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Memory Care - Last Option
My 89 year old mother absolutely refuses to accept anything is wrong with her. I live on the West Coast she lives on the East Coast. I have spent the last 4 months taking care of her. Her doctor agrees she can no longer be left alone without some outside support. She refused a home health aid or live in because she says…
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Help
Maybe I'm a failure at this. I know I shouldn't argue, and I try hard not to, but what do you do when your DH gets so angry at things? (Not physically ever at all, but starts swearing and telling him I am never on his side or never agree, etc). I am on edge every minute. I'm really trying - I even got a prescription for…
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Genetic tests showed that certain patients were predisposed to brain injuries if they took Leqembi
NYT: What Drugmakers Did Not Tell Volunteers in Alzheimer’s Trials Gift link. https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?unlocked_article_code=1.UU4.KqG8.FPSRwXrExKTl&smid=url-share
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I have a legal question about POAs
My brother has (finally) signed POAs. He assigned his stepdaughter as his primary. He once told me that I'm mentioned as a successor agent, but I'm not sure whether I'm second or third. Anyway, his stepdaughter just gave birth on Saturday. She said she can't serve in that capacity and has asked if I can do that. I think…
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Numbers items
Hi I'm new to this group. My mom has some form of dementia going on we have not got to the neurology evaluation yet. Just wondering if anybody else's loved ones number things. Like shoe number one and shoe number two, the shirt is number nine. It occurs with food and pretty much everything for the past few weeks. Had a…
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thank you for all the support
my dad is at peace now. i would not have made it through this without this community. i am grateful.
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Getting Mom into Assisted Living is proving impossible!
WHY is this so hard? Mom is currently in a subacute unit at a local NH recovering from an accident she caused while driving a month and 1/2 ago. Her license has been suspended, her car is totaled. And ever since her accident her cognitive state has been sooo much worse. It's like she went from early-middle stage to…
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New to community
I am a caregiver for my parent who lives with me. It's been a little over a year and it has been challenging. It's a little better now but early on I cried almost everyday. My father has had mood changes. Looking for ways to manage. I wish my family was more supportive. Everything is left up to me.
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AFTD meet and greet
if you’re in Delaware, southeastern Pennsylvania, eastern Maryland, or south Jersey, I’m hosting a dementia caregiver meeting on behalf of the AFTD. It’s on Saturday, October 26 at 10:30 in Middletown, DE. Details in the link:
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How to cope with holidays?
Hi everyone - hoping all of you did ok on the holiday weekend! My holiday was super mixed. Brought my mom home had a good 3 days but it was of course hard transition for her back to MC. Also, I am her punching bag. When she gets upset, she lashes out at me. I am her primary caregiver, there’s only 1 other family member…
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Daughter of dementia patient: The inevitable?
After my dad’s diagnosis, I’m terrified of getting dementia myself. I grew up with difficulty learning and remembering things effectively while also dealing with anxiety and depression. So I’ve always been kind of like my dad, I found ways around the problem , never actually taking the time to learn…how to learn…until I…
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I never thought about this !!!!
first let me say I love this site. But after feeling sorry for myself I thought of how lucky I am to have found this group. That being said I was thinking about how many lives do you think have been destroyed by this illness to the very young. And what I mean is at 40-55 to be married and not realize what’s wrong or even…
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Life expectancy for FTD
My husband has been diagnosed with FTD. I think he’s had it for at least 5 years. He is 64. I’m trying to make a decision about whether to extend his life insurance policy which will be expiring soon. Does anyone have an idea with early onset FTD what his life expectancy might be? My guess is he’s in the later middle…
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Am I doing it all wrong?
My mother is 89 - diagnosed this summer with early onset. We moved to the house next door last year in an effort to have her age in place as long as possible. Everything seems to be accelerating now. I've been noticing cognitive decline since 2022. She scored 26/30 last year and 21/30 this year on her MMSE which seems like…
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Three Magical Words
My DW and I have gone through a 7-year journey since a 2015 stroke. As many of you have described, we have had very difficult moments. This may not sound profound, but I have found that when we are at our most stressful moments if we just say to each other "I love you!" peace enters our world together. I have to believe…
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Paying taxes once a year by withholding from an IRA distribution
Small hint that many people don't know about. We both have pensions Social security and IRAs. Because of DWs medical expenses I don't often know my tax situation till the end of the year. So I have no taxes withheld from the pensions or social security but instead pay the taxes as a withholding in December (both federal…
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And then there was one . . .
