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Brain Paralysis
Lately I get chair locked where I just can't get started. I stall on just about every activity I need to do. Once I am underway I am fine, getting out of the chair is the challenge. In golf if you have too many thoughts before you swing the club you will probably stiffen up and make a mistake. This is called paralysis by…
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What to expect at the Doctor's assessment?
How does this appointment typically go?
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Non-cooperative. What's the next step? I can see it coming.
FDBF has been a little irritable and confused the last couple of days. He doesn't want to pay his bills (including rent/utilities). He wants to live in his travel trailer on his vacant land in the mountains (no utilities). He doesn’t plan on moving until the weather is better. Thankfully, his truck isn't working and he…
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stomach pain basically every day
My DH has Alzheimers along with Parkinsons. He is extremely sensitive to everything it seems. He feels hot then cold all day long. But what I am wondering here is if anyone has had this experience - of past surgeries (in his case, 2 inguinal hernia surgeries) about 6 years ago which has left him (still) with a burning type…
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Lost and overwhelmed spouse
I am new to this site, starting here as I reach out for help. My DH was recently diagnosed with the early stage of Alzheimer’s and while it seems he is still in denial it is very obvious to the rest of us. Situation is unique and extra complicated because we have minor children. I am still working full time and have to. So…
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Endless Grief
It's been over ten years since our first Neurologist examination showed the dying areas of my wife's brain. In the early stages we both grieved our loss. She would fixate on music about loss or fear of loss. We grieved together. For the last few years she has lost any insight, and mostly I grieve alone. What is so hard for…
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One of the first posts that made an impression on me when I joined
https://www.alzconnected.org/discussion.aspx?g=posts&t=2147540361
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Tomorrow I get a break
I will be out of town for 6-8 hours, don't know if I deserve a break but sure as hell need one. Son's wife will watch her. Son and I have papers to sign at CELA's in Marquette and get more info. on what comes next. After that will stop in at Memory Place in Manistique and get more information. Haven't been able to go…
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Imaginary ailments?
Is it possible for a PWD to have imaginary ailments? I took my DH to the VA on Friday. The first of four appointments was an eye exam at 8 am. In the waiting room he declared he had chest pains on the left side and was having a heart attack. Immediately we were escorted to the VA emergency room. We spent the rest of the…
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I am a mess
DH after breaking his ankle was in the hospital for 2 weeks and 2 days. Last Wed. I moved him to Memory Care in the bldg next to our independent living apt. 4 hrs after he was transferred from the hospital he fell trying to get out of his recliner trying to get to the bathroom. Now I got a call at 7:45 am that he fell out…
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This is so off topic, you probably should just skip it
Three nights ago, I went to a baseball game in Chicago with three of our kids, two sons and a daughter. Whenever I would have the game on TV, my wife would say how she wanted to go to another game. There was no way I could possibly take her. Well, for the first two innings, I did not enjoy it, thinking about my wife. I…
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How to approach conservatorship/guardianship
I spoke with an attorney today regarding my FDBF (of 12 years) and his increasing inability to handle his affairs. She suggested having a conference call with his kids (who live in another state) to discuss starting the process of conservatorship & guardianship. They would like me to continue to take care of their dad…
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In over my head
My mom had been 'ok' - moderate vascular dementia, but functioning reasonably well with help. Unfortunate family conflict has destroyed pur support network, so I'm trying my best to keep things going. Tonight, forvthe first time, mom became very agitated & paranoid about her medication, including accusing me of hiding it…
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Caring for DH is different from caring for other LOs
I have some experience in caring for PWD, as I had POA and responsibility for both my mother and my aunt at the end of their lives. And I know some of the things to expect. We had a magic stove at my mom's house that was always broken when I or another caregiver wasn't there (We flipped the breaker when we left them alone)…
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Feed back on seroquel ?
