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Kinto
Please read the privacy information attached to this app. I personally am not comfortable with the data being collected.
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New to this group
Thank you for accepting me to this group. My Mom is 91, lives alone, drives (not well) and has not been diagnosed but I hope that will happen this next week. Her PCP retired and she strongly dislikes the PA who took over to the point where she will not go to him. I have found an NP who has treated Mom in the past who we…
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Hallucinations(21)
Hi I’m new here. Thought I would post my situation and ask for suggestions. After 3 years of various doctors, 1 hospital stay and 4 neurologist, my mom was diagnosed with Lewy Body Dementia last week. I guess some part of me was still hoping that it was something that there was a magic pill for. I’m still reeling. I should…
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Mom Won't See Neurologist
Hi All, I'm new here and things have spiraled quickly. I noticed some fairly large red flags 2 years ago and set up a neurologist appt for her. Flew out and took her, and she was at the time willing to go, and open about things. That was November 2019. Her mother died at 69 from Alzheimer's, and was in an MC for a year or…
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Struggling with next steps
Hi all - I have read many posts and while they are comforting in terms of knowing we are not alone with this, I'm sure each situation is somewhat unique so finally decided to post my own situation. Mom was diagnosed in Feb 2021, but we had been trying to get her to see someone about her memory issues and seemingly more…
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LO with MCI who wont accept help
I have a twin sister who is getting dementia. Her main problem now is *no* short term memory. Her husband died recently and she has no children so I am pretty much it to help her. She knows and acknowledges that she has no memory and refers to herself as "addled". But she doesn't want help. I am trying to get her to accept…
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Appropriate Living/Care Solutions for people with early onset dementia
My dad is 65 and is in amazing physical health, with pretty severe cognitive decline which has presented a dichotomy that is hard to address in traditional care situations. All of his children are working full time jobs with children of our own and his physical stamina actually creates more safety issues as he sometimes…
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Packing list for memory care
We have decided to move my mom to memory care. I know it is the right thing to do for everyone (including my mom), but my heart is still heavy. My dad has been truly incredible, but the care she needs now is just more than he can realistically provide at home (even with a wonderful aide who is there 3 days a week). He has…
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Dental options/risks - dentures, implants, etc?
My 70 year old mother is in a moderate stage of Alzheimer's, and I recently moved back to manage her care. She currently lives alone in a house (though we did try to move her into AL a couple years ago, but this failed before we even got through her front door). Her teeth are in horrible shape, and one broke off shortly…
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Moving parents with ALZ
My parents both have Alzheimer's and have been in a memory care community that does not take Medicaid for the last 2 years. Their finances will only sustain them for another 14 months, and I have found another memory care community with two openings that will accept their private pay, and switch to Medicaid when their…
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An awe-inspiring story of a caregiver - helped my perspective
Yesterday I was feeling mired in stress and anger, wishing that this awful journey caring for my Dad could be over and I could be free, and I came upon this story in one of my news feeds. It is a story of a woman in Dallas whose son was paralyzed in a football accident in high school, and she dedicated the rest of her life…
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Different future needs for spouses w/ dementia
Caring for a couple from afar. Dad: Physically healthier but cognitively at level 5/6-ish. Happy demeanor. Will go along with anything (for good and bad). Decision making is very confusing for him. I am the closest family member at 3 hours away. Stepmom: Lots of physical ailments but sharper. Maybe stage 3? Paranoia and…
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Gratitude(1)
It has been years since I posted on this site. However, I still see some familiar names. My dad died of Alzheimers in Sept 2018. I spent a few of the most difficult years of my life on this site, daily. At the time my sisters and I always noticed there were "angels in our path" guiding us on the difficult journey. We also…
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Bible Verse to Lift You Up 7/8/21
LOYAL TO GOD GOD THOUGHT: 2 Chronicles 16:9 NIV “For the eyes of the Lord range throughout the earth to strengthen those whose hearts are fully committed to him…” * me: When we are stressed and overworked, that is just the right time for us Christians to ask ourselves if we still are being loyal to God in our heart, and…
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Worse than I thought
Last time I posted I noted that mom was moving into stage 6. Well, based on updates I've gotten from her care team, and a quick reference to the FAST scale, we are more like late stage 6. It seems like things have moved at the speed of light the last couple months. Mom speaks a little less. She's definitely more…
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New Member(13)
Hello, My father has Dementia & he lives with my brother and his family. My Dad is always mean to their 8 year old daughter. He upsets her. Has anyone dealt with this situation? If so, how can it be handled?
