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Has your LO had these symptoms?
My DH was diagnosed with probable Alz and behavior variant FTD. It think it was based mainly on symptoms of obsessive/compulsive behaviors. He has never shown aggressive or violent behavior, but prior to getting medications, he was very agitated much of the time. He would be awake all night brushing his teeth, cleaning his…
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Advice(2)
I’ve been participating on this site for six years. When it’s the one you love the most in this world, the blinders are on and you resist advice. On this site: Advice has been good. Advice has been given from experience. Advice has been hard to follow. (Very!) My advice: Buckle your chin strap and follow the advice of…
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Anniversary gift for a chuckle
Last week was my 36th wedding anniversary. Knowing that DH would not remember it at all, my son went to the store, bought a card, and put together the necessary components for Whisky Old Fashioned. When I opened the card he had given DH to sign for me, there was a dollar bill in it. I wasn't really sure if there was…
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Had a great day today
It's day 8 on seroquel and DW is making some positive changes. She has gone from unquestional belief in her hallucinations to questioning their realness. She still is agitated but I think it's from her brain doing a who,what,when,where,why,how and wtf ? status check it's coming up with a lot of zeros and incomplete results…
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Viagra to treat Alzheimer’s?
I’ve heard twice now on the news of the benefit of Viagra to help prevent Alzheimer’s. I believe they also said they believe it can slow progression. Has anyone wise heard this?
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Having one heck of a time
Dear wife woke me by yelling, checked on her but yelled louder. I haven't been able to change since yesterday afternoon. At least she is dressed When she gets up out of her chair then I can get her to bathroom-grab both hands and pull. She hollars all the way. I 'll have to get a UTI sample again to see if all clear and at…
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DH has Covid
My husband, who had a paralyzing stroke on top of his 2015 Alzheimer’s diagnosis, now has Covid. My children and one of my grandchildren visited Monday and Tuesday at his care facility. I fed him and everyone kissed and hugged him. I got the phone call yesterday afternoon. A couple of other patients have it. Staff have…
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Ten years of aphasia
DH and I have been married for 55 years. We were married in June right out of college and we both started our teaching careers that first September. DH was a teacher, a varsity baseball coach, a middle school counselor, assistant principal, and then a principal until the political nature of his job became too burdensome.…
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UTI Questions(2)
I have a couple of questions about UTI. It seems to me individuals with dementia are very susceptible to UTI not saying anymore than someone else with another debilitating disease, but more so than healthy individuals. Is there a reason for this? If so does anyone no why? Is there preventative measures we can take to…
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Agency help?
I am noticing that a lot of the help where dw is, is from an agency. The nurse for my wife is and said she had done a stint working for the facility. She said she preferred working for the agency. I kinda thought that 1030 for morning meds was late. The nurse dropped the pills and had to get moreThere are several from the…
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Keeping my DH busy
My DH has been diagnosed with Dementia (Early Stage) for about a year now. he is willing to do anything with me that I ask - shopping, gardening and yard work, watching TV, cooking and visiting friends etc. I am grateful for this because I know from reading all these posts that it will not last. But i cannot have a…
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Aggressive behaviors
My DH has FTD, approximately stage 5. If I won’t go along with what he wants he becomes very intimidating, locking me out of the house, trying to disable my car and going to all the neighbors to tell them how awful and uncaring I am (he uses more colorful language). It hasn’t escalated to physical violence but I am worried…
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Medications and Dementia UCSF
Hi all, I came across this comprehensive discussion about medications prescribed for dementia patients. It seems like a good basis for discussions with prescribing docs, since it includes meds to try for specific symptoms, and those to avoid for some conditions. https://memory.ucsf.edu/treatments-stays/medications-dementia#
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Family Caregiver Alliance Free Online Class Re Caregiver Stress
Family Caregiver Alliance is offering a free online Webinar class on the topic of Caregiver stress on Agust 31; if you are interested, the following will provide some information and provide a link to enroll: https://myemail.constantcontact.com/FCA-Webinar.html?soid=1101399948055&aid=khqLs_BIQ5k They have a wonderful…
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I found this while cutting the grass
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Placement in about an hour
I signed papers brought her stuff in and couldn't go to the room cause they were still cleaning it. But I feel like my life is over. Tee totally drained. I am gonna be there when see arrives so this is short and bitter sweet. If this doesn't work out, I wouldn't do it again. Hoping for the best.
