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Care givers app
Anyone have advice on an app that can be shared between family members to coordinate care
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Wandering at Night in Memory Care
My dad was recently moved to a memory care center. He's wandered out of his room and into another patients' room/bed overnight twice already. My mom and I are relatively certain it's just confusion about his surroundings/where his bed/room is, but the staff is suggesting he's lonely and misses sleeping next to my mom. But…
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eye movement change as part of Alzheimer's?
Hi everyone, My mother is late-stage Alzheimer's, bed & chair bound. She still communicates in multiple ways - holds hands, looks at and speaks to others. Sometimes her speech makes sense, and sometimes it is very difficult to know what she's saying, but it's always clear that she intends to communicate (even if the words…
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Nervous about meeting new geriatric specialist
Hi All, I'm looking for feedback/advice on the following scenario (and also just getting my thoughts down): I have a video call with Mom's new geriatric specialist this week to discuss possible SSRIs for helping mom with her general anxiety (Mom's probably in stage 5 and doesn't recognize Dad most of the time which causes…
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Overwhelmed Dealing with Dad
Hello everyone. I'm Tyler. 35. I'm not sure specifically what my dad has but it seems to be a cross of several things. Dad doesn't get up to go to the bathroom, however he can make it out of his bed when he needs to go to the kitchen for a drink or a snack. We feed him three meals a day with medications given at morning…
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Hospice Rollercoaster
After a number of falls and not allowing the staff at mom's MC care for her, she ended up in a Geriatric Psych unit, which only took 3 ER visits in about 5 days. Mom spent about 2 weeks in the hospital and they did treat her for a bladder infection and get her stable on meds. When she came out, she was no longer physically…
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Cutting Back on Meds
My dad is 94 on this long slog. He takes about 12 pills a day since the Serequel, and Gabipentiene was added to his list. I spoke to the doctor and she eliminated the baby aspirin and an OTC called D'Mannose. I am going to ask her if he can come off the statin he has been taking for close to 30 years. Does anyone have…
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Three years this week
My parents have been in assisted living for 3 years this week. The 18-24 months before that brought noticeable issues, culminating in that UTI that the doctors refuse to believe existed, which allowed it to turn into urosepsis. . Since then, we’ve had the covid epidemic which caused them to be restricted to the facility…
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Pull-on Pants/Jeans for Men
My dad likes jeans and that is what he wears. We've tried to introduce sweatpants but he will choose jeans over them if he has a clean pair. As his dementia progresses he has having more trouble with buttons and zippers. So I am wondering if anyone know where I can find men jeans that are pull-on/elastic? I know I can find…
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Interesting observation to share
DW 59 years was diagnosed 13-14 yrs ago with AD. Advancement is slow but in late stage 6 about now. The past few weeks she has had chronic pain in her lower back and down her legs, spinal stenosis and osteoarthritis pinching nerves. Had to go to our local ER last Sunday and after 7 hours, tests, drugs etc. they said if she…
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Husband has Mild Cognitive Impairment
I'd like to connect with other women whose spouse has been diagnosed with MCI. While the behaviors associated with MCI are certainly far less challenging than those of individuals who have progressed to dementia, they are challenging nonetheless. It is difficult seeing a loved one struggle with things that once were…
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Guilt, questions
I am faced with putting my dad in MC. He lives alone since my sister passed in August, she lived with him her whole life. The doctor when we just visited said he should not be alone. I spend 5-6 hours a day with him. I have no other siblings and my mom has passed away too. He is aware enough to know where he would be going…
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Sharing my story... fellow caregivers: do you also feel like you're gaslighting yourself?
Hello all. It's been a long while since I've signed up for a forum. I'm happy to be here though To start, my dad is a 79 year old Vietnam Veteran. He has quite the medical history, from type 2 diabetes to hypertension and heart disease. Everything he has is very clinically apparent... but I have suspected some form of…
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Another Respite - What to tell Mom?
Tomorrow will be my second respite for several days. I've made plans and this is the last respite from the program available to me for 2022 (use it or lose it). Although, I told mom 1 or 2 days prior to the first respite stay it didn't go well. Then I told her she was going to the same facility she had gone before for…
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Alzheimer Law Allows Younger Patients to Gain Eligibility for Grants, Programs
https://www.pharmacytimes.com/view/alzheimer-law-allows-younger-patients-to-gain-eligibility-for-grants-programs
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Antifungal meds question
Hello...does anyone know if antifungal meds, such as the pill fluconazole or clotrimazole betamethasone cream, can affect a dementia patient's mind? My mother has become more difficult in the past week, and I don't know whether it's tied to the medication or just part of her dementia progressing.
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Middle of the day, aide fell asleep
Our new aide is falling asleep sitting in a chair while mom is watching TV. I'm not sure what to make of this. I'm a very understanding person and trying to not pass any judgement but I don't think that's very professional to, especially when PWD tend to wander off. I'm at a loss on what to do about this. I've not been…
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Newbie dealing with LBD - life alert system recommendation?
Hi, My Mom was just diagnosed with probable LBD. At this time she is still at home and I check in on her frequently and also have a Google Home system with cameras so I can see her when I am not there. I also think we need some sort of life alert system, where if she slips and cannot get up that she can press a button or…
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Mom with Alzheimer’s ..
Hello. New here. My mom was diagnosed at 67 with Alzheimer’s. It’s been a roller coaster ride for sure, but a couple of days ago she got lost for the first time, and actually went missing for 12 hours. I’ve never been so afraid in my entire life, and I’m still in shock about it. I feel like it was my fault for putting too…
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LO is Mom, Dad primary caregiver but downplays
Hi. My mom is 68 and has Lewy Body Dementia. She was diagnosed about 2 years ago, but I would say I've seen symptoms for at least 5 or more years. My dad is her primary caregiver, and my brother lives with them but doesn't help much. My dad recently hired a caregiver who comes twice a week for four hours, but I think my…
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Rules for a new caregiver
At the insistence of my brother's wife, because this is friend, an outside the family individual has been hired. I would appreciate suggestions for rules. I have jotted down a few such as not going into the bedrooms, basement or garage as there would be no need. She must bring her own food. I am very concerned as she gave…
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Aggression and Agitation
Hi, this is my first post. My dad was diagnosed with MIC in Spring 2021. He has declined quite a bit since then, though we have no formal diagnosis of dementia. We moved him into an AL/MC place last week. He has become quite agitated, tried to leave several times and even got aggressive with staff. All behaviors that we…
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Reaching the aggressive stage?
Mom's been... off... since Wednesday last week. She spent most of Wednesday being distraught over something and for the most part wouldn't let me get near her, even for hugs. Always acted like I was actively hurting her. I chalked it up to her constipation as I've heard sometimes that causes PWD to be a little different.…
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At the beginning of this terrifying journey
I am at the start of my caregiving journey. My mom was just diagnosed with dementia and possibly Alzheimer's, but no official diagnosis yet until she sees the next specialist. My dad is still alive, but has a lot of health issues as well, and they've just accepted the fact that they need outside help. Meanwhile I am not…
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Two Parents with Alzheimer's - only child as of two years ago
Good afternoon - I am looking for suggestions. I am an only child dealing with both parents having Alzheimer's. I have tried very hard to keep them together but a few months ago, I had to separate them and they are both in different memory care homes. My Dad was becoming increasingly aggressive and I had to have admitted…
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Overwhelmed, confused & need guidance
My DW has been on this downward spiral for over 6 years & I'm feeling overwhelmed- not sure what to do next. I’ve been trying to do everything at home. My DW doesn’t know who I am, can’t stand living in our house & wants to go home but doesn’t know where home is. The delusion of “a girl” coming into our house started out…
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Caregiver Resource Guide link
Here is a link to a guide provided during a recent caregiver webinar. https://lor.nnlm.gov/op/op.Download_Share.php?documentid=4618
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update on Peewee
Saturday night Peewee slid out bed and I couldn't get him off the floor.he laid there for an hour and half. I finally called 911thanks to this site I remembered someone said that an UTI would make him more confused. So a trip to the ER and 4 days in the Hospital we find out Peewee has lung cancer. However we don't know…
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Interviewing additional help
I just interviewed 2 agencies & 1 individual, I didn't like any of them. I am very frustrated, my daughter hasn't been able to help as much as she wants or I need her to because her husband's family keeps pulling her away. She is too nice & doesn't say no. So my brother's wife sent someone she thought would work, she was…
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Holiday staff funds at AL / MC
Hi all, I received an email about the employee holiday donation fund. The facility my mom is in does not allow tipping and so does this instead. What is appropriate? I know the fees for the facility are expensive but this is for the staff (below the director) and I know they work hard and are good to my mom. Thanks for any…