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I thought this was great survey and it shows what people do not know.
https://www.aarp.org/content/dam/aarp/research/surveys_statistics/health/2021/dementia-diagnosis-perceptions.doi.10.26419-2Fres.00471.001.pdf
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Urinary Issues
I am struggling with my husband who has Alzheimer's, Parkinson's and Lewy body dementia and hope someone might be facing the same thing. His urinary incontinence is so bad. He is not able to walk so I have to help with with an urinal. Daytimes are difficult, but we found ways to make it work to be able to do the few things…
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overflowing bladder
My dad wears pull-up briefs during the day and night. My mom has him use the bathroom before bed and has my dad put on 2 pull ups at night (one over the other). He continues to leak through them and my mom is often having to get up multiple times a night to change his briefs and t shirt and strip the bed. There are…
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Feeling tired and sad
Hi. I've been a member of this forum for a long time. My mom was diagnosed with Alzheimer's 8 years ago this month (even though we had noticed some changes a few years before that). I can't remember ever making a post of my own before today. My mother currently lives with myself and my husband and I am her guardian of the…
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MIL hamming it up when we're around
MIL had a slight mishap on our steps a week ago. Yesterday she was complaining about the pain in her leg being so bad and when DH and I helped her stand she almost fell over in pain and she got teary-eyed. We decided that she needed to go to the hospital to make sure she didn't have a serious injury but we couldn't get her…
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Adjusting to memory care(1)
My mom with dementia has lived with my husband and I for the last year. Honestly, because of COVID it was pretty easy to take care of her because we were always home. She is mobile and healthy except for her memory issues. During this time she went and stayed with my brother a couple of times when we had to be away. The…
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The end is near(2)
Well, we knew it was coming but it doesn't make it any easier. The doctor called yesterday and told my dad that my mom needs to go into Hospice. She cannot do anything for herself and doesn't even acknowledge the caretakers/staff when they say her name. It's been four years since diagnosis and 10 weeks since dad put her in…
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New here(48)
Hi all, I'm new here and wanted to introduce myself. We've been noticing some changes in my mom for the last few years, but we told it was "just MCI". Recently, we were told she now is at level 5 of the FAST scale. Most likely Alz. We feel relief in being allowed to help and also feel like we are at the base of a mountain.…
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AD killed my dad and only left me bruised and battered...
Hi fellow caregivers, My dad died in MC from an infection two months ago and we are all grateful that his illness did not last long. I haven't posted here very much but I read through the forums often and wanted to thank you all. Reading through the posts when I was having a bad day to know I wasn't alone and learning many…
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New here. Self-preservation?
Hi all. My mother is a well cared for 90 year old in a lovely senior’s residence. She decided years ago that I should be the person responsible for her, and she has basically done nothing for herself in years. I am infinitely grateful for the care provided at her residence. We have always had a difficult relationship and I…
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Need to Vent(2)
TL; DR: just a bunch of little things building up. ARGH! * Mom went to neurologist last week. No diagnosis (didn't expect one), but she is super mad at me for forcing the issue. When I try to acknowledge her feelings of frustration, she switches gears and says, "let's not fight." Passive aggressive behavior makes me crazy,…
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When you know what's best but have no approach
This maybe long. My mom is in the middle stages now. She has good time frames and good and not so good moments that all are affected by her environment and who is in it. She lives 3 hours from me and I am the youngest of her 4 kids. We have a relationship that nobody in my family understands or maybe just doesn't want to…
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No more driving
My mom was just told by her neurologist (thankfully) that she is not to drive anymore. The doctor wrote this on a prescription pad for her, and included the words "not even to church or the grocery store". This is a relief to our family, as we were limiting it to only driving when one of us was in the car for navigation…
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New here!(3)
53/f...mom is 72. She now lives with my brother who is 54. She has not been the same since dad passed suddenly at home by himself. She was in the hospital ending a two week stay due to COPD. She was strong and more than able to take care of herself, my aunt next door to them and my dad with his health issues. The moment…