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A reprieve
My DH had been taking Memantine for at least a year and a half, 5mg in the morning and at night. I was told it was mostly to slow the progression. I never knew if it was doing any good or not. About 10 weeks ago his Neurologist increased the dosage to 10mg in the am and the same 5mg at night. Within less than 2 weeks I…
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DPOA(1)
This is just a share from OSU ...I know nothing about it. You will need to scroll down to find the course. https://education.okstate.edu/outreach/osher-lifelong-learning-institute/online.html
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A week in Memory Care
After rehab in the hospital for his broken ankle, I moved my DH ( 92 ) to the Memory Care section in another bldg from our Independent Living apartment. I knew I could no longer take care of him but have encountered many problems. The staff is very nice but he was there 4 hrs and fell and 2 days later he fell out of the…
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Just wanted to say thanks
Just wanted to say thank you for bringing me back down to earth re: my POA thread. I understand it is a losing battle if I continue to fight. Terei suggested that my time would be better spent focusing on my new life as a single man. Although I still feel as though I'm married, I'm also sure she is right. So thanks to…
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Does anyone have experience with a patch for slowing progression?(1)
We saw the neurologist yesterday for followup. He prescribed a patch to help slow progression. I have not picked it up yet. I could not get what I felt were good answers from this dr. What med is it? Are there side effects to watch for? Etc. He just kept saying-" we do what we gotta do". Has anyone else been given a patch?…
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Something constructive to fight dementia
DW is in memory care since April 29, two years after diagnosis of AD (atypical). Alzheimer's Association walk in my area is Sept. 11. I have raised $1,750 so far. It feels like something constructive to fight dementia (along with my anxiety etc.) when the options are very limited. Keep fundraising in mind for the sake of…
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Driving(9)
My DH has not driven for three years. Today I could not drive because of a surgical procedure and he said he had a license and could drive. Looking for a kind, thoughtful response.
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I feel like I'm losing it this morning.
There are tears in my eyes and I feel very depressed and down this morning. His disease is getting the best of me. DH is constantly complaining about something and I'm the only one here he has to complain to. It's like a constant drip on my forehead and on my emotions. There comes a point where I feel so angry and damaged…
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Wife hid her laptop
One of my wife's hallucinations is a 4 year old girl taking her stuff. She will hide stuff so the kid can't find them. She forgets she hid them from the kid and furthers the belief the kid is taking stuff. I thought I knew all her hiding spots. Dressers under clothes is popular. She hid her laptop 2 days ago and I have…
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CBD interaction with prescription meds
I have been reading Hoot's question about gummies and some very helpful rsesonses, but I am wondering how they would interact with Prozac and Aricept. Has anyone seen any medical studies about the issue? Thanks
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Keep getting logged off
Twice I tried to reply to a thread, and both times I was logged off just a few minutes after logging in. Gonna try to report it.
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Has anyone just stopped with the meds ?
When my wife was diagnosed she was prescribed Aricept. She was obsessed with dying and depressed, psychotic, and delusional. She was prescribed an anti depressant. It worked for a while and it's as if her brain outsmarts the med and continues on its path. She started really hallucinating and waking up in the middle of the…
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Buggsroo
Been thinking about you and hoping things are working out. Did you get your portable lew?.
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Pharmacogenomics
I saw a discussion in the CTE Facebook group about genetic testing for the metabolism of some medications. It is used to help select the ones most likely to help an individual patient. Does anyone have any experience with this? I found a general discussion on this Mayo Clinic website.…