My mother has been in MC for a year and a month. For a while, Mom would call me and want to leave because she'd say, "these people here are not my people." I thought visits from her friends would make a difference, but she doesn't remember them. I see her every Sunday and sometimes after work, but she's usually sundowning…
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My Long Boring Story ….
Being from Canada I was lucky to find this wonderful Forum where one can express their inner most thoughts. Having said that, I feel that i will be able to relieve some of my stress by putting pen to paper to relieve my stress. I am 75 years old and my pretty and physically fit wife is 70. I had a good job and my wife ran…
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Dad is convinced my mom is leaving him
Hello, I am new to the forum. My stepdad has had early-stage Alzheimer’s for several years but now he has suddenly taken a dramatic decline. One of his fixations is that my mom is leaving him, divorcing him, taking the car and kicking him out of the house for another man. We have tried to reassure him many times, but of…
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Things have progressed
I haven't posted here in quite a while, but things with my Significant other/life partner have progressed recently. At first, her only problem was short term memory loss which was easy for me to deal with. A few months ago, she started sleeping all day, often 16-18 hours a day. She also was getting no exercise and was…
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Death of sibling
Friday night my DH'S younger brother passed away. He is one of 7 and this is the first to die. I am having a hard time figuring out how to tell him and what to do about wake?/funeral? Any suggestions? I did call Alz Ass and talked to a lovely gal who gave me some suggestions. Just wanted to see if anyone has gone through…
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Heavily shaking and drugs
Mother is now in a semi autonomous home, she is adapting well but now realizes that something is wrong with her .. she does not understand Alzheimer but is terrified at her brain not functioning properly , she will say ; if only I could make my brain stay where it is supposed to be , I would have no problem.. She is…
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Frustrated with the system at KP
DH was diagnosed with MCI 3 years ago after an MRI showed evidence of an old parietal stroke. He has 2 more strokes in the last 2 years and he was finally seen at the memory clinic in May. Cognitive impairment, possible early VD was the outcome. Reassess him in 6 mo. Called to get Nov appt and was told 2 staff quit and he…
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Nightmares
Hey there! I’m new here, my dad is 78yrs old and has cognitive decline. He’s starting to have more life like nightmares and wakes up really scared not knowing where he is. Has anyone else experienced this?
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Trying to Do What is Best
We are about to hit the wall with rehab discharge and getting my mom into AL instead of letting her return to her IL apartment. This is going to be very hard since her perception of her abilities and safety issues does not align with reality and she is itching to get back to her bridge games and friends. She has a left arm…
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Bible Verse to Lift You Up 10/20/24
WORKING FOR PEACE Psalm 4:8 NLT "In peace I will lie down and sleep, for you alone, O Lord, will keep me safe." Matthew 5:9 NLT Jesus' Words "God blesses those who work for peace, for they will be called the children of God." THINK ABOUT THIS Do you lose peace often? If so... What tends to make you lose peace? Have you…
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Blocking porn on laptops/cell phones
Hello All, First post here - I just signed up today. I am a part-time caregiver for my father with dementia and he has no problem watching porn when I am in the room, multiple times a day. I can hear it! My mom can't because she has hearing issues. But she sees it as well. And the psychological damage is indescribable. I…
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I think my dad is making bad decisions
my mother is now in assisted living, she has dementia. This is her second month.I asked my dad to stay away for a few days to let her adjust. She was verbally and physically abusive before being put in medication. She has a phone and calls him 10-12 times a day. He signs her out to go shopping and also takes her home for a…
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Short-Tempered Caregiver
I've been reading through these posts and I see a lot talking about the PWD getting angry, but I didn't see anyone talking about situations in which the caregiver is short-tempered and yelling at the PWD. My mother's primary caregiver is her husband who is not physically abusive to her, but is very short-tempered (always…
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Journey continues
Hello all. I cant believe it has been 2 years since my first post on this forum. The journey continues. Mom has been in what I feel is a good memory care facility. The staff genuinely appear to truly care about all the residents and do the best they can. Most visits she will talk very little and no context when she does.…