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Never ready for this
I met with hospice intake today and the nursing assessment is scheduled for Monday. Part of me is protesting that it feels too soon. After all, we sat outside this morning, ate lunch in the community dining room. But: they will get her an adjustable hospital bed, which I think will be much better for her back; and they…
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Frankenstein
I'm an almost 69 year old male diagnosed with vascular dimensia about 6 or so months ago. Can't recall my last several or more birthdays, Christmas times or such. Almost tabula Rosa since around Covid (no I didn't get Covid). I am taking Aricetpt and Namenda for brain health and Zoloft and Remeron for depression. Had my…
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Barely survived S In storm
60 hours with no electricity, 72 hours without TV, phone or internet. Stuck in the house with a spouse that does nothing but watch TV and drink beer. I had to watch him every minute to prevent him from opening the fridge or trying to fix the TV. He fidgeted, paced, and repeated himself all day, for 3 days. I pity those of…
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The age old question - Is there life after caregiving?
Just wanted to touch bases, and let you know my experience with this. June 24, just a few days ago, marked 2 years since my wife passed. This has been harder than I ever could have imagined, although I don't know how much, if any, was due to caregiving. I had absolutely no interest in doing anything, and I think I just…
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Choking
Yesterday was his young son's birthday (20 years old). I had made a roast beef. He made the pieces too big and put two in a row in his mouth. Result' it got stuck in his esophagus. This happens often because he eats very quickly. I haven't finished serving everyone and I haven't started eating yet, but he already has…
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what does this mean & what are next steps
Hello, my LO is starting to exhibit physical challenges that I think are related to her ALZ diagnosis. I noticed maybe a month or 6 weeks ago that every now and then I would see that she would shake. So we bought plastic plates and cups for the house but she refuses to use them. Well this morning she couldn't manage a…
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Tax prep
My dad just called me and asked me to help with filing his taxes. I'm going to gather as much tax paperwork and see a tax preparer who might do it for free, if possible. I knew it was a matter of time that he would admit he needs help.
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Lacanemab experience + Patient Experience
Hello valued forum -- we are looking for existing lecanemab users and families - who can share their experience. my mother is approved and considering treatment. we have plenty of medical input and data - but looking for human stories and lifestyle comments. welcome a discussion here or offline too! tx, jennifer
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Risperidone for ALZ
I'm seeking advice about starting my 76-year-old mother, who has Alzheimer's, on Risperidone. I’m aware of the many risks associated with this medication, and I’m struggling to make a decision. From my research, it seems like Risperidone can be a gamble—it can either work as a miracle drug or potentially cause…
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Delusions
My LO when he gets angry with me he accuses me of having affairs. Today I caught him sneaking food to our overweight dog in which I have had him on a diet for the past couple of months. I got angry with my LO for doing so. I tried to apologize for getting angry and told him i don't like being lied to. When he gets angry…
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Morning Meds
I talked with my sister's care facility this morning to see how she was doing with a med change her neurologist made recently. The med tech said she was doing good. She didn't have her morning meds because she didn't get up until almost 10:00. When I asked why they didn't give her the meds when she got up, the tech said,…
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Too involved? Waiting on crisis?
My grandmother, father, aunt and oldest sister had dementia and have passed. My living sister is having memory problems (67 yrs old). She asked me to go to doctor with her, I did. Doctor ordered blood work, an MRI and an appointment with a neurologist. MRI came back normal. Blood work came back with elevated liver enzymes…
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Unknown road
I'm not sure where to start. I'm not used to having to ask for support. My hubby was diagnosed a year ago w/short term memory loss. They wanted to do more tests, but he's refused. He states there is nothing wrong w/his memory. He's 68 & we've been married 23 yrs. His father & grandfather passed away w/dementia. Out of his…
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Advice on death
Mom has some Dementia, and is moving into ALF in 2 weeks. She is very stressed about this so her dementia is pretty bad right now. We took her cat for shots, vet said he will pass any day now. I am so new at this on how to communicate. I know when it happens she will know, but what about 4hrs later when asks. What do I…
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CBD gummies
so I’m caring for a mother that has Alzheimer’s and if anybody use CBD gummy to help with anxiety, not the kind with THC and if so, any success and if so, what kind?
