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First post
My wife age 66 has Alzheimer’s. As you have to make decisions such as taking her car away… she is very upset and doesn’t understand why.. what is best way to explain why since she still thinks nothing is wrong with her
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PWD Reading with a Tremor
Wondering if anyone has found a device of some sort that I can place a newspaper or magazine on so my DW can try to read. Her family has a genetic essential tremor and the dementia has made it worse from her. She's always liked reading magazines and the newpaper, but her hands shake too much now for her to hold it. If I…
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Overwhelmed was a while ago…
I’m new here. Thank you for being here! My sister and I take care of my mom at home. Who can tell what stage? She was diagnosed about 4 years ago. Dementia, Hydrocephalus, diabetic. My mom is not mobile, she cannot feed herself, she has someone with her 24/7. It’s the hardest thing ever but I don’t want to be anywhere…
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Mom needs help
My Dad, with VD, has been in AL under hospice for 4.5 months already. My mom has AD and has admitted that she has difficulty paying bills and gets frustrated when she doesn't understand things. As POA, I can take over the finances and any legal matters. I thought Mom was still competent handling finances but now she wants…
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Choosing a MC
I put my DH in a MC in August of 2024. Once he was there he began to progress rapidly. Today he is mostly agitated and aggressive - they continue to try to find meds to help him. When I chose the MC he was in I really did not do my due diligence. I opted for the one he is in because it was close and the staff seemed to be…
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Update on bringing him home
I brought my DH home from MC a month ago, after he had been there for a year. So far it is going reasonably well. It's tiring and stressful, of course, but nowhere near as bad as it was a year ago. Between new meds and, probably, the progression of the disease, he is calmer and easier to redirect. He's usually sweet and…
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Distract/Defuse
Really in the weeds today. DW in an obsessive loop of anger about her iPad not working properly. Often happens because she gets lost in some obscure site. The tablet often keeps her occupied and happy, but it’s also a curse! Someone helped me with those “Absolutes” , but I’m really at a loss many times on how to get out of…
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Hallucinating
HI - I am new to this. My husband has been diagnosed with Alzheimer's. Yesterday he told me he saw a man outside our house and wanted to know who and why. In the back of his mind, he thinks I am seeing someone, which I would never do. I am with him almost 24/7 accept when I go to the market or run errands. When I do go, he…
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67 and diagnosed with ALZ 2 years ago
Would like to find others to converse with in the Del Mar area. I retired 2 years ago due to ALZ. Finding it lonely since husband works and I no longer drive. Either in person or online. Thank you.
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Act Normally as if Nothing is Wrong
My wife is a solid ALZ Stage 5. She can no longer cook, drive, use her computer, use a phone, repeats the same questions again and again, and many other things. She is totally dependent on me and she wants me to be with her 24/7. I can't leave her alone. However, through it all I have treated her as if nothing is wrong and…
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Foot amputation
My 71 yo DH is stage 6 and has lived in MC since Sept. 2024. In November, a podiatrist clipped his toenails. A few days later his big toe developed gangrene. I took him to the hospital's wound care center and they tried to clear up the gangrene with Santyl, but it didn't work. The gangrene spread down the toe. A Doppler…
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Bizarre medical episode
I wanted to post what happened to see if anyone else has a LO with AD who experienced this odd condition. My mother has AD. She lives in MC. The staff discovered Mom sitting and murmuring gibberish Monday after breakfast. Her BP and oxygen levels were both extremely low. They called the paramedics and Mom started…
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Teeth pulling
My mother has alzheimer's I say mid stage, but her Dr has never stated what stage. Anyway, she has been telling me for a few weeks that I took her to a dentist that ground all her teeth down to nothing and now every time she runs her tongue around in her mouth all she feels are broken teeth. Well since I know this never…
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VA - Veteran benefits
Just wanted to give an update on possible Veterans Benefits. Service connected disability: File for it if the Veteran meets the qualifications. There is a list of diseases that are presumptive for Agent Orange. Parkinson's is on the list and I believe Alzheimer's & Dementia should be. I would file for Social Security…
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I feel as if I’m suffocating…
This is my first time writing on any discussion boards. When my dad was first diagnosed with a brain tumour leaving (FTD) in 2018 it left just short term memory loss. Since in he was 59 and still active and working at the time. The main focus was doing all the mri making sure the tumour didn’t come back . We didn’t really…
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Easy to use TV for alzheimer's patients?
