Alzheimer’s in the Capital District area of NY? Not sure if I’m allowed to even ask this. New today to this website and discussion forum. Mom is in AL but they are recommending MC, and I don’t know if it’s because MC is more $ and they have more room…
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Please send good vibes
So after my mom was put on notice for incontinence, I was in a panic. I visited a LOT of memory care facilities. So many were not places I could see her in at all, for one reason or another. I was extremely depressed. Most said they were confident they could deal with her incontinence issues, but other things just didn’t…
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Not that she'll remember, but....
I'm wondering if my mom's PCP can have a conversation with me and my mom about moving her into MC. Not that my mom will remember having the conversation, but she seems to respect what her doctor always has to say….and it will be in writing in her after-visit summary.
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Regarding "Groups"
I accidently clicked on Groups and noticed that a few new members had started a group to discuss their own situation, by way of introduction. No one will know about them in a group, they need to post in one of the caregiver boards. There used to be several Peer Volunteers to check for new members. I hope that some of the…
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Taking a car away
My mother, 89 yo was dx 1 1/2 years ago and progressing to moderate has not had a valid DL for 10 months -suspended not revoked. CA leaves people in limbo- but her insurance was still covering her until this month. We have been working on trying to get her to understand and be open… well we took the car away and left her…
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Medication Reminder App Suggestions
Today was one of those "I cried, he whistled" days. He was really upset at something I did because it wasn't the way he wanted it. It really hurt my feelings, and he went on like nothing happened. Only to find out, he did not take his meds for yesterday afternoon, this morning, or this afternoon. Even though I try to…
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He’s reading the newspaper
It’s upside down. Good morning, dementia.
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Introducing myself.......
Hello everyone, Like many others, I've been lurking on this site on and off for months. It has been both knowledgeable and comforting to have you all as a resource. Thank you. I no longer feel alone. I am caretaker of my DH of almost 30 years. His symptoms have gotten progressively worse over the past 3 years. Same old…
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Advice needed
My mom has Alzheimer’s & lives with her partner. She was always an independent, strong woman who loved her independence, quiet time and kept herself busy. Now that is all gone & although I understand that’s not her choosing & that it’s scary for her, it doesn’t make it any easier. Lately she completely forgets when she has…
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Intelgenx montelukast clinical trial
I posted a few weeks earlier that Intelgenx Technologies in Canada has completed its clinical trial using its film version of montelukast to treat early Alzheimer's and MCI. A brief preliminary report indicated that participants taking the highest dosage of 30 mg twice a day have shown cognitive improvement. A final report…
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Side effects - Rivastigmine or Leqembi
Mornin, first post here. Wife,53, diagnosed with AD not long ago. On rivastigmine after terrible time on Donepezil and has had one infusion of Leqembi week before last. She’s had a couple days of “ just feeling like s**t” , but not too bad. Question is, has anyone witnessed a tightening of calf and lower calf muscles.?…
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Help! I am exhausted and depressed
I just feel I can't do it anymore. I cook, clean, pay bills, manage rental property that my HWA refuses to sell. He believes I conspire with the renters against him. I am just so beaten down. My HWA wanted me to pick up apples that fell from the apple tree in the backyard. I said I was too tired. I have been working all…
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Dealing with nighttime urination
My 92-year-old dad has been living with me for 2 years now, and has gone from being mostly independent with IADLs and doing his own laundry, to regular urge and functional urinary incontinence (now wearing Depends day and night) and most days needing step-by-step assistance with getting dressed and undressed, getting under…
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Another interesting study presented at the Alzheimer's meeting
The papers are reporting today on evidence that the Shingrix vaccine lowers dementia risk. Interesting questions about infections playing a causative role over time. Makes me worry about the long-term covid risks too, we won't know the answer to that for decades.
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I'm feeling whiny
My husband's aide has been out since Wednesday and the agency hasn't found a sub. Wednesday was awful - he had been up most of Tuesday night (meaning I had been up most of Tuesday night) so I struggled. We got through it. Yesterday was rough. We got through it. This morning I'm mainlining coffee and he's removing the…
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Advice Needed, Please
Hello. Does anyone have advice on what to do when the staff and administration of a nursing home are unhelpful? My mother has Alzheimer's, and yesterday, I called to ask if the doctor could please call me after he saw my mom. ( The Dr.s office is independent of the nursing home, and because the nursing home would not…
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My brother had his neuropsych testing done today
We won't get the results until the 19th. It didn't take nearly as long as my hubby's testing did in 2013. I don't have any idea what the doctor thinks. I'll find out later. I did tell her that I want to know if he is still safe living alone and driving. He's driven me around a good bit the last two days. I never felt…
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