-
Today's my birthday
And it has been a good day. When I think back to where I was a year ago, it seems more like 10 years have passed. I was trying to balance home life with DH's paranoia, peeing all over the house and not sleeping and the start of a new school year that was crazy busy. I look back and wonder how I did it. DH was placed 5 1/2…
-
What should I say?(1)
My dh has been in assisted living for about 10 days. He calls me every day to tell me he loves me, and update me on when he's coming home. Yesterday, he was talking about coming home, and he asked, "Am I ever coming home, or am I here for the rest of my days?" To me, the kindest thing would be a straight answer, but I know…
-
Nursing homes and Medicare?
Hi all, Can anyone tell me if what I heard is true. I know that when you've been in a hospital and then you go to a skilled nursing facility, Medicare pays up to 100 days. But a few people have told me that if you are in an ALF and you can no longer bear weight, then you have to go to a nursing home (skilled nursing…
-
They seemed good me!
No formatter is installed for the format not-found
-
Caregiver Concern: What If Something Happens To Me?
Excellent planning information along with some useful links from Family Caregiver Alliance for Caregivers regarding, "What if something happens to me?" Just keep scrolling down the pages for some really good planning information: https://www.caregiver.org/resource/what-if-something-happens-to-me/ J.
-
Still has a few abilities
I had brought my dw a few towels but only one color and I brought an example for her. Her work isn't as good but it only has minor imperfections. For 2 days she keep counting the towels. I left this morning after her breakfast, I had to mow. I got back this afternoon and lo and behold she had a towel done. Praise the Lord.…
-
Victoria2020
Off comes my Peer Volunteer hat. Hello Victoria, after reading your Post, it is important to let you know that in no way does the Alzheimer's Assn. market; nor did MarkCuban "pay" for information to be placed on this site, nor was I involved in any kind of marketing scheme nor was the information against policy. I am sorry…
-
Touring Assisted Living/Memory Care Tomorrow
After over six years of full-time companionship/caregiving for my DW, I'm feeling burned out and have started researching care. It seems that assisted living morphing later into memory care is the best option. I'm visiting the first place on my list tomorrow. - How do I broach the subject with DW? A big fear is that she'll…
-
This feels so different
I don’t know what I expected exactly but I wasn’t prepared to feel so angry and betrayed. I found my DH on the bathroom floor last Wednesday . It was at the same time his palliative nurse was to arrive for her monthly visit. We decided we should call 911 because he complained of hurting and couldn’t sit up. He was…
-
The windows are all open now
I've said before that when I've been reading all the posts here over the years, they've been been like looking thru windows to the future. The windows don't really open for me until I've actually experienced what was talked about. I've gone thru one window into the next, and on and on from one stage of this disease to the…
-
Viagra helps with Alzheimer’s disease
Has anyone heard the research that shows that taking Viagra helps with AD? Second question - does KRG Korean red ginseng help in slowing down MCI or AD? If so, how long would it take to show any results/ slowdown?
-
Has your LO had these symptoms?
My DH was diagnosed with probable Alz and behavior variant FTD. It think it was based mainly on symptoms of obsessive/compulsive behaviors. He has never shown aggressive or violent behavior, but prior to getting medications, he was very agitated much of the time. He would be awake all night brushing his teeth, cleaning his…
-
Advice(2)
I’ve been participating on this site for six years. When it’s the one you love the most in this world, the blinders are on and you resist advice. On this site: Advice has been good. Advice has been given from experience. Advice has been hard to follow. (Very!) My advice: Buckle your chin strap and follow the advice of…
-
Anniversary gift for a chuckle
Last week was my 36th wedding anniversary. Knowing that DH would not remember it at all, my son went to the store, bought a card, and put together the necessary components for Whisky Old Fashioned. When I opened the card he had given DH to sign for me, there was a dollar bill in it. I wasn't really sure if there was…
-
Had a great day today
It's day 8 on seroquel and DW is making some positive changes. She has gone from unquestional belief in her hallucinations to questioning their realness. She still is agitated but I think it's from her brain doing a who,what,when,where,why,how and wtf ? status check it's coming up with a lot of zeros and incomplete results…
-
Viagra to treat Alzheimer’s?