My mom struggles with using the TV remote to watch TV. We currently use basic cable but she cannot remember which buttons navigate what. I've talked with the provider and we have the simplest package they provide. I can do a streaming service for her it it contains several channels she like to watch and is very easy to…
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Shoulder replacement or not?
Hi guys, my first post. My MIL (82, Alzheimer's, Parkinson's, Cancer survivor) needs a shoulder replacement surgery due to arthritis caused by a rotator cuff tear. The surgeon said to get any invasive procedures done before two weeks before the date, so I took her to the dentist to have her teeth cleaned. It was a…
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Always feeling guilty and I feel guilty about that too!
This disease is so terrible and leaves you feeling guilty no matter your best efforts. Mom is in AL and my brother and I each visit a few times a week. It breaks my heart that she is always in tears and saying “i just want you to stop moving me”. We never argue but try to say we are working on it or simply I am sorry. I am…
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Gene Hackman's death
This is a sobering story for caregivers. We have to think about what would happen if something terrible happened to us, who would care for our loved one with dementia? Do you have anyone who checks on you regularly? I heard of one case in which the wife caregiver had a serious fall and broke something. She couldn't get to…
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And now cancer along with everything else
We have just been told that DH has renal cell carcinoma. We have a visit with a specialist in a few weeks. I really just want to know what the prognosis is for his cancer. He has many other health issues in addition to Alzheimer's, so I do not expect there to be a cancer treatment that would be warranted. I want him to be…
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feeling sadness and panic and heartbreak seeing my mom like this
She was failing at home, seeing things, getting a bit dangerous, not able to care for herself etc so we were lucky to get her in a home. She has not liked it, tried to escape, fought a little bit to get out, but then got weaker so not as mobile. She has been going downhill so fast. She is weak and crying and moaning. They…
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medicaid
I am currently in the process of getting medicaid for my mom. She got approved and got the card; however we now need to set up a pooled trust. Do people do this on their own, or does everyone hire a lawyer?
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Husband
I’m new here and desperately hopeful I can connect. It’s been about 7 years for my husband diagnoses and lately he is sleeping a lot, has trouble finding words and forgetting almost immediately. Not sure where to turn for information on his progression. Thank you in advance
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new to group
My DH was diagnosed 3 years ago with VD, he also has diabetes..When I look back, I know it started sooner. He is progressing and I am facing new challenges like driving, of course I have the keys but everyday he will ask.
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Had to step back
Long story short, I live long distance from an aunt with dementia. She has family who live near. When it was discovered aunt had dementia, family expected me to take care of aunt. Move in and handle everything. Everything was dire. The family didn't want aunt alone for a second. I did what I could and explained I couldn't…
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New-ish diagnosis
My father has been diagnosed with MS ALZ and it is clear that the disease is progressing rapidly. What do folks do when the families cannot afford in home care or facility care? His insurances only will cover certain things. He cannot be home alone anymore. Any tips/advice would be appreciated so much we are desperate 😔
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Leqembi infusions
We're looking into getting my DW on Leqembi infusions. Can anyone using this Med tell me if it works or causes more harm?
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Rapid Progression
The progression of Alzheimer’s can jump suddenly. My wife was diagnosed in July 2016. Her rate of decline stayed fairly steady until last December. In memory care, she walked 12 to 18 hours a day, she could feed herself, and she talked a lot of word salad. In the middle of December she was hospitalized with a urinary tract…
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Showers
My DW believes that she showers often but does not. Gets super offended when I mention it. Any thoughts on how to approach the topic?
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Grand tour
On My lunch break today went and visited the possible facility for my bf (45yo eoa, stage 6). I cried my whole drive there kept it together while walking up to the office then when asked how i could be helped the tears just fell. I did manage to get my words out. The lady who does the admissions was on lunch. Then as I was…