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Don't know what stage my DH is but quite frequently he will look at me and ask where his uncle is or if he went home or if he went to bed already. His uncle died long before I met my DH and we have been married almost 40 years. I know who he's talking about. I usually just answer him that I'm not sure or yes he's already…

My husband had been diagnosed with Mild Cognitive Impairment and we are being advised to begin infusion treatment. The challenge is that we are snowbirds living half a year in Florida and the other half up north. Has anyone had experience navigating this type of situation where the 18 month treatment is coordinated between…

DH was diagnosed with FTD Semantic variant. There is no treatment so is there still a need to be followed by a neurologist? I am unsure what the benefits would be if there is no treatment. What have you all done?

My DH received his alz diagnosis 5 mo ago. He is no longer driving but manages most of his ADL’s & putters around our small farm. Most of my caregiving at this point is around appointments, finances, cooking, groceries, mostly typical household things. I can be away from home altho I try to spend as much time here as…

I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…

Dear Friends, I wrote this on July 9, 2025: There is a beautiful woman here making dinner for us. She asked me how my day went today. The kitchen smells so good with dinner on the stove. She put her arm around me and gave me a kiss. It is so nice to have a wonderful wife who really loves me and is here to support me…

Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…

It’s been 4.5 years since my dad died and I became caregiver for my mom. At this point we’ve fallen into a rhythm (of sorts), she’s settled in MC, but it’s sad and hard and financially scary and I feel sorry for myself. Almost all of my free time on weekends goes to her. I feel guilty for even complaining. I dread seeing…

My wife was recently diagnosed with Alzheimer's but it seems fairly advanced. She was prescribed Rexulti to curb her agitation and sundowning that seems to help but she still falls back into "Who are you. I'm not married to you. Why are you here." What a awful disease this is! It's really tough being a caregiver for my…

Hi all, my DW was recently diagnosed with Alzheimer’s at 68 y.o. We are both in disbelief due to the way this has been handled. The APRN who has been the contact for this has only been out of school for 2 years. Yes, she had a PET scan showing the presence of amyloid plaques. No Tau tangles. Some slight decline such as…

Hospice ordered a hospital bed and a wheelchair for my DW today. Her progression has been so rapid all through her disease, that I imagine she will be bed bound by the end of January. Who knows if she'll plateau or keep her breakneck pace. It has gotten me thinking more concretely about her end of life and how I might be…

Hi, I'm 58 yrs old and been caring for my mom and dad full time for the last 3 and a half yrs. Mom has alzheimers and dad had dementia. We lost him 2 and a half years ago. I seriously dont know how I've done it, not lost my mind that is, this is very hard, probably the hardest thing I've ever been through as I'm writing…

I still have my husband at home after an abortive 2 weeks placement when I brought him home because we were both so sad. I still plan to place him since at some point he will be chair bound (really bad knees, bad balance, and firmly in stage 6). One reason for doing so is not being trapped in my house, especially in a hot…

My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…

My wife is at Fast stage 6D/E. I just received a letter from her doctors saying she lacks the ability to make her own decision. This is hard to take in and process. it's final she will never be coming home again. I've mentally known it, but until you get the formal letter it didn't really feel real. At this point it's just…

Hi, My father was diagnosed with alzheimers in August of 2025. Its been really rough mentally and emotionally. It's hard to watch my mom struggle with my dad. It sucks that the Dad that I known and love is no longer the person I know. What have you done to cope with this change in your life?

I’m caring for my 85 yo husband. As far as I can determine he is moderately affected: able to do adls, able to walk slowly due to chf. Short term memory gone—less than 10 minutes. Orientation limited. Does walk alone around the block. However, his personality has changed. He has always been explosive when angry but…

My wife and I will have been married 62 years in March. Throughout our marriage, we've had our up's and down's - so much so that we're now to the point of having lost the spark that generated the fire so many years ago. Her mother had Alzheimer's and the fear of the disease has prompted my wife to ask me several times if…

Hello. I am finding more and more that my DH can not entertain/challenge himself when I'm not there to schedule things for him. Has anyone ever hired a specialist to come to the house to do work that stimulates the mind? Kind of like a tutor? My DH is in the early stages of Alzheimer's and I don't want to ask him to go to…

We moved my mom in a week ago that has dementia. I wish I could say it’s been a wonderful process, but it has not. It has been awful. She continually every day wants to call her brothers to come and get her and take her home she that we are in Florida when we actually are in Ohio. She keeps saying she wants her brothers to…

Hello, all. I found this group months ago, but only finished the registration process last week. All of what I have read so far has been so supportive and helpful, and I've already received my copy of The 36-Hour Day. Thank you all so much! The family (except my mom) started noticing more cognitive decline with my dad…

I'm new to this website. My 66 year old wife was diagnosed with Alzheimer's. She seems to be in later stages though. My wife was experiencing severe sundowning in the late afternoon to early evening. She was aggressive towards me. She occasionally shoves and pushes me. She once tore the iPad out of my hands and ripped the…

We started adding depakote (125mg) and a low dose of Benadryl to the serequol on Friday and I am seeing benefits. For those who’ve seen some of my posts my DW is one who is literally on her feet all day from when she wakes up till bed with temazepam. Different levels of restlessness and agitation. Mainly moderate to high.…

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Hello! First, sending a lot of compassion and energy to everyone here. For me, my mother is in the later stages of Dementia we are looking to move her into a medicaid facility where we could potentially pay for an upgrade to a single room. I am looking for resources or any discussions on financing memory care with Medicaid…

My husband just diagnosed with AD. His bloodwork “two copies of APOE4 allele were detected “. He also is on Eliquis blood thinner for A fib episode in March 2025. No recent Afib. We have upcoming neurology appointment and I have put my hopes on Lequimbi. After doing research it seems he may not be a good candidate. Then…

My 87-year-old mother is in Memory Care. She was diagnosed with COPD 15 years ago and she controlled it well with an inhaler and occasional use of a nebulizer at home before moving into the ALF. Other than COPD and dementia, she is in relatively decent health. Her facility left me a message three days ago saying "your…

We are all in various stages of this horrid disease. Some caregivers spend most of their time on their LOs needs every day. Others who aren't as far along on the journey modify the environment and provide support as needed fo LOs who are still able to do their ADLs. I'm in the later group and am trying to stay on top of…

My DH was diagnosed with MCI over a year ago, although I never felt that his neurologist did a complete evaluation. While I think that he got us started on the right path with Aricept and Cymbalta, we never got much info from him other than the MCI conclusion and now quarterly visits that just last a few minutes. I…

my wife had what we thought was middle stage Alzheimer when she fell and broke her upper femur. she had surgery and was in rehab for 20 days then brought home. she steadily declined and her doc recommended hospice. she was dead in 2 weeks. my question is does the anesthesia have a profound affect on Alzheimer patients?