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Coping
Hello. This is my first time ever joining any type of support group for anything. I am normally a very private person and have been debating for months on how to cope with the fact that my father has been dealing with memory issues for the last few years now. It’s really hard for me to see him so confused and repetitive.…
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Boredom
So it been almost 8 months since a moved my dad in. He still thinks he’s visiting. I work a time job from home and mainly the sole care giver for him. When he first got here his sleep pattern was off and he would sleep till 2pm if I didn’t wake him. He’s timing has recently changed which I feel is a good thing and now he’s…
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mom wants to go home
what do I tell my mom when she repeatedly wants to go home, cries, says she wants to die, it's heartbreaking
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MC just for meals
Hello All I heard from the Director of Nursing and they are moving my Mom to MC for meals. To assist her with feeding. Yes, my mom has been having issues with feeding herself . Is this "normal"… to be honest, I don't know what is normal anymore… but is this usually done? Will full time MC be next? Thank you
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New Here - Caring for My Mother
Hey everyone, I just found this support group website. I'm currently 32-years-old and caring for my 52-year-old mother who has early Alzheimer's. Does anyone recommend or know of a place I can find a social worker to help me out here? I'm supporting her financially, and I need to find a safe place for her to live. Thank…
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Financial crisis in the making part 2
I had posted here a couple of weeks ago. You are all so wonderful to have given me advice, which I am following through on as well as I am able. My dh is not able to make sensible decisions about money and his healthcare. He needs to see his neurologist and his primary care doctor. He has an appointment for the neurologist…
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Grief after loss of mom with Alzheimer’s
Hi there, new to the support forum and hoping I can find any whom are dealing with the grief of losing a mom to Alzheimer’s. I was her sole caregiver for nearly 7-10 years. I’m hoping there’s some other Alzheimer’s daughters out there. How do you handle the combined grief, trauma from caregiving and near debilitating fear…
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New guy
My first post here: my wife’s diagnosis is not confirmed, but the progression is not good. We’re both 77, still in our own home and on our own. Kids are sympathetic and eager to help, but they live at a distance and have their own lives anyway. My wife was a great teacher, and she has many colleagues and former students…
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Caregiver for parent diagnosed early in life.
Hi, My mother (60) was diagnosed with Alzheimer’s early this year. It’s been a big change for her of course but I am now her sole caregiver (F25). Running her life and taking over her finances. love my mom and I am so grateful I am able to be with her while she still is in the early stages. But I am struggling with getting…
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Leqembi Concerns
I have read the posts on "The Problem with Leqembi" and recognize that it's no silver bullet. However, my DH with ES read in the newspaper about its FDA approval and wants to try it. He asked me to make an appointment with his neurologist next week. Background: DH is 84 this month. He was first evaluated in 2018 and…
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Showboating?
Does anyone know how LO’s are capable of showboating? If they can behave differently with others, why do they challenge their caregivers in unreasonable and even harsh ways? If the brain is “broken” how do they seem to temporarily “fix” it in front of others?
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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The dementia routine
I know all of our journeys are different but many are scarily similar. My husband has no initiative and does the same pattern everyday. His day is focused on eating and going to the bathroom. Other than those things, (which seem to occupy a great deal of time everyday), he would just sit in his recliner in front of the TV.…
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Overwhelmed and not sure what to do.
Hello, I'm new here. I joined because I need advice on how to help my mom. She's eighty years old, started showing signs of dementia and possibly some other cognitive issues over the last three years. A bit of background; My mother's reasoning has always been questionable since she was a child but it was dismissed as -…
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Time shift
My mom has Alzheimer's and seems stuck 31 years ago when her step dad passed away. She keeps insisting on going to the funeral home and make his arrangements. I have tried everything including telling her I have already done it to he's been gone for many years. She gets angry over it. Not really sure how to handle this. My…
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Guilt around visiting MCF
Hello, I’m a new member and I was referred by a Dr. to connect with some others going/gone through it. I am in my early 30s and I cared for my mom for ~4 years at our family home before it became too difficult for me to care for her. I didn’t have the skills to provide the care she needed nor the mental strength. I was in…
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Getting very difficult
Hello, my first post. My husband has moderate Alzheimer's. Officially diagnosed last year but it's been going on since about 2017. He has no short-term memory at this point. He had emergency triple bypass in 2021, and it progressed a lot since then. Goes to Adult Day Care three days a week and he's in his third year. He…
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Caretaker for parents with dementia
Both of my parents have dementia. My brother is autistic and we found a residence for him. He moved 2 months ago. My father has rage outbursts b/c my brother isn’t home. I want them to speak with each other. However I’m afraid of the chaos they will cause demanding that he come home but it’s not safe for my brother to live…
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Marijuana for aggression?
Has any caregivers had doctor prescribe marijuana for LO with agressive behavior? If so, did it help?
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Scam phone calls
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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When is the right time to intervene?
Hello, my mom is 76 and has been living alone for a little over 10 years after losing my dad. She has heart disease along with artery disease from genetics and smoking 2 packs a day for over 30 year......damage is presenting now. Most of the time she doesn't know what day it is, she can't do her bills or sort her meds…
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Incontinence
Has anyone had success using a wireless floor mat alarm? If so, where did you purchase it?
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Hypersexuality
My husband talks about sex constantly, uses language he never used before, and is grabby like a teenager ( he's 72). I am not dealing well with this, I see him differently now that I am his caretaker and he is incontinent and hates to shower. I usually change the subject but it's making him upset.
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Easy website for answering questions about my father's condition
My father has had Alzheimer's Disease for the past 7+ years and has progressed into a later stage. I've had lots of questions along the way and I'm finding it really frustrating to search and visit lots of websites for simple answers. Just discovered pfizer has a new website that answers questions. I put in some questions…
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Getting desperate
Hi all. I care for my partner who has dementia and has only just recently been diagnosed even though it has been obvious for two years. He has no idea of the day/date/year nor even the season. He goes to daycare three days a week, thank God, but it's costing us a fortune. My main problem is he's so nasty now, and a…
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outings
Is it helpful or harmful to take the person for a ride or to a relatives home for a few hours when the person with dementia wants to "get out of here". Will returning to the facility be even more upsetting?
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DH has the flu
My husband is stage 6. Started coughing, fever- I took him to the urgent care today, yes he has the flu. It seems his dementia has gotten so much worse when he started showing flu symptoms. I’ve heard that can happen. He has had 2 bowel accidents today, very unstable on his feet, talking to himself. The dr said the…
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Need good doctor for mom
We went to neurologist today have meds we are starting for mom with alzheimer. The neuroligist is a busy guy so can't be her regular doc. I would like suggestions of a good primary doc for mom who can oversee her health meds or work with elderly. Any names of good docs out there in twin cities or surrounding area.