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The Velveteen Rabbit
45 years ago today, the priest added this reading to our wedding ceremony from a children’s book, “The Velveteen Rabbit” by Margery Williams. My sister read it at the ceremony. I happened to come across it on the internet and was thinking how much of a deeper meaning it has now. "What is REAL?" asked the Rabbit one day,…
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Milestones…
It’s been a while since I’ve had the chance to pop in here. In the grand scheme of things, I feel pretty fortunate with how my DH is faring well since his neurologist used the word “Alzheimer’s” as a diagnosis in August, 2023. However, I can’t help but look ahead and prepare for future progression and how much things will…
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Tales from the texts...MC and guilt tripping.
I'm just putting this out there to see if anyone has had a different/better way to deal with the situation I am in. As background, my DH entered MC about three weeks ago. We have been told not to visit for the first month or so. He seems (from the reports my DS and I are getting from MC staff) to be doing quite well, but…
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Just starting this journey
Newbie to this site. I started noticing DH memory slips about 6-7 yrs ago , attributed it to stress. Then starting questioning cognitive slips for about 3-4 yrs with it beginning to get worse. We finally got a diagnosis from PET scan showing consistent with Alzheimer’s. He is 57 in great physical shape and I am 53. I would…
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Ex-husband care
My ex husband is living with me and he is not diagnosed but I have no doubts. There is no one willing to take him on and not sure what my legal status is and what should be steps to take.
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Ghost/seeing things
Does anyone see ghosts I see white flashes constantly when I am sitting in my chair at night. And occasionally I see shadows today waiting for my wife at the Dr I thought I saw something walk in front of the car.
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Off topic -- I got to see the Northern Lights - couple of photos
It was dark enough and I stayed up to see them. I didn't get to sleep until close to 4am because it took awhile for me to calm down from the excitement. 🙂
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support for adult grandchild caregiving a grandparent
Hi! Are there any online or telephone support groups or other connections happening for adult grandchildren who are the primary caregivers of a grandparent with dementia? Thank you. ❤️
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Not Sure How To Cope Or What To Say
Hi everyone! I'm looking for some advice from the collective brain out there. My mom's dementia had been fairly slow to progress over the last several years….until she turned 90 a few weeks ago! For some reason, it seems like it triggered something, though I'm sure it's just a coincidence. She's suddenly having moments…
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Help with "story" to get Mom to MC this Thursday
Taking Mom to MC this Thursday. She does not know about it. I see no positive to telling her about it beforehand. She is certain she is fully capable, but she is not. It is well past time for her to have 24 hour care. All of us are still working so cannot provide the 24/7 care she needs. My problem is how I'm going to get…
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Confirmed diagnosis
My mother has an official diagnosis of dementia, what kind I do not know yet .. the doctor seemed to have the information in the chart but this was my first time attending my mother’s doctor appointment. over the past year has depended a lot on my father for answers , to include her birthday at times but didn’t really…
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Bathroom
hello! Recently my dad who has EO has been waking up in the middle of the nights to use the bathroom and he has been unable to find the toilet. Causing him to pee on the carpet and honestly anywhere except the toilet! Any advice? I’ve thought about the alarms to wake me up when he gets out of bed but I’m looking for…
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Child has dementia
I have a very dear friend whose daughter is 25 and was diagnosed eight months ago with dementia. My friend has been trying to find a support group for other parents who have children with dementia but she is unable to find anybody else. She feels extremely alone in this difficult time. Does anyone know if there is a…
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another delusion question
Are delusions usually constant all the time or do the same delusions come and go. My wife has delusions about me but sometimes she doesn't seem to think these things and then the next day or two she believes them again. Do these delusions come from past fears or experiences from earlier life, even childhood, or are they…
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Tips for usefulness
Any tips/suggestions/things to do to not feel powerless against this disease as a caregiver?