My wife's neurologist got back to us and prescribed the lowest dose of seroquel one in the morning and one at night. I would appreciate any feedback from anyone who has experience with this drug. Right now she takes lamotrigine and effexor in the morning and aricept and ambien at night. We are way past memory loss and…
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Now it can't happen, and I'm afraid of Dec. 28
This was from three years ago, and I still wanted it to happen. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147549185
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our turn for covid
Got an email last Monday that there were three cases on the MC unit and today my partner tested positive. They are NOT forthcoming about how many other cases are there but I know of at least one other, and there are cases in the AL side also. They are going to give her Paxlovid if she tolerates it but IDK if it will make…
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Question for the medical folks about covid
So my dw was tested on Tuesday Aug 16th with covid but no symptoms, Wednesday she had a fever 99.7, Thursday she was pale and washed out? When do they start counting the days for her to be released? Just wanting to be sure I understand how this works. Thanks in advance, I haven't called yet for today's update. Waiting on a…
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Missing posts(1)
I noticed that Jo said part of her posts were gone. I just checked the thread where people post pics of their LOs, and it said the last post was on Friday, August 19, 2022 9:51 PM. But when I looked at the thread, the last post that showed up was on August 17 at 12:10 AM. So almost 3 days of posts were gone. It has been…
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Where Am I?(1)
That's what DH asked me yesterday afternoon. We were sitting in the living room when he said he wanted to tell me what was happening to him. He pointed to his head and said he was blocked; he couldn't remember things. He said he was having trouble recognizing people and know who they are. I nodded and let him continue…
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Making bloney sandwiches
Having a hell of a time with meat grinder, won't grind. Did you know that the darn thing won't grind if you don't have cutter in it. Hope this makes you smile, a lot of us need too!! Hoot
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Spitting mad
I have been working on getting my dh placed. He is still independent with ADLs, but increasingly disorganized. I'm still working, so I'm concerned for him when he's home and when he's out. I found the place I want to put him, and I think they're very good. But trying to get information from the intake person is like…
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Self care easier said than done!
Hoot my DH was diagnosed about 1 year ago. I am also in recovery 31 years, but it is hard to make meetings. As a result I ended up in the hospital about 3 weeks ago for depression for 5 days. When I got home I discovered that I wasn’t taking any of my antidepressants, I knew in January I quit taking a second one my doctor…
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I need advice please(1)
My DH has this thing he does every day and it's getting worse. He says "well, i've gotta go" says he has to go home and see his mother............home has been sold many years and his mother has been dead for many years. He fusses all day about going home, sometimes he gets really angry I won't give him the truck…
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Missing My Wife
I turned 65 yesterday. And my DW didn't know. My DW of 43 years, my girlfriend since we were both 15. My other half (in the very least - probably more like 70%). She's 65 as well and lives somewhere in the nebulous "moderate" stage of ALZ, still at home with me, and is doing very well, all things considered. But, so much…
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Our daughter and my sister came over
Dw's favorite people , but DW is out of it again. Hopefully she will come out of it for a while. It usually makes a big difference when they are here. Daughter is trying to shave her doesn't sound like it is getting done. It is past time for hair to be cut BUT how. I use to trim the front but am now scared to try it. DW…
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My Dear Wife just passed
Hello Everyone, My dear wife of 43 years, together for 49, passed away from this life July 26. She had been living in MC for the last 2 years. She was a very healthy 66 year old, but developed pneumonia, and died within days of the diagnosis. Her family was by her side when she took her last breath. I was (am) devastated,…
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when do you stop doing normal things?
DW is well into stage 5. I have to make nearly every decision, frequently assist with getting dressed, assist with all housekeeping, remind or prompt her doing almost anything. Making a peanut butter and jelly sandwich is just beyond her ability to do by herself any more, even if I open jars, put out the ingredients and a…
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Male vs female patients
I am realizing that it is easier for memory care units to have female patients. My husband is friendly and social but since all the caregivers are young women he sometimes gets too frisky. He also mildly threatens them when they ask him to do things because I think he likely does not like being told what to do by a young…
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Medication questions
My wife's medical journey began with lamotrigine for epilepsy 10 years ago. Then when she was diagnosed with EOD a year and a half ago she took aricept. Approximately 6 months ago she was very depressed, couldn't stop obsessing over death. The start of delusions and hallucinations. She took effexor and that really worked…