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Processing Grief During the Journey
I recently placed my spouse of 46 years in memory care and am grappling with the process of grief. I visit daily, and when I'm not with him, I'm often overwhelmed with sadness. It's like the relief of being able to sleep and not dealing with constant anger and aggression managed to move me straight to grief and I'm so sad.…
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M1
Sorry, duplicate post. While I am a big advocate of Hospice I know first hand that there are stupid people who get employed by them. I learned the hard way. I switched Hospices after interviewing several. You are still in charge of your partners care! Further you can continue to use a private Dr. It sounds like it may be…
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Osteoporosis Treatments?
Anyone have experience with osteoporosis treatments (pill vs shot vs IV) for women with dementia? Wondering what experience you had, how well they tolerated treatment, etc. I’m not asking about the side effects. Rather, for example, if you did the IV was it a big deal doing the prep, sitting still long enough for the…
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…
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Dad doesn’t like any new doctors
Have any of you also experienced your ALZ/Dem parent disliking anyone new caring for them? My dad has moderate/severe ALZ/Dem and is saying “I don’t like them” (and unable to give a reason why) for every new doctor, nurse and/or CNA he meets. I know it is common for folks with ALZ/Dem to feel uncomfortable with anything…
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50th Anniversary
For better or worse we’re going to Alaska with the below group middle of this month. My dh is in advanced stage which is a peaceful stage for us. He walks and responds in short answers, but does not generate much conversation and no longer speaks of delusion or tells paranoid stories. He smiles and is happy to see me. We…
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Some useful resources
Michael and I were not sure how useful some of these resources are, but some may be useful to some here.
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Stage 4
I have posted before and your responses are appreciated. We are 83 and 84 and my wife has ALZ. We are about 6 years down this road and my best guess is that she is in Stage 4. She is a wonderful person and doesn't realize she is sick. She is happy. However, she is totally dependent on me. I make all decisions, plan…
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Medical POA question
I had an interesting event happen yesterday. I took my mom to a pulmonologist appointment. A doctor she has seen several times. As usual, there was a form to sign while in the waiting room. I had mom sign it- consent for treatment and to bill the insurance. She signed her first name and I had to prompt her to sign her last…
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Dealing with my mother’s delusions and anger
Hi. I am new to this group and fairly new to caring for my mom who was recently diagnosed with dementia. A couple of months ago, while on a day trip with her husband and sister, she sort of snapped. She was riding in the backseat while her husband was driving and her sister was riding in front. My mother became withdrawn…
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How do I handle the pets?
Hi, I’m new here. My husband and our 3 small kids moved in to help take care of his mother 3 years ago. She has dementia, suspected to be Alzheimer’s, and she had a stroke last year. Recently we have see a big decline in her ability to take care of herself and her pets. She maintained a lot of autonomy at first. With cues…
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Am I Making The Right Decision
Hello, new to the Group. My mother was diagnosed with Alzheimer’s about a year and a half ago not to mention other health factors that she has going on. Right after getting diagnosed expressed that she wanted to be put in a facility is her memory got worse, or she wasn’t able to take care of herself. Me and my siblings…
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Evanthea dementia reversal
Hello everyone. Just seeing if anyone has heard of or has any thoughts on the Eventhea dementia reversal clinical trial?
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POA
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How to manage with a caregiver
My mom is 79 years old and is in advanced stage of dementia. She has urine and bowel incontinence and hence needs to be cleaned very often. I have kept a caregiver, but my mom refuses to accept her ...for cleaning her, bathing her and nowadays is so agitated..always screaming n asking her to get out. The caregiver is very…