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So Far Away(1)
So Far Away Carole King So far away Doesn't anybody stay in one place anymore? It would be so fine to see your face at my door Doesn't help to know You're just time away Long ago, I reached for you and there you stood Holding you again could only do me good How I wish I could But you're so far away One more song whose…
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Happy 4th of July.
https://youtu.be/51ZPp5F5drc Try to have a nice week-end.
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VA compensation for dementia?
My DH is disabled vet because of 52 years of diabetes, acquired during his military service. He also has been suffering from a damaged retina, caused by the diabetes for about 20 years. He has vascular dementia, no doubt caused by the diabetes (stage 5 of dementia according to Tam Cummings assessment tool). As a…
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Anyone have experience with robotic therapy pets?
At my wife's MC facility a couple of women have toy dogs and cats that look, move and make sounds like real animals. They respond to touch, barking or meowing and the cats even purr with vibration. These residents carry them around lovingly and obviously enjoy loving their pet as though they were real. Other residents are…
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Jo - about our son -WAY OFF TOPIC
As you probably remember, he is mildly mentally handicapped, and is bi-polar. He is taking his mother's death exceptionally hard. He has been delusional again, thinking everyone is out to get him. I am the only one in our large family that he doesn't think is working with the police to have him put in prison. People are…
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My money
DH who was diagnosed with dementia a year ago, has always been very possessive about money. During 36 years of marriage, I have taken care of him, cook, clean etc. Past year since diagnosed, I am the sole caregiver. He is the breadwinner. It upsets me greatly that he doesn’t include/ consult me in making any financial…
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Suggestions needed
For the second time in a week my DH doesn’t understand why I’m living in the same house as him. He wants me to move out as it is “torture” for him when I’m there. Today I told him that it was a holiday so I couldn’t t make any plans. I told him I would leave for awhile and return later this evening. I’m sitting in a mall.…
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How to tell DH he's going to Memory Care
DH had a hospitalization with a knee injury and gout, there's an earlier post about it. My DH is now in a rehab facility to get him walking again and more strong, so he can go to Memory Care. The nurse from MC will assess him and say when he's ready to go. It's a beautiful place close to our home. Right now, he is…
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You’re human
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About that HIPPA form
https://www.hipaahq.com/hipaa-forms-explained-privacy-and-authorization/
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Can anyone help with Attorney info?
Hi everyone, I need some advice, my hubby has early onset Dementia and has been sick since 2000. He is now 64, so he was 57 when all of this started. Basically our marriage has been pretty much me just attending to his needs since we were married in June of 2000 right before he got sick. It’s been so hard to watch him…
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sleep patterns off
DH has been sleeping off and on most of the day. When I put him to bed around 10:30 p.m. he gets up a few times during the night wanting to make coffee since he thinks it is morning. In addition to this he has explosive diarrhea from Crohn's disease ( or maybe because he is at stage 6.5 on the FAST scale) I just recently…
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M1, Thinking of You
Hello M; I have been thinking of you and wondering how you are doing and how things are going; it seems time has flown so fast and yet seems frozen in some ways. Hope you are well, do let us know how it is going. J.
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Giving back
Now it seems as though I'll have some free time, and I'd like to give back to the dementia community. I'm not sure if it's too early to consider this, or even if I'd be able to do it. But I was thinking about volunteering to give local caregivers a little free time from caregiving so they could run errands or just maybe…
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Psychotic - Seroquel not helping
Background: DH with vascular dementia began experiencing hallucinations and delusions that fueled extreme anger, threats, and numerous attempts to strike me beginning last Friday. An ER visit to check blood work, UA, and CT scan showed no organic cause for his psychotic behavior. He was discharged home with no referral for…
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Music Will Not Let You Down
Family disappoints you, friends abandon you, church lets you down, Uncle Sam doesn’t help, and the medical community leaves a lot to be desired. Basically, every single support system I had counted on has let me down in one way or another. Caring for my wife with dementia is something no one wants to help with. People mean…
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An unsettling phone call
We were very close friends with a couple from Mississippi. We lost touch with them several years ago, and when I placed Carole in MC, I tried to find them on facebook, even though I never do facebook. I had no luck finding him, but I did find his wife, and connected with her. They divorced in 1999, and she has been living…
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What's next????
Right when I think I can handle things a little longer...DH takes another turn down the rapids. We have/had an exercise physiologist come 3X/week for an hour and a home aide that comes/came twice a week for 4 hours. Last week, the exercise guy comes in and tells me that DH struck him while they were on a walk. Seems DH was…
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virtual phone call
I realized this morning that I need to develop a support network for times like this. In the past week my DH has had no idea: when my birthday was, when the last few times we traveled was, what my phone number was. He was having breakfast with friends this morning and called me (on my cell phone) to ask what my phone…
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question about careblazers
Has anyone heard about Dr. Natali I think she's a geropsychologist. I've been watching some of her YouTube videos and she seems for knowledgeable, sincere about caregivers and pwd. I've signed up on her email list and just got a email for "Fun in Caregiving" I believe it's an seminar. Has anyone taken any of her online…
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Abc123(2)
Abc I was glad to see your post on Ed s thread, however brief. Have been thinking about you and hope you are okay. Let us know when you can.
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Book “Kisses for Elizabeth “
I bought this book and just got it. It’s a very good book with a lot of common sense. I had gone back to see some older post on here and found some very good and informative post. I think the one from the lady that wrote this book was back in 2012 or 2013. I was interested in her post and decided to get her book and very…
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Hellish weekend - Next step, psych drugs
DH with VD has suffered another sudden change in behavior - likely caused by more micro-vascular stroke damage last week. Beginning Friday afternoon, he suffered a major meltdown where his paranoia, hallucinations, and delusions were in full flower. He is seeing people, whole groups of people, who (in his mind) are…
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Fell and hit his head
Reeling today as I got a call from the MC community saying my husband was up all night - going on for some time I guess- and this morning when up, someone was trying to get him to lunch as he'd slept almost all morning, thank goodness, and he got up, a bit dazed, and fell, hitting his head on a dresser. I was told he was…
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Ed1937(1)
Ed, I just wanted to let you know that I’m thinking of you and hope your well. I know yesterday must have been a difficult day and today is likely ever more challenging. Sending thoughts & prayers my friend!
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Stage 5/6 straight to Stage 8
Yesterday morning I received a call from MC. When they did checks in the morning, they found my wife unresponsive, with blood coming out of her mouth. They had her taken by ambulance to the hospital. I met Jennifer, our daughter, at the hospital. Wife seemed to be doing pretty well. She was alert, knew everybody, and knew…
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An introduction
Hi all, I’ve recently joined this forum and you can’t imagine how much help your posts have been. My DH of 44 yrs. was diagnosed with bipolar disorder about 20 years ago, and we have struggled with managing that disease, especially the depression phases. Now he has developed mild cognitive impairment, with intermittent…
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questions about hospice(1)
I am having a difficult time taking care of my 92 yr old DH who has moderate dementia. He also has had Crohn's disease for 45 years and is on medication. Tonight he had a bathroom blowout all over the bathroom floor, himself, overflowing Depends etc. I put him in the shower and before he got into the shower he had another…
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The Road to Hell....
...is paved with dementia.
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Shocked and Sad
I was so surprised today when DH did not know we’ve been together for 36 years, didn’t know we lived together and asked me what my back story was. It just seems so early. He’s driving, up on current events, etc. In so freaked out by this.