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Won't answer the phone
Hi Everyone - My mom is in assisted living, my Dad moved into AL in February of 2023 and then my Mom followed him in April of 2023. It wasn't safe for her alone. My Dad is in advance stages of Alzheimer's and hospice has been on the case for close to a year now. He's doing well in AL. My mom suffered a TIA last month and…
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Forgetting people
Has it been your experience that once people are regularly forgotten, the memory is gone for good? Two days in a row, MIL couldn’t remember how many times she had been married (once) and to whom. Yesterday, I showed her photos and she was able to recall her marriage. But tonight, even when my spouse showed her early and…
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In Home Respite Care
I am the sole caregiver of my soon to be 98 year old mother, who was diagnosed with dementia 14 years ago. As I'm sure most of you are/have been in the same situation, I've been unable to attend major family events (births, graduations, funerals, parties, etc.). Over the years I have contacted many…
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Moving to MC
Is there a time suggested to discuss a move with my wife. Some have said in advance of the move others says just wait till you’re at the facility moving in. Help
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So Many Emotions
It's finally happening. I'm leaving my mom tomorrow after brunch. I'm driving 1000 miles back to my home. I'll have been gone a measly 6 weeks but it seems like a year. I can't wait to get back to my life. I'm terrified, so so sad, and feeling very remorseful. I'm also looking forward to a break from the responsibilities.…
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Parkinson’s dementia
my husband has Parkinson’s and he is having hallucinations. He believes there are people in the house and that I am conspiring with them. I have been called filthy names and he has threatened to hit, kick or kill me. How do I deal with this? I am getting little sleep and my patience is wearing thin. Thankfully he is unable…
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I believe my mother may have Alzheimer’s.
My dad is 82 and in good health. My mom is 77 and my dad and I believe she has Alzheimer’s. She will not leave the house and refuses to see a doctor. She sleeps throughout the day and gets up around 7-8pm. She argues with my dad and blames him for everything she’s feeling. This goes on almost every night until 4-5 am. She…
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Palliative Care vs Hospice Care
Although I’ve research via the Internet and searched this site extensively, I’m still not clear on the difference between palliative and hospice. If “who pays” and “chemo/radiation/targeted therapy/surgery” is removed from the equation - what are the primary differences between palliative and hospice? In hospice, would at-…
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A YouTube Interview with Our Own Lickety About Her Film & Blog!
Hey, folks, it's a GREAT interview with our own LicketyGlitz about the journey of caregiving, her blog, her new film, and the wonderful fellow caregivers she met through this forum. https://www.youtube.com/watch?v=kGMEvsjBhdE
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For Jo C
I’m thrilled to see you are back online, and that you are in full volunteer mode. The new folks here have not had the benefit of your wisdom yet. 😊
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Social Security Office experience - Need to vent...
Oh my goodness. My experience with going to social security for my DH56's disability was the thing that broke my LAST nerve. I completely LOST it on the way home. I was crying so hard I could barely breathe. I had all I could do to compose myself as we left that useless office and walked to our vehicle. And, of course, as…
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SLUMS test
I just took the SLUMS test and got a 26 - Mild Cognitive Decline. Does that automatically lead to dementia or is it just normal aging?
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Being trans and caring for someone with Alzheimer's
Hey all, I am new here and looking for some type of support, but am unsure if this is the right place? I am a transgender person early-ish in my transition and my grandmother/best friend has been diagnosed with alzheimer's for around 2 years now. As my transition has progressed, so have her symptoms. Some of my family has…
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How do I take away hobby supplies?
My close friend has Dementia and wants to keep sewing but keeps taking her machine apart, or breaking needles, etc. I go to her assisted living apt and fix the machine but it is down again the next day. She was an avid quilter but can no longer keep it going. She will take the needle out and then claim someone else did it,…
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Just need to talk to my friends (192)
Hi, Hope this works. Maybe we can just go to page 20 and start a new section so we can get to 200. It's sort of rainy here today - had a shower about noon and there's still a little drizzle. Hope we can get more rain later today. Ron, I hope things are going all right for you. Post and let us know what's happening - at…