I’ve heard twice now on the news of the benefit of Viagra to help prevent Alzheimer’s. I believe they also said they believe it can slow progression. Has anyone wise heard this?
-
Having one heck of a time
Dear wife woke me by yelling, checked on her but yelled louder. I haven't been able to change since yesterday afternoon. At least she is dressed When she gets up out of her chair then I can get her to bathroom-grab both hands and pull. She hollars all the way. I 'll have to get a UTI sample again to see if all clear and at…
-
DH has Covid
My husband, who had a paralyzing stroke on top of his 2015 Alzheimer’s diagnosis, now has Covid. My children and one of my grandchildren visited Monday and Tuesday at his care facility. I fed him and everyone kissed and hugged him. I got the phone call yesterday afternoon. A couple of other patients have it. Staff have…
-
Ten years of aphasia
DH and I have been married for 55 years. We were married in June right out of college and we both started our teaching careers that first September. DH was a teacher, a varsity baseball coach, a middle school counselor, assistant principal, and then a principal until the political nature of his job became too burdensome.…
-
UTI Questions(2)
I have a couple of questions about UTI. It seems to me individuals with dementia are very susceptible to UTI not saying anymore than someone else with another debilitating disease, but more so than healthy individuals. Is there a reason for this? If so does anyone no why? Is there preventative measures we can take to…
-
Agency help?
I am noticing that a lot of the help where dw is, is from an agency. The nurse for my wife is and said she had done a stint working for the facility. She said she preferred working for the agency. I kinda thought that 1030 for morning meds was late. The nurse dropped the pills and had to get moreThere are several from the…
-
Keeping my DH busy
My DH has been diagnosed with Dementia (Early Stage) for about a year now. he is willing to do anything with me that I ask - shopping, gardening and yard work, watching TV, cooking and visiting friends etc. I am grateful for this because I know from reading all these posts that it will not last. But i cannot have a…
-
Aggressive behaviors
My DH has FTD, approximately stage 5. If I won’t go along with what he wants he becomes very intimidating, locking me out of the house, trying to disable my car and going to all the neighbors to tell them how awful and uncaring I am (he uses more colorful language). It hasn’t escalated to physical violence but I am worried…
-
Medications and Dementia UCSF
Hi all, I came across this comprehensive discussion about medications prescribed for dementia patients. It seems like a good basis for discussions with prescribing docs, since it includes meds to try for specific symptoms, and those to avoid for some conditions. https://memory.ucsf.edu/treatments-stays/medications-dementia#
-
Family Caregiver Alliance Free Online Class Re Caregiver Stress
Family Caregiver Alliance is offering a free online Webinar class on the topic of Caregiver stress on Agust 31; if you are interested, the following will provide some information and provide a link to enroll: https://myemail.constantcontact.com/FCA-Webinar.html?soid=1101399948055&aid=khqLs_BIQ5k They have a wonderful…
-
I found this while cutting the grass
-
Placement in about an hour
I signed papers brought her stuff in and couldn't go to the room cause they were still cleaning it. But I feel like my life is over. Tee totally drained. I am gonna be there when see arrives so this is short and bitter sweet. If this doesn't work out, I wouldn't do it again. Hoping for the best.
-
A reprieve
My DH had been taking Memantine for at least a year and a half, 5mg in the morning and at night. I was told it was mostly to slow the progression. I never knew if it was doing any good or not. About 10 weeks ago his Neurologist increased the dosage to 10mg in the am and the same 5mg at night. Within less than 2 weeks I…
-
DPOA(1)
This is just a share from OSU ...I know nothing about it. You will need to scroll down to find the course. https://education.okstate.edu/outreach/osher-lifelong-learning-institute/online.html
-
A week in Memory Care
After rehab in the hospital for his broken ankle, I moved my DH ( 92 ) to the Memory Care section in another bldg from our Independent Living apartment. I knew I could no longer take care of him but have encountered many problems. The staff is very nice but he was there 4 hrs and fell and 2 days later he